Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Pulling at the Strings  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Pulling at the Strings  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Pulling at the Strings  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Pulling at the Strings  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Pulling at the Strings  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pulling at the Strings  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pulling at the Strings  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pulling at the Strings  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pulling at the Strings  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pulling at the Strings

2 posters

Go down

Pulling at the Strings  Empty Pulling at the Strings

Post  Sahai Thu Nov 08, 2012 7:47 am

A nurse looked me straight in the eyes 9 months ago and asked if I had been sexually abused. She only asked because, as she told me, it was required of her to do so when she found a woman in my present condition.

Only minutes earlier, I had come in explaining to her that I felt a certain pain 'down there'. It was my first time I saw a gynecologist because I grew up with the belief that I didn't need to see one until I became sexually active. That day, I was worried I had come in too late. My mind jumped to possible infections, STDs and worse things. This nurse looked me over, used only her finger and a q-tip and quickly saw how much I agonized at each small contact. She didn't continue any further. I was physically fine.

The nurse explained to me that sexual abuse can have a profound effect on a woman, physically and emotionally. It took me a bit, but I finally said yes. That yes started a journey that threw me into every possible therapy I could get my hands on. It was a bleak time. But also a time of learning. I was given the name of a physical therapy place called The Pelvic Wellness Center. I consider myself very lucky because it was just what I needed at the time to get better. They specialized in vulvodynia treatment when no one else in the vicinity did. I didn't even know it existed until I was diagnosed. More specifically, I have Provoked Vestibulodynia (or PVD).

During this time, I sought help regularly with a great therapist, a general support group, books (such as self-help and 'When Sex Hurts' by Andrew Goldstein) and an occasional drop in at a place called SASS (Sexual Assault Support Services). And during this time, I was dating a guy whom I had tried to have sex with, but began seeing problems arise in intercourse with him. My situation is complicated because I feel that once I began tugging at one string-Why does it hurt to have sex? I began to unravel bigger and broader questions concerning who I was, what had happened, how my culture and upbringing affected how I viewed certain things (such as sex) and what it was I truly wanted. I know this sounds silly now, but I thought that if I sought help, pushed through this hell, I would eventually be able to have sex with the one guy that unintentionally started it all.

A few months later, he was gone. At the time, I cried and hated my body for being so broken. I saw myself as ugly. There were many times I just could not get back up from being so low. Everything was intertwined. I was rebuilding my past. Picking up pieces of my past sexual abuse event that I minimized because it wasn't rape. Yet, noticing how much that 'small' event had run its course through my past relationships and had built up a nasty pattern. I was finding my voice. I was trying to go back and forth between hiding and screaming. There were days I kept reminding myself how blessed I was to not be going through all of this on my own. I had good friends and support. There were other days I was tired of working through the past and just wanted to live in the present as a 'normal' person.

I recall a time in the beginning stages of my therapy in which I completely rejected the diagnosis and jumped in bed with a random stranger just to prove everyone, even myself, wrong. I wasn't broken. I could do this if I wanted to. The next day, I realized how much emotional and physical pain I had put myself through. I was wrong. It continued to hurt. It felt a like a knife that pierced upwards. That must have been my lowest point, seeing as that reinforced so many negative things in my mind. If I am to string together the negative moments concerning this issue, I would string together the first time I told my mom what I was diagnosed with and how she sighed with disbelief, begging me to get a second opinion. She told me sex is difficult the first couple times, but then it gets better. I don't need to waste so much money on something so 'unnecessary'. Or the times friends would talk about their sexual accomplishments around me and I could not help but cringe a little on the inside. Or the day I decided to never have sex again. Just by saying it, I felt that something very important inside of me cried out in disagreement. Finally, the short period of time in which I saw men and sex so negatively, I avoided them altogether.

But I do want to end this story on a good note because I am no longer living in that low point. I have been through a lot and I have gotten a lot better. What has helped me for my particular situation has been the dilators, lidocaine, biofeedback, massage, stretches and regular therapy. This whole journey has been exhausting, but necessary. And once more, I want to just say I feel blessed after going through all of this because I did not have to go through many pointless treatments and doctor visits just to get exactly what I need to start feeling better.

Reading through 'When Sex Hurts' by Andrew Goldstein, I learned more about PVD. And I also read the following under a section titled 'Vulvodynia: What we know today': "We're sure that there is no single cause of vulvodynia." pg. 69. Reading through a few of your stories on this forum has shown me how diverse vulvodynia can be and that sexual abuse does not have to be a 'contributor' in having this condition. If that is the case, it makes me look back at the question that nurse asked me and wonder if she really needed to ask that. For the longest time, I thought my condition could be squarely placed at the hands of this man who did me harm when I was younger. I felt better for a while believing that to be the case because I could finally direct the rage outside of myself. But now, I don't believe I can do that. It could just be a completely unrelated pain. In the end, it doesn't really matter where it came from, all I know is, it's just a pain I will need to live with and manage.

I am feeling a whole lot better than when I started out nine months ago. But even so, my mind worries about the future. Will I ever be able to have sex with a man and not think about the pain that may come up again? Will this pain ever worsen? Can I ever feel 'normal' around other women who talk about their own great nights? Will it be easier or harder when I'm pregnant? Can I ever fully love my body, feel comfortable, confident and sexy, despite all the pain I've been in and the occasional pain that sometimes shoots up? And right now, I am not seeing anyone because I am still living under my sworn oath. I fear that even though I am now better, I will get myself in a similar situation with future men. Which in turn hasn't placed me in a confident place. Maybe it's still not time. But I wonder, when will it be time to try once again? Just another question I'll have to answer in time.

In the meantime, I am still in the process of building myself up and finishing up digging up in my past.

That's my story! Hope it helps others to know it can get better!

-Sahai

Sahai

Posts : 5
Join date : 2012-11-07
Location : Eugene, Oregon

Back to top Go down

Pulling at the Strings  Empty Re: Pulling at the Strings

Post  raquelll Thu Feb 07, 2013 4:09 am

Hey Sahai,

Congratulations on all the progress you've made. It sounds like you've been really courageous!
I live in Oregon, too! But I'm in Portland.

Anyway, I figured I'd reply since I was sitting here today thinking about pretty much every single one of the questions you asked at the end of your post. I never experienced any sexual abuse and yet I have Vulvodynia, so getting through the abuse part must be an added challenge. I definitely don't have any answers to those questions, but I just want to say that you're not alone! Hopefully they will answer themselves for us with time...

-R

raquelll

Posts : 14
Join date : 2012-07-01
Age : 36
Location : USA

Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum