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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Flares? What are they?

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Flares? What are they?

Post  BpCookie on Thu Apr 04, 2013 4:18 pm

Hi dahlings, I read about women having *flares* all the time but in truth I'm not sure what a flare is. My burning pain is pretty constant, with an a few hours here or there with out any pain and my pain lvls fluctuate but I have only had a hand full of days with out any pain. (except for two glorious months when Lyrica actually worked). So when you talk about flare ups, what does that mean? Do you have days, weeks or months with out pain? Did you always have flares?

Thanks Smile

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Re: Flares? What are they?

Post  ringostarr26 on Thu Apr 04, 2013 7:33 pm

I actually had 3 years pain free!! don't ask me how because i have no idea! But after being diagnosed it took two years to get in under control where i would have weeks without pain and then 3 years pain free. Now I'm in a flare and it's been awful for over a month. what a drag. Sad

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Re: Flares? What are they?

Post  sassy26 on Thu Apr 04, 2013 11:01 pm

I was first diagnosed with vulvodynia in my teens and dealt with it for about two years. It went away all by itself for the next 2 1/2 years. I was able to have pain free sex and felt like my normal self again. Just this past week ive been feeling that familiar burn and it scares me to think that it could come back again. I hope this is just a flare and that I will still be ok.

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Re: Flares? What are they?

Post  Sarah001 on Fri Apr 05, 2013 12:55 pm

I think it means different things to different women, I know some women on here have minimal pain daily and a flare is when that increases so they feel it all the time, for me it's when either my pelvis misaligns badly and increases my constant pain to a shocking level or when clothing irritates me and drastically increases pain so it's as variable as our symptoms. Didn't you say once you had a tight pelvic floor bpcookie? I seem to recall a conversation about it a while ago but I may have mixed you up with someone else!
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Re: Flares? What are they?

Post  BpCookie on Fri Apr 05, 2013 3:16 pm

Sarah hun, I have a bit of tightening on the upper left side. I went in for pelvic floor therapy one time and then my health ins. company refused to pay, so I never went back. I see women talk all the time about having back problems also, just like you had mentioned about your back being out of alignment. I've been meaning to see my chiro because my back has been horribly painful lately. I've had chronic back pain for 6 yrs and its only getting worse. My PS told me not to see my chiro just yet because I have been having different procedures done by my PS and if I do have pain relief, they want to make sure it was the procedure and not the chiro. *shrug*.

What you are saying about flares make sense. I don't have flares, not yet at least.

Ya know, since women speak of flares, I'm wondering if the vulva pain is connected to a Autoimmune Disorder. Like perhaps our body is attacking our good vulva skin cells? When I was seeing a vulva specialist and my vulva pain was resistant to all of her treatments, she wondered if I had an autoimmune disorder. Just a thought.

Have a good Friday. hugs
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sassy and ringostarr

Post  BpCookie on Fri Apr 05, 2013 3:20 pm

Hey girls, I'm so sorry about your flare. It must be so disheartening to go so long with out pain and all of a sudden *bam* the pain hits again.

Big hugs to you both
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Re: Flares? What are they?

Post  Sarah001 on Fri Apr 05, 2013 5:31 pm

Do you know what bpcookie, I think once your nerve procedures calm down if they don't work you should definitely go back to the chiro and get your alignment sorted out plus you could always buy Heal Pelvic Pain by Amy Stein which tells you how to treat your own pelvic floor so it might work out combining the two if your insurance won't cover the pelvic floor part. Obviously your nerve procedures might help and this might not be necessary and I'm crossing my fingers for you!
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Re: Flares? What are they?

Post  BpCookie on Fri Apr 05, 2013 10:22 pm

Thank you Sarah Sweetie!!!! My entire back is screwed up. I have arthritis in my neck and also a thinning disc, I have scoliosis in my back, I injured my tail bone when I was a teen, something is wrong with my hip and leg and on top of that I have a burning bush, LOL. Im a freakin mess. I most def. need to see my chiro. and soon. He is fabulous and I could really use one of those hard core back massages (actually its more like back torture massages) but I still love em.

Anyways, take care dahling. hugs
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Re: Flares? What are they?

Post  Alana3 on Fri Apr 05, 2013 10:29 pm

Have you tried acupuncture? So worth it

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Re: Flares? What are they?

Post  BpCookie on Fri Apr 05, 2013 10:56 pm

Alana hun, no I haven't tried acupuncture for the vagina thing just the back pain, but it didn't work for the back pain. So have you done it for the vagina pain? If so, how do they do it?
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Re: Flares? What are they?

Post  Alana3 on Sat Apr 06, 2013 4:05 am

For hip back shoulder and vag. Didn't Work for vag (well the vaginismus it did) but no vulvodynia.it helps me more now but it works wonders I couldn't even turn my neck the other day and now I can Smile idk my lady researched everything tho not to say your person didn't but I throw so many things at her and she def helps me if not im very relaxed at least lol

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Re: Flares? What are they?

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