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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


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Post  jessica1980 on Tue Jun 11, 2013 5:01 pm

HI ladies.
For months I have been dealing with vulvodynia. And like you I have had the same experiences, weeks of antibiotics, weeks of dulifican, steroids, red irritated vulva, pain using the bathroom, repeated bacterial infections, and the thought of having sex with my husband( married only 4 months when this happened...unbearable!!!!) I have been frustrated, had biopsies taken from my vulva which was $1100 and revealed only "CHRONIC INFLAMMATION." DEPRESSED, FRUSTRATED, ANGRY. So lets just say....been through it all. These threads online have been a life line to me....and some of the suggestions people have posted have really HELPED!!!!! Thank you!!!!
1.) PELVIC FLOOR MUSCLES!!!! When I first tried them I was skeptical...but what I noticed was that I was so weak down there I could hardly do 10 kegals. They hurt too! But then next morning when I woke up I noticed I wasn't in as much pain as they day before. I have been doing these daily for 4 weeks, and have felt the pain receded back from my vulva, to the muscles, and now I feel the pain on my hip bone in my lower back. (The day this happened to be I was doing yard work....straining...pulling roots out of the ground. I didn't make the connection then...and 5 days later I was diagnosed for a bladder infection...tested positive for bacteria. I now suspect...I may have pulled/ripped/torn something that day...or severely pulled myself out of alinement) I am almost certain now... this is what caused it for me.
2.) ST JOHN'S WART OIL by Herb Pharm
I have tried many topical for the vulvular pain...but this one was almost an immediate relief. If you want to try this...make sure you use the oil NOT the TINCTURE. The tincture is a oral medication and loaded with alcohol. NOT something you want to put down there. The oil is OLIVE OIL and ST JOHN's WART....it was the only way I could make it into work some days.
3.) BLADDER COMFORT by Crystal Star
This is a blend with many antimicrobial, anti-inflammatory, and soothing herbs. Marsh mellow root is especially soothing. I have taken 2 of these tablets every night before bed along with CALM- Magnesium Citrate FIZZ drink. Such a relief not to have stinging burning pain when I get up in the middle of the night to go pee.
4.) Alpha Lipoic Acid 100 mg
This is a supplement diabetics often use for nerve pain. It is also an antioxidant.

I vowed to myself that I would return the favor and share with as many women as I could what has worked for me!!!! Thank you for all of your experiences and tips!!!! Best of luck!!! GOD SPEED

Jessica Very Happy

Last edited by jessica1980 on Tue Jun 11, 2013 5:05 pm; edited 2 times in total (Reason for editing : spelling)


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Post  Delilah1 on Tue Jun 11, 2013 8:27 pm


Congratulations!! I am celebrating with you! It's great to hear that you are feeling better. Thank you for sharing things that have helped you!! Very Happy



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Post  Sebby (Admin) on Tue Jun 11, 2013 8:40 pm

So good to hear Smile

I have been thinking more about going back to pelvic floor exercises. Unfortunatly I got out of the habit when I went through depression but will deff give them ago again!

Hope things keep getting better and keep us posted.

Take Care
Sebby (Admin)

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Post  Alana3 on Tue Jun 11, 2013 8:48 pm

Just to add go to vitamin shopped they can help too just be careful with oils they can quickly cause other problems because they trap bacteria, natural oils, sweat etc. Im definitely not discrediting it if they work awesome just saying from my own experience. Isn't it crazy how we walk around in so much pain and it boils down to muscle and how we hold ourselves? That's insane! Glad you're feeling better!


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