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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


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Post  jessica1980 on Tue Jun 11, 2013 5:01 pm

HI ladies.
For months I have been dealing with vulvodynia. And like you I have had the same experiences, weeks of antibiotics, weeks of dulifican, steroids, red irritated vulva, pain using the bathroom, repeated bacterial infections, and the thought of having sex with my husband( married only 4 months when this happened...unbearable!!!!) I have been frustrated, had biopsies taken from my vulva which was $1100 and revealed only "CHRONIC INFLAMMATION." DEPRESSED, FRUSTRATED, ANGRY. So lets just say....been through it all. These threads online have been a life line to me....and some of the suggestions people have posted have really HELPED!!!!! Thank you!!!!
1.) PELVIC FLOOR MUSCLES!!!! When I first tried them I was skeptical...but what I noticed was that I was so weak down there I could hardly do 10 kegals. They hurt too! But then next morning when I woke up I noticed I wasn't in as much pain as they day before. I have been doing these daily for 4 weeks, and have felt the pain receded back from my vulva, to the muscles, and now I feel the pain on my hip bone in my lower back. (The day this happened to be I was doing yard work....straining...pulling roots out of the ground. I didn't make the connection then...and 5 days later I was diagnosed for a bladder infection...tested positive for bacteria. I now suspect...I may have pulled/ripped/torn something that day...or severely pulled myself out of alinement) I am almost certain now... this is what caused it for me.
2.) ST JOHN'S WART OIL by Herb Pharm
I have tried many topical for the vulvular pain...but this one was almost an immediate relief. If you want to try this...make sure you use the oil NOT the TINCTURE. The tincture is a oral medication and loaded with alcohol. NOT something you want to put down there. The oil is OLIVE OIL and ST JOHN's WART....it was the only way I could make it into work some days.
3.) BLADDER COMFORT by Crystal Star
This is a blend with many antimicrobial, anti-inflammatory, and soothing herbs. Marsh mellow root is especially soothing. I have taken 2 of these tablets every night before bed along with CALM- Magnesium Citrate FIZZ drink. Such a relief not to have stinging burning pain when I get up in the middle of the night to go pee.
4.) Alpha Lipoic Acid 100 mg
This is a supplement diabetics often use for nerve pain. It is also an antioxidant.

I vowed to myself that I would return the favor and share with as many women as I could what has worked for me!!!! Thank you for all of your experiences and tips!!!! Best of luck!!! GOD SPEED

Jessica Very Happy

Last edited by jessica1980 on Tue Jun 11, 2013 5:05 pm; edited 2 times in total (Reason for editing : spelling)


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Post  Delilah1 on Tue Jun 11, 2013 8:27 pm


Congratulations!! I am celebrating with you! It's great to hear that you are feeling better. Thank you for sharing things that have helped you!! Very Happy



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Post  Sebby (Admin) on Tue Jun 11, 2013 8:40 pm

So good to hear Smile

I have been thinking more about going back to pelvic floor exercises. Unfortunatly I got out of the habit when I went through depression but will deff give them ago again!

Hope things keep getting better and keep us posted.

Take Care
Sebby (Admin)

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Post  Alana3 on Tue Jun 11, 2013 8:48 pm

Just to add go to vitamin shopped they can help too just be careful with oils they can quickly cause other problems because they trap bacteria, natural oils, sweat etc. Im definitely not discrediting it if they work awesome just saying from my own experience. Isn't it crazy how we walk around in so much pain and it boils down to muscle and how we hold ourselves? That's insane! Glad you're feeling better!


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