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» Change in birth control question
Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


ALMOST GONE!!!!

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ALMOST GONE!!!!

Post  jessica1980 on Tue Jun 11, 2013 5:01 pm

HI ladies.
For months I have been dealing with vulvodynia. And like you I have had the same experiences, weeks of antibiotics, weeks of dulifican, steroids, red irritated vulva, pain using the bathroom, repeated bacterial infections, and the thought of having sex with my husband( married only 4 months when this happened...unbearable!!!!) I have been frustrated, had biopsies taken from my vulva which was $1100 and revealed only "CHRONIC INFLAMMATION." DEPRESSED, FRUSTRATED, ANGRY. So lets just say....been through it all. These threads online have been a life line to me....and some of the suggestions people have posted have really HELPED!!!!! Thank you!!!!
WHAT HAS HELPED ME:
1.) PELVIC FLOOR MUSCLES!!!! When I first tried them I was skeptical...but what I noticed was that I was so weak down there I could hardly do 10 kegals. They hurt too! But then next morning when I woke up I noticed I wasn't in as much pain as they day before. I have been doing these daily for 4 weeks, and have felt the pain receded back from my vulva, to the muscles, and now I feel the pain on my hip bone in my lower back. (The day this happened to be I was doing yard work....straining...pulling roots out of the ground. I didn't make the connection then...and 5 days later I was diagnosed for a bladder infection...tested positive for bacteria. I now suspect...I may have pulled/ripped/torn something that day...or severely pulled myself out of alinement) I am almost certain now... this is what caused it for me.
2.) ST JOHN'S WART OIL by Herb Pharm
I have tried many topical for the vulvular pain...but this one was almost an immediate relief. If you want to try this...make sure you use the oil NOT the TINCTURE. The tincture is a oral medication and loaded with alcohol. NOT something you want to put down there. The oil is OLIVE OIL and ST JOHN's WART....it was the only way I could make it into work some days.
3.) BLADDER COMFORT by Crystal Star
This is a blend with many antimicrobial, anti-inflammatory, and soothing herbs. Marsh mellow root is especially soothing. I have taken 2 of these tablets every night before bed along with CALM- Magnesium Citrate FIZZ drink. Such a relief not to have stinging burning pain when I get up in the middle of the night to go pee.
4.) Alpha Lipoic Acid 100 mg
This is a supplement diabetics often use for nerve pain. It is also an antioxidant.

I vowed to myself that I would return the favor and share with as many women as I could what has worked for me!!!! Thank you for all of your experiences and tips!!!! Best of luck!!! GOD SPEED

Jessica Very Happy


Last edited by jessica1980 on Tue Jun 11, 2013 5:05 pm; edited 2 times in total (Reason for editing : spelling)

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Re: ALMOST GONE!!!!

Post  Delilah1 on Tue Jun 11, 2013 8:27 pm

Jessica,

Congratulations!! I am celebrating with you! It's great to hear that you are feeling better. Thank you for sharing things that have helped you!! Very Happy

Delilah

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Re: ALMOST GONE!!!!

Post  Sebby (Admin) on Tue Jun 11, 2013 8:40 pm


So good to hear Smile

I have been thinking more about going back to pelvic floor exercises. Unfortunatly I got out of the habit when I went through depression but will deff give them ago again!

Hope things keep getting better and keep us posted.

Take Care
Sebby
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Re: ALMOST GONE!!!!

Post  Alana3 on Tue Jun 11, 2013 8:48 pm

Just to add go to vitamin shopped they can help too just be careful with oils they can quickly cause other problems because they trap bacteria, natural oils, sweat etc. Im definitely not discrediting it if they work awesome just saying from my own experience. Isn't it crazy how we walk around in so much pain and it boils down to muscle and how we hold ourselves? That's insane! Glad you're feeling better!

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Re: ALMOST GONE!!!!

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