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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
ALMOST GONE!!!!
4 posters
Page 1 of 1
ALMOST GONE!!!!
HI ladies.
For months I have been dealing with vulvodynia. And like you I have had the same experiences, weeks of antibiotics, weeks of dulifican, steroids, red irritated vulva, pain using the bathroom, repeated bacterial infections, and the thought of having sex with my husband( married only 4 months when this happened...unbearable!!!!) I have been frustrated, had biopsies taken from my vulva which was $1100 and revealed only "CHRONIC INFLAMMATION." DEPRESSED, FRUSTRATED, ANGRY. So lets just say....been through it all. These threads online have been a life line to me....and some of the suggestions people have posted have really HELPED!!!!! Thank you!!!!
WHAT HAS HELPED ME:
1.) PELVIC FLOOR MUSCLES!!!! When I first tried them I was skeptical...but what I noticed was that I was so weak down there I could hardly do 10 kegals. They hurt too! But then next morning when I woke up I noticed I wasn't in as much pain as they day before. I have been doing these daily for 4 weeks, and have felt the pain receded back from my vulva, to the muscles, and now I feel the pain on my hip bone in my lower back. (The day this happened to be I was doing yard work....straining...pulling roots out of the ground. I didn't make the connection then...and 5 days later I was diagnosed for a bladder infection...tested positive for bacteria. I now suspect...I may have pulled/ripped/torn something that day...or severely pulled myself out of alinement) I am almost certain now... this is what caused it for me.
2.) ST JOHN'S WART OIL by Herb Pharm
I have tried many topical for the vulvular pain...but this one was almost an immediate relief. If you want to try this...make sure you use the oil NOT the TINCTURE. The tincture is a oral medication and loaded with alcohol. NOT something you want to put down there. The oil is OLIVE OIL and ST JOHN's WART....it was the only way I could make it into work some days.
3.) BLADDER COMFORT by Crystal Star
This is a blend with many antimicrobial, anti-inflammatory, and soothing herbs. Marsh mellow root is especially soothing. I have taken 2 of these tablets every night before bed along with CALM- Magnesium Citrate FIZZ drink. Such a relief not to have stinging burning pain when I get up in the middle of the night to go pee.
4.) Alpha Lipoic Acid 100 mg
This is a supplement diabetics often use for nerve pain. It is also an antioxidant.
I vowed to myself that I would return the favor and share with as many women as I could what has worked for me!!!! Thank you for all of your experiences and tips!!!! Best of luck!!! GOD SPEED
Jessica
For months I have been dealing with vulvodynia. And like you I have had the same experiences, weeks of antibiotics, weeks of dulifican, steroids, red irritated vulva, pain using the bathroom, repeated bacterial infections, and the thought of having sex with my husband( married only 4 months when this happened...unbearable!!!!) I have been frustrated, had biopsies taken from my vulva which was $1100 and revealed only "CHRONIC INFLAMMATION." DEPRESSED, FRUSTRATED, ANGRY. So lets just say....been through it all. These threads online have been a life line to me....and some of the suggestions people have posted have really HELPED!!!!! Thank you!!!!
WHAT HAS HELPED ME:
1.) PELVIC FLOOR MUSCLES!!!! When I first tried them I was skeptical...but what I noticed was that I was so weak down there I could hardly do 10 kegals. They hurt too! But then next morning when I woke up I noticed I wasn't in as much pain as they day before. I have been doing these daily for 4 weeks, and have felt the pain receded back from my vulva, to the muscles, and now I feel the pain on my hip bone in my lower back. (The day this happened to be I was doing yard work....straining...pulling roots out of the ground. I didn't make the connection then...and 5 days later I was diagnosed for a bladder infection...tested positive for bacteria. I now suspect...I may have pulled/ripped/torn something that day...or severely pulled myself out of alinement) I am almost certain now... this is what caused it for me.
2.) ST JOHN'S WART OIL by Herb Pharm
I have tried many topical for the vulvular pain...but this one was almost an immediate relief. If you want to try this...make sure you use the oil NOT the TINCTURE. The tincture is a oral medication and loaded with alcohol. NOT something you want to put down there. The oil is OLIVE OIL and ST JOHN's WART....it was the only way I could make it into work some days.
3.) BLADDER COMFORT by Crystal Star
This is a blend with many antimicrobial, anti-inflammatory, and soothing herbs. Marsh mellow root is especially soothing. I have taken 2 of these tablets every night before bed along with CALM- Magnesium Citrate FIZZ drink. Such a relief not to have stinging burning pain when I get up in the middle of the night to go pee.
4.) Alpha Lipoic Acid 100 mg
This is a supplement diabetics often use for nerve pain. It is also an antioxidant.
I vowed to myself that I would return the favor and share with as many women as I could what has worked for me!!!! Thank you for all of your experiences and tips!!!! Best of luck!!! GOD SPEED
Jessica
Last edited by jessica1980 on Tue Jun 11, 2013 5:05 pm; edited 2 times in total (Reason for editing : spelling)
jessica1980- Posts : 3
Join date : 2013-06-11
Re: ALMOST GONE!!!!
Jessica,
Congratulations!! I am celebrating with you! It's great to hear that you are feeling better. Thank you for sharing things that have helped you!!
Delilah
Congratulations!! I am celebrating with you! It's great to hear that you are feeling better. Thank you for sharing things that have helped you!!
Delilah
Delilah1- Posts : 55
Join date : 2013-04-24
Re: ALMOST GONE!!!!
So good to hear
I have been thinking more about going back to pelvic floor exercises. Unfortunatly I got out of the habit when I went through depression but will deff give them ago again!
Hope things keep getting better and keep us posted.
Take Care
Sebby
Re: ALMOST GONE!!!!
Just to add go to vitamin shopped they can help too just be careful with oils they can quickly cause other problems because they trap bacteria, natural oils, sweat etc. Im definitely not discrediting it if they work awesome just saying from my own experience. Isn't it crazy how we walk around in so much pain and it boils down to muscle and how we hold ourselves? That's insane! Glad you're feeling better!
Alana3- Posts : 1093
Join date : 2012-09-25
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer