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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Help me please!

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Help me please!

Post  fleener on Fri Sep 20, 2013 8:06 pm

Hello:
After I found out I had an estrogen/progesterone fed Breast Cancer tumor last october - I was taken off my hormones. I was put on hormones to help this condition about 15 years ago when I had the same problem. Any way after being taken off H ...about a month later I started to get a pain along my left vaginal wall starting from the opening and going up 2 inches on that wall. I was in so much pain after sex I ended up as an emergency case at my GYN's. He put me on a regimen of estrace cream and gabopentin ointment - anti- anxiety meds and Oxycodeine. This regimen only helped a little bit. I also had some burning after urination. Is this kind of pain really considered Vulvadynia? I find it painful to sit and won't go near having sex.

Then I decided to go see a Female Doctor Dr. Zolnoun at UNC vulver/vaginal pain clinic in NC. She changed up my medication to an anti - seizure medication and muscle relaxers. When I went to see her I was sitting on ice... 2 - months later I flew back home to Alaska not having to sit on ice. (I have a sister there in NC I could stay with to keep costs down). The Doctor also gave me a pessary to insert vaginally each evening - she thought I had a muscular problem pinching on a nerve - (while at my sister's I used it and never bled from it, but when I got back to Alaska after using the pessary I would find blood in my panties. So I stopped using it. I also am having a total relapse of the pain, sometimes burning after urination. (i have tried not eating high oxalate or acidic foods). Two nerve blocks here from a pain doctor has not helped.  My Physical Therapist has told me she doesn't know what else to do with me.  I try massage and acupuncture and they only seem to help for one day. I am starting to feel I'm at the end of my rope. I'm trying to follow up with the Doc in NC - but I'm not sure what else she can or can't do for me. Help please...
Eli

fleener

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Help me please

Post  meelie on Sat Sep 21, 2013 7:56 pm

He hon, you should join the Vulvodynia Society and find a PT that specializes in vulvodynia. Just any PT is not trained in what to do or what it really is. I have found one here in Ga and praise God I think she helping me. I have been to 4 apts and she did internal "massage" last week and it actually eased the burning for a few days. I have great hope at the moment. I finally figured out that it must be due to a pelvic fracture that I experienced on 4/30/2011 and I have been sitting on my right 'cheek' since then to avoid pain and it tightened and knotted up my pelvic floor muscles something awful. I pray you and all the others will find someone to help you and that my PT will be able to get my pelvic floor back to normal soon and that it stays that way. God bless.Smile 

meelie

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Help me please!

Post  fleener on Sat Sep 21, 2013 9:54 pm

Thank you Meelie for your reply. I will see if there are any Vulvadynia PT's n Alaska...which I doubt. OR I may look for one where my sister lives (in Concord, NC).

fleener

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Re: Help me please!

Post  zarli on Mon Sep 23, 2013 11:07 am

keep trying everything you can, you will find something that helps you. Please know you are not alone and when you are feeling bad think of all of us here on this forum, that's what I do. Every one is different and it can take time to find the thing that will help you, keep positive nothing stays the same.

zarli

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Help Me please!

Post  fleener on Mon Sep 23, 2013 6:49 pm

I am trying to do everything.... -a GYN I went to in North Carolina suggested Gabopenton. Taking it by mouth - so we'll see. The bummer is - I see my friends and sisters are working at great jobs and it is snowing in Alaska - so I am very depressed about my situation. I was a TV Producer - but because of my health - not sure I'm capable of doing that career anymore....just feeling very bummed out. Guess I need to find something that will make me happy.

Thank you for your response!

fleener

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Help me please

Post  meelie on Tue Sep 24, 2013 12:43 am

I was taking Neurontin like your gyn gave you but because mine is due to pelvic floor dysfunction the burning usually went away at night when I was sleeping, laying down without any pressure on my pelvic floor. I finally realized that even with the medicine nothing really changed because even with the Neurontin the burning would start again after being up for a little while the next morning.
I only took it at night and then when I started taking it morning and night it started messing with my brain and making me feel weird like spacey or something. So I quit taking it and nothing changed. Burning went away at night and returned the next morning.
So I guess I was taking it for nothing. But, I do hope it helps you. And don't give up. My PT says she had someone come from way over from the coast of Ga that was taking it and it helped her until she had a flare up and that sent her to Laurie.
I surely pray that you can find a PT to help you. Did you join the Vulvodynia Society? I haven't renewed my membership since I have found hope but if I can get on the site I will see if there are an PTs in Alaska.

meelie

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Help me please

Post  meelie on Tue Sep 24, 2013 12:55 am

Oh crap, I just logged on and it says it will send on request medical professionals for your area. I have already got my list for the Georgia area so it looks like you will have to join unless there is someone else on the post that might be from Alaska. When you join you have to tell them where you live. Anybody out there that might be from Alaska or know someone who is a member that lives there?

meelie

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Help me please!

Post  fleener on Tue Sep 24, 2013 3:26 am

I haven't started the Neurontin yet...so we will see. I do have a PT here. She comes highly rated by a friend who use to have Lavater Syndrome. PT use to actually go inside my V and press on the muscle she thought was spasming out. The first time she did that I felt relieved of pain the next morning. But the next two times it felt more like she was aggravating the problem. So we just do trigger point therapy and gentler exercises at home - she is also looking at getting me a biofeedback machine to use at home. Thank you so much for all of the input!

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Re: Help me please!

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