Vulvodynia Support
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» Hope to all my suffering ladies
Best treatments for breakthrough pain while on medication and painful sex EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Best treatments for breakthrough pain while on medication and painful sex EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Best treatments for breakthrough pain while on medication and painful sex EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Best treatments for breakthrough pain while on medication and painful sex EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Best treatments for breakthrough pain while on medication and painful sex EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Best treatments for breakthrough pain while on medication and painful sex EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Best treatments for breakthrough pain while on medication and painful sex EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Best treatments for breakthrough pain while on medication and painful sex EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Best treatments for breakthrough pain while on medication and painful sex EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Best treatments for breakthrough pain while on medication and painful sex

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Post  Londa07 Mon Apr 21, 2014 5:14 am

I am 25 years old and have been diagnosed with Vulvodynia last year after suffering for 24 years of pain, burning and extreme discomfort. Even as a baby, I remember having to get a cold compress put on my vagina almost everyday at daycare and home. I don't feel surgery is an option for me because 100% of my vulva area and vaginal opening is affected by the pain this condition brings. Right now I am taking a antidepressant and it has significantly decreased my pain and increased my quality of life. My only problem is, the medicine only works about 85% of the time. I still have very severe "breakthrough" pain even while on my medication, especially when I am about to menstruate; the vulva pain is worse then any normal period pain  . Sex is out of the question because this medicine doesn't help this. When I attempt to have sex the penetration makes me swell shut and get infections because of how irritated I get. Has anyone else had this problem and found a treatment to assist with these issues?

Londa07

Posts : 4
Join date : 2014-04-21

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Post  Alana3 Mon Apr 21, 2014 1:53 pm

See if you can skip periods on birth control if its linked to your period maybe eliminating that problem will help Smile

Alana3

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Join date : 2012-09-25

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Post  Londa07 Thu Apr 24, 2014 4:58 am

I guess that would make sense

Londa07

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Post  Londa07 Thu Apr 24, 2014 4:59 am

Any recommendations for the painful sex part?

Londa07

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Join date : 2014-04-21

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Post  Alana3 Thu Apr 24, 2014 1:45 pm

I got a vestibulectomy and it def helped! Maybe try a lidocaine patch to numb the area (or lubricated lidocaine) but you would probably need to use a condom because his penis would go numb! Or try a Xanax to calm you down, but that probably wouldn't do much for you just help you relax more....

Alana3

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Post  lavrose Fri Apr 25, 2014 2:25 pm

Boric acid and vitamin e helped with the painful sex. Coconut oil (as a lube) works well too, def invest in a water based all natural lube. I would have never been able to have sex without some kind of lubrication..
lavrose
lavrose

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Post  Londa07 Sat Apr 26, 2014 10:18 pm

Ok I will try these out, thanks ladies

Londa07

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