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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


hi! im new to this!! :)

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hi! im new to this!! :)

Post  gem123 on Sun Oct 10, 2010 9:48 pm

hi
i am 24 and have been suffering from vulvodynia for 4 years now, i have seen gynaecologist, urologist, dermotologist,
syscho swxual counsellor, and also suffer from clinical depression this illness has made me lose my job, lose my confidence and make me put on weight through various tablets i have just been re refered to my dermotologist to see if there is anything else i we can try, i am very lucky to have a supportive boyfriend who understands but it is so painful sometimes its unbearable the pain is internal and external, it hurts to urninate and sometimes i get kiney infections too, sex is unbearable, and the list goes on i have never been on anything like this before so not sure on what more to say thanks for reading! xxxx

gem123

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Re: hi! im new to this!! :)

Post  jules on Mon Oct 11, 2010 3:19 am

Welcome, you are obviously not alone. So sorry you couldn't work and you are in so much pain. There is hope. There are many different meds out there and the research continues. I'm sure you have tried many of the treatments. I am on 2400 mgs of Gabepentin and now 300 mgs of Lyrica. I have had relief in the past so i am hopeful it will be back. This disorder has interfered w/ my working out, sex and everyday life (sitting etc.) but, i continue to fight the battle. at times it is a tough battle. different things work for different people. we are all here to support each other. Don't give up hope.

i'm happy you have a supportive boyfriend. hang in there and keep on signing in.

jules

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Re: hi! im new to this!! :)

Post  gem123 on Mon Oct 11, 2010 8:44 am

hi thanks for your reply i am on 150mg of amitriptaline 100mg of tramadol and 75mg of lyrica what is gabapentin and what is it prescribed to do, i feel like ive got a bit more fight in me just from your one comment! i am going to write a list of treatments what people have tried to show the specialist, my daughter has just been diagosed with type 1 diabetes she is only three so i need to be well to cope with that my partner has left work to care for us both but he cannot stay of forever so need to get myself sorted!

gem123

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Re: hi! im new to this!! :)

Post  Sebby (Admin) on Thu Oct 14, 2010 7:05 pm


Hi and welcome to the forum..

Yes there are lots of different treatments you can try so dont give up..my first is nerve block and Im going to get physical therapy as well after seeing how block goes.

The girls on here have lots of great advice and have helped me so much since I started the forum.

Keep fighting you are not alone and we are here to support you

Sebby
xxx
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Sebby (Admin)
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Re: hi! im new to this!! :)

Post  jules on Fri Oct 15, 2010 3:01 am

hello again Gem123.

Gabepentin is the generic name for Neurontin. neurontin is a anti-convulsant. it really did cut my pain in half when i first started. but, i had to go up to 3000 mgs. Like Sebby says..there are a number of a combination of treatments that helps individuals. i never went on ami-triptiline. it sounds like it can help, but side effects for some are not good. keep on advocating for yourself. we will find a way! yes..you need to feel good and be there for your child. we need to take care of ourselves and not give up.

jules

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Re: hi! im new to this!! :)

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