Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


hi! im new to this!! :)

View previous topic View next topic Go down

hi! im new to this!! :)

Post  gem123 on Sun Oct 10, 2010 9:48 pm

hi
i am 24 and have been suffering from vulvodynia for 4 years now, i have seen gynaecologist, urologist, dermotologist,
syscho swxual counsellor, and also suffer from clinical depression this illness has made me lose my job, lose my confidence and make me put on weight through various tablets i have just been re refered to my dermotologist to see if there is anything else i we can try, i am very lucky to have a supportive boyfriend who understands but it is so painful sometimes its unbearable the pain is internal and external, it hurts to urninate and sometimes i get kiney infections too, sex is unbearable, and the list goes on i have never been on anything like this before so not sure on what more to say thanks for reading! xxxx

gem123

Posts : 7
Join date : 2010-09-10

View user profile

Back to top Go down

Re: hi! im new to this!! :)

Post  jules on Mon Oct 11, 2010 3:19 am

Welcome, you are obviously not alone. So sorry you couldn't work and you are in so much pain. There is hope. There are many different meds out there and the research continues. I'm sure you have tried many of the treatments. I am on 2400 mgs of Gabepentin and now 300 mgs of Lyrica. I have had relief in the past so i am hopeful it will be back. This disorder has interfered w/ my working out, sex and everyday life (sitting etc.) but, i continue to fight the battle. at times it is a tough battle. different things work for different people. we are all here to support each other. Don't give up hope.

i'm happy you have a supportive boyfriend. hang in there and keep on signing in.

jules

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: hi! im new to this!! :)

Post  gem123 on Mon Oct 11, 2010 8:44 am

hi thanks for your reply i am on 150mg of amitriptaline 100mg of tramadol and 75mg of lyrica what is gabapentin and what is it prescribed to do, i feel like ive got a bit more fight in me just from your one comment! i am going to write a list of treatments what people have tried to show the specialist, my daughter has just been diagosed with type 1 diabetes she is only three so i need to be well to cope with that my partner has left work to care for us both but he cannot stay of forever so need to get myself sorted!

gem123

Posts : 7
Join date : 2010-09-10

View user profile

Back to top Go down

Re: hi! im new to this!! :)

Post  Sebby (Admin) on Thu Oct 14, 2010 7:05 pm


Hi and welcome to the forum..

Yes there are lots of different treatments you can try so dont give up..my first is nerve block and Im going to get physical therapy as well after seeing how block goes.

The girls on here have lots of great advice and have helped me so much since I started the forum.

Keep fighting you are not alone and we are here to support you

Sebby
xxx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: hi! im new to this!! :)

Post  jules on Fri Oct 15, 2010 3:01 am

hello again Gem123.

Gabepentin is the generic name for Neurontin. neurontin is a anti-convulsant. it really did cut my pain in half when i first started. but, i had to go up to 3000 mgs. Like Sebby says..there are a number of a combination of treatments that helps individuals. i never went on ami-triptiline. it sounds like it can help, but side effects for some are not good. keep on advocating for yourself. we will find a way! yes..you need to feel good and be there for your child. we need to take care of ourselves and not give up.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: hi! im new to this!! :)

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum