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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


hi! im new to this!! :)

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hi! im new to this!! :)

Post  gem123 on Sun Oct 10, 2010 9:48 pm

hi
i am 24 and have been suffering from vulvodynia for 4 years now, i have seen gynaecologist, urologist, dermotologist,
syscho swxual counsellor, and also suffer from clinical depression this illness has made me lose my job, lose my confidence and make me put on weight through various tablets i have just been re refered to my dermotologist to see if there is anything else i we can try, i am very lucky to have a supportive boyfriend who understands but it is so painful sometimes its unbearable the pain is internal and external, it hurts to urninate and sometimes i get kiney infections too, sex is unbearable, and the list goes on i have never been on anything like this before so not sure on what more to say thanks for reading! xxxx

gem123

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Re: hi! im new to this!! :)

Post  jules on Mon Oct 11, 2010 3:19 am

Welcome, you are obviously not alone. So sorry you couldn't work and you are in so much pain. There is hope. There are many different meds out there and the research continues. I'm sure you have tried many of the treatments. I am on 2400 mgs of Gabepentin and now 300 mgs of Lyrica. I have had relief in the past so i am hopeful it will be back. This disorder has interfered w/ my working out, sex and everyday life (sitting etc.) but, i continue to fight the battle. at times it is a tough battle. different things work for different people. we are all here to support each other. Don't give up hope.

i'm happy you have a supportive boyfriend. hang in there and keep on signing in.

jules

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Re: hi! im new to this!! :)

Post  gem123 on Mon Oct 11, 2010 8:44 am

hi thanks for your reply i am on 150mg of amitriptaline 100mg of tramadol and 75mg of lyrica what is gabapentin and what is it prescribed to do, i feel like ive got a bit more fight in me just from your one comment! i am going to write a list of treatments what people have tried to show the specialist, my daughter has just been diagosed with type 1 diabetes she is only three so i need to be well to cope with that my partner has left work to care for us both but he cannot stay of forever so need to get myself sorted!

gem123

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Re: hi! im new to this!! :)

Post  Sebby (Admin) on Thu Oct 14, 2010 7:05 pm


Hi and welcome to the forum..

Yes there are lots of different treatments you can try so dont give up..my first is nerve block and Im going to get physical therapy as well after seeing how block goes.

The girls on here have lots of great advice and have helped me so much since I started the forum.

Keep fighting you are not alone and we are here to support you

Sebby
xxx
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Sebby (Admin)
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Re: hi! im new to this!! :)

Post  jules on Fri Oct 15, 2010 3:01 am

hello again Gem123.

Gabepentin is the generic name for Neurontin. neurontin is a anti-convulsant. it really did cut my pain in half when i first started. but, i had to go up to 3000 mgs. Like Sebby says..there are a number of a combination of treatments that helps individuals. i never went on ami-triptiline. it sounds like it can help, but side effects for some are not good. keep on advocating for yourself. we will find a way! yes..you need to feel good and be there for your child. we need to take care of ourselves and not give up.

jules

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Re: hi! im new to this!! :)

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