Just Diagnosed- frustrated and worried please help

Hi all,

I am 18 years old began trying to have sex for the first time 7 months ago with my boyfriend and we never managed it at all due to the pain and probably additional tension in my vaginal muscles.
I found my journey to being diagnosed very emotional and confusing, going on internet sites, a family planning clinic before finally going to a GUM clinic where they did that cotton bud test and decided I have vestibulodynia(?? I have the provoked one, I think that is the name for it) The doctor said the friction involved during attempting penetration causes irritation in four areas/glands around my vagina, in the way of redness, swelling and stinging, similar to the way for example pollen makes hayfever sufferes' eyes itch and go red and puffy . I have very bad hayfever and maybe slight eczema and asthma and this makes me 'atopic' and this could possibly be the cause of my vestibulodynia.
Everywhere I look there seems to be different information about the causes of this condition and I just wonder if anyone really knows enough about it, even when it affects so many people.
The treatment plan the doctor gave me consisted of applying a weak anaesthetic (instillagel) to my vestibule three times a day then when I used that all up move onto a stronger anaesthetic (lidocaine 5%) for two weeks, which I am currently in the middle of doing. After those two weeks she said I could try sex again. She said the aim was to 'retrain' that area to not be so sensitive but I just feel sceptical about this actually working. She also gave me some antihistamine pills (ucerax) and isntructed that I should take one before I have sex. I was wondering whether any of you were given the same treatment and if it's worked because as of yet I have not found anyone else who has been told to continually numb the area for retraining or something.
I would love anyone's opinion or help with my problem and will be so grateful for the support from someone who knows how I feel.

Uh its not gonna just stop because you numb it. I used lidocaine but because of pain. Once it wears off it will.come right back.

ESR,
your gonna be asked to try a whole lot of different treatments and some may work, some may not. Depends on the lady and culprit. Everyone responds differently to meds, creams, injections, ect.

Best thing to do is do a bunch of research regarding VV, keep a daily log of your symptoms and possible irritants (diet, activities, ect), how you respond to treatments.

I know it's overwhelming and I wouldn't wish VV on my worst enemy but your not alone.

I've never heard of "retraining" the vulva back to normal. Keep us posted. Muah.

Evie Bee

Don't worry, everyone is different and has different sets of symptoms. You will find something, you're very young and the body recuperates fast !

I've heard of retraining but typically after a diagnosis of vaginismus or surgery. Lidocaine blocks pain while on it but when it wears off the pain is still there. It would work it you had muscle pain but not nerve/skin pain. Maybe get another opinion...

When I was first diagnosed I got given the same treatment the strine gleans then lodicaine. Which helped in the shirt term when I used it but didn't give any long term relief. The got given trimovate cream which is a steriod and told to come back in three months! After that was out on anti depressants after 6 months I said it made know difference and I was told, "of course it has" it hadn't it didn't feel any difference!
The only think that helped was Physio, this I had to pay for privately. I am now able to have sex the pain does come back but I have a back related issue that makes my vulvar pain worse.

Hope this helps

Kt

Oh dear lots of auto corrects !
I had the same gel in the syringe that was supposed to say !!