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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Just Diagnosed- frustrated and worried please help

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Just Diagnosed- frustrated and worried please help

Post  ESR on Sun Oct 13, 2013 11:03 pm

Hi all,

I am 18 years old began trying to have sex for the first time 7 months ago with my boyfriend and we never managed it at all due to the pain and probably additional tension in my vaginal muscles.
I found my journey to being diagnosed very emotional and confusing, going on internet sites, a family planning clinic before finally going to a GUM clinic where they did that cotton bud test and decided I have vestibulodynia(?? I have the provoked one, I think that is the name for it) The doctor said the friction involved during attempting penetration causes irritation in four areas/glands around my vagina, in the way of redness, swelling and stinging, similar to the way for example pollen makes hayfever sufferes' eyes itch and go red and puffy . I have very bad hayfever and maybe slight eczema and asthma and this makes me 'atopic' and this could possibly be the cause of my vestibulodynia.
Everywhere I look there seems to be different information about the causes of this condition and I just wonder if anyone really knows enough about it, even when it affects so many people.
The treatment plan the doctor gave me consisted of applying a weak anaesthetic (instillagel) to my vestibule three times a day then when I used that all up move onto a stronger anaesthetic (lidocaine 5%) for two weeks, which I am currently in the middle of doing. After those two weeks she said I could try sex again. She said the aim was to 'retrain' that area to not be so sensitive but I just feel sceptical about this actually working. She also gave me some antihistamine pills (ucerax) and isntructed that I should take one before I have sex. I was wondering whether any of you were given the same treatment and if it's worked because as of yet I have not found anyone else who has been told to continually numb the area for retraining or something.
I would love anyone's opinion or help with my problem and will be so grateful for the support from someone who knows how I feel.

ESR

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Re: Just Diagnosed- frustrated and worried please help

Post  Alana3 on Mon Oct 14, 2013 12:13 am

Uh its not gonna just stop because you numb it. I used lidocaine but because of pain. Once it wears off it will.come right back.

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Re: Just Diagnosed- frustrated and worried please help

Post  EviEĀ°Bee on Mon Oct 14, 2013 7:32 am

ESR,
your gonna be asked to try a whole lot of different treatments and some may work, some may not. Depends on the lady and culprit. Everyone responds differently to meds, creams, injections, ect.

Best thing to do is do a bunch of research regarding VV, keep a daily log of your symptoms and possible irritants (diet, activities, ect), how you respond to treatments.

I know it's overwhelming and I wouldn't wish VV on my worst enemy but your not alone.

I've never heard of "retraining" the vulva back to normal. Keep us posted. Muah.

Evie Bee

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Re: Just Diagnosed- frustrated and worried please help

Post  mary jane on Mon Oct 14, 2013 9:29 am

Don't worry, everyone is different and has different sets of symptoms. You will find something, you're very young and the body recuperates fast !
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Re: Just Diagnosed- frustrated and worried please help

Post  Alana3 on Mon Oct 14, 2013 12:13 pm

I've heard of retraining but typically after a diagnosis of vaginismus or surgery. Lidocaine blocks pain while on it but when it wears off the pain is still there. It would work it you had muscle pain but not nerve/skin pain. Maybe get another opinion...

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Re: Just Diagnosed- frustrated and worried please help

Post  Sunflower82 on Tue Oct 15, 2013 7:33 pm

When I was first diagnosed I got given the same treatment the strine gleans then lodicaine. Which helped in the shirt term when I used it but didn't give any long term relief. The got given trimovate cream which is a steriod and told to come back in three months! After that was out on anti depressants after 6 months I said it made know difference and I was told, "of course it has" it hadn't it didn't feel any difference!
The only think that helped was Physio, this I had to pay for privately. I am now able to have sex the pain does come back but I have a back related issue that makes my vulvar pain worse.

Hope this helps

Kt

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Re: Just Diagnosed- frustrated and worried please help

Post  Sunflower82 on Tue Oct 15, 2013 7:35 pm

Oh dear lots of auto corrects !
I had the same gel in the syringe that was supposed to say !!

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Re: Just Diagnosed- frustrated and worried please help

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