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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Just Diagnosed- frustrated and worried please help

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Just Diagnosed- frustrated and worried please help

Post  ESR on Sun Oct 13, 2013 11:03 pm

Hi all,

I am 18 years old began trying to have sex for the first time 7 months ago with my boyfriend and we never managed it at all due to the pain and probably additional tension in my vaginal muscles.
I found my journey to being diagnosed very emotional and confusing, going on internet sites, a family planning clinic before finally going to a GUM clinic where they did that cotton bud test and decided I have vestibulodynia(?? I have the provoked one, I think that is the name for it) The doctor said the friction involved during attempting penetration causes irritation in four areas/glands around my vagina, in the way of redness, swelling and stinging, similar to the way for example pollen makes hayfever sufferes' eyes itch and go red and puffy . I have very bad hayfever and maybe slight eczema and asthma and this makes me 'atopic' and this could possibly be the cause of my vestibulodynia.
Everywhere I look there seems to be different information about the causes of this condition and I just wonder if anyone really knows enough about it, even when it affects so many people.
The treatment plan the doctor gave me consisted of applying a weak anaesthetic (instillagel) to my vestibule three times a day then when I used that all up move onto a stronger anaesthetic (lidocaine 5%) for two weeks, which I am currently in the middle of doing. After those two weeks she said I could try sex again. She said the aim was to 'retrain' that area to not be so sensitive but I just feel sceptical about this actually working. She also gave me some antihistamine pills (ucerax) and isntructed that I should take one before I have sex. I was wondering whether any of you were given the same treatment and if it's worked because as of yet I have not found anyone else who has been told to continually numb the area for retraining or something.
I would love anyone's opinion or help with my problem and will be so grateful for the support from someone who knows how I feel.

ESR

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Re: Just Diagnosed- frustrated and worried please help

Post  Alana3 on Mon Oct 14, 2013 12:13 am

Uh its not gonna just stop because you numb it. I used lidocaine but because of pain. Once it wears off it will.come right back.

Alana3

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Re: Just Diagnosed- frustrated and worried please help

Post  EviE°Bee on Mon Oct 14, 2013 7:32 am

ESR,
your gonna be asked to try a whole lot of different treatments and some may work, some may not. Depends on the lady and culprit. Everyone responds differently to meds, creams, injections, ect.

Best thing to do is do a bunch of research regarding VV, keep a daily log of your symptoms and possible irritants (diet, activities, ect), how you respond to treatments.

I know it's overwhelming and I wouldn't wish VV on my worst enemy but your not alone.

I've never heard of "retraining" the vulva back to normal. Keep us posted. Muah.

Evie Bee

EviE°Bee

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Re: Just Diagnosed- frustrated and worried please help

Post  mary jane on Mon Oct 14, 2013 9:29 am

Don't worry, everyone is different and has different sets of symptoms. You will find something, you're very young and the body recuperates fast !
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Re: Just Diagnosed- frustrated and worried please help

Post  Alana3 on Mon Oct 14, 2013 12:13 pm

I've heard of retraining but typically after a diagnosis of vaginismus or surgery. Lidocaine blocks pain while on it but when it wears off the pain is still there. It would work it you had muscle pain but not nerve/skin pain. Maybe get another opinion...

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Re: Just Diagnosed- frustrated and worried please help

Post  Sunflower82 on Tue Oct 15, 2013 7:33 pm

When I was first diagnosed I got given the same treatment the strine gleans then lodicaine. Which helped in the shirt term when I used it but didn't give any long term relief. The got given trimovate cream which is a steriod and told to come back in three months! After that was out on anti depressants after 6 months I said it made know difference and I was told, "of course it has" it hadn't it didn't feel any difference!
The only think that helped was Physio, this I had to pay for privately. I am now able to have sex the pain does come back but I have a back related issue that makes my vulvar pain worse.

Hope this helps

Kt

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Re: Just Diagnosed- frustrated and worried please help

Post  Sunflower82 on Tue Oct 15, 2013 7:35 pm

Oh dear lots of auto corrects !
I had the same gel in the syringe that was supposed to say !!

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Re: Just Diagnosed- frustrated and worried please help

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