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    » Can you guys tell me your experiences with diflucan/Fluconazole?
    Today at 1:29 am by ryn207

    » So frustrating!!
    Today at 1:25 am by ryn207

    » Looking for suggestions or encouragement
    Today at 1:19 am by ryn207

    » Looking for a friend..... and new problems
    Yesterday at 10:00 pm by VVSSufferer

    » Vestibulectomy recovery question!
    Sun Jan 14, 2018 11:37 pm by Kezz

    » Prescription creams that work!
    Sun Jan 14, 2018 4:46 am by Mintaherb

    » Struggling
    Sun Jan 14, 2018 4:29 am by Mintaherb

    » Went Away and Came Back
    Sat Jan 13, 2018 10:56 am by mary jane

    » Amitriptyline given for vulvodyina pain
    Sat Jan 13, 2018 1:39 am by ryn207

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 5

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 11

    7 years later and life looks bleak :(

    Wed Dec 06, 2017 2:50 am by RainyShay77

    So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

    Comments: 7

    Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

    Sun Jan 07, 2018 9:38 am by sophiarp

    Hi everyone,

    I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

    I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

    Comments: 2

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 11

    Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

    Mon Nov 20, 2017 8:15 pm by WVR00

    Hello,
    Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1


    Has any one seen a neurologist ?

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    Has any one seen a neurologist ?

    Post  zarli on Mon Nov 18, 2013 11:56 am

    Hi Girls just wondering if any one has seen a neurologist about nerve pain ?

    zarli

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    Nope

    Post  21andcounting on Sat Dec 14, 2013 5:47 am

    Never gone to see one BUT my mom is a neurologist and she has been involved throughout my treatments. She didn't really bring any novel information to the table, even though she is a neurologist. She had some insight about certain drugs I tried, but no specialized knowledge besides that. This being said, she is just one neurologist and there may be others that specialize in nerve pain.

    21andcounting

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    Re: Has any one seen a neurologist ?

    Post  zarli on Sat Dec 14, 2013 9:12 am

    Thank you, I was disappointed to hear that but I guessed as much. I'll keep searching ......

    zarli

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    Re: Has any one seen a neurologist ?

    Post  21andcounting on Sat Dec 14, 2013 4:27 pm

    Just curious, which types of specialists (if any) have you already tried?

    21andcounting

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    Re: Has any one seen a neurologist ?

    Post  zarli on Sat Dec 14, 2013 9:54 pm

    Thank you
    -3 vulva pain specialist
    -dermatologist
    -2 physios
    -2 pain specialist
    -1 gyno

    I also suffer from fibromyalgia, which came after vulvodynia. I have had MS ruled out. I don't know who to try next, I have a sneaky suspicion I will be putting up with this condition for the rest of my life. I go to the best Vulva specialist in Melbourne and am seeing her in March which we will be trying a nerve block, although I have read lots of negative results and also its just a cover up of the condition any way, I want it gone but I really think Vulvodynia is a condition all on its own and we may have to wait until they research it more to find a cure.
    Sorry I rambled on......

    zarli

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    Re: Has any one seen a neurologist ?

    Post  Alana3 on Sat Dec 14, 2013 11:30 pm

    All vulvodynia means is "painful vulva". Unfortunately everyone's condition isn't the same and there are many reasons why your vulva could hurt.

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    Re: Has any one seen a neurologist ?

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