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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0

    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35


    Has any one seen a neurologist ?

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    Has any one seen a neurologist ?

    Post  zarli on Mon Nov 18, 2013 11:56 am

    Hi Girls just wondering if any one has seen a neurologist about nerve pain ?

    zarli

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    Nope

    Post  21andcounting on Sat Dec 14, 2013 5:47 am

    Never gone to see one BUT my mom is a neurologist and she has been involved throughout my treatments. She didn't really bring any novel information to the table, even though she is a neurologist. She had some insight about certain drugs I tried, but no specialized knowledge besides that. This being said, she is just one neurologist and there may be others that specialize in nerve pain.

    21andcounting

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    Re: Has any one seen a neurologist ?

    Post  zarli on Sat Dec 14, 2013 9:12 am

    Thank you, I was disappointed to hear that but I guessed as much. I'll keep searching ......

    zarli

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    Re: Has any one seen a neurologist ?

    Post  21andcounting on Sat Dec 14, 2013 4:27 pm

    Just curious, which types of specialists (if any) have you already tried?

    21andcounting

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    Re: Has any one seen a neurologist ?

    Post  zarli on Sat Dec 14, 2013 9:54 pm

    Thank you
    -3 vulva pain specialist
    -dermatologist
    -2 physios
    -2 pain specialist
    -1 gyno

    I also suffer from fibromyalgia, which came after vulvodynia. I have had MS ruled out. I don't know who to try next, I have a sneaky suspicion I will be putting up with this condition for the rest of my life. I go to the best Vulva specialist in Melbourne and am seeing her in March which we will be trying a nerve block, although I have read lots of negative results and also its just a cover up of the condition any way, I want it gone but I really think Vulvodynia is a condition all on its own and we may have to wait until they research it more to find a cure.
    Sorry I rambled on......

    zarli

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    Re: Has any one seen a neurologist ?

    Post  Alana3 on Sat Dec 14, 2013 11:30 pm

    All vulvodynia means is "painful vulva". Unfortunately everyone's condition isn't the same and there are many reasons why your vulva could hurt.

    Alana3

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    Re: Has any one seen a neurologist ?

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