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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Hi from newly diagnosed irish cailin

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Hi from newly diagnosed irish cailin

Post  rubina on Mon Oct 18, 2010 1:14 pm

If anyone had told me the negative impact my vagina/vulva would have on my life I wouldnt have believed them!

I live in Dublin and after 5 years of head wrecking symptoms I might be starting to get some answers. To cut a very long story short I thought I was suffering from recurrent thrush but recently went to see a Gynae who completetly threw it out of the window!She suspects nerve damage and I am now on Neurontin.Its early days so I am keeping my fingers crossed it will work.

I sympathise with all of you who are experiencing something very similar. Remain hopeful and believe that the day will come when you go to bed at night and realise that you didnt think about your vagina once!!!!!

Rubina

rubina

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Re: Hi from newly diagnosed irish cailin

Post  Sebby (Admin) on Wed Oct 20, 2010 8:56 pm


Hi Rubina and welcome

Yes I too thought it was recurrent thrush but after all sorts of treatment and tests it turns out not to be.

Let us know how you get on with the medication.

My pain gynea and pain management dr also thinks its a nerve issue

Im due a nerve block just before xmas so I will see how that goes

Take care we are here for you

Sebby
xxx
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Sebby (Admin)
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Re: Hi from newly diagnosed irish cailin

Post  rubina on Thu Oct 21, 2010 7:34 pm

Thanks Sebby.
I found this website a good while ago and could really relate to a lot of the posts I had read however i never joined in cos I was waiting for my Gynae appointment and I wanted to be sure that I belonged here! As soon as she slapped me on Neurontin I knew this was where I should be Very Happy
My story like so many others is long and winding and I am going to post the full thing here soon to get it all off my chest.
I am keeping my fingers crossed for you that your nerve block works and gives you relief
Rubina

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Re: Hi from newly diagnosed irish cailin

Post  jules on Thu Nov 11, 2010 6:13 am

Rubina,

Welcome (I guess)...sorry you are here joining our group. i took a few week break from this website. but now i'm back to reconnect w/ my vulvodynia friends. you will learn a lot on this site. it's a great opportunity to swear, cry, scream, laugh and hopefully get some answers from other women. how many mgs are you on? (Neurontin.) it took me around 2700 mgs to really feel a difference in my pain. i did not have any relief in the beginning. the highest you can go is 3600 mgs. but, of course..your doctor can decide that. i also added Lyrica to the mix. that helped for awhile, but i'm ready to get rid of the Lyrica and try something else. you can read the posts to see diff. things we have tried.

hope you get some pain relief! Oh, by the way,..i'm 50% Irish..my ancestors on my mom's side are from Ireland. I have never been there, but my parents have a few times. Oh..i'm from the U.S.

jules

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Re: Hi from newly diagnosed irish cailin

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