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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Hi from newly diagnosed irish cailin

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Hi from newly diagnosed irish cailin

Post  rubina on Mon Oct 18, 2010 1:14 pm

If anyone had told me the negative impact my vagina/vulva would have on my life I wouldnt have believed them!

I live in Dublin and after 5 years of head wrecking symptoms I might be starting to get some answers. To cut a very long story short I thought I was suffering from recurrent thrush but recently went to see a Gynae who completetly threw it out of the window!She suspects nerve damage and I am now on Neurontin.Its early days so I am keeping my fingers crossed it will work.

I sympathise with all of you who are experiencing something very similar. Remain hopeful and believe that the day will come when you go to bed at night and realise that you didnt think about your vagina once!!!!!

Rubina

rubina

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Re: Hi from newly diagnosed irish cailin

Post  Sebby (Admin) on Wed Oct 20, 2010 8:56 pm


Hi Rubina and welcome

Yes I too thought it was recurrent thrush but after all sorts of treatment and tests it turns out not to be.

Let us know how you get on with the medication.

My pain gynea and pain management dr also thinks its a nerve issue

Im due a nerve block just before xmas so I will see how that goes

Take care we are here for you

Sebby
xxx
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Re: Hi from newly diagnosed irish cailin

Post  rubina on Thu Oct 21, 2010 7:34 pm

Thanks Sebby.
I found this website a good while ago and could really relate to a lot of the posts I had read however i never joined in cos I was waiting for my Gynae appointment and I wanted to be sure that I belonged here! As soon as she slapped me on Neurontin I knew this was where I should be Very Happy
My story like so many others is long and winding and I am going to post the full thing here soon to get it all off my chest.
I am keeping my fingers crossed for you that your nerve block works and gives you relief
Rubina

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Re: Hi from newly diagnosed irish cailin

Post  jules on Thu Nov 11, 2010 6:13 am

Rubina,

Welcome (I guess)...sorry you are here joining our group. i took a few week break from this website. but now i'm back to reconnect w/ my vulvodynia friends. you will learn a lot on this site. it's a great opportunity to swear, cry, scream, laugh and hopefully get some answers from other women. how many mgs are you on? (Neurontin.) it took me around 2700 mgs to really feel a difference in my pain. i did not have any relief in the beginning. the highest you can go is 3600 mgs. but, of course..your doctor can decide that. i also added Lyrica to the mix. that helped for awhile, but i'm ready to get rid of the Lyrica and try something else. you can read the posts to see diff. things we have tried.

hope you get some pain relief! Oh, by the way,..i'm 50% Irish..my ancestors on my mom's side are from Ireland. I have never been there, but my parents have a few times. Oh..i'm from the U.S.

jules

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Re: Hi from newly diagnosed irish cailin

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