Vulvodynia Support
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» Hope to all my suffering ladies
Hi from newly diagnosed irish cailin EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Hi from newly diagnosed irish cailin EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Hi from newly diagnosed irish cailin EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Hi from newly diagnosed irish cailin EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Hi from newly diagnosed irish cailin EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Hi from newly diagnosed irish cailin EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Hi from newly diagnosed irish cailin EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Hi from newly diagnosed irish cailin EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Hi from newly diagnosed irish cailin EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Hi from newly diagnosed irish cailin

3 posters

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Hi from newly diagnosed irish cailin Empty Hi from newly diagnosed irish cailin

Post  rubina Mon Oct 18, 2010 1:14 pm

If anyone had told me the negative impact my vagina/vulva would have on my life I wouldnt have believed them!

I live in Dublin and after 5 years of head wrecking symptoms I might be starting to get some answers. To cut a very long story short I thought I was suffering from recurrent thrush but recently went to see a Gynae who completetly threw it out of the window!She suspects nerve damage and I am now on Neurontin.Its early days so I am keeping my fingers crossed it will work.

I sympathise with all of you who are experiencing something very similar. Remain hopeful and believe that the day will come when you go to bed at night and realise that you didnt think about your vagina once!!!!!

Rubina

rubina

Posts : 6
Join date : 2010-06-16

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Hi from newly diagnosed irish cailin Empty Re: Hi from newly diagnosed irish cailin

Post  Sebby (Admin) Wed Oct 20, 2010 8:56 pm


Hi Rubina and welcome

Yes I too thought it was recurrent thrush but after all sorts of treatment and tests it turns out not to be.

Let us know how you get on with the medication.

My pain gynea and pain management dr also thinks its a nerve issue

Im due a nerve block just before xmas so I will see how that goes

Take care we are here for you

Sebby
xxx
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Hi from newly diagnosed irish cailin Empty Re: Hi from newly diagnosed irish cailin

Post  rubina Thu Oct 21, 2010 7:34 pm

Thanks Sebby.
I found this website a good while ago and could really relate to a lot of the posts I had read however i never joined in cos I was waiting for my Gynae appointment and I wanted to be sure that I belonged here! As soon as she slapped me on Neurontin I knew this was where I should be Very Happy
My story like so many others is long and winding and I am going to post the full thing here soon to get it all off my chest.
I am keeping my fingers crossed for you that your nerve block works and gives you relief
Rubina

rubina

Posts : 6
Join date : 2010-06-16

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Hi from newly diagnosed irish cailin Empty Re: Hi from newly diagnosed irish cailin

Post  jules Thu Nov 11, 2010 6:13 am

Rubina,

Welcome (I guess)...sorry you are here joining our group. i took a few week break from this website. but now i'm back to reconnect w/ my vulvodynia friends. you will learn a lot on this site. it's a great opportunity to swear, cry, scream, laugh and hopefully get some answers from other women. how many mgs are you on? (Neurontin.) it took me around 2700 mgs to really feel a difference in my pain. i did not have any relief in the beginning. the highest you can go is 3600 mgs. but, of course..your doctor can decide that. i also added Lyrica to the mix. that helped for awhile, but i'm ready to get rid of the Lyrica and try something else. you can read the posts to see diff. things we have tried.

hope you get some pain relief! Oh, by the way,..i'm 50% Irish..my ancestors on my mom's side are from Ireland. I have never been there, but my parents have a few times. Oh..i'm from the U.S.

jules

Posts : 225
Join date : 2010-03-17

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