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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Hi from newly diagnosed irish cailin

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Hi from newly diagnosed irish cailin

Post  rubina on Mon Oct 18, 2010 1:14 pm

If anyone had told me the negative impact my vagina/vulva would have on my life I wouldnt have believed them!

I live in Dublin and after 5 years of head wrecking symptoms I might be starting to get some answers. To cut a very long story short I thought I was suffering from recurrent thrush but recently went to see a Gynae who completetly threw it out of the window!She suspects nerve damage and I am now on Neurontin.Its early days so I am keeping my fingers crossed it will work.

I sympathise with all of you who are experiencing something very similar. Remain hopeful and believe that the day will come when you go to bed at night and realise that you didnt think about your vagina once!!!!!

Rubina

rubina

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Re: Hi from newly diagnosed irish cailin

Post  Sebby (Admin) on Wed Oct 20, 2010 8:56 pm


Hi Rubina and welcome

Yes I too thought it was recurrent thrush but after all sorts of treatment and tests it turns out not to be.

Let us know how you get on with the medication.

My pain gynea and pain management dr also thinks its a nerve issue

Im due a nerve block just before xmas so I will see how that goes

Take care we are here for you

Sebby
xxx
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Sebby (Admin)
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Re: Hi from newly diagnosed irish cailin

Post  rubina on Thu Oct 21, 2010 7:34 pm

Thanks Sebby.
I found this website a good while ago and could really relate to a lot of the posts I had read however i never joined in cos I was waiting for my Gynae appointment and I wanted to be sure that I belonged here! As soon as she slapped me on Neurontin I knew this was where I should be Very Happy
My story like so many others is long and winding and I am going to post the full thing here soon to get it all off my chest.
I am keeping my fingers crossed for you that your nerve block works and gives you relief
Rubina

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Re: Hi from newly diagnosed irish cailin

Post  jules on Thu Nov 11, 2010 6:13 am

Rubina,

Welcome (I guess)...sorry you are here joining our group. i took a few week break from this website. but now i'm back to reconnect w/ my vulvodynia friends. you will learn a lot on this site. it's a great opportunity to swear, cry, scream, laugh and hopefully get some answers from other women. how many mgs are you on? (Neurontin.) it took me around 2700 mgs to really feel a difference in my pain. i did not have any relief in the beginning. the highest you can go is 3600 mgs. but, of course..your doctor can decide that. i also added Lyrica to the mix. that helped for awhile, but i'm ready to get rid of the Lyrica and try something else. you can read the posts to see diff. things we have tried.

hope you get some pain relief! Oh, by the way,..i'm 50% Irish..my ancestors on my mom's side are from Ireland. I have never been there, but my parents have a few times. Oh..i'm from the U.S.

jules

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Re: Hi from newly diagnosed irish cailin

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