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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hi from newly diagnosed irish cailin

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Hi from newly diagnosed irish cailin

Post  rubina on Mon Oct 18, 2010 1:14 pm

If anyone had told me the negative impact my vagina/vulva would have on my life I wouldnt have believed them!

I live in Dublin and after 5 years of head wrecking symptoms I might be starting to get some answers. To cut a very long story short I thought I was suffering from recurrent thrush but recently went to see a Gynae who completetly threw it out of the window!She suspects nerve damage and I am now on Neurontin.Its early days so I am keeping my fingers crossed it will work.

I sympathise with all of you who are experiencing something very similar. Remain hopeful and believe that the day will come when you go to bed at night and realise that you didnt think about your vagina once!!!!!

Rubina

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Re: Hi from newly diagnosed irish cailin

Post  Sebby (Admin) on Wed Oct 20, 2010 8:56 pm


Hi Rubina and welcome

Yes I too thought it was recurrent thrush but after all sorts of treatment and tests it turns out not to be.

Let us know how you get on with the medication.

My pain gynea and pain management dr also thinks its a nerve issue

Im due a nerve block just before xmas so I will see how that goes

Take care we are here for you

Sebby
xxx
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Re: Hi from newly diagnosed irish cailin

Post  rubina on Thu Oct 21, 2010 7:34 pm

Thanks Sebby.
I found this website a good while ago and could really relate to a lot of the posts I had read however i never joined in cos I was waiting for my Gynae appointment and I wanted to be sure that I belonged here! As soon as she slapped me on Neurontin I knew this was where I should be Very Happy
My story like so many others is long and winding and I am going to post the full thing here soon to get it all off my chest.
I am keeping my fingers crossed for you that your nerve block works and gives you relief
Rubina

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Re: Hi from newly diagnosed irish cailin

Post  jules on Thu Nov 11, 2010 6:13 am

Rubina,

Welcome (I guess)...sorry you are here joining our group. i took a few week break from this website. but now i'm back to reconnect w/ my vulvodynia friends. you will learn a lot on this site. it's a great opportunity to swear, cry, scream, laugh and hopefully get some answers from other women. how many mgs are you on? (Neurontin.) it took me around 2700 mgs to really feel a difference in my pain. i did not have any relief in the beginning. the highest you can go is 3600 mgs. but, of course..your doctor can decide that. i also added Lyrica to the mix. that helped for awhile, but i'm ready to get rid of the Lyrica and try something else. you can read the posts to see diff. things we have tried.

hope you get some pain relief! Oh, by the way,..i'm 50% Irish..my ancestors on my mom's side are from Ireland. I have never been there, but my parents have a few times. Oh..i'm from the U.S.

jules

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Re: Hi from newly diagnosed irish cailin

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