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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Back pain and leg pain?

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Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 5:57 pm

Hello loves! So I've been thinking hard about all the craziness wih my lady parts and tryin to think of all the things I've been feeling this past year ( the burn has been happening alot this year) I have burning in my vagina and twice this year I felt a shooting pain from my belly down my vagina. It has only happened twice. I also have lower back pains and a pain that runs down my right leg. I've never had back pain and I'm wondering if this could all play a part. I'm sure someone has posted something like this so I'm sorry if I'm asking a question again. Also at times I feel like my butt check burns but it only last for a few seconds? Anyone else relate? I saw a specialist and he said it was dermatitis, which is weird because I have no rash! He also said my back pain has nothing to do with my vaginal burning >:/

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Re: Back pain and leg pain?

Post  mary jane on Mon Dec 02, 2013 9:49 pm

it sounds like a mild case of pudendal neuralgia. I have a lot of vibrations in my right buttock, it's horrid!
I also get random pains that come and go. I have no idea what triggers them or makes them dissappear. They also diagnosed me with sciatica (??)

anyway, just so you know, if you ever get pain with sitting, it's a pudendal nerve problem. Unfortunately, doctors don't admit it really exists, they claim it it "very rare". pff
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Re: Back pain and leg pain?

Post  Alana3 on Mon Dec 02, 2013 10:10 pm

Could be endo too I get that but only when im ovulating or perioding (I just created a word haha)

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Re: Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 11:27 pm

Thanks for the replays ladies! My doctor just dismissed me saying the back pain has nothing to do with it, but this year the burning has been at its worst and my back hurts! I sat really funny one night with my son on my lap and I went to a chiropractor and he cracked my back pretty good and said I probably pushed my pelvic bone. My back felt fine after but now it just kinda always hurts. Not to badly but my leg pain feel likes it straining. Ugh the joys of being a women! NOT!

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Re: Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 11:30 pm

I love how they say its all rare but then there are so many women here in pain! I just get so mad sometimes GRRR

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Re: Back pain and leg pain?

Post  Loulou on Tue Dec 03, 2013 12:31 am

Oh doctors make me mad - back pain can be linked to vulvodynia! Without getting tooooo technical (I’m a lay person!), there are a number of nerves that form the sacral plexus (a network of nerves that is located in the lower back, at the back of the pelvis). These nerves include the sciatic nerve, gluteal nerves and the pudendal nerve. So an issue in the lower back (trauma, compression, muscle/nerve inflammation, bone/muscle stiffness, structural problems etc) can potentially effect one or more of these nerves. Also, irritated nerves in the pelvic area can cause the pelvic floor to shorten and tighten (which can also cause vulval pain) It might be worth getting a second opinion from another chiropractor or a women’s health physio? (if nothing else, to have it properly ruled out as a cause rather than just dismissed).

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Re: Back pain and leg pain?

Post  Lms911 on Tue Dec 03, 2013 2:49 am

Thanks for all the advise! I love this forum it has been a godsend! All the lovely women in this forum are just so helpful! I've seen two specialist and I feel like the second opinion of dermatitis was just ruling out process. Iam going to bring up all my other issues at my next appointment! Sending lots of prayers and wishes you have more better day Smile

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Re: Back pain and leg pain?

Post  tinkerbelle2 on Tue Dec 03, 2013 12:16 pm

Hey sweetie, are you still using the Bemadryl and where do you actually apply it specifically when you do? I have been getting lower back pain but I think it's more to do with bad posture and slouching. I don't know though!
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Re: Back pain and leg pain?

Post  Lms911 on Tue Dec 03, 2013 4:03 pm

Hey tink! How are you sweetie?? I've been thinkin about ya! I take a pill. Like just a regular allergy pill it just calms down the burn. I still feel kind of raw down there but it takes the intensity down a bit. Give it a try! I hope it helps! I slouch alot too! I'm sure that plays a part in my back pain. Hope your doing well Smile

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Back and leg pain

Post  Sunflower82 on Tue Dec 03, 2013 10:24 pm

Hi,
I've had v for a long time, too many years to write down, it's only in the last couple of years I have tried different treatments, half way through this process I hurt my back hoovering !!!! About two months after hurt by back I suffered from a numbness/ pain discomfort down my right leg into my foot!

Cut a long story short u had a nerve block at l4 l5, after about two weeks 95% of my v pain had gone and my hunneymoon was saved, I went from not being able to have sex to being able to have pain free sex and no burning after ! And no medication

The block did little for my leg symptoms so I have just had it re done!!!!
This time was the opposite effect, with 24 hours all the related pain was the worst ithas ever been in a long time !
Surely this must show the two are related ??

Kt


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Re: Back pain and leg pain?

Post  mary jane on Wed Dec 04, 2013 10:38 am

@ sunflower....true, I even heard of things like tarlov cysts of the spine causing groin pain....
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Re: Back pain and leg pain?

Post  tinkerbelle2 on Wed Dec 04, 2013 11:43 am

Hey lauren, ohh its a tablet not a cream. Okay will do. Still not great Sad I think I have thrush now too as I'm really itchy! How are you? ! X
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Re: Back pain and leg pain?

Post  Lms911 on Wed Dec 04, 2013 1:42 pm

Sunflower thanks for all the info! I just have a gut feeling my back has something to do with it. The doctor sure didnt think so. Maybe next appointment i'll boot him in his ass then turn round and kick him in the balls and suggest that he put a Steriod cream on it Smile
Tink aw hunny sorry to hear about the thrush. I've never had thrush, and I actually really haven't had to many UTIs or yeast infections in my life. My last flare up I did use n over the counter yeast infection medicine and boy did that make me feel 1000 times worst! I've been praying for ya love! I sure hope we all find a way of of this crap! Sometimes I think man I wish I would wake up with a penis! Lol I would just tuck up back and go on with my life pain free Smile my pain hasn't been toooo bad which I'm thankful. I think the cream the doctors say to use make it worst! I use crisco down there. My vagina has turned into a kitchen, but it is very soothing. Grrrr

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Re: Back pain and leg pain?

Post  Kathy100 on Wed Dec 04, 2013 3:49 pm

Drs just drive me nuts - they can be so patronising & ignorant about all this.....I have back pain too & mine is definitely linked to the V. Dr was dismissive but physio said lower back pain can cause the nerves to get crushed and irritated. Also since I've been having physio on my back & hips my V pain is getting better.... My Dr gave me steroid cream too & it just made things a whole lot worse ....


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Re: Back pain and leg pain?

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