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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Back pain and leg pain?

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Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 5:57 pm

Hello loves! So I've been thinking hard about all the craziness wih my lady parts and tryin to think of all the things I've been feeling this past year ( the burn has been happening alot this year) I have burning in my vagina and twice this year I felt a shooting pain from my belly down my vagina. It has only happened twice. I also have lower back pains and a pain that runs down my right leg. I've never had back pain and I'm wondering if this could all play a part. I'm sure someone has posted something like this so I'm sorry if I'm asking a question again. Also at times I feel like my butt check burns but it only last for a few seconds? Anyone else relate? I saw a specialist and he said it was dermatitis, which is weird because I have no rash! He also said my back pain has nothing to do with my vaginal burning >:/

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Re: Back pain and leg pain?

Post  mary jane on Mon Dec 02, 2013 9:49 pm

it sounds like a mild case of pudendal neuralgia. I have a lot of vibrations in my right buttock, it's horrid!
I also get random pains that come and go. I have no idea what triggers them or makes them dissappear. They also diagnosed me with sciatica (??)

anyway, just so you know, if you ever get pain with sitting, it's a pudendal nerve problem. Unfortunately, doctors don't admit it really exists, they claim it it "very rare". pff
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Re: Back pain and leg pain?

Post  Alana3 on Mon Dec 02, 2013 10:10 pm

Could be endo too I get that but only when im ovulating or perioding (I just created a word haha)

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Re: Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 11:27 pm

Thanks for the replays ladies! My doctor just dismissed me saying the back pain has nothing to do with it, but this year the burning has been at its worst and my back hurts! I sat really funny one night with my son on my lap and I went to a chiropractor and he cracked my back pretty good and said I probably pushed my pelvic bone. My back felt fine after but now it just kinda always hurts. Not to badly but my leg pain feel likes it straining. Ugh the joys of being a women! NOT!

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Re: Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 11:30 pm

I love how they say its all rare but then there are so many women here in pain! I just get so mad sometimes GRRR

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Re: Back pain and leg pain?

Post  Loulou on Tue Dec 03, 2013 12:31 am

Oh doctors make me mad - back pain can be linked to vulvodynia! Without getting tooooo technical (I’m a lay person!), there are a number of nerves that form the sacral plexus (a network of nerves that is located in the lower back, at the back of the pelvis). These nerves include the sciatic nerve, gluteal nerves and the pudendal nerve. So an issue in the lower back (trauma, compression, muscle/nerve inflammation, bone/muscle stiffness, structural problems etc) can potentially effect one or more of these nerves. Also, irritated nerves in the pelvic area can cause the pelvic floor to shorten and tighten (which can also cause vulval pain) It might be worth getting a second opinion from another chiropractor or a women’s health physio? (if nothing else, to have it properly ruled out as a cause rather than just dismissed).

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Re: Back pain and leg pain?

Post  Lms911 on Tue Dec 03, 2013 2:49 am

Thanks for all the advise! I love this forum it has been a godsend! All the lovely women in this forum are just so helpful! I've seen two specialist and I feel like the second opinion of dermatitis was just ruling out process. Iam going to bring up all my other issues at my next appointment! Sending lots of prayers and wishes you have more better day Smile

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Re: Back pain and leg pain?

Post  tinkerbelle2 on Tue Dec 03, 2013 12:16 pm

Hey sweetie, are you still using the Bemadryl and where do you actually apply it specifically when you do? I have been getting lower back pain but I think it's more to do with bad posture and slouching. I don't know though!
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Re: Back pain and leg pain?

Post  Lms911 on Tue Dec 03, 2013 4:03 pm

Hey tink! How are you sweetie?? I've been thinkin about ya! I take a pill. Like just a regular allergy pill it just calms down the burn. I still feel kind of raw down there but it takes the intensity down a bit. Give it a try! I hope it helps! I slouch alot too! I'm sure that plays a part in my back pain. Hope your doing well Smile

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Back and leg pain

Post  Sunflower82 on Tue Dec 03, 2013 10:24 pm

Hi,
I've had v for a long time, too many years to write down, it's only in the last couple of years I have tried different treatments, half way through this process I hurt my back hoovering !!!! About two months after hurt by back I suffered from a numbness/ pain discomfort down my right leg into my foot!

Cut a long story short u had a nerve block at l4 l5, after about two weeks 95% of my v pain had gone and my hunneymoon was saved, I went from not being able to have sex to being able to have pain free sex and no burning after ! And no medication

The block did little for my leg symptoms so I have just had it re done!!!!
This time was the opposite effect, with 24 hours all the related pain was the worst ithas ever been in a long time !
Surely this must show the two are related ??

Kt


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Re: Back pain and leg pain?

Post  mary jane on Wed Dec 04, 2013 10:38 am

@ sunflower....true, I even heard of things like tarlov cysts of the spine causing groin pain....
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Re: Back pain and leg pain?

Post  tinkerbelle2 on Wed Dec 04, 2013 11:43 am

Hey lauren, ohh its a tablet not a cream. Okay will do. Still not great Sad I think I have thrush now too as I'm really itchy! How are you? ! X
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Re: Back pain and leg pain?

Post  Lms911 on Wed Dec 04, 2013 1:42 pm

Sunflower thanks for all the info! I just have a gut feeling my back has something to do with it. The doctor sure didnt think so. Maybe next appointment i'll boot him in his ass then turn round and kick him in the balls and suggest that he put a Steriod cream on it Smile
Tink aw hunny sorry to hear about the thrush. I've never had thrush, and I actually really haven't had to many UTIs or yeast infections in my life. My last flare up I did use n over the counter yeast infection medicine and boy did that make me feel 1000 times worst! I've been praying for ya love! I sure hope we all find a way of of this crap! Sometimes I think man I wish I would wake up with a penis! Lol I would just tuck up back and go on with my life pain free Smile my pain hasn't been toooo bad which I'm thankful. I think the cream the doctors say to use make it worst! I use crisco down there. My vagina has turned into a kitchen, but it is very soothing. Grrrr

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Re: Back pain and leg pain?

Post  Kathy100 on Wed Dec 04, 2013 3:49 pm

Drs just drive me nuts - they can be so patronising & ignorant about all this.....I have back pain too & mine is definitely linked to the V. Dr was dismissive but physio said lower back pain can cause the nerves to get crushed and irritated. Also since I've been having physio on my back & hips my V pain is getting better.... My Dr gave me steroid cream too & it just made things a whole lot worse ....


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Re: Back pain and leg pain?

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