Log in

I forgot my password

Latest topics
» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Back pain and leg pain?

View previous topic View next topic Go down

Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 5:57 pm

Hello loves! So I've been thinking hard about all the craziness wih my lady parts and tryin to think of all the things I've been feeling this past year ( the burn has been happening alot this year) I have burning in my vagina and twice this year I felt a shooting pain from my belly down my vagina. It has only happened twice. I also have lower back pains and a pain that runs down my right leg. I've never had back pain and I'm wondering if this could all play a part. I'm sure someone has posted something like this so I'm sorry if I'm asking a question again. Also at times I feel like my butt check burns but it only last for a few seconds? Anyone else relate? I saw a specialist and he said it was dermatitis, which is weird because I have no rash! He also said my back pain has nothing to do with my vaginal burning >:/

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  mary jane on Mon Dec 02, 2013 9:49 pm

it sounds like a mild case of pudendal neuralgia. I have a lot of vibrations in my right buttock, it's horrid!
I also get random pains that come and go. I have no idea what triggers them or makes them dissappear. They also diagnosed me with sciatica (??)

anyway, just so you know, if you ever get pain with sitting, it's a pudendal nerve problem. Unfortunately, doctors don't admit it really exists, they claim it it "very rare". pff
avatar
mary jane

Posts : 310
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Alana3 on Mon Dec 02, 2013 10:10 pm

Could be endo too I get that but only when im ovulating or perioding (I just created a word haha)

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 11:27 pm

Thanks for the replays ladies! My doctor just dismissed me saying the back pain has nothing to do with it, but this year the burning has been at its worst and my back hurts! I sat really funny one night with my son on my lap and I went to a chiropractor and he cracked my back pretty good and said I probably pushed my pelvic bone. My back felt fine after but now it just kinda always hurts. Not to badly but my leg pain feel likes it straining. Ugh the joys of being a women! NOT!

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Lms911 on Mon Dec 02, 2013 11:30 pm

I love how they say its all rare but then there are so many women here in pain! I just get so mad sometimes GRRR

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Loulou on Tue Dec 03, 2013 12:31 am

Oh doctors make me mad - back pain can be linked to vulvodynia! Without getting tooooo technical (I’m a lay person!), there are a number of nerves that form the sacral plexus (a network of nerves that is located in the lower back, at the back of the pelvis). These nerves include the sciatic nerve, gluteal nerves and the pudendal nerve. So an issue in the lower back (trauma, compression, muscle/nerve inflammation, bone/muscle stiffness, structural problems etc) can potentially effect one or more of these nerves. Also, irritated nerves in the pelvic area can cause the pelvic floor to shorten and tighten (which can also cause vulval pain) It might be worth getting a second opinion from another chiropractor or a women’s health physio? (if nothing else, to have it properly ruled out as a cause rather than just dismissed).

Loulou

Posts : 124
Join date : 2012-01-18

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Lms911 on Tue Dec 03, 2013 2:49 am

Thanks for all the advise! I love this forum it has been a godsend! All the lovely women in this forum are just so helpful! I've seen two specialist and I feel like the second opinion of dermatitis was just ruling out process. Iam going to bring up all my other issues at my next appointment! Sending lots of prayers and wishes you have more better day Smile

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  tinkerbelle2 on Tue Dec 03, 2013 12:16 pm

Hey sweetie, are you still using the Bemadryl and where do you actually apply it specifically when you do? I have been getting lower back pain but I think it's more to do with bad posture and slouching. I don't know though!
avatar
tinkerbelle2

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Lms911 on Tue Dec 03, 2013 4:03 pm

Hey tink! How are you sweetie?? I've been thinkin about ya! I take a pill. Like just a regular allergy pill it just calms down the burn. I still feel kind of raw down there but it takes the intensity down a bit. Give it a try! I hope it helps! I slouch alot too! I'm sure that plays a part in my back pain. Hope your doing well Smile

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Back and leg pain

Post  Sunflower82 on Tue Dec 03, 2013 10:24 pm

Hi,
I've had v for a long time, too many years to write down, it's only in the last couple of years I have tried different treatments, half way through this process I hurt my back hoovering !!!! About two months after hurt by back I suffered from a numbness/ pain discomfort down my right leg into my foot!

Cut a long story short u had a nerve block at l4 l5, after about two weeks 95% of my v pain had gone and my hunneymoon was saved, I went from not being able to have sex to being able to have pain free sex and no burning after ! And no medication

The block did little for my leg symptoms so I have just had it re done!!!!
This time was the opposite effect, with 24 hours all the related pain was the worst ithas ever been in a long time !
Surely this must show the two are related ??

Kt


Sunflower82

Posts : 82
Join date : 2012-02-17

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  mary jane on Wed Dec 04, 2013 10:38 am

@ sunflower....true, I even heard of things like tarlov cysts of the spine causing groin pain....
avatar
mary jane

Posts : 310
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  tinkerbelle2 on Wed Dec 04, 2013 11:43 am

Hey lauren, ohh its a tablet not a cream. Okay will do. Still not great Sad I think I have thrush now too as I'm really itchy! How are you? ! X
avatar
tinkerbelle2

Posts : 291
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Lms911 on Wed Dec 04, 2013 1:42 pm

Sunflower thanks for all the info! I just have a gut feeling my back has something to do with it. The doctor sure didnt think so. Maybe next appointment i'll boot him in his ass then turn round and kick him in the balls and suggest that he put a Steriod cream on it Smile
Tink aw hunny sorry to hear about the thrush. I've never had thrush, and I actually really haven't had to many UTIs or yeast infections in my life. My last flare up I did use n over the counter yeast infection medicine and boy did that make me feel 1000 times worst! I've been praying for ya love! I sure hope we all find a way of of this crap! Sometimes I think man I wish I would wake up with a penis! Lol I would just tuck up back and go on with my life pain free Smile my pain hasn't been toooo bad which I'm thankful. I think the cream the doctors say to use make it worst! I use crisco down there. My vagina has turned into a kitchen, but it is very soothing. Grrrr

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Kathy100 on Wed Dec 04, 2013 3:49 pm

Drs just drive me nuts - they can be so patronising & ignorant about all this.....I have back pain too & mine is definitely linked to the V. Dr was dismissive but physio said lower back pain can cause the nerves to get crushed and irritated. Also since I've been having physio on my back & hips my V pain is getting better.... My Dr gave me steroid cream too & it just made things a whole lot worse ....


Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Back pain and leg pain?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum