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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
SINCE I WAS 5
4 posters
Page 1 of 1
SINCE I WAS 5
Hello.. my names zoe (:
I have been going to the doctors with this problem since I was 5 ! back then they just assumed it was cystitis. as it got older it got more often, I was just when I got nervous and excited and now its a constant pain. im now 20 but I wasn't diagnosed until I was 16 !
Im on Gabapentin but im at the highest dose im aloud. I also have to take co-codamol most days. I Hate it so much as its very hard for me to keep a job because of how un reliable I can be
luckily my current boss is very understanding but I hate letting her down and missing out on the money!
Im currentl seeing a physio who is very interested. she said I can tighten my pelvic floor but it takes a long time to relax? she has given me some exercise to do but this last week ive been off work every day with the pain !
ive not been abused or had any trauma as a child so I have no idea why it started so early. does it eventually just go away? I can not go out with friends because I must know I can get home if I need to and if I get too excited it will come on. ive not been able to drink like a normal teenager and I just want my life back :'(
when the pain is very bad I find the only thing that helps is holding ice on my fufu !!
Has anyone else had it for such a long time? how old where you all when you got vulvadynia?
I have been going to the doctors with this problem since I was 5 ! back then they just assumed it was cystitis. as it got older it got more often, I was just when I got nervous and excited and now its a constant pain. im now 20 but I wasn't diagnosed until I was 16 !
Im on Gabapentin but im at the highest dose im aloud. I also have to take co-codamol most days. I Hate it so much as its very hard for me to keep a job because of how un reliable I can be
luckily my current boss is very understanding but I hate letting her down and missing out on the money!
Im currentl seeing a physio who is very interested. she said I can tighten my pelvic floor but it takes a long time to relax? she has given me some exercise to do but this last week ive been off work every day with the pain !
ive not been abused or had any trauma as a child so I have no idea why it started so early. does it eventually just go away? I can not go out with friends because I must know I can get home if I need to and if I get too excited it will come on. ive not been able to drink like a normal teenager and I just want my life back :'(
when the pain is very bad I find the only thing that helps is holding ice on my fufu !!
Has anyone else had it for such a long time? how old where you all when you got vulvadynia?
omgitszoee- Posts : 4
Join date : 2014-01-05
Age : 30
Re: SINCE I WAS 5
aww you poor thing,only 19....i'm 26 and have had this crap for 5 months. I'm doing my second univ. but I manage by resting A LOT and taking medication.
you don't say what your symptoms are ....there is a big forum for intersitial cistytis with helpful posts, a lot of the girls there have overlapping conditions like urethra pain and vulvodynia, etc.
ic-network.com
I honestly recommend you to try a urogynaecologist
you don't say what your symptoms are ....there is a big forum for intersitial cistytis with helpful posts, a lot of the girls there have overlapping conditions like urethra pain and vulvodynia, etc.
ic-network.com
I honestly recommend you to try a urogynaecologist
mary jane- Posts : 345
Join date : 2013-10-05
Location : UK
Re: SINCE I WAS 5
I used to not be able to drink either than it went away... I have no idea why. I used to get a lot of bladder infections but...? They went away I guess
Alana3- Posts : 1093
Join date : 2012-09-25
Re: SINCE I WAS 5
That wasnt helpful just trying to say you arent alone!
Alana3- Posts : 1093
Join date : 2012-09-25
Re: SINCE I WAS 5
thanks guys its good to know im not alone !
ive had my urine tested by the doctors a lot and no hope
the exercise ive been given doesnt work as ive had 5 days of work off in the last 3 weeks !!
Hopefully next time i go to the physio she will try somthing else
Thnks though !
ive had my urine tested by the doctors a lot and no hope
the exercise ive been given doesnt work as ive had 5 days of work off in the last 3 weeks !!
Hopefully next time i go to the physio she will try somthing else
Thnks though !
omgitszoee- Posts : 4
Join date : 2014-01-05
Age : 30
Re: SINCE I WAS 5
and it sort of feels like im being hit in the fufu with a spikey hammer thats on fire !! weird description
omgitszoee- Posts : 4
Join date : 2014-01-05
Age : 30
Re: since I was 5
Dear Zoe,
Sorry to hear u have suffered for so long, I have had problems since I was 21 and I'm 32! I also suffered from cystitis when I was young about 8 ish I think ! Are u seeing a women's health Physio? What type of exercises were u doing! I've seen a women's health Physio for a couple of years now in the beginning it did get worse before it got better, half way through when I could know longer go I saw a Physio on the Nhs and it really didn't work out I didn't feel she listen to what I had to say and it seemed to be a set pattern of treatment,I had three sessions and the pain was so bad!
I stuck with the private Physio and this make a huge difference !
Hope this helps
Kt
Sorry to hear u have suffered for so long, I have had problems since I was 21 and I'm 32! I also suffered from cystitis when I was young about 8 ish I think ! Are u seeing a women's health Physio? What type of exercises were u doing! I've seen a women's health Physio for a couple of years now in the beginning it did get worse before it got better, half way through when I could know longer go I saw a Physio on the Nhs and it really didn't work out I didn't feel she listen to what I had to say and it seemed to be a set pattern of treatment,I had three sessions and the pain was so bad!
I stuck with the private Physio and this make a huge difference !
Hope this helps
Kt
Sunflower82- Posts : 82
Join date : 2012-02-17
Re: SINCE I WAS 5
Awwah thats good to hear that someone else had it so young!! Yes im seeing a nhs one but she is great, she says we will sort it this year!! Ive been given some dialators to try! If they don't help she is sending me for scans to see if its a trapped nerve! Xx
omgitszoee- Posts : 4
Join date : 2014-01-05
Age : 30
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer