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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


A Couple of Questions

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A Couple of Questions

Post  DancingSun on Sat Jan 18, 2014 3:39 am

Hi, I just found this forum, and am relieved to know that I am not alone and crazy.

I have had vulvodynia on and off for about 6 years now, although last year I had an entire year without symptoms, and so I thought I must be in the clear. But last year was also the first year in a long time that I was not regularly taking the pill and also was not a student.

I have just started college again, doing an intense course of 12 hour days, and I am back on the pill. The symptoms came back on my second day back at school.

I am wondering is it possible that either the hormonal changes associated with birth control or maybe the long periods spent sitting in a chair (or the combination of the two), are causing the symptoms to flare up again?

Thanks!

DancingSun

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Re: A Couple of Questions

Post  Alana3 on Sat Jan 18, 2014 11:32 am

I'd get off the pill if you see it bothers you that much. If there's no medical reason you're on bc than get off. But is it the same pill you were on before?

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Re: A Couple of Questions

Post  mary jane on Sat Jan 18, 2014 9:59 pm

alana is right, get off the pill. Maybe your body does not tolerate synthetic hormones very well.
estrogen is said to be linked to pain ... (I've read on some other forum)
there are a few stories on the web about vulvodynia being linked to the pill for a FEW women..
I was on yasmin for a while for my skin problems .... and I had a few strange reactions to it ...too bad, it made my skin lovely
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Re: A Couple of Questions

Post  tinkerbelle2 on Tue Jan 28, 2014 8:57 pm

Hey DancingSun,

I believe the Pill to be a contributing or main factor to the initial offset of my vaginal burning pain... However, that said, since coming off it the pain has not gone away. It could be similar with you. If you can, try and come off all birth control for a few months at least

Since i've not yet found a cure i only can pass on the tips others have given , using as natural and organic products as you can, washing your hair with your head like upside down or tilting your head back to keep it going down to your vulva/vagina, cotton undies etc etc, try doing a food diary or pain trigger diary just to keep a note of any daily things which flare up the pain. You've probably already tried everything so i doubt that was much help! But i am always happy to chat if you need someone to rant to!

Good luck,
T x
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Re: A Couple of Questions

Post  jackie333 on Wed Feb 05, 2014 8:43 pm

Just thought I'd add that one of the things that helps me just a bit is using a sprayer with cool water when the burning is bad. I even have a little 3 OZ sprayer I found in the pharmacy--(bought it empty) that can be tucked in my purse--I hope that helps a little
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Re: A Couple of Questions

Post  bridget234 on Sat Mar 22, 2014 5:23 pm

I tried going off the pill to help too- it didn't do much.

My PT told me that school/stress makes the condition worse. So that could be contributing to it.

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Re: A Couple of Questions

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