Log in

I forgot my password

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

A Couple of Questions

Go down

A Couple of Questions

Post  DancingSun on Sat Jan 18, 2014 3:39 am

Hi, I just found this forum, and am relieved to know that I am not alone and crazy.

I have had vulvodynia on and off for about 6 years now, although last year I had an entire year without symptoms, and so I thought I must be in the clear. But last year was also the first year in a long time that I was not regularly taking the pill and also was not a student.

I have just started college again, doing an intense course of 12 hour days, and I am back on the pill. The symptoms came back on my second day back at school.

I am wondering is it possible that either the hormonal changes associated with birth control or maybe the long periods spent sitting in a chair (or the combination of the two), are causing the symptoms to flare up again?



Posts : 1
Join date : 2014-01-18
Location : Canada

View user profile

Back to top Go down

Re: A Couple of Questions

Post  Alana3 on Sat Jan 18, 2014 11:32 am

I'd get off the pill if you see it bothers you that much. If there's no medical reason you're on bc than get off. But is it the same pill you were on before?


Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: A Couple of Questions

Post  mary jane on Sat Jan 18, 2014 9:59 pm

alana is right, get off the pill. Maybe your body does not tolerate synthetic hormones very well.
estrogen is said to be linked to pain ... (I've read on some other forum)
there are a few stories on the web about vulvodynia being linked to the pill for a FEW women..
I was on yasmin for a while for my skin problems .... and I had a few strange reactions to it ...too bad, it made my skin lovely
mary jane

Posts : 328
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: A Couple of Questions

Post  tinkerbelle2 on Tue Jan 28, 2014 8:57 pm

Hey DancingSun,

I believe the Pill to be a contributing or main factor to the initial offset of my vaginal burning pain... However, that said, since coming off it the pain has not gone away. It could be similar with you. If you can, try and come off all birth control for a few months at least

Since i've not yet found a cure i only can pass on the tips others have given , using as natural and organic products as you can, washing your hair with your head like upside down or tilting your head back to keep it going down to your vulva/vagina, cotton undies etc etc, try doing a food diary or pain trigger diary just to keep a note of any daily things which flare up the pain. You've probably already tried everything so i doubt that was much help! But i am always happy to chat if you need someone to rant to!

Good luck,
T x

Posts : 302
Join date : 2013-09-28
Age : 25
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: A Couple of Questions

Post  jackie333 on Wed Feb 05, 2014 8:43 pm

Just thought I'd add that one of the things that helps me just a bit is using a sprayer with cool water when the burning is bad. I even have a little 3 OZ sprayer I found in the pharmacy--(bought it empty) that can be tucked in my purse--I hope that helps a little


Posts : 20
Join date : 2014-02-05
Age : 72
Location : Southern California

View user profile

Back to top Go down

Re: A Couple of Questions

Post  bridget234 on Sat Mar 22, 2014 5:23 pm

I tried going off the pill to help too- it didn't do much.

My PT told me that school/stress makes the condition worse. So that could be contributing to it.


Posts : 13
Join date : 2014-03-22

View user profile

Back to top Go down

Re: A Couple of Questions

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum