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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


A Couple of Questions

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A Couple of Questions

Post  DancingSun on Sat Jan 18, 2014 3:39 am

Hi, I just found this forum, and am relieved to know that I am not alone and crazy.

I have had vulvodynia on and off for about 6 years now, although last year I had an entire year without symptoms, and so I thought I must be in the clear. But last year was also the first year in a long time that I was not regularly taking the pill and also was not a student.

I have just started college again, doing an intense course of 12 hour days, and I am back on the pill. The symptoms came back on my second day back at school.

I am wondering is it possible that either the hormonal changes associated with birth control or maybe the long periods spent sitting in a chair (or the combination of the two), are causing the symptoms to flare up again?

Thanks!

DancingSun

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Re: A Couple of Questions

Post  Alana3 on Sat Jan 18, 2014 11:32 am

I'd get off the pill if you see it bothers you that much. If there's no medical reason you're on bc than get off. But is it the same pill you were on before?

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Re: A Couple of Questions

Post  mary jane on Sat Jan 18, 2014 9:59 pm

alana is right, get off the pill. Maybe your body does not tolerate synthetic hormones very well.
estrogen is said to be linked to pain ... (I've read on some other forum)
there are a few stories on the web about vulvodynia being linked to the pill for a FEW women..
I was on yasmin for a while for my skin problems .... and I had a few strange reactions to it ...too bad, it made my skin lovely
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Re: A Couple of Questions

Post  tinkerbelle2 on Tue Jan 28, 2014 8:57 pm

Hey DancingSun,

I believe the Pill to be a contributing or main factor to the initial offset of my vaginal burning pain... However, that said, since coming off it the pain has not gone away. It could be similar with you. If you can, try and come off all birth control for a few months at least

Since i've not yet found a cure i only can pass on the tips others have given , using as natural and organic products as you can, washing your hair with your head like upside down or tilting your head back to keep it going down to your vulva/vagina, cotton undies etc etc, try doing a food diary or pain trigger diary just to keep a note of any daily things which flare up the pain. You've probably already tried everything so i doubt that was much help! But i am always happy to chat if you need someone to rant to!

Good luck,
T x
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Re: A Couple of Questions

Post  jackie333 on Wed Feb 05, 2014 8:43 pm

Just thought I'd add that one of the things that helps me just a bit is using a sprayer with cool water when the burning is bad. I even have a little 3 OZ sprayer I found in the pharmacy--(bought it empty) that can be tucked in my purse--I hope that helps a little
Jackie333

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Re: A Couple of Questions

Post  bridget234 on Sat Mar 22, 2014 5:23 pm

I tried going off the pill to help too- it didn't do much.

My PT told me that school/stress makes the condition worse. So that could be contributing to it.

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Re: A Couple of Questions

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