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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


A Couple of Questions

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A Couple of Questions

Post  DancingSun on Sat Jan 18, 2014 3:39 am

Hi, I just found this forum, and am relieved to know that I am not alone and crazy.

I have had vulvodynia on and off for about 6 years now, although last year I had an entire year without symptoms, and so I thought I must be in the clear. But last year was also the first year in a long time that I was not regularly taking the pill and also was not a student.

I have just started college again, doing an intense course of 12 hour days, and I am back on the pill. The symptoms came back on my second day back at school.

I am wondering is it possible that either the hormonal changes associated with birth control or maybe the long periods spent sitting in a chair (or the combination of the two), are causing the symptoms to flare up again?

Thanks!

DancingSun

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Re: A Couple of Questions

Post  Alana3 on Sat Jan 18, 2014 11:32 am

I'd get off the pill if you see it bothers you that much. If there's no medical reason you're on bc than get off. But is it the same pill you were on before?

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Re: A Couple of Questions

Post  mary jane on Sat Jan 18, 2014 9:59 pm

alana is right, get off the pill. Maybe your body does not tolerate synthetic hormones very well.
estrogen is said to be linked to pain ... (I've read on some other forum)
there are a few stories on the web about vulvodynia being linked to the pill for a FEW women..
I was on yasmin for a while for my skin problems .... and I had a few strange reactions to it ...too bad, it made my skin lovely
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Re: A Couple of Questions

Post  tinkerbelle2 on Tue Jan 28, 2014 8:57 pm

Hey DancingSun,

I believe the Pill to be a contributing or main factor to the initial offset of my vaginal burning pain... However, that said, since coming off it the pain has not gone away. It could be similar with you. If you can, try and come off all birth control for a few months at least

Since i've not yet found a cure i only can pass on the tips others have given , using as natural and organic products as you can, washing your hair with your head like upside down or tilting your head back to keep it going down to your vulva/vagina, cotton undies etc etc, try doing a food diary or pain trigger diary just to keep a note of any daily things which flare up the pain. You've probably already tried everything so i doubt that was much help! But i am always happy to chat if you need someone to rant to!

Good luck,
T x
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Re: A Couple of Questions

Post  jackie333 on Wed Feb 05, 2014 8:43 pm

Just thought I'd add that one of the things that helps me just a bit is using a sprayer with cool water when the burning is bad. I even have a little 3 OZ sprayer I found in the pharmacy--(bought it empty) that can be tucked in my purse--I hope that helps a little
Jackie333

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Re: A Couple of Questions

Post  bridget234 on Sat Mar 22, 2014 5:23 pm

I tried going off the pill to help too- it didn't do much.

My PT told me that school/stress makes the condition worse. So that could be contributing to it.

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Re: A Couple of Questions

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