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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Looking for info/help!

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Looking for info/help!

Post  Mariahopes on Mon Jan 27, 2014 11:11 am

Hi all,

I am brand new to this forum. I live in Suffolk in the UK. I had a baby 10 months ago and have experienced nothing but vaginal pain and strange vulval sensations.

I noticed that my flow of urine was never right after having my little girl. It was a truly traumatic birth and i had a large episiotomy and didn't walk for 3 weeks afterwards! Then came the internal stinging.. like acid being poured through my vagina when I walk. I don't have any pain upon touching or penetration and the skin looks normal.

I went to see a pelvic pain physio in London and she said I have a Pelvic floor dysfunction and this is what is causing the hypersensitivity. She found my pelvis to be misalligned and that I was loading it wrong when walking/standing. I also have lower back pain. Is it possible my pain is caused by these tight, short muscles? She found quite a few internal trigger points high up inside me.. she said the tissue was slightly inflamed.

Has any body had any similar experiences to this? Has anybody had any success with phsyio? I dont even know if i am suffering from Vulvodynia.. all 4 consultants have said i'm not. But I feel desperately alone and struggling to work and look after my new baby.

Love to you all.
Maria

Mariahopes

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Re: Looking for info/help!

Post  Alana3 on Mon Jan 27, 2014 11:21 am

Unfortunately after having a baby this is quite normal. A lot of people suggest kegel exercises. The good news is a lot of people take a year to year anf a half to become normal again esp after a birth like yours. I don't know if that's true for you but it might! You can also try massage and vibrators and see if that works for you. I read something about incontinence but forgot what it mentioned. Ill try and find it later

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Re: Looking for info/help!

Post  Mariahopes on Mon Jan 27, 2014 11:32 am

Hi Alana,

I was originally advised to do Kegels but they only serve to make a hypertonic pelvic floor tighter- they just exacerbated the problem. I am now focussing on relaxing and stretching etc. Can it be vulvodynia if i can have pain free sex? Feeling a bit confused!

Thanku x

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Re: Looking for info/help!

Post  Alana3 on Mon Jan 27, 2014 11:53 am

All vulvodunia means is "painful vulva" so I'm assuming yes. Not everyone experiences painful sex. I have endometriosis adenomyosis and a polyp and.have.really bad muscular problems that cause lower back pain. For me vulvodynia was painful sex but others experience pain all day. Am I successfully you have this? No. But a baby would put incredible pressure on your muscles which in turn could cause thipain. Your uterus stretches your organs inside you when pregnant so it could simply be naked needing to return to normal. Have a look at this website. I've definitely heard that getting pregnant can lead to everything you're describing. Like I said a lot of time all you need is time.


http://www.babycentre.co.uk/a553463/urinary-incontinence-after-birth

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Re: Looking for info/help!

Post  Mariahopes on Mon Jan 27, 2014 12:21 pm

Thanks- unfortunately that article is referring to post-partum incontinence which is not what I am suffering from. x

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Re: Looking for info/help!

Post  Alana3 on Mon Jan 27, 2014 12:51 pm

I thought you just said you had a baby?

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Re: Looking for info/help!

Post  Mariahopes on Mon Jan 27, 2014 12:56 pm

Yes I have- well 10 months ago. I have no problem with incontinence or urinary frequency/urgency. My pelvic muscles are way too tight and seem to be causing all sorts of problems. I tried taking ami 10mg but I found I just couldn't get up in the morning to care for my little one. Do you know of anybody else who seems to have had these problems set off by childbirth and/or pregnancy?


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Re: Looking for info/help!

Post  Alana3 on Mon Jan 27, 2014 1:19 pm

Nope I don't know what ami would do for you as that's for nerves. I have heard of it happening and pt exercise seem to be what is recommended

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Re: Looking for info/help!

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