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» Diagnosed Recently
Thu Feb 14, 2019 10:35 am by davesjen

» New and need advice and help
Wed Feb 13, 2019 4:42 am by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 4:33 am by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 7:46 am by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 2:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 12:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 5:10 am by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 5:56 am by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 5:33 am by mary jane

Diagnosed Recently

Tue Jan 08, 2019 7:55 am by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 7:26 am by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 1:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 11:35 am by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 10:55 am by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Fri Jan 12, 2018 4:10 pm by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Mon Jun 04, 2018 9:13 pm by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 1:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 2:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


Looking for info/help!

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Looking for info/help!

Post  Mariahopes on Mon Jan 27, 2014 3:11 am

Hi all,

I am brand new to this forum. I live in Suffolk in the UK. I had a baby 10 months ago and have experienced nothing but vaginal pain and strange vulval sensations.

I noticed that my flow of urine was never right after having my little girl. It was a truly traumatic birth and i had a large episiotomy and didn't walk for 3 weeks afterwards! Then came the internal stinging.. like acid being poured through my vagina when I walk. I don't have any pain upon touching or penetration and the skin looks normal.

I went to see a pelvic pain physio in London and she said I have a Pelvic floor dysfunction and this is what is causing the hypersensitivity. She found my pelvis to be misalligned and that I was loading it wrong when walking/standing. I also have lower back pain. Is it possible my pain is caused by these tight, short muscles? She found quite a few internal trigger points high up inside me.. she said the tissue was slightly inflamed.

Has any body had any similar experiences to this? Has anybody had any success with phsyio? I dont even know if i am suffering from Vulvodynia.. all 4 consultants have said i'm not. But I feel desperately alone and struggling to work and look after my new baby.

Love to you all.
Maria

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Re: Looking for info/help!

Post  Alana3 on Mon Jan 27, 2014 3:21 am

Unfortunately after having a baby this is quite normal. A lot of people suggest kegel exercises. The good news is a lot of people take a year to year anf a half to become normal again esp after a birth like yours. I don't know if that's true for you but it might! You can also try massage and vibrators and see if that works for you. I read something about incontinence but forgot what it mentioned. Ill try and find it later

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Re: Looking for info/help!

Post  Mariahopes on Mon Jan 27, 2014 3:32 am

Hi Alana,

I was originally advised to do Kegels but they only serve to make a hypertonic pelvic floor tighter- they just exacerbated the problem. I am now focussing on relaxing and stretching etc. Can it be vulvodynia if i can have pain free sex? Feeling a bit confused!

Thanku x

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Re: Looking for info/help!

Post  Alana3 on Mon Jan 27, 2014 3:53 am

All vulvodunia means is "painful vulva" so I'm assuming yes. Not everyone experiences painful sex. I have endometriosis adenomyosis and a polyp and.have.really bad muscular problems that cause lower back pain. For me vulvodynia was painful sex but others experience pain all day. Am I successfully you have this? No. But a baby would put incredible pressure on your muscles which in turn could cause thipain. Your uterus stretches your organs inside you when pregnant so it could simply be naked needing to return to normal. Have a look at this website. I've definitely heard that getting pregnant can lead to everything you're describing. Like I said a lot of time all you need is time.


http://www.babycentre.co.uk/a553463/urinary-incontinence-after-birth

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Re: Looking for info/help!

Post  Mariahopes on Mon Jan 27, 2014 4:21 am

Thanks- unfortunately that article is referring to post-partum incontinence which is not what I am suffering from. x

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Re: Looking for info/help!

Post  Alana3 on Mon Jan 27, 2014 4:51 am

I thought you just said you had a baby?

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Re: Looking for info/help!

Post  Mariahopes on Mon Jan 27, 2014 4:56 am

Yes I have- well 10 months ago. I have no problem with incontinence or urinary frequency/urgency. My pelvic muscles are way too tight and seem to be causing all sorts of problems. I tried taking ami 10mg but I found I just couldn't get up in the morning to care for my little one. Do you know of anybody else who seems to have had these problems set off by childbirth and/or pregnancy?


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Re: Looking for info/help!

Post  Alana3 on Mon Jan 27, 2014 5:19 am

Nope I don't know what ami would do for you as that's for nerves. I have heard of it happening and pt exercise seem to be what is recommended

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Re: Looking for info/help!

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