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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


First acupuncture

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First acupuncture

Post  Zbrown on Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox

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Re: First acupuncture

Post  tinkerbelle2 on Fri Apr 11, 2014 9:47 pm

I really want to try acupuncture! What does it feel like and do they stick the needles actually in your V?!!
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Re: First acupuncture

Post  Zbrown on Fri Apr 11, 2014 11:36 pm

Hi , well I have only tried it twice ! But so far it hasn't done mych for the V lol !!! The pain in my legs and shouldures due to tensing it has helped thowe, no the needles vary but none on the V. My wrist, feet inner ankle , near my knew my leg ammm elbow area too ??? She talks a lot L and numbers muttering ? She also found my sacrum to be very tensed as she checks spine body movements , breathing she did find trigger points on upper thigh ect which she released. But she says I'm not breathing properly I breath into my chest which is then not letting my stomach relax and more than likely having my pelvic floor tense too ??? ATM my pain is pretty bad last two days very unfortunate as I see my boyfriend on Monday as he is home from university and I'm in such bad pain :/ it's so unfair ! I am considering just trying natural things but tonight the meds are looking more and more as a relief I think ! Mine is unprovoked but around the baginal opening does seen to be the rawest burning. I do think my tight pelvic floor muscles are contributing mind you Sad xxx

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Re: First acupuncture

Post  Loulou on Sat Apr 12, 2014 7:19 pm

Needles in your V?!! Definitely not lol! I thought that might be the case when i went for acupuncture but for anyone thinking of doing it, don't worry - no needles in the the V! The nearest mine got was just above my pubic bone.

Sounds like your acupuncturist has given you a thorough assessment Zbrown (ignore my question in an earlier post of yours that I replied to - you've answered it here!). And tense muscles can definitely cause pain (primary and referred) so its great that the acupuncture helped with the trigger points she identified. But it's hard to say how many sessions before/if you get some pain relief from your vvd, it's very individual. I felt most benefit a few hours after each session but it didn't last long and I went back regularly in the beginning. If you can afford it and you are getting benefit from releasing trigger points I would say keep going. If tight pelvic floor muscles or sacrum are your problem then you'll probably also need physio/chiro to sort them out - acupuncture will only do so much I think.

Btw the Heal Pelvic Pain book has some guidance on deep abdominal breathing - definitely try that too to help release tension, it really works. Hope your pain eases so you can enjoy your time with your boyfriend!
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Re: First acupuncture

Post  Zbrown on Sat Apr 12, 2014 8:31 pm

Thanks loulou, I have so far purchased when sex hurts book it was a interesting read ! I may get that one u suggested this condition is so draining ! I am a hairdresser and it starting to take it's tole. I may go to a chiropractor very soon and hopefully it will help I am not on any medication ATM but I'm not sure if I should just ale it as my gynocologist says that's what she will start me on if I go back but that's not going to cure pelvic floor muscles is it :/ I do feel quite alone in this situation no one understands how much I just want to be myself again xxx

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Re: First acupuncture

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