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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

First acupuncture

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First acupuncture

Post  Zbrown on Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox


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Re: First acupuncture

Post  tinkerbelle2 on Fri Apr 11, 2014 9:47 pm

I really want to try acupuncture! What does it feel like and do they stick the needles actually in your V?!!

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Re: First acupuncture

Post  Zbrown on Fri Apr 11, 2014 11:36 pm

Hi , well I have only tried it twice ! But so far it hasn't done mych for the V lol !!! The pain in my legs and shouldures due to tensing it has helped thowe, no the needles vary but none on the V. My wrist, feet inner ankle , near my knew my leg ammm elbow area too ??? She talks a lot L and numbers muttering ? She also found my sacrum to be very tensed as she checks spine body movements , breathing she did find trigger points on upper thigh ect which she released. But she says I'm not breathing properly I breath into my chest which is then not letting my stomach relax and more than likely having my pelvic floor tense too ??? ATM my pain is pretty bad last two days very unfortunate as I see my boyfriend on Monday as he is home from university and I'm in such bad pain :/ it's so unfair ! I am considering just trying natural things but tonight the meds are looking more and more as a relief I think ! Mine is unprovoked but around the baginal opening does seen to be the rawest burning. I do think my tight pelvic floor muscles are contributing mind you Sad xxx


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Re: First acupuncture

Post  Loulou on Sat Apr 12, 2014 7:19 pm

Needles in your V?!! Definitely not lol! I thought that might be the case when i went for acupuncture but for anyone thinking of doing it, don't worry - no needles in the the V! The nearest mine got was just above my pubic bone.

Sounds like your acupuncturist has given you a thorough assessment Zbrown (ignore my question in an earlier post of yours that I replied to - you've answered it here!). And tense muscles can definitely cause pain (primary and referred) so its great that the acupuncture helped with the trigger points she identified. But it's hard to say how many sessions before/if you get some pain relief from your vvd, it's very individual. I felt most benefit a few hours after each session but it didn't last long and I went back regularly in the beginning. If you can afford it and you are getting benefit from releasing trigger points I would say keep going. If tight pelvic floor muscles or sacrum are your problem then you'll probably also need physio/chiro to sort them out - acupuncture will only do so much I think.

Btw the Heal Pelvic Pain book has some guidance on deep abdominal breathing - definitely try that too to help release tension, it really works. Hope your pain eases so you can enjoy your time with your boyfriend!


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Re: First acupuncture

Post  Zbrown on Sat Apr 12, 2014 8:31 pm

Thanks loulou, I have so far purchased when sex hurts book it was a interesting read ! I may get that one u suggested this condition is so draining ! I am a hairdresser and it starting to take it's tole. I may go to a chiropractor very soon and hopefully it will help I am not on any medication ATM but I'm not sure if I should just ale it as my gynocologist says that's what she will start me on if I go back but that's not going to cure pelvic floor muscles is it :/ I do feel quite alone in this situation no one understands how much I just want to be myself again xxx


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Re: First acupuncture

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