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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


First acupuncture

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First acupuncture

Post  Zbrown on Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox

Zbrown

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Re: First acupuncture

Post  tinkerbelle2 on Fri Apr 11, 2014 9:47 pm

I really want to try acupuncture! What does it feel like and do they stick the needles actually in your V?!!
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tinkerbelle2

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Re: First acupuncture

Post  Zbrown on Fri Apr 11, 2014 11:36 pm

Hi , well I have only tried it twice ! But so far it hasn't done mych for the V lol !!! The pain in my legs and shouldures due to tensing it has helped thowe, no the needles vary but none on the V. My wrist, feet inner ankle , near my knew my leg ammm elbow area too ??? She talks a lot L and numbers muttering ? She also found my sacrum to be very tensed as she checks spine body movements , breathing she did find trigger points on upper thigh ect which she released. But she says I'm not breathing properly I breath into my chest which is then not letting my stomach relax and more than likely having my pelvic floor tense too ??? ATM my pain is pretty bad last two days very unfortunate as I see my boyfriend on Monday as he is home from university and I'm in such bad pain :/ it's so unfair ! I am considering just trying natural things but tonight the meds are looking more and more as a relief I think ! Mine is unprovoked but around the baginal opening does seen to be the rawest burning. I do think my tight pelvic floor muscles are contributing mind you Sad xxx

Zbrown

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Re: First acupuncture

Post  Loulou on Sat Apr 12, 2014 7:19 pm

Needles in your V?!! Definitely not lol! I thought that might be the case when i went for acupuncture but for anyone thinking of doing it, don't worry - no needles in the the V! The nearest mine got was just above my pubic bone.

Sounds like your acupuncturist has given you a thorough assessment Zbrown (ignore my question in an earlier post of yours that I replied to - you've answered it here!). And tense muscles can definitely cause pain (primary and referred) so its great that the acupuncture helped with the trigger points she identified. But it's hard to say how many sessions before/if you get some pain relief from your vvd, it's very individual. I felt most benefit a few hours after each session but it didn't last long and I went back regularly in the beginning. If you can afford it and you are getting benefit from releasing trigger points I would say keep going. If tight pelvic floor muscles or sacrum are your problem then you'll probably also need physio/chiro to sort them out - acupuncture will only do so much I think.

Btw the Heal Pelvic Pain book has some guidance on deep abdominal breathing - definitely try that too to help release tension, it really works. Hope your pain eases so you can enjoy your time with your boyfriend!
x

Loulou

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Re: First acupuncture

Post  Zbrown on Sat Apr 12, 2014 8:31 pm

Thanks loulou, I have so far purchased when sex hurts book it was a interesting read ! I may get that one u suggested this condition is so draining ! I am a hairdresser and it starting to take it's tole. I may go to a chiropractor very soon and hopefully it will help I am not on any medication ATM but I'm not sure if I should just ale it as my gynocologist says that's what she will start me on if I go back but that's not going to cure pelvic floor muscles is it :/ I do feel quite alone in this situation no one understands how much I just want to be myself again xxx

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Re: First acupuncture

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