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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

First acupuncture

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First acupuncture

Post  Zbrown on Mon Mar 31, 2014 8:48 pm

Well I have a lot of trigger points and tension through out my body , after y first trip there has the needles put in at various points on my right leg and left arm but no relief from the v lol ! How many appointments before noticing a difference xox


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Re: First acupuncture

Post  tinkerbelle2 on Fri Apr 11, 2014 9:47 pm

I really want to try acupuncture! What does it feel like and do they stick the needles actually in your V?!!

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Re: First acupuncture

Post  Zbrown on Fri Apr 11, 2014 11:36 pm

Hi , well I have only tried it twice ! But so far it hasn't done mych for the V lol !!! The pain in my legs and shouldures due to tensing it has helped thowe, no the needles vary but none on the V. My wrist, feet inner ankle , near my knew my leg ammm elbow area too ??? She talks a lot L and numbers muttering ? She also found my sacrum to be very tensed as she checks spine body movements , breathing she did find trigger points on upper thigh ect which she released. But she says I'm not breathing properly I breath into my chest which is then not letting my stomach relax and more than likely having my pelvic floor tense too ??? ATM my pain is pretty bad last two days very unfortunate as I see my boyfriend on Monday as he is home from university and I'm in such bad pain :/ it's so unfair ! I am considering just trying natural things but tonight the meds are looking more and more as a relief I think ! Mine is unprovoked but around the baginal opening does seen to be the rawest burning. I do think my tight pelvic floor muscles are contributing mind you Sad xxx


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Re: First acupuncture

Post  Loulou on Sat Apr 12, 2014 7:19 pm

Needles in your V?!! Definitely not lol! I thought that might be the case when i went for acupuncture but for anyone thinking of doing it, don't worry - no needles in the the V! The nearest mine got was just above my pubic bone.

Sounds like your acupuncturist has given you a thorough assessment Zbrown (ignore my question in an earlier post of yours that I replied to - you've answered it here!). And tense muscles can definitely cause pain (primary and referred) so its great that the acupuncture helped with the trigger points she identified. But it's hard to say how many sessions before/if you get some pain relief from your vvd, it's very individual. I felt most benefit a few hours after each session but it didn't last long and I went back regularly in the beginning. If you can afford it and you are getting benefit from releasing trigger points I would say keep going. If tight pelvic floor muscles or sacrum are your problem then you'll probably also need physio/chiro to sort them out - acupuncture will only do so much I think.

Btw the Heal Pelvic Pain book has some guidance on deep abdominal breathing - definitely try that too to help release tension, it really works. Hope your pain eases so you can enjoy your time with your boyfriend!


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Re: First acupuncture

Post  Zbrown on Sat Apr 12, 2014 8:31 pm

Thanks loulou, I have so far purchased when sex hurts book it was a interesting read ! I may get that one u suggested this condition is so draining ! I am a hairdresser and it starting to take it's tole. I may go to a chiropractor very soon and hopefully it will help I am not on any medication ATM but I'm not sure if I should just ale it as my gynocologist says that's what she will start me on if I go back but that's not going to cure pelvic floor muscles is it :/ I do feel quite alone in this situation no one understands how much I just want to be myself again xxx


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Re: First acupuncture

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