Vulvodynia Support
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» Hope to all my suffering ladies
Feeling like my life is out of control..... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Feeling like my life is out of control..... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Feeling like my life is out of control..... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Feeling like my life is out of control..... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Feeling like my life is out of control..... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Feeling like my life is out of control..... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Feeling like my life is out of control..... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Feeling like my life is out of control..... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Feeling like my life is out of control..... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Feeling like my life is out of control.....

2 posters

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Feeling like my life is out of control..... Empty Feeling like my life is out of control.....

Post  hondachick96 Mon Apr 07, 2014 11:10 pm

I will make this as brief as I can....last June I started experiencing symptoms of a yeast infection. I can usually tell if I have one as I have dealt with them my entire life. So, I took some Flagyl and Diflucan (sp). That wasn't working so, I decided to go to the GYN. She said that she didn't see anything under the microscope and said that she would prescribe me some more medication. That still didn't work. I found it uncomfortable to sit, ride a bike, have sex and sometimes run/stand/walk. I was miserable. I went back to the doctor and she did an STD test. Came back negative. So, she told me that she thinks she I suffer from Vulvadynia. She prescribed me  10 mg Antitripline. It made me soooo tired and I felt sluggish and more tired the next morning so I stopped taking it. She gave me anti-steroid creams, yeast infection medicine and anti-flammatory creams. Nothing was working. I changed my soap. I work out 5 times a week and would hurry back to my office/home to shower and make sure I was clean. I thought maybe that was aggravating me. Still, nothing...my GYN suggested that I take Probiotics. It still wasn't helping but the symptoms weren't as severe as before. For about 5 months I didn't have any issues. Back in 2011 I experienced this. I remember I thought I had a stubborn yeast infection that I couldn't get rid of. I went to the doctor several times, again, checked for STD's and yeast infection and everything came back normal. That particular instance only lasted 1 month. This time, it has been going on since last June.  Then, last Thursday, the symptoms started up again. Great....So, I am thinking I have another yeast infection because that's what it feels like. I will have pain inside my vagina on the left side near the opening. Then, it will change to tingling around my Clitoris and Vulva area...then it will move to my left side, then to the middle opening of my vagina. Sex is painful. I use Astro-glide whenever I have sex with my fiancé because it makes it easier but afterwards, omg, I am paying for it. It burns like crazy! But this doesn't happen every time we have sex. It's hit and miss. I hate that I have to use lubricant to have sex. I'm 36 years old. I do not have any medical problems. I have had my Thyroid checked, I work out, eat right. But I have found myself drinking 1-2 glasses a wine a night because it helps numb the pain. I don't want this to be  my relief. My Fiancé' has been very supportive despite my ways of thinking. This has caused me to feel somewhat depressed, anxious, lowered-self esteem and confidence because I can't perform sexually as I would like. I find myself stressing myself out because I worry about my Fiancé' just getting fed up and being like, "I can't deal with this. I want a woman who can please me." He has never said that I know deep down that he wouldn't but still, does it cross my mind, yes.  I get some solace from him still wanting to marry despite my condition. I know there is no cure for this condition. I guess I am more or less just venting because I feel so isolated and alone.....  Crying or Very sad 

hondachick96

Posts : 2
Join date : 2014-04-07
Location : Texas

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Feeling like my life is out of control..... Empty Re: Feeling like my life is out of control.....

Post  julesmp Tue Apr 08, 2014 9:46 pm

So similar to how I have felt. Make sure first and foremost that you communicate with your fiance throughout this (my fiance and I have made sure to do so, and I've had this issue now for a bit over 4 years). I'd encourage you to try and work with your doctor or find one who can treat you better if you don't feel that this doctor is helping. Amitriptyline is an option but I had some bad side effects, as I did with other medications. I ended up having surgery, which has helped but not fixed things.

Push yourself to be positive; it's really hard, but once you can do it sometimes, life isn't as bad. <3

julesmp

Posts : 6
Join date : 2014-03-27
Location : Virginia, USA

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