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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Does anyone have this issue?

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Does anyone have this issue?

Post  time2reclaim on Tue Apr 01, 2014 3:17 am

My pain is pretty much external and is stronger in the vestibule. My biggest problem seems to be that the external area does not have normal moisture. About 8 days after my period I do get more of the slicker moisture and for that short time the pain stops but then it begins again.

My pain used to be the entire external, the opening and part of the vagina near the opening. I was using an estrogen for a short time and it at least helped the vaginal pain to improve.

OH and I also seem to have a toilet paper allergy issue now as I get red, inflamed and swollen if I use it. This is pretty miserable. I'm not sure what else to use.

Does anyone else seem to have this dryness issue?


Last edited by time2reclaim on Fri Dec 26, 2014 12:46 am; edited 1 time in total

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Re: Does anyone have this issue?

Post  lonelyone48 on Tue Apr 01, 2014 9:48 am

Hi time2reclaim. Yes I have dryness and was told I was menopausal. It definitely makes vulvodynia worse. I cannot take estrogen so I use KY Jelly.

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Re:Does anyone else have this issue

Post  Sunflower82 on Tue Apr 01, 2014 5:53 pm

Hi,
It maybe worth trying an oil/water based natural lube which doubles up as a moisturiser a good brand that hasn't caused me irritation is called yes! It's a natural product and doesn't contain any horrible chemicals !


Kt

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lubricant

Post  time2reclaim on Tue Apr 01, 2014 10:44 pm

I've been using emu oil and it helps a lot but still doesn't cut the pain

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TP

Post  nanmark3 on Thu Apr 10, 2014 11:03 pm

Hello, the only toilette paper I can use on a regular basis is Charmin Ultra Soft and the oil I use for that painful dryness is organic cold-pressed coconut oil. It's very soothing and doesn't stain things. I hope this helps. Nancy

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Where can you buy organic cold-pressed coconut oil,please?

Post  kks224 on Mon Jun 23, 2014 3:03 am

nanmark3 wrote:Hello, the only toilette paper I can use on a regular basis is Charmin Ultra Soft and the oil I use for that painful dryness is organic cold-pressed coconut oil.  It's very soothing and doesn't stain things.  I hope this helps.  Nancy

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Re: Does anyone have this issue?

Post  kristinewarning@yahoo.com on Sat Aug 02, 2014 3:14 pm

I have the issue with moisture and I am starting menopause. Every doctor I have seen told me "it may sound crazy", but use Crisco oil - yes, the same thick, white lard-looking stuff you would fry chicken in. It's cheap and a can could last for an awful long time. I finally bought some and it works!

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Re: Does anyone have this issue?

Post  time2reclaim on Fri Dec 26, 2014 1:10 am

kristinewarning@yahoo.com wrote:I have the issue with moisture and I am starting menopause.  Every doctor I have seen told me "it may sound crazy", but use Crisco oil - yes, the same thick, white lard-looking stuff you would fry chicken in.  It's cheap and a can could last for an awful long time.  I finally bought some and it works!

I have heard to try Crisco before but haven't yet. Have you had no issues with any sort of vaginal infections if you have sex and are using it? I am so afraid of having to use any meds again on the girly parts.

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Re: Does anyone have this issue?

Post  meelie on Mon Dec 29, 2014 12:14 am

I use a completely natural organic moisturizer called Yes. It is wonderful. It's on amazon but I order it from GB.

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Re: Does anyone have this issue?

Post  time2reclaim on Mon Dec 29, 2014 12:52 am

meelie wrote:I use a completely natural organic moisturizer called Yes. It is wonderful. It's on amazon but I order it from GB.

Do you use the water or oil based product?

I found the ingredients interesting in the water based. There is flax extract which I don't know if it has any hormonal effect as an ointment on the genitalia, I do know there is a possibility of flax being similar to estrogens.

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Re: Does anyone have this issue?

Post  meelie on Mon Dec 29, 2014 2:39 am

I use the water based. I have tried the oil based for those rare sex moments but I still like the water best.

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Re: Does anyone have this issue?

Post  meelie on Mon Dec 29, 2014 2:44 am

I've never read anything about flax having a hormonal effect on anything. I know it is a great anti inflammatory and other things. I give it to my horse for COPD and arthritis. Seems to help so far.

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Re: Does anyone have this issue?

Post  Sparkle on Tue Dec 30, 2014 9:22 pm

The best lube to use is yes water based lube it's non irritant. And most the girls with the horrible condition use it. It's not cheap but I promise u it won't irritate. You can buy it at Amazon online. I always use it

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Re: Does anyone have this issue?

Post  kell on Wed Jun 15, 2016 1:45 am

Can you use the Yes as a moisturizer for inside as opposed to a lube for pre-sex?  I thought I'd read somewhere you could use it either way and it was helpful for dryness.

Also, I recently saw in Hannafords something I thought was interesting -- it was I think, Organic -- Coconut Oil Crisco...  I made a mental check in my head to remember this if I ever needed it.  Currently I melt my coconut oil and apply it externally/internally a bit.  I think it has helped.

I've also made a switch on tp - no perfumes etc...  also washing undies in washer, either with no soap or I've tried a new natural type soap, its called: Molly's Suds...?   link:mollys suds

Has anyone heard of that or think it might be ok?
I also have bought a menopausal vitamin that has black cohosh, Dong quai, wild yams, clover, sage, soy, vitex in it.

I also bought the Key E inserts, which are interesting to say the least -- I think they are good, my big thing is to get the nerve up to approach about having sex at some point soon and see if anything has helped.  Even a little would be good.  I was into my routine of my "therapies" as I call them and then we went camping for 5 days so I wasn't able to do anything then, so now I need to build up my applications and then my courage again...

Sorry to go on here on this thread but I'd love to hear from anyone who has any thoughts on my 'therapies'.   Smile   I've gotten most, if not all of these ideas on this board and I so appreciate it.


Last edited by kell on Wed Jun 15, 2016 10:15 am; edited 1 time in total

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Re: Does anyone have this issue?

Post  PainBlogger on Wed Jun 15, 2016 8:01 am

Yes can definitely be used internally as a moisturiser. It comes in prefilled applicators which can be used for that purpose (or the bigger tubes).

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Re: Does anyone have this issue?

Post  emalita on Wed Jun 15, 2016 1:43 pm

Also, Yes just came out with a vaginal moisturizer that is supposed to be longer lasting than the water based lubricant, but it hasn't been out long enough to have a ton of reviews.

In my opinion, I wouldn't waste the money on the Yes prefilled applicators. I find them difficult to use, and they can leave a lot of product behind in the applicator, which feels like a huge waste to me. I personally just buy disposable applicators and fill them myself. That way I know there is no product waste.

I had used coconut oil in the past and really liked it until it clogged a pore on my inner labia  Rolling Eyes  It was huge and VERY painful (had to have a doctor examine it). However, I had been using it right before bed, and I was wearing a pantyliner so it wouldn't stain my clothes or the bedsheets. So that wasn't a very breathable situation for my skin. I seem to be one of the few women that has to worry about this kind of stuff on my lady bits, but I figured I would throw it out there as something to watch out for.

Below is a good website to check to see how a product rates for things like skin allergies and irritations. They rank things like cosmetics and sunscreens, too, but the below link is for Molly's Suds. Overall it has a good rating, but each individual is different in what can cause irritation. It's interesting to see how horrible a "gentle" laundry detergent can actually rank with all the nasty chemicals they contain. I spent weeks combing through this site, but I ended up deciding to just make my own laundry detergent, which is cheap, easy, and as free of chemicals as I can get while still cleaning clothes  Very Happy

http://www.ewg.org/guides/cleaners/5835-MollysSudsLaundryPowder?formulation=6803

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Re: Does anyone have this issue?

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