Vulvodynia Support
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» Hope to all my suffering ladies
New guy looking for help - Page 2 EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New guy looking for help - Page 2 EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New guy looking for help - Page 2 EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New guy looking for help - Page 2 EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New guy looking for help - Page 2 EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New guy looking for help - Page 2 EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New guy looking for help - Page 2 EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New guy looking for help - Page 2 EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New guy looking for help - Page 2 EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New guy looking for help

+3
lavrose
Alana3
rejected.803
7 posters

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New guy looking for help - Page 2 Empty Re: New guy looking for help

Post  Mark Tue Jun 03, 2014 5:01 pm

rejected.803 wrote:She has claimed that she suggested non-intercourse sex, but I refused to hear/listen/consider that option.

Is this true? At least from her perspective?

If penetrative sex hurts, or triggers pain, as it does with most women who have vulvodynia, I think it would take a pretty insensitive guy to still want it.

However, I can also see how being turned down for that could feel to you like rejection. We all enjoy intimacy with the people we love.

The trick I think is to realise that intimacy comes in many different forms. Is your wife's pain continuous or does it come and go? If it comes and goes, does she have a sex drive when there's no pain? If so, does she feel horny at those times? If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?

At the moment, she might be reluctant to go with that, because she probably fears you'd expect it to be foreplay leading to vaginal sex. But if you made it clear to her that you didn't want or expect anything in return, there's a good chance you could be in there  Very Happy .

My wife has acute intermittent vulvodynia and I can tell you I've never gone down on a woman as much as I have since we got together. Except perhaps since our son was born earlier this year, as he seems to think he lives in a different time zone than the rest of us so wakes up around 3am every morning then refuses to settle... grrrr!

Mark

Posts : 53
Join date : 2011-03-28

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Post  rejected.803 Tue Jun 03, 2014 10:51 pm

"Is your wife's pain continuous or does it come and go?"
 My wife's pain is only during intercourse.  

"If it comes and goes, does she have a sex drive when there's no pain?"
  No, she has no sex drive, desire, or interest at all... At least as far as I know based on her actions.

"If so, does she feel horny at those times?"
  I don't think she has ever felt horny for a nanosecond in her life....after we got married.

"If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?"
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

rejected.803

Posts : 6
Join date : 2014-04-16
Location : South Carolina, USA

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Post  Mark Wed Jun 04, 2014 11:17 am

rejected.803 wrote:
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

You wrote that your wife was the one who suggested doing things sexually without it leading to intercourse, and you say that you both enjoyed it. However you also say that you still wanted to enjoy (pain-free) intercourse, by which I assume you mean vaginal.

Did you by any chance say this to her, or even give her some reason to think it? If you did, it's possible that's why she went off the penetration-free sex idea. Remember, it hurts her, and you hinting you want it makes her feel bad, and reminds her of that pain. So don't do it!

If she likes closeness but not in the bedroom, I'm sure there are other places you can find to enjoy each other...

Mark

Posts : 53
Join date : 2011-03-28

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Post  Alana3 Wed Jun 04, 2014 1:36 pm

If it's only during intercourse she's a good candidate for the vestibulectomy.  If she has questions I would be willing to answer them.  Best decision of my life!

Alana3

Posts : 1093
Join date : 2012-09-25

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