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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New guy looking for help

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Re: New guy looking for help

Post  Mark on Tue Jun 03, 2014 5:01 pm

rejected.803 wrote:She has claimed that she suggested non-intercourse sex, but I refused to hear/listen/consider that option.

Is this true? At least from her perspective?

If penetrative sex hurts, or triggers pain, as it does with most women who have vulvodynia, I think it would take a pretty insensitive guy to still want it.

However, I can also see how being turned down for that could feel to you like rejection. We all enjoy intimacy with the people we love.

The trick I think is to realise that intimacy comes in many different forms. Is your wife's pain continuous or does it come and go? If it comes and goes, does she have a sex drive when there's no pain? If so, does she feel horny at those times? If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?

At the moment, she might be reluctant to go with that, because she probably fears you'd expect it to be foreplay leading to vaginal sex. But if you made it clear to her that you didn't want or expect anything in return, there's a good chance you could be in there  Very Happy .

My wife has acute intermittent vulvodynia and I can tell you I've never gone down on a woman as much as I have since we got together. Except perhaps since our son was born earlier this year, as he seems to think he lives in a different time zone than the rest of us so wakes up around 3am every morning then refuses to settle... grrrr!

Mark

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Re: New guy looking for help

Post  rejected.803 on Tue Jun 03, 2014 10:51 pm

"Is your wife's pain continuous or does it come and go?"
 My wife's pain is only during intercourse.  

"If it comes and goes, does she have a sex drive when there's no pain?"
  No, she has no sex drive, desire, or interest at all... At least as far as I know based on her actions.

"If so, does she feel horny at those times?"
  I don't think she has ever felt horny for a nanosecond in her life....after we got married.

"If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?"
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

rejected.803

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Re: New guy looking for help

Post  Mark on Wed Jun 04, 2014 11:17 am

rejected.803 wrote:
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

You wrote that your wife was the one who suggested doing things sexually without it leading to intercourse, and you say that you both enjoyed it. However you also say that you still wanted to enjoy (pain-free) intercourse, by which I assume you mean vaginal.

Did you by any chance say this to her, or even give her some reason to think it? If you did, it's possible that's why she went off the penetration-free sex idea. Remember, it hurts her, and you hinting you want it makes her feel bad, and reminds her of that pain. So don't do it!

If she likes closeness but not in the bedroom, I'm sure there are other places you can find to enjoy each other...

Mark

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Re: New guy looking for help

Post  Alana3 on Wed Jun 04, 2014 1:36 pm

If it's only during intercourse she's a good candidate for the vestibulectomy.  If she has questions I would be willing to answer them.  Best decision of my life!

Alana3

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Re: New guy looking for help

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