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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New guy looking for help

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Re: New guy looking for help

Post  Mark on Tue Jun 03, 2014 5:01 pm

rejected.803 wrote:She has claimed that she suggested non-intercourse sex, but I refused to hear/listen/consider that option.

Is this true? At least from her perspective?

If penetrative sex hurts, or triggers pain, as it does with most women who have vulvodynia, I think it would take a pretty insensitive guy to still want it.

However, I can also see how being turned down for that could feel to you like rejection. We all enjoy intimacy with the people we love.

The trick I think is to realise that intimacy comes in many different forms. Is your wife's pain continuous or does it come and go? If it comes and goes, does she have a sex drive when there's no pain? If so, does she feel horny at those times? If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?

At the moment, she might be reluctant to go with that, because she probably fears you'd expect it to be foreplay leading to vaginal sex. But if you made it clear to her that you didn't want or expect anything in return, there's a good chance you could be in there  Very Happy .

My wife has acute intermittent vulvodynia and I can tell you I've never gone down on a woman as much as I have since we got together. Except perhaps since our son was born earlier this year, as he seems to think he lives in a different time zone than the rest of us so wakes up around 3am every morning then refuses to settle... grrrr!

Mark

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Re: New guy looking for help

Post  rejected.803 on Tue Jun 03, 2014 10:51 pm

"Is your wife's pain continuous or does it come and go?"
 My wife's pain is only during intercourse.  

"If it comes and goes, does she have a sex drive when there's no pain?"
  No, she has no sex drive, desire, or interest at all... At least as far as I know based on her actions.

"If so, does she feel horny at those times?"
  I don't think she has ever felt horny for a nanosecond in her life....after we got married.

"If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?"
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

rejected.803

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Re: New guy looking for help

Post  Mark on Wed Jun 04, 2014 11:17 am

rejected.803 wrote:
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

You wrote that your wife was the one who suggested doing things sexually without it leading to intercourse, and you say that you both enjoyed it. However you also say that you still wanted to enjoy (pain-free) intercourse, by which I assume you mean vaginal.

Did you by any chance say this to her, or even give her some reason to think it? If you did, it's possible that's why she went off the penetration-free sex idea. Remember, it hurts her, and you hinting you want it makes her feel bad, and reminds her of that pain. So don't do it!

If she likes closeness but not in the bedroom, I'm sure there are other places you can find to enjoy each other...

Mark

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Re: New guy looking for help

Post  Alana3 on Wed Jun 04, 2014 1:36 pm

If it's only during intercourse she's a good candidate for the vestibulectomy.  If she has questions I would be willing to answer them.  Best decision of my life!

Alana3

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Re: New guy looking for help

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