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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New guy looking for help

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Re: New guy looking for help

Post  Mark on Tue Jun 03, 2014 5:01 pm

rejected.803 wrote:She has claimed that she suggested non-intercourse sex, but I refused to hear/listen/consider that option.

Is this true? At least from her perspective?

If penetrative sex hurts, or triggers pain, as it does with most women who have vulvodynia, I think it would take a pretty insensitive guy to still want it.

However, I can also see how being turned down for that could feel to you like rejection. We all enjoy intimacy with the people we love.

The trick I think is to realise that intimacy comes in many different forms. Is your wife's pain continuous or does it come and go? If it comes and goes, does she have a sex drive when there's no pain? If so, does she feel horny at those times? If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?

At the moment, she might be reluctant to go with that, because she probably fears you'd expect it to be foreplay leading to vaginal sex. But if you made it clear to her that you didn't want or expect anything in return, there's a good chance you could be in there  Very Happy .

My wife has acute intermittent vulvodynia and I can tell you I've never gone down on a woman as much as I have since we got together. Except perhaps since our son was born earlier this year, as he seems to think he lives in a different time zone than the rest of us so wakes up around 3am every morning then refuses to settle... grrrr!

Mark

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Re: New guy looking for help

Post  rejected.803 on Tue Jun 03, 2014 10:51 pm

"Is your wife's pain continuous or does it come and go?"
 My wife's pain is only during intercourse.  

"If it comes and goes, does she have a sex drive when there's no pain?"
  No, she has no sex drive, desire, or interest at all... At least as far as I know based on her actions.

"If so, does she feel horny at those times?"
  I don't think she has ever felt horny for a nanosecond in her life....after we got married.

"If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?"
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

rejected.803

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Location : South Carolina, USA

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Re: New guy looking for help

Post  Mark on Wed Jun 04, 2014 11:17 am

rejected.803 wrote:
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

You wrote that your wife was the one who suggested doing things sexually without it leading to intercourse, and you say that you both enjoyed it. However you also say that you still wanted to enjoy (pain-free) intercourse, by which I assume you mean vaginal.

Did you by any chance say this to her, or even give her some reason to think it? If you did, it's possible that's why she went off the penetration-free sex idea. Remember, it hurts her, and you hinting you want it makes her feel bad, and reminds her of that pain. So don't do it!

If she likes closeness but not in the bedroom, I'm sure there are other places you can find to enjoy each other...

Mark

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Re: New guy looking for help

Post  Alana3 on Wed Jun 04, 2014 1:36 pm

If it's only during intercourse she's a good candidate for the vestibulectomy.  If she has questions I would be willing to answer them.  Best decision of my life!

Alana3

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Re: New guy looking for help

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