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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New guy looking for help

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Re: New guy looking for help

Post  Mark on Tue Jun 03, 2014 5:01 pm

rejected.803 wrote:She has claimed that she suggested non-intercourse sex, but I refused to hear/listen/consider that option.

Is this true? At least from her perspective?

If penetrative sex hurts, or triggers pain, as it does with most women who have vulvodynia, I think it would take a pretty insensitive guy to still want it.

However, I can also see how being turned down for that could feel to you like rejection. We all enjoy intimacy with the people we love.

The trick I think is to realise that intimacy comes in many different forms. Is your wife's pain continuous or does it come and go? If it comes and goes, does she have a sex drive when there's no pain? If so, does she feel horny at those times? If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?

At the moment, she might be reluctant to go with that, because she probably fears you'd expect it to be foreplay leading to vaginal sex. But if you made it clear to her that you didn't want or expect anything in return, there's a good chance you could be in there  Very Happy .

My wife has acute intermittent vulvodynia and I can tell you I've never gone down on a woman as much as I have since we got together. Except perhaps since our son was born earlier this year, as he seems to think he lives in a different time zone than the rest of us so wakes up around 3am every morning then refuses to settle... grrrr!

Mark

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Re: New guy looking for help

Post  rejected.803 on Tue Jun 03, 2014 10:51 pm

"Is your wife's pain continuous or does it come and go?"
 My wife's pain is only during intercourse.  

"If it comes and goes, does she have a sex drive when there's no pain?"
  No, she has no sex drive, desire, or interest at all... At least as far as I know based on her actions.

"If so, does she feel horny at those times?"
  I don't think she has ever felt horny for a nanosecond in her life....after we got married.

"If she does, would she be up for kissing and cuddling followed by you giving her an intimate massage/hand job or oral sex?"
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

rejected.803

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Location : South Carolina, USA

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Re: New guy looking for help

Post  Mark on Wed Jun 04, 2014 11:17 am

rejected.803 wrote:
   A year or so ago she had the idea that we should experiment and learn to enjoy sex together as long as there was no intercourse.  I agreed to the experiment. She seemed to enjoy it. I enjoyed it. Sure, I still wanted us to Enjoy (I.e., without pain for her) intercourse.   Within a week she changed her mind to never wanting anything to do with me and sex again.
 Like I wrote earlier, she does allow and seems to enjoy some hugging and light kissing as long as we are not in the bedroom. Her stated view/purpose of going to bed is for sleeping only. She does not want anything to do with me in bed. She has been enjoying me giving her some kisses as I leave for work in the mornings while she is reading her netbook. But she doesn't want anything to do with me at night going to or in bed.

You wrote that your wife was the one who suggested doing things sexually without it leading to intercourse, and you say that you both enjoyed it. However you also say that you still wanted to enjoy (pain-free) intercourse, by which I assume you mean vaginal.

Did you by any chance say this to her, or even give her some reason to think it? If you did, it's possible that's why she went off the penetration-free sex idea. Remember, it hurts her, and you hinting you want it makes her feel bad, and reminds her of that pain. So don't do it!

If she likes closeness but not in the bedroom, I'm sure there are other places you can find to enjoy each other...

Mark

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Re: New guy looking for help

Post  Alana3 on Wed Jun 04, 2014 1:36 pm

If it's only during intercourse she's a good candidate for the vestibulectomy.  If she has questions I would be willing to answer them.  Best decision of my life!

Alana3

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Re: New guy looking for help

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