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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Will i ever enjoy sex again?

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Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 1:41 am

Hello all, i am new here. I was just diagnosed last month after almost a year of going to the Dr, and waiting to see a specialist. The Dr did an internal ultrasound, tested for UTI, yeast, all STD's and other vaginal infections and everything has come back negative.

I have constant burning and irritation in the vulva area.

Every time i have sex i get a flare up. It's so frustrating and becoming really difficult for my BF and i. Is there any way to have sex without triggering a huge flare up of symptoms?

The specialist has given me fluconazole (which doesn't help much) and lidocaine 5% (which i am scared to use).  

Have you found anything that works for managing flare ups?

Thanks for listening.


Last edited by yoginimom on Mon Nov 17, 2014 5:56 am; edited 1 time in total

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 12:53 pm

Use the lidocaine, it's not amazing but it will Definitely help when it comes to having sex!! It makes it numb so you can't feel any pain! I've had mine for 2 and a half years and still trying to find answers but the lidocaine has helped me and my boyfriend, it won't make sex amazing but it makes easier and a lot less painful! It's worth a try x

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Re: Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 3:05 pm

Thank you for responding! Have you ever had the lidocane sting or make the burning worse? I had that happen last night, i'm not sure if i may be allergic to it?

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 3:14 pm

It does burn when I put it on to begin with because my skins physically sore but then it subsides and makes my pain go for an hour or two, so it is worth using if you want to have pain free sex, I found sometimes It works better than others, depending on how flared up my skin is, but it has made things easier for me x

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Re: Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 3:17 pm

ahhh ok good to know! Thanks. Does sex tend to flare you up again ever more so? I really wish there was a way to have sex and not have to worry about it being worse again the next day. Have you tried anything that works as prevention?

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 3:21 pm

I wouldn't say sex flares it up but as soon as the lidocaine wears off I'm in a lot of pain, but that's just my normal pain, if that makes sense? And me too!! And no I've only tried the lidocaine and dilators but I've got a hospital appointment soon and hopefully I'll get more answers then, how did your problems begin if you don't mind me asking?x

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Re: Will i ever enjoy sex again?

Post  Alana3 on Mon Aug 11, 2014 2:00 pm

Yes, be patient that's the best advice I can give.  It took me 7 years to find a doc who could help me, but I am pain free now.  I had to jump through a bunch of hurdles to get thru it, but it was done.  My other advice is to try everything you can even if the advice the doctors are giving you seem silly.  (Or if it's really bad advice, go to a new doctor, someone suggested I switch positions during sex as if that hadn't crossed my mind!).  I finally had surgery, but some people are lucky and can get relief by other methods.  I am truly sorry that you have to even endure this, but there are docs out there who can and will help.  But the right one may take a little time to discover unfortunately. :/

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Re: Will i ever enjoy sex again?

Post  yoginimom on Thu Aug 14, 2014 9:10 pm

how did your problems begin if you don't mind me asking?x

Hi Alana & Morgan,

No i don't mind. And thank you for sharing!

It seemed to start with chronic yeast infections which have gone on for a good 20 years. I feel like i am in constant treatment of yeast. Though on my last pap the results came back negative for yeast, so i thought that was odd, because i had all the symptoms. Then i started to think it wasn't yeast. i went back for more swabs, checked for everything under the sun and everything was negative. I also often feel like i have a UTI, but that was well was negative.

My Dr sent me to an OBGYN (had to wait forever to get in) and in the mean time i just self treated with diflucan and coconut oil, as those are the only things that seem to ease my symptoms and make life bearable. I also use vaginal probiotics, which help too.

The OBGYN did the q-tip test and told me i have VV. And that my symptoms are not yeast or UTI. So i stopped treating the yeast, but then the flare ups were so much worse. i couldn't sit or do anything. I also started getting anxiety from the high pain levels.

I finally took diflucan again, and it eased my symptoms, but it always comes back within 7 days.

it feels like a chemical burn to me. it's red, raw, very sore and always there to some degree. Some days it flares up, and it's almost unbearable. Other days it's just a low level irritation.

I have another appointment with her in a few weeks. So i am going to find out what all the options are.

If you have any suggestions please let me know!

Have you tried anything that works to manage your symptoms?

Alana, how did you manage to be pain free?

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Re: Will i ever enjoy sex again?

Post  Alana3 on Thu Aug 14, 2014 11:48 pm

I had the surgery. Is your pain all the.time.or provoked?

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Re: Will i ever enjoy sex again?

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