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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Will i ever enjoy sex again?

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Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 1:41 am

Hello all, i am new here. I was just diagnosed last month after almost a year of going to the Dr, and waiting to see a specialist. The Dr did an internal ultrasound, tested for UTI, yeast, all STD's and other vaginal infections and everything has come back negative.

I have constant burning and irritation in the vulva area.

Every time i have sex i get a flare up. It's so frustrating and becoming really difficult for my BF and i. Is there any way to have sex without triggering a huge flare up of symptoms?

The specialist has given me fluconazole (which doesn't help much) and lidocaine 5% (which i am scared to use).  

Have you found anything that works for managing flare ups?

Thanks for listening.


Last edited by yoginimom on Mon Nov 17, 2014 5:56 am; edited 1 time in total

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 12:53 pm

Use the lidocaine, it's not amazing but it will Definitely help when it comes to having sex!! It makes it numb so you can't feel any pain! I've had mine for 2 and a half years and still trying to find answers but the lidocaine has helped me and my boyfriend, it won't make sex amazing but it makes easier and a lot less painful! It's worth a try x

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Re: Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 3:05 pm

Thank you for responding! Have you ever had the lidocane sting or make the burning worse? I had that happen last night, i'm not sure if i may be allergic to it?

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 3:14 pm

It does burn when I put it on to begin with because my skins physically sore but then it subsides and makes my pain go for an hour or two, so it is worth using if you want to have pain free sex, I found sometimes It works better than others, depending on how flared up my skin is, but it has made things easier for me x

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Re: Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 3:17 pm

ahhh ok good to know! Thanks. Does sex tend to flare you up again ever more so? I really wish there was a way to have sex and not have to worry about it being worse again the next day. Have you tried anything that works as prevention?

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 3:21 pm

I wouldn't say sex flares it up but as soon as the lidocaine wears off I'm in a lot of pain, but that's just my normal pain, if that makes sense? And me too!! And no I've only tried the lidocaine and dilators but I've got a hospital appointment soon and hopefully I'll get more answers then, how did your problems begin if you don't mind me asking?x

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Re: Will i ever enjoy sex again?

Post  Alana3 on Mon Aug 11, 2014 2:00 pm

Yes, be patient that's the best advice I can give.  It took me 7 years to find a doc who could help me, but I am pain free now.  I had to jump through a bunch of hurdles to get thru it, but it was done.  My other advice is to try everything you can even if the advice the doctors are giving you seem silly.  (Or if it's really bad advice, go to a new doctor, someone suggested I switch positions during sex as if that hadn't crossed my mind!).  I finally had surgery, but some people are lucky and can get relief by other methods.  I am truly sorry that you have to even endure this, but there are docs out there who can and will help.  But the right one may take a little time to discover unfortunately. :/

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Re: Will i ever enjoy sex again?

Post  yoginimom on Thu Aug 14, 2014 9:10 pm

how did your problems begin if you don't mind me asking?x

Hi Alana & Morgan,

No i don't mind. And thank you for sharing!

It seemed to start with chronic yeast infections which have gone on for a good 20 years. I feel like i am in constant treatment of yeast. Though on my last pap the results came back negative for yeast, so i thought that was odd, because i had all the symptoms. Then i started to think it wasn't yeast. i went back for more swabs, checked for everything under the sun and everything was negative. I also often feel like i have a UTI, but that was well was negative.

My Dr sent me to an OBGYN (had to wait forever to get in) and in the mean time i just self treated with diflucan and coconut oil, as those are the only things that seem to ease my symptoms and make life bearable. I also use vaginal probiotics, which help too.

The OBGYN did the q-tip test and told me i have VV. And that my symptoms are not yeast or UTI. So i stopped treating the yeast, but then the flare ups were so much worse. i couldn't sit or do anything. I also started getting anxiety from the high pain levels.

I finally took diflucan again, and it eased my symptoms, but it always comes back within 7 days.

it feels like a chemical burn to me. it's red, raw, very sore and always there to some degree. Some days it flares up, and it's almost unbearable. Other days it's just a low level irritation.

I have another appointment with her in a few weeks. So i am going to find out what all the options are.

If you have any suggestions please let me know!

Have you tried anything that works to manage your symptoms?

Alana, how did you manage to be pain free?

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Re: Will i ever enjoy sex again?

Post  Alana3 on Thu Aug 14, 2014 11:48 pm

I had the surgery. Is your pain all the.time.or provoked?

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Re: Will i ever enjoy sex again?

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