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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Will i ever enjoy sex again?

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Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 1:41 am

Hello all, i am new here. I was just diagnosed last month after almost a year of going to the Dr, and waiting to see a specialist. The Dr did an internal ultrasound, tested for UTI, yeast, all STD's and other vaginal infections and everything has come back negative.

I have constant burning and irritation in the vulva area.

Every time i have sex i get a flare up. It's so frustrating and becoming really difficult for my BF and i. Is there any way to have sex without triggering a huge flare up of symptoms?

The specialist has given me fluconazole (which doesn't help much) and lidocaine 5% (which i am scared to use).  

Have you found anything that works for managing flare ups?

Thanks for listening.


Last edited by yoginimom on Mon Nov 17, 2014 5:56 am; edited 1 time in total

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 12:53 pm

Use the lidocaine, it's not amazing but it will Definitely help when it comes to having sex!! It makes it numb so you can't feel any pain! I've had mine for 2 and a half years and still trying to find answers but the lidocaine has helped me and my boyfriend, it won't make sex amazing but it makes easier and a lot less painful! It's worth a try x

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Re: Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 3:05 pm

Thank you for responding! Have you ever had the lidocane sting or make the burning worse? I had that happen last night, i'm not sure if i may be allergic to it?

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 3:14 pm

It does burn when I put it on to begin with because my skins physically sore but then it subsides and makes my pain go for an hour or two, so it is worth using if you want to have pain free sex, I found sometimes It works better than others, depending on how flared up my skin is, but it has made things easier for me x

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Re: Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 3:17 pm

ahhh ok good to know! Thanks. Does sex tend to flare you up again ever more so? I really wish there was a way to have sex and not have to worry about it being worse again the next day. Have you tried anything that works as prevention?

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 3:21 pm

I wouldn't say sex flares it up but as soon as the lidocaine wears off I'm in a lot of pain, but that's just my normal pain, if that makes sense? And me too!! And no I've only tried the lidocaine and dilators but I've got a hospital appointment soon and hopefully I'll get more answers then, how did your problems begin if you don't mind me asking?x

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Re: Will i ever enjoy sex again?

Post  Alana3 on Mon Aug 11, 2014 2:00 pm

Yes, be patient that's the best advice I can give.  It took me 7 years to find a doc who could help me, but I am pain free now.  I had to jump through a bunch of hurdles to get thru it, but it was done.  My other advice is to try everything you can even if the advice the doctors are giving you seem silly.  (Or if it's really bad advice, go to a new doctor, someone suggested I switch positions during sex as if that hadn't crossed my mind!).  I finally had surgery, but some people are lucky and can get relief by other methods.  I am truly sorry that you have to even endure this, but there are docs out there who can and will help.  But the right one may take a little time to discover unfortunately. :/

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Re: Will i ever enjoy sex again?

Post  yoginimom on Thu Aug 14, 2014 9:10 pm

how did your problems begin if you don't mind me asking?x

Hi Alana & Morgan,

No i don't mind. And thank you for sharing!

It seemed to start with chronic yeast infections which have gone on for a good 20 years. I feel like i am in constant treatment of yeast. Though on my last pap the results came back negative for yeast, so i thought that was odd, because i had all the symptoms. Then i started to think it wasn't yeast. i went back for more swabs, checked for everything under the sun and everything was negative. I also often feel like i have a UTI, but that was well was negative.

My Dr sent me to an OBGYN (had to wait forever to get in) and in the mean time i just self treated with diflucan and coconut oil, as those are the only things that seem to ease my symptoms and make life bearable. I also use vaginal probiotics, which help too.

The OBGYN did the q-tip test and told me i have VV. And that my symptoms are not yeast or UTI. So i stopped treating the yeast, but then the flare ups were so much worse. i couldn't sit or do anything. I also started getting anxiety from the high pain levels.

I finally took diflucan again, and it eased my symptoms, but it always comes back within 7 days.

it feels like a chemical burn to me. it's red, raw, very sore and always there to some degree. Some days it flares up, and it's almost unbearable. Other days it's just a low level irritation.

I have another appointment with her in a few weeks. So i am going to find out what all the options are.

If you have any suggestions please let me know!

Have you tried anything that works to manage your symptoms?

Alana, how did you manage to be pain free?

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Re: Will i ever enjoy sex again?

Post  Alana3 on Thu Aug 14, 2014 11:48 pm

I had the surgery. Is your pain all the.time.or provoked?

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Re: Will i ever enjoy sex again?

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