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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Will i ever enjoy sex again?

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Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 1:41 am

Hello all, i am new here. I was just diagnosed last month after almost a year of going to the Dr, and waiting to see a specialist. The Dr did an internal ultrasound, tested for UTI, yeast, all STD's and other vaginal infections and everything has come back negative.

I have constant burning and irritation in the vulva area.

Every time i have sex i get a flare up. It's so frustrating and becoming really difficult for my BF and i. Is there any way to have sex without triggering a huge flare up of symptoms?

The specialist has given me fluconazole (which doesn't help much) and lidocaine 5% (which i am scared to use).  

Have you found anything that works for managing flare ups?

Thanks for listening.


Last edited by yoginimom on Mon Nov 17, 2014 5:56 am; edited 1 time in total

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 12:53 pm

Use the lidocaine, it's not amazing but it will Definitely help when it comes to having sex!! It makes it numb so you can't feel any pain! I've had mine for 2 and a half years and still trying to find answers but the lidocaine has helped me and my boyfriend, it won't make sex amazing but it makes easier and a lot less painful! It's worth a try x

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Re: Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 3:05 pm

Thank you for responding! Have you ever had the lidocane sting or make the burning worse? I had that happen last night, i'm not sure if i may be allergic to it?

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 3:14 pm

It does burn when I put it on to begin with because my skins physically sore but then it subsides and makes my pain go for an hour or two, so it is worth using if you want to have pain free sex, I found sometimes It works better than others, depending on how flared up my skin is, but it has made things easier for me x

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Re: Will i ever enjoy sex again?

Post  yoginimom on Fri Aug 08, 2014 3:17 pm

ahhh ok good to know! Thanks. Does sex tend to flare you up again ever more so? I really wish there was a way to have sex and not have to worry about it being worse again the next day. Have you tried anything that works as prevention?

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Re: Will i ever enjoy sex again?

Post  morgaan_xo on Fri Aug 08, 2014 3:21 pm

I wouldn't say sex flares it up but as soon as the lidocaine wears off I'm in a lot of pain, but that's just my normal pain, if that makes sense? And me too!! And no I've only tried the lidocaine and dilators but I've got a hospital appointment soon and hopefully I'll get more answers then, how did your problems begin if you don't mind me asking?x

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Re: Will i ever enjoy sex again?

Post  Alana3 on Mon Aug 11, 2014 2:00 pm

Yes, be patient that's the best advice I can give.  It took me 7 years to find a doc who could help me, but I am pain free now.  I had to jump through a bunch of hurdles to get thru it, but it was done.  My other advice is to try everything you can even if the advice the doctors are giving you seem silly.  (Or if it's really bad advice, go to a new doctor, someone suggested I switch positions during sex as if that hadn't crossed my mind!).  I finally had surgery, but some people are lucky and can get relief by other methods.  I am truly sorry that you have to even endure this, but there are docs out there who can and will help.  But the right one may take a little time to discover unfortunately. :/

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Re: Will i ever enjoy sex again?

Post  yoginimom on Thu Aug 14, 2014 9:10 pm

how did your problems begin if you don't mind me asking?x

Hi Alana & Morgan,

No i don't mind. And thank you for sharing!

It seemed to start with chronic yeast infections which have gone on for a good 20 years. I feel like i am in constant treatment of yeast. Though on my last pap the results came back negative for yeast, so i thought that was odd, because i had all the symptoms. Then i started to think it wasn't yeast. i went back for more swabs, checked for everything under the sun and everything was negative. I also often feel like i have a UTI, but that was well was negative.

My Dr sent me to an OBGYN (had to wait forever to get in) and in the mean time i just self treated with diflucan and coconut oil, as those are the only things that seem to ease my symptoms and make life bearable. I also use vaginal probiotics, which help too.

The OBGYN did the q-tip test and told me i have VV. And that my symptoms are not yeast or UTI. So i stopped treating the yeast, but then the flare ups were so much worse. i couldn't sit or do anything. I also started getting anxiety from the high pain levels.

I finally took diflucan again, and it eased my symptoms, but it always comes back within 7 days.

it feels like a chemical burn to me. it's red, raw, very sore and always there to some degree. Some days it flares up, and it's almost unbearable. Other days it's just a low level irritation.

I have another appointment with her in a few weeks. So i am going to find out what all the options are.

If you have any suggestions please let me know!

Have you tried anything that works to manage your symptoms?

Alana, how did you manage to be pain free?

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Re: Will i ever enjoy sex again?

Post  Alana3 on Thu Aug 14, 2014 11:48 pm

I had the surgery. Is your pain all the.time.or provoked?

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Re: Will i ever enjoy sex again?

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