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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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which meds for what?

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which meds for what?

Post  yoginimom on Tue Oct 21, 2014 2:51 am

I have been reading through this forum and finding a lot of threads that mention various medications, but do not list what they are for. Is there a list of meds anywhere on this forum with a description of what they are for? Or matching certain symptoms with certain meds?

My Dr. has not suggested any meds aside from Fluconzole which is the no name for Diflucan, (a yeast treatment).

Can anyone help me with this? I really want to cure this. It's been basically a year of hell for me.

So far i have tried the gynecologist, who refereed me to the internal physio, and put me on fluconozole, which does not help. So far i am having the best luck with lidocane and coconut oil for the pain and burning. But nothing makes it go away completely.

What are your symptoms? What have you tried? What has worked?

Thanks in advance.


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Re: which meds for what?

Post  Alana3 on Tue Oct 21, 2014 7:23 pm

Medicine doesnt necessarily work with every case. I don't know why they would try diflucan, do you have yeast? I tried everything under the sun for 7 years before I said fuck it (sorry language) and went ahead and got the surgery as a last resort. But I tried Amitriptilin, Gabapentin (both for nerve pain), lidocaine, various forms of antibiotics, herpes drugs (which I dont know why they would even do that but ok), topicals, creams, suppositories, bull shit after bull shit. None of it worked for me. But that doesn't necessarily mean it wouldnt for you. Do you have pain all the time? Or just with sex? Is it nerve or muscles?

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Re: which meds for what?

Post  yoginimom on Tue Oct 21, 2014 7:37 pm

I think they are trying to rule out yeast. but i've been on diflucan for 3 weeks with no improvement. My symptoms are burning and sometimes stabbing pain in the vulva 24/7. If i try to have sex i'm in much worse pain for a min of 3 days after. So i guess i have unprovoked, as worse with provocation type V. So far i have tried lidocane, and that does help. Cocnut oil and Vit E oil do help as well as vaginal probiotics all give me mild relief. Nothing takes the pain away completely though. It's so frustrating. Sad

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Re: which meds for what?

Post  Alana3 on Wed Oct 22, 2014 2:41 pm

Yeah you don't have yeast, it would show up on lab work. Stop taking that drug you're going to build resistance to it and it wont work when you need it to. I only had provoked V, but I know of a bunch of people who had results with unprovoked. Drugs like Cymbalta, Amitriptyline, Gabapentin, are all things that could maybe make a difference for you.

When it became awful for me, I made a paste of baking soda and warm water, and left it on for 10-15 minutes. It would take the stinging out. But if you haven't actually tested positive for yeast, don't continue using something that you don't even have. If you did have yeast, your pain would be gone now. Do get tested for ureaplasma and strep B (they will probably tell you only pregnant women have strep B, but that's not true, I tested positive twice for it and have never been prego). It can cause burning, itching, etc. Same with ureaplasma.

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Re: which meds for what?

Post  yoginimom on Wed Oct 22, 2014 10:30 pm

Thank you Alana,

I have stopped the diflucan and using vit e topically along with coconut oil and lidocae. All of them work to take the edge off, but the lidocae works the best.

Is it normal to have a lot of redness with V? i use a mirror to apply the lidocane and i notice it's always very red in certain areas.

They have said they took swabs for "everything" on three different occasions and it all came back negative, but i will get them to test again specifically with those 2 you mentioned.

can i ask what you did that actually worked for you? Also what are the side effects of the internal botox? I am desperate enough to try anything, but that's always always the wise way to go.

Thanks for taking the time to get back to me.

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Re: which meds for what?

Post  yoginimom on Tue Oct 28, 2014 3:22 am

Alana3 wrote:Yeah you don't have yeast, it would show up on lab work.  Stop taking that drug you're going to build resistance to it and it wont work when you need it to. I only had provoked V, but I know of a bunch of people who had results with unprovoked.  Drugs like Cymbalta, Amitriptyline, Gabapentin, are all things that could maybe make a difference for you.  

When it became awful for me, I made a paste of baking soda and warm water, and left it on for 10-15 minutes.  It would take the stinging out.  But if you haven't actually tested positive for yeast, don't continue using something that you don't even have. If you did have yeast, your pain would be gone now.  Do get tested for ureaplasma and strep B (they will probably tell you only pregnant women have strep B, but that's not true, I tested positive twice for it and have never been prego).  It can cause burning, itching, etc.  Same with ureaplasma.  

I got the gyno to order the tests. But she's really convinced it's V at this point. She's prescribed gabapentin topical as well as Amitriptyline. i read the side effects of Amitriptyline and it's freaking me out. i'm not sure if i am going to try it or not. Sometimes i feel a lot like a guinea pig.

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Re: which meds for what?

Post  Alana3 on Tue Oct 28, 2014 7:08 pm

I had it done in a compound and that helped me a lot. No side effects thank god. You can always try it and get off you never know it might work!!!

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Re: which meds for what?

Post  yoginimom on Wed Oct 29, 2014 2:10 pm

Alana3 wrote:I had it done in a compound and that helped me a lot. No side effects thank god.  You can always try it and get off you never know it might work!!!


Thanks Alana, i had a major flare up from the topical gabapentin. Did you mean that the amitriptyline can be used topically? I may try that next. Some of the side effects listed are freaking me out. I think my next move may be the oral gabapentin.

Can i ask which surgery you did?

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Re: which meds for what?

Post  Alana3 on Mon Nov 03, 2014 7:43 pm

Yes I used both topically with lidocaine it didn't do anything for me whatsoever. But mine was provoked. I had a vestibulectomy 2 years ago in December best decesion ever, but not to be taken lightly. It's very last resort, and doesn't always work. Though most people I have talked to have said the surgery was the best thing they did (me included). If you have any other questions, let me know Smile

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Re: which meds for what?

Post  yoginimom on Wed Nov 05, 2014 1:13 am

I have a gut feeling the ami isn't going to work for me. I really really don't want to go on it for nothing with all those side effects. Though it seems to be getting worse by the day and nothing helps. Did you do anything for pain when you were at your worse? I'm starting to seriously consider the surgery option. Though i know it will be horrible. How much pain were you in right after? And do you find you have any dryness issues now? I'm already dry, so i can't imagine losing more, and i am so hyper reactive to anything i doubt i could do something like replens. Did they give you ideas for dryness? Or is it a non issue? Thanks so much for answering!

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Re: which meds for what?

Post  Alana3 on Wed Nov 05, 2014 8:59 pm

You are going to have to try a lot of stuff before they will do surgery on you- unfortunate but truthful. I tried a million meds, physical therapy, oral, topicals, lidocaine, antibiotics, the list goes on. The surgery wasn't that bad, it hurt to sit for like a week but I went out to lunch 3 days after my surgery and was fine (except I ripped some stitches which honestly probably would have happened anyway and it didn't hurt). Lots and lots of ice is what got me through and rest. That too. You're really tired after surgery. I have absolutely no issues with dryness, but I didn't have it before, so it wasn't an issue or concern or something I really even asked about to be honest. The only thing that was somewhat awful was vomiting right after surgery, the rest was just an annoyance. And it wasn't that painful. I didn't wake up in pain or anything. I just took my painkilelrs exactly when I was suppsoed to and switched to Advil after 2 days or so. It really wasn't that big of a deal and completely 100% worth it.

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Re: which meds for what?

Post  Alana3 on Wed Nov 05, 2014 9:00 pm

And just to let you know surgery is not recommended for people who have unprovoked vulvodynia.

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Re: which meds for what?

Post  sailor_moon on Thu Nov 06, 2014 8:11 pm

I get red raw in certain areas. The more itchy and sore I am, the redder my skin flares up.
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Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 6:53 pm

Sailor moon, do you have provoked V? Have you had success with any treatments as of yet? I'm still leery of the antidepressants, but the pain is making me more open minded. :p

I just discovered i also have 'mast cells' in the vulva. Not sure what i am allergic to but antihistimines do help.

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Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 6:56 pm

Alana3 wrote:You are going to have to try a lot of stuff before they will do surgery on you- unfortunate but truthful.  I tried a million meds, physical therapy, oral, topicals, lidocaine, antibiotics, the list goes on.  The surgery wasn't that bad, it hurt to sit for like a week but I went out to lunch 3 days after my surgery and was fine (except I ripped some stitches which honestly probably would have happened anyway and it didn't hurt).  Lots and lots of ice is what got me through and rest.  That too.  You're really tired after surgery.  I have absolutely no issues with dryness, but I didn't have it before, so it wasn't an issue or concern or something I really even asked about to be honest.  The only thing that was somewhat awful was vomiting right after surgery, the rest was just an annoyance.  And it wasn't that painful.  I didn't wake up in pain or anything.  I just took my painkilelrs exactly when I was suppsoed to and switched to Advil after 2 days or so.  It really wasn't that big of a deal and completely 100% worth it.  


It's nice to know the surgery wasn't a nightmare for you. That kind of gives me hope. Smile Though ... good to know that they don't do it with unprovoked V, which is what i have ... so they tell me. So may not even be an option in my case. Did you have any success with managing your symptoms while you waited for surgery?

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Re: which meds for what?

Post  sailor_moon on Mon Nov 10, 2014 7:22 pm

Unfortunately my V is unprovoked.  I itch almost 24/7 and I burn and get sore too. I have found it gets worse with movement. Exercise is out of the question.
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Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 9:03 pm

sailor_moon wrote:Unfortunately my V is unprovoked.  I itch almost 24/7 and I burn and get sore too. I have found it gets worse with movement. Exercise is out of the question.

Oh OK, that's the same for me. Is your pudendal nerve involved? I know when i get my sacrum adjusted it helpes a lot. But most of the time it's hit and miss for what works and what doesn't.

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Re: which meds for what?

Post  sailor_moon on Mon Nov 10, 2014 9:38 pm

I have no idea what nerves are involved.  Im under investigation ATM... I have a LOT of hormone problems and suspected endometriosis.  Im on a 3-6 month waiting list to have an operation,  a hystoscopy and laparoscopy,  he is going in to look at all my insides and fixing any problems he can find.
I hope its not nerve related coz on here most people with nerve issues never get fixed. How do you gix nerve lroblems? SadSad
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Re: which meds for what?

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