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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

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Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


which meds for what?

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which meds for what?

Post  yoginimom on Tue Oct 21, 2014 2:51 am

I have been reading through this forum and finding a lot of threads that mention various medications, but do not list what they are for. Is there a list of meds anywhere on this forum with a description of what they are for? Or matching certain symptoms with certain meds?

My Dr. has not suggested any meds aside from Fluconzole which is the no name for Diflucan, (a yeast treatment).

Can anyone help me with this? I really want to cure this. It's been basically a year of hell for me.

So far i have tried the gynecologist, who refereed me to the internal physio, and put me on fluconozole, which does not help. So far i am having the best luck with lidocane and coconut oil for the pain and burning. But nothing makes it go away completely.

What are your symptoms? What have you tried? What has worked?

Thanks in advance.


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Re: which meds for what?

Post  Alana3 on Tue Oct 21, 2014 7:23 pm

Medicine doesnt necessarily work with every case. I don't know why they would try diflucan, do you have yeast? I tried everything under the sun for 7 years before I said fuck it (sorry language) and went ahead and got the surgery as a last resort. But I tried Amitriptilin, Gabapentin (both for nerve pain), lidocaine, various forms of antibiotics, herpes drugs (which I dont know why they would even do that but ok), topicals, creams, suppositories, bull shit after bull shit. None of it worked for me. But that doesn't necessarily mean it wouldnt for you. Do you have pain all the time? Or just with sex? Is it nerve or muscles?

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Re: which meds for what?

Post  yoginimom on Tue Oct 21, 2014 7:37 pm

I think they are trying to rule out yeast. but i've been on diflucan for 3 weeks with no improvement. My symptoms are burning and sometimes stabbing pain in the vulva 24/7. If i try to have sex i'm in much worse pain for a min of 3 days after. So i guess i have unprovoked, as worse with provocation type V. So far i have tried lidocane, and that does help. Cocnut oil and Vit E oil do help as well as vaginal probiotics all give me mild relief. Nothing takes the pain away completely though. It's so frustrating. Sad

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Re: which meds for what?

Post  Alana3 on Wed Oct 22, 2014 2:41 pm

Yeah you don't have yeast, it would show up on lab work. Stop taking that drug you're going to build resistance to it and it wont work when you need it to. I only had provoked V, but I know of a bunch of people who had results with unprovoked. Drugs like Cymbalta, Amitriptyline, Gabapentin, are all things that could maybe make a difference for you.

When it became awful for me, I made a paste of baking soda and warm water, and left it on for 10-15 minutes. It would take the stinging out. But if you haven't actually tested positive for yeast, don't continue using something that you don't even have. If you did have yeast, your pain would be gone now. Do get tested for ureaplasma and strep B (they will probably tell you only pregnant women have strep B, but that's not true, I tested positive twice for it and have never been prego). It can cause burning, itching, etc. Same with ureaplasma.

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Re: which meds for what?

Post  yoginimom on Wed Oct 22, 2014 10:30 pm

Thank you Alana,

I have stopped the diflucan and using vit e topically along with coconut oil and lidocae. All of them work to take the edge off, but the lidocae works the best.

Is it normal to have a lot of redness with V? i use a mirror to apply the lidocane and i notice it's always very red in certain areas.

They have said they took swabs for "everything" on three different occasions and it all came back negative, but i will get them to test again specifically with those 2 you mentioned.

can i ask what you did that actually worked for you? Also what are the side effects of the internal botox? I am desperate enough to try anything, but that's always always the wise way to go.

Thanks for taking the time to get back to me.

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Re: which meds for what?

Post  yoginimom on Tue Oct 28, 2014 3:22 am

Alana3 wrote:Yeah you don't have yeast, it would show up on lab work.  Stop taking that drug you're going to build resistance to it and it wont work when you need it to. I only had provoked V, but I know of a bunch of people who had results with unprovoked.  Drugs like Cymbalta, Amitriptyline, Gabapentin, are all things that could maybe make a difference for you.  

When it became awful for me, I made a paste of baking soda and warm water, and left it on for 10-15 minutes.  It would take the stinging out.  But if you haven't actually tested positive for yeast, don't continue using something that you don't even have. If you did have yeast, your pain would be gone now.  Do get tested for ureaplasma and strep B (they will probably tell you only pregnant women have strep B, but that's not true, I tested positive twice for it and have never been prego).  It can cause burning, itching, etc.  Same with ureaplasma.  

I got the gyno to order the tests. But she's really convinced it's V at this point. She's prescribed gabapentin topical as well as Amitriptyline. i read the side effects of Amitriptyline and it's freaking me out. i'm not sure if i am going to try it or not. Sometimes i feel a lot like a guinea pig.

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Re: which meds for what?

Post  Alana3 on Tue Oct 28, 2014 7:08 pm

I had it done in a compound and that helped me a lot. No side effects thank god. You can always try it and get off you never know it might work!!!

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Re: which meds for what?

Post  yoginimom on Wed Oct 29, 2014 2:10 pm

Alana3 wrote:I had it done in a compound and that helped me a lot. No side effects thank god.  You can always try it and get off you never know it might work!!!


Thanks Alana, i had a major flare up from the topical gabapentin. Did you mean that the amitriptyline can be used topically? I may try that next. Some of the side effects listed are freaking me out. I think my next move may be the oral gabapentin.

Can i ask which surgery you did?

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Re: which meds for what?

Post  Alana3 on Mon Nov 03, 2014 7:43 pm

Yes I used both topically with lidocaine it didn't do anything for me whatsoever. But mine was provoked. I had a vestibulectomy 2 years ago in December best decesion ever, but not to be taken lightly. It's very last resort, and doesn't always work. Though most people I have talked to have said the surgery was the best thing they did (me included). If you have any other questions, let me know Smile

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Re: which meds for what?

Post  yoginimom on Wed Nov 05, 2014 1:13 am

I have a gut feeling the ami isn't going to work for me. I really really don't want to go on it for nothing with all those side effects. Though it seems to be getting worse by the day and nothing helps. Did you do anything for pain when you were at your worse? I'm starting to seriously consider the surgery option. Though i know it will be horrible. How much pain were you in right after? And do you find you have any dryness issues now? I'm already dry, so i can't imagine losing more, and i am so hyper reactive to anything i doubt i could do something like replens. Did they give you ideas for dryness? Or is it a non issue? Thanks so much for answering!

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Re: which meds for what?

Post  Alana3 on Wed Nov 05, 2014 8:59 pm

You are going to have to try a lot of stuff before they will do surgery on you- unfortunate but truthful. I tried a million meds, physical therapy, oral, topicals, lidocaine, antibiotics, the list goes on. The surgery wasn't that bad, it hurt to sit for like a week but I went out to lunch 3 days after my surgery and was fine (except I ripped some stitches which honestly probably would have happened anyway and it didn't hurt). Lots and lots of ice is what got me through and rest. That too. You're really tired after surgery. I have absolutely no issues with dryness, but I didn't have it before, so it wasn't an issue or concern or something I really even asked about to be honest. The only thing that was somewhat awful was vomiting right after surgery, the rest was just an annoyance. And it wasn't that painful. I didn't wake up in pain or anything. I just took my painkilelrs exactly when I was suppsoed to and switched to Advil after 2 days or so. It really wasn't that big of a deal and completely 100% worth it.

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Re: which meds for what?

Post  Alana3 on Wed Nov 05, 2014 9:00 pm

And just to let you know surgery is not recommended for people who have unprovoked vulvodynia.

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Re: which meds for what?

Post  sailor_moon on Thu Nov 06, 2014 8:11 pm

I get red raw in certain areas. The more itchy and sore I am, the redder my skin flares up.
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Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 6:53 pm

Sailor moon, do you have provoked V? Have you had success with any treatments as of yet? I'm still leery of the antidepressants, but the pain is making me more open minded. :p

I just discovered i also have 'mast cells' in the vulva. Not sure what i am allergic to but antihistimines do help.

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Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 6:56 pm

Alana3 wrote:You are going to have to try a lot of stuff before they will do surgery on you- unfortunate but truthful.  I tried a million meds, physical therapy, oral, topicals, lidocaine, antibiotics, the list goes on.  The surgery wasn't that bad, it hurt to sit for like a week but I went out to lunch 3 days after my surgery and was fine (except I ripped some stitches which honestly probably would have happened anyway and it didn't hurt).  Lots and lots of ice is what got me through and rest.  That too.  You're really tired after surgery.  I have absolutely no issues with dryness, but I didn't have it before, so it wasn't an issue or concern or something I really even asked about to be honest.  The only thing that was somewhat awful was vomiting right after surgery, the rest was just an annoyance.  And it wasn't that painful.  I didn't wake up in pain or anything.  I just took my painkilelrs exactly when I was suppsoed to and switched to Advil after 2 days or so.  It really wasn't that big of a deal and completely 100% worth it.  


It's nice to know the surgery wasn't a nightmare for you. That kind of gives me hope. Smile Though ... good to know that they don't do it with unprovoked V, which is what i have ... so they tell me. So may not even be an option in my case. Did you have any success with managing your symptoms while you waited for surgery?

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Re: which meds for what?

Post  sailor_moon on Mon Nov 10, 2014 7:22 pm

Unfortunately my V is unprovoked.  I itch almost 24/7 and I burn and get sore too. I have found it gets worse with movement. Exercise is out of the question.
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Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 9:03 pm

sailor_moon wrote:Unfortunately my V is unprovoked.  I itch almost 24/7 and I burn and get sore too. I have found it gets worse with movement. Exercise is out of the question.

Oh OK, that's the same for me. Is your pudendal nerve involved? I know when i get my sacrum adjusted it helpes a lot. But most of the time it's hit and miss for what works and what doesn't.

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Re: which meds for what?

Post  sailor_moon on Mon Nov 10, 2014 9:38 pm

I have no idea what nerves are involved.  Im under investigation ATM... I have a LOT of hormone problems and suspected endometriosis.  Im on a 3-6 month waiting list to have an operation,  a hystoscopy and laparoscopy,  he is going in to look at all my insides and fixing any problems he can find.
I hope its not nerve related coz on here most people with nerve issues never get fixed. How do you gix nerve lroblems? SadSad
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Re: which meds for what?

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