Log in

I forgot my password

Latest topics
» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


which meds for what?

Go down

which meds for what?

Post  yoginimom on Tue Oct 21, 2014 2:51 am

I have been reading through this forum and finding a lot of threads that mention various medications, but do not list what they are for. Is there a list of meds anywhere on this forum with a description of what they are for? Or matching certain symptoms with certain meds?

My Dr. has not suggested any meds aside from Fluconzole which is the no name for Diflucan, (a yeast treatment).

Can anyone help me with this? I really want to cure this. It's been basically a year of hell for me.

So far i have tried the gynecologist, who refereed me to the internal physio, and put me on fluconozole, which does not help. So far i am having the best luck with lidocane and coconut oil for the pain and burning. But nothing makes it go away completely.

What are your symptoms? What have you tried? What has worked?

Thanks in advance.


yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  Alana3 on Tue Oct 21, 2014 7:23 pm

Medicine doesnt necessarily work with every case. I don't know why they would try diflucan, do you have yeast? I tried everything under the sun for 7 years before I said fuck it (sorry language) and went ahead and got the surgery as a last resort. But I tried Amitriptilin, Gabapentin (both for nerve pain), lidocaine, various forms of antibiotics, herpes drugs (which I dont know why they would even do that but ok), topicals, creams, suppositories, bull shit after bull shit. None of it worked for me. But that doesn't necessarily mean it wouldnt for you. Do you have pain all the time? Or just with sex? Is it nerve or muscles?

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: which meds for what?

Post  yoginimom on Tue Oct 21, 2014 7:37 pm

I think they are trying to rule out yeast. but i've been on diflucan for 3 weeks with no improvement. My symptoms are burning and sometimes stabbing pain in the vulva 24/7. If i try to have sex i'm in much worse pain for a min of 3 days after. So i guess i have unprovoked, as worse with provocation type V. So far i have tried lidocane, and that does help. Cocnut oil and Vit E oil do help as well as vaginal probiotics all give me mild relief. Nothing takes the pain away completely though. It's so frustrating. Sad

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  Alana3 on Wed Oct 22, 2014 2:41 pm

Yeah you don't have yeast, it would show up on lab work. Stop taking that drug you're going to build resistance to it and it wont work when you need it to. I only had provoked V, but I know of a bunch of people who had results with unprovoked. Drugs like Cymbalta, Amitriptyline, Gabapentin, are all things that could maybe make a difference for you.

When it became awful for me, I made a paste of baking soda and warm water, and left it on for 10-15 minutes. It would take the stinging out. But if you haven't actually tested positive for yeast, don't continue using something that you don't even have. If you did have yeast, your pain would be gone now. Do get tested for ureaplasma and strep B (they will probably tell you only pregnant women have strep B, but that's not true, I tested positive twice for it and have never been prego). It can cause burning, itching, etc. Same with ureaplasma.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: which meds for what?

Post  yoginimom on Wed Oct 22, 2014 10:30 pm

Thank you Alana,

I have stopped the diflucan and using vit e topically along with coconut oil and lidocae. All of them work to take the edge off, but the lidocae works the best.

Is it normal to have a lot of redness with V? i use a mirror to apply the lidocane and i notice it's always very red in certain areas.

They have said they took swabs for "everything" on three different occasions and it all came back negative, but i will get them to test again specifically with those 2 you mentioned.

can i ask what you did that actually worked for you? Also what are the side effects of the internal botox? I am desperate enough to try anything, but that's always always the wise way to go.

Thanks for taking the time to get back to me.

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  yoginimom on Tue Oct 28, 2014 3:22 am

Alana3 wrote:Yeah you don't have yeast, it would show up on lab work.  Stop taking that drug you're going to build resistance to it and it wont work when you need it to. I only had provoked V, but I know of a bunch of people who had results with unprovoked.  Drugs like Cymbalta, Amitriptyline, Gabapentin, are all things that could maybe make a difference for you.  

When it became awful for me, I made a paste of baking soda and warm water, and left it on for 10-15 minutes.  It would take the stinging out.  But if you haven't actually tested positive for yeast, don't continue using something that you don't even have. If you did have yeast, your pain would be gone now.  Do get tested for ureaplasma and strep B (they will probably tell you only pregnant women have strep B, but that's not true, I tested positive twice for it and have never been prego).  It can cause burning, itching, etc.  Same with ureaplasma.  

I got the gyno to order the tests. But she's really convinced it's V at this point. She's prescribed gabapentin topical as well as Amitriptyline. i read the side effects of Amitriptyline and it's freaking me out. i'm not sure if i am going to try it or not. Sometimes i feel a lot like a guinea pig.

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  Alana3 on Tue Oct 28, 2014 7:08 pm

I had it done in a compound and that helped me a lot. No side effects thank god. You can always try it and get off you never know it might work!!!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: which meds for what?

Post  yoginimom on Wed Oct 29, 2014 2:10 pm

Alana3 wrote:I had it done in a compound and that helped me a lot. No side effects thank god.  You can always try it and get off you never know it might work!!!


Thanks Alana, i had a major flare up from the topical gabapentin. Did you mean that the amitriptyline can be used topically? I may try that next. Some of the side effects listed are freaking me out. I think my next move may be the oral gabapentin.

Can i ask which surgery you did?

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  Alana3 on Mon Nov 03, 2014 7:43 pm

Yes I used both topically with lidocaine it didn't do anything for me whatsoever. But mine was provoked. I had a vestibulectomy 2 years ago in December best decesion ever, but not to be taken lightly. It's very last resort, and doesn't always work. Though most people I have talked to have said the surgery was the best thing they did (me included). If you have any other questions, let me know Smile

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: which meds for what?

Post  yoginimom on Wed Nov 05, 2014 1:13 am

I have a gut feeling the ami isn't going to work for me. I really really don't want to go on it for nothing with all those side effects. Though it seems to be getting worse by the day and nothing helps. Did you do anything for pain when you were at your worse? I'm starting to seriously consider the surgery option. Though i know it will be horrible. How much pain were you in right after? And do you find you have any dryness issues now? I'm already dry, so i can't imagine losing more, and i am so hyper reactive to anything i doubt i could do something like replens. Did they give you ideas for dryness? Or is it a non issue? Thanks so much for answering!

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  Alana3 on Wed Nov 05, 2014 8:59 pm

You are going to have to try a lot of stuff before they will do surgery on you- unfortunate but truthful. I tried a million meds, physical therapy, oral, topicals, lidocaine, antibiotics, the list goes on. The surgery wasn't that bad, it hurt to sit for like a week but I went out to lunch 3 days after my surgery and was fine (except I ripped some stitches which honestly probably would have happened anyway and it didn't hurt). Lots and lots of ice is what got me through and rest. That too. You're really tired after surgery. I have absolutely no issues with dryness, but I didn't have it before, so it wasn't an issue or concern or something I really even asked about to be honest. The only thing that was somewhat awful was vomiting right after surgery, the rest was just an annoyance. And it wasn't that painful. I didn't wake up in pain or anything. I just took my painkilelrs exactly when I was suppsoed to and switched to Advil after 2 days or so. It really wasn't that big of a deal and completely 100% worth it.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: which meds for what?

Post  Alana3 on Wed Nov 05, 2014 9:00 pm

And just to let you know surgery is not recommended for people who have unprovoked vulvodynia.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: which meds for what?

Post  sailor_moon on Thu Nov 06, 2014 8:11 pm

I get red raw in certain areas. The more itchy and sore I am, the redder my skin flares up.
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 6:53 pm

Sailor moon, do you have provoked V? Have you had success with any treatments as of yet? I'm still leery of the antidepressants, but the pain is making me more open minded. :p

I just discovered i also have 'mast cells' in the vulva. Not sure what i am allergic to but antihistimines do help.

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 6:56 pm

Alana3 wrote:You are going to have to try a lot of stuff before they will do surgery on you- unfortunate but truthful.  I tried a million meds, physical therapy, oral, topicals, lidocaine, antibiotics, the list goes on.  The surgery wasn't that bad, it hurt to sit for like a week but I went out to lunch 3 days after my surgery and was fine (except I ripped some stitches which honestly probably would have happened anyway and it didn't hurt).  Lots and lots of ice is what got me through and rest.  That too.  You're really tired after surgery.  I have absolutely no issues with dryness, but I didn't have it before, so it wasn't an issue or concern or something I really even asked about to be honest.  The only thing that was somewhat awful was vomiting right after surgery, the rest was just an annoyance.  And it wasn't that painful.  I didn't wake up in pain or anything.  I just took my painkilelrs exactly when I was suppsoed to and switched to Advil after 2 days or so.  It really wasn't that big of a deal and completely 100% worth it.  


It's nice to know the surgery wasn't a nightmare for you. That kind of gives me hope. Smile Though ... good to know that they don't do it with unprovoked V, which is what i have ... so they tell me. So may not even be an option in my case. Did you have any success with managing your symptoms while you waited for surgery?

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  sailor_moon on Mon Nov 10, 2014 7:22 pm

Unfortunately my V is unprovoked.  I itch almost 24/7 and I burn and get sore too. I have found it gets worse with movement. Exercise is out of the question.
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: which meds for what?

Post  yoginimom on Mon Nov 10, 2014 9:03 pm

sailor_moon wrote:Unfortunately my V is unprovoked.  I itch almost 24/7 and I burn and get sore too. I have found it gets worse with movement. Exercise is out of the question.

Oh OK, that's the same for me. Is your pudendal nerve involved? I know when i get my sacrum adjusted it helpes a lot. But most of the time it's hit and miss for what works and what doesn't.

yoginimom

Posts : 60
Join date : 2014-08-08

View user profile

Back to top Go down

Re: which meds for what?

Post  sailor_moon on Mon Nov 10, 2014 9:38 pm

I have no idea what nerves are involved.  Im under investigation ATM... I have a LOT of hormone problems and suspected endometriosis.  Im on a 3-6 month waiting list to have an operation,  a hystoscopy and laparoscopy,  he is going in to look at all my insides and fixing any problems he can find.
I hope its not nerve related coz on here most people with nerve issues never get fixed. How do you gix nerve lroblems? SadSad
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: which meds for what?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum