Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Long time sufferer EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Long time sufferer EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Long time sufferer EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Long time sufferer EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Long time sufferer EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Long time sufferer EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Long time sufferer EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Long time sufferer EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Long time sufferer EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Long time sufferer

4 posters

Go down

Long time sufferer Empty Long time sufferer

Post  mirror Sat Oct 25, 2014 5:07 am

I'm 34 years old, I've been married for seven years, and we can't have sex because I'm so miserable.  And this has been going on my entire adult life.  Any kind of penetration ranges from extremely uncomfortable to downright excruciating for me.  I don't wear tampons unless I absolutely have to because even inserting a small tampon is awful.  And I can constantly feel it as I wear it, like it's rubbing raw flesh inside me.  I would describe my pain as raw, irritating, and burning.  The intensity varies.

I used to be too afraid to see a doctor about this; and up until this year, I'd only seen a gynecologist once, and that was when I was 21.  I finally got up the courage to try again last spring.  She says she cannot find anything physically wrong with me.  The only abnormality she sees is on my slides.  She says I have no infections, but I also have NO good bacteria.  She said my vaginal flora is pretty much non-existent or dead.  I started taking probiotics, but it hasn't helped.  I've tried Rephresh.  I tried some natural suppositories.  I tried a $150 anti-fungal steroidal ointment that was a total waste of money.  I stopped using any kind of soap or cleanser down there, only water.  Nothing gets rid of the burning pain.    

In order to help my sex life, she prescribed Xanax for me to take to calm me down.  Because I expect the pain, I tense up terribly and then nothing can get in.  The Xanax does help me to relax a bit, but we still can't have sex.  I've just been using dilators to get more used to penetration, but it still hurts and I don't enjoy any sexual activity.  In fact, I just feel dread and I feel annoyed by it.  I've come to hate anything or anyone sexual because I cannot enjoy that part of myself.  My doctor also gave me a numbing gel to use during sex, but I haven't even tried it.  For me, what is the point of having sex if I have to numb myself to get through it?  

Xanax and numbing gel.  Not exactly what I always dreamed sex would be like at this age.

I've also been going to therapy to talk about this.  I told her recently that I don't even feel like a woman anymore, and haven't for a long, long time.  I feel defective and broken.  My self-esteem is dead.  While my doctor says I have no infections, I often get a "yeasty" smell without the clumpy white discharge or itching.  Most of the time my discharge is clear, thin, and occasionally has a yellowish tinge to it.  It definitely doesn't seem like a yeast infection, except for the occasional odor.  I told my doctor that I often get the feeling that part of this is hormonal, but she seemed to blow that idea off.  I suggested that to her because I still get acne every month, and I'm constantly exhausted, and I'm a type two diabetic.  I take metformin, but it doesn't have any effect on my sex life.  Something is just off with me.  She wants me to come back in a few weeks for a recheck, but I don't want to.  I've been to her twice, and I feel like conventional medicine is not going to cure this.  My next step is going to be to try acupuncture, but I'm not getting my hopes up.  I've lived a lifetime of this, and I'm starting to think I will never have a normal sex life (or any other kind) or be able to have kids.  

Anyway, it's nice to find this forum and to be among women who understand me.  I feel like less of a freak already.

mirror

Posts : 2
Join date : 2014-10-25

Back to top Go down

Long time sufferer Empty Re: Long time sufferer

Post  EverythingIsDifferentNow Sat Oct 25, 2014 5:36 pm

I'm so sorry about this Crying or Very sad I've actually heard that type 2 diabetic women experience more problems with their vagina or "down area" more than people who don't have type 2 diabetes. Have you had any problems with your back? Are you eating healthy? Are you eating food that is causing the pH in your vagina to be unsuitable for your body?
Stuff to try if you haven't already:
-all natural vitamin pills
-calcium citrate
-exercising regularly (especially abdominal core exercises)
-drink plenty of water
-NO TAMPONS (use non-irritating pads)
-pelvic floor exercises?
-problems with your back or pelvis? use therapy
-non-scented detergent
-loose-fit clothing
-no bicycles or bikes
-acupuncture has helped some women, has lowered some of their symptoms down to 20% or more
-heating pads
-warm baths (no lotion or body wash, keep shampoo and conditioner as far away from your down area as possible)
-ice packs work for a lot of people

Stuff to help your mind, lose more stress:
-yoga
-meditation
-therapy (this forum can be a form of therapy)
-classical music always helps me

MORE TREATMENTS IF YOU'D LIKE TO SEE AND HOW WOMEN WITH VULVODYNIA REACT TO THEM sunny
http://curetogether.com/vulvodynia/treatments/

EverythingIsDifferentNow

Posts : 33
Join date : 2014-09-13

Back to top Go down

Long time sufferer Empty Re: Long time sufferer

Post  Sparkle Sat Oct 25, 2014 6:49 pm

I have had really bad pain with intercourse too. It's absolutely soul distroying so I know how u feel. You don't feel like a women and it can send u to aug a dark place. Fortunatly I have made some simple changes which has made a massive difference and non are pills it's more natural.
Have a look under the anouncements section and read my post. It's called healing with simple changes...or somthink like rhat. I think you should give some of my methods a go for a month doing them all religiously and see if anything changes for u. It worth a try...

I'm so sorry to hear how much you are suffering. This condition is horrible but you can't lose faith. Thers so many things to try that doctor doesn't have to percribe. I hope you find your solution soon. It sounds like you have had it hard for a very long time.

Sparkle

Posts : 84
Join date : 2014-10-03

Back to top Go down

Long time sufferer Empty Some links and clindamycin

Post  Marylynnreily Mon Oct 27, 2014 1:02 am

You guys, I urge any of you to ask your doctor for clindamycin pills 300mg, 2times a day for 10 days.
Its the standard treatment for BV, but ALSO for Tooth abscesses, jaw infections and other really severe infections.
Ever since doing that Im all but cured, except some yeast issues after which went away eventually with diflucan and Floraster aswell as other probiotics,  that were recommended by other women. And stoneyfield yogurt, and Kefir.

The thing is, taking clindamycin carries risks, altho commonly prescribed by dentists and gynecologists.

An intestinal infection called C-Diff can result, as clindamycin effectively wipes out all the good bacteria in your intestines(aswell as bad in your body), and you can have the runs for months after taking a round of it. You can either get loose stools that will eventually go back to normal after a few weeks to a few months or c-diff which can be potentially life threatening. Please research. It doesn't happen to everyone but it does happen to some people, and this infection can result from any antibiotic, but is expecially linked to Clindamycin because its so powerful.

You will have to ask your doctor. I am not giving you medical advice, this is just what my doctor prescribed me. I convinced him.
Youll have to be taking the probiotics with the antibiotics a few hours apart from eachother, and months after, you must keep on with the probiotics.

Ask your doctor, ask your doctor!!!
Marylynnreily
Marylynnreily

Posts : 27
Join date : 2013-05-21

Back to top Go down

Long time sufferer Empty Re: Long time sufferer

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum