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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3


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Post  MLily92 on Thu Nov 06, 2014 11:52 pm

After going to the physiotherapist a couple of times and going to a specialist it has been confirmed I have some sort of nerve damage or slight entrapment in my lower back from a previous injury. I didn't have to do much to inflame it but thats were the pain is suspected to come form.

The tingling in my vulva area and urethra has dampened considerably over the last two weeks. I go to the toilet a normal amount of times, I get up maybe once a night, twice on a bad night.

The physiotherapist and vulva specialist said that in time the pain will go and my pelvic floor muscles will release and relax.

My treatment so far;
- Pelvic Floor Physical Therapy (Once a week or once a fortnight - teaching myself to release pelvic floor muscles again and stretching).
- Ultrasound (Once or twice a week - deep heats allows blood flow and muscles to relax more/less spasms).
- Amitytripline (ENDEMP) (Started on this again for six weeks, then continue for 3 months if effective to stop pain cycle)
- Stretching and relaxing exercises once a day
- Hot water bottle applied to area and muscles as much as possible through out the day to help relax muscles.

I'm also considering complimentary therapies e.g. massage and acupuncture and possible chiropractor.


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Post  sailor_moon on Sun Nov 09, 2014 10:10 am

Oh wow thats crazy! Who would have thought? Glad to hear you got some treatment and results! Smile did you end up seeing a vulva specialist in Newy?

I hope it all works for you! I have heard a few stories like this!

 If it does and I don't see success, can you give me your specialists name and info? 

Let me know how the Endep goes too. Apparantly it can really knock you out and make you super drowsy the first few weeks.

I pray you have found the right treatment.  Keep us updated on how it is going! ☺️

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Post  MLily92 on Mon Nov 10, 2014 6:29 am

Yeah I know write, its been really good the last couple of days, had a bit of trouble today but I think I'm on the mend thank god.

Yes, I did end up paying to go to the private specialist and she agreed with the physio, however I'm still keeping my appointment for the John Hunter just in case it doesn't clear up by then (thats in Feb).

The first time I tried Endemp I was on a higher dose 20mg and that really smacked me out at night. But I'm on 10mg this time round and I haven't had any side effects at all. I'll up it if I think I need to but I'm going to wait a couple of weeks first.


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