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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


UPDATE: ON THE ROAD TO RECOVERY

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UPDATE: ON THE ROAD TO RECOVERY

Post  MLily92 on Thu Nov 06, 2014 11:52 pm

After going to the physiotherapist a couple of times and going to a specialist it has been confirmed I have some sort of nerve damage or slight entrapment in my lower back from a previous injury. I didn't have to do much to inflame it but thats were the pain is suspected to come form.

The tingling in my vulva area and urethra has dampened considerably over the last two weeks. I go to the toilet a normal amount of times, I get up maybe once a night, twice on a bad night.

The physiotherapist and vulva specialist said that in time the pain will go and my pelvic floor muscles will release and relax.

My treatment so far;
- Pelvic Floor Physical Therapy (Once a week or once a fortnight - teaching myself to release pelvic floor muscles again and stretching).
- Ultrasound (Once or twice a week - deep heats allows blood flow and muscles to relax more/less spasms).
- Amitytripline (ENDEMP) (Started on this again for six weeks, then continue for 3 months if effective to stop pain cycle)
- Stretching and relaxing exercises once a day
- Hot water bottle applied to area and muscles as much as possible through out the day to help relax muscles.

I'm also considering complimentary therapies e.g. massage and acupuncture and possible chiropractor.

MLily92

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Re: UPDATE: ON THE ROAD TO RECOVERY

Post  sailor_moon on Sun Nov 09, 2014 10:10 am

Oh wow thats crazy! Who would have thought? Glad to hear you got some treatment and results! Smile did you end up seeing a vulva specialist in Newy?

I hope it all works for you! I have heard a few stories like this!

 If it does and I don't see success, can you give me your specialists name and info? 

Let me know how the Endep goes too. Apparantly it can really knock you out and make you super drowsy the first few weeks.

I pray you have found the right treatment.  Keep us updated on how it is going! ☺
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sailor_moon

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Re: UPDATE: ON THE ROAD TO RECOVERY

Post  MLily92 on Mon Nov 10, 2014 6:29 am

Yeah I know write, its been really good the last couple of days, had a bit of trouble today but I think I'm on the mend thank god.

Yes, I did end up paying to go to the private specialist and she agreed with the physio, however I'm still keeping my appointment for the John Hunter just in case it doesn't clear up by then (thats in Feb).

The first time I tried Endemp I was on a higher dose 20mg and that really smacked me out at night. But I'm on 10mg this time round and I haven't had any side effects at all. I'll up it if I think I need to but I'm going to wait a couple of weeks first.

MLily92

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Re: UPDATE: ON THE ROAD TO RECOVERY

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