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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


UPDATE: ON THE ROAD TO RECOVERY

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UPDATE: ON THE ROAD TO RECOVERY

Post  MLily92 on Thu Nov 06, 2014 11:52 pm

After going to the physiotherapist a couple of times and going to a specialist it has been confirmed I have some sort of nerve damage or slight entrapment in my lower back from a previous injury. I didn't have to do much to inflame it but thats were the pain is suspected to come form.

The tingling in my vulva area and urethra has dampened considerably over the last two weeks. I go to the toilet a normal amount of times, I get up maybe once a night, twice on a bad night.

The physiotherapist and vulva specialist said that in time the pain will go and my pelvic floor muscles will release and relax.

My treatment so far;
- Pelvic Floor Physical Therapy (Once a week or once a fortnight - teaching myself to release pelvic floor muscles again and stretching).
- Ultrasound (Once or twice a week - deep heats allows blood flow and muscles to relax more/less spasms).
- Amitytripline (ENDEMP) (Started on this again for six weeks, then continue for 3 months if effective to stop pain cycle)
- Stretching and relaxing exercises once a day
- Hot water bottle applied to area and muscles as much as possible through out the day to help relax muscles.

I'm also considering complimentary therapies e.g. massage and acupuncture and possible chiropractor.

MLily92

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Re: UPDATE: ON THE ROAD TO RECOVERY

Post  sailor_moon on Sun Nov 09, 2014 10:10 am

Oh wow thats crazy! Who would have thought? Glad to hear you got some treatment and results! Smile did you end up seeing a vulva specialist in Newy?

I hope it all works for you! I have heard a few stories like this!

 If it does and I don't see success, can you give me your specialists name and info? 

Let me know how the Endep goes too. Apparantly it can really knock you out and make you super drowsy the first few weeks.

I pray you have found the right treatment.  Keep us updated on how it is going! ☺️
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Re: UPDATE: ON THE ROAD TO RECOVERY

Post  MLily92 on Mon Nov 10, 2014 6:29 am

Yeah I know write, its been really good the last couple of days, had a bit of trouble today but I think I'm on the mend thank god.

Yes, I did end up paying to go to the private specialist and she agreed with the physio, however I'm still keeping my appointment for the John Hunter just in case it doesn't clear up by then (thats in Feb).

The first time I tried Endemp I was on a higher dose 20mg and that really smacked me out at night. But I'm on 10mg this time round and I haven't had any side effects at all. I'll up it if I think I need to but I'm going to wait a couple of weeks first.

MLily92

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Re: UPDATE: ON THE ROAD TO RECOVERY

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