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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Had nerve block...

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Had nerve block...

Post  Sebby (Admin) on Tue Dec 28, 2010 11:46 pm


Hi guys I had my nerve block on 23rd December.

I was so scared but it was ok cos they sedated me!! Smile I didnt feel the needle go in and only felt sum sore pressure when they hit the nerves inside so only said 'shit' 3 times and then carried on giggling! so I would say to anyone dont worry its so not as painful as you would imagine, I would rather get that done than a smear test any day!!

I was on my period at the time and hence got a really bad Vulvodynia flare up. Ugh! so was in such pain anyway. I read that it can make the symptoms temporarily worse which I believe it did but it could have just been cos I was on my period..

Anyway the pain is less at the mo but I still dont know if its the block getting to work or cos Im not on my period now and could take those damn sanitary towels out!

I am still gonna get referred for physical therapy and also order a home biofeedback kit oh and strangely enough have found some relief from using nappy cream!!

I will see how I am next week if the block dont work i'll try the pudendal nerve block and carry on with the physio stuff and so on and so on...

Am not too impressed at the moment but I will keep you guys updated..

Godbless and hope you all had a good xmas

Sebby
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Re: Had nerve block...

Post  Paula on Tue Mar 08, 2011 7:41 pm

Hi

My 70 year old mum went in for a nerve block yesterday, no sedation , no nothing, she screamed and cried in pain, 24 hours on she is in immense pain, we had all our hopes pinned on this, i am starting to wander if there is something else wrong down below and i am tempted to ask for a transvaginal scan, glad to hear yours did not hurt that much, dont understand why hers did??, Are they supposed to work straight away and first time, I am so sad for her

Forever hopeful

Paula

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Re: Had nerve block...

Post  Sebby (Admin) on Tue Mar 08, 2011 9:41 pm


Hi Paula and welcome to the forum

Did they give the nerve block in the back? I can't believe that they gave no sedation! You need to make a complaint! My aunty also had a nerve block in the back for back pain and she said it was fine. What happened to your mum does not sound right and the hospital need to investigate as they cant expect patients to go through that!

The block didnt work for me but it did not cause any more pain. They said it could take a couple of days to notice an effect but I didnt feel any better

Do complain though and wishing your mum feels better soon






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Re: Had nerve block...

Post  Paula on Wed Mar 09, 2011 9:16 am

Hi Sebby

Thanks for your reply

She had the nerve block done vaginally, We were so sure that it would work, feel completely deflated that there does not seem to be much difference!

She says she cant live like this anymore?

Paula

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Re: Had nerve block...

Post  Sarah001 on Wed Mar 09, 2011 1:47 pm

Hi Paula, I'm guessing it was a pudendal nerve block then if it was done vaginally? Have they tested your Mum's hormones? At 70 she's bound to be low in oestrogen which can cause vulvar pain. Also have they made sure she doesn't have a prolapse? That can also cause vulvodynia and might explain why the nerve block was so painful. I really think they should at least rule those 2 things out and if there's visible skin problems a referral to a dermatologist who specialises in vulvar skin conditions would be a good idea as older ladies are more prone to skin conditions.
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Re: Had nerve block...

Post  Paula on Wed Mar 09, 2011 4:53 pm

Thanks for your reply

Will speak to the gp about Low oestrogen, she was checked 2 years ago for prolapse, because that is what we first thought this was, but thanks for info any advice is greatley appreciated

Thanks Paula

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Re: Had nerve block...

Post  Mouse on Wed Mar 09, 2011 8:19 pm

Hey Paula,

I'm so sorry your Mum is in such pain. What a horrible treatment. Do you think they knew what they were bloody doing?

I hope she is feeling better now. She's lucky to have you taking care of her.

Take care
Vicki

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Re: Had nerve block...

Post  Sebby (Admin) on Wed Mar 09, 2011 9:34 pm


Take a look at this site if the doctors are thinking it has something to do with the Pudendal nerve

http://www.pudendal.info/node/7

It also talks about Physical Therapy...has your mum had any PT?

Im doing biofeedback home training using Dr Glazer's protocol

http://www.vulvodynia.com/ - take a look at Dr Glazer's site and also at my link to do with the video consultation I had with him

http://vulvodyniasupport.forumotion.net/t276-dr-glazer-video-consultation-review

This could be something your mum could look into..I will have to wait a few months to know if anything is helping and the protocol does involve two 20 minute sessions per day of pelvic floor exercises and inserting a vaginal sensor..I have found it was not as bad as I first thought it would be. It does not cause me to have more pain.

The advice he did give me was everytime I urinate I have to spray the vulval area with water, pat dry and apply vaseline. I have only been doing this for a week and a half but it has helped

Also when she is indoors, wear no knickers and just a skirt/dress! This is fantastic for me

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Re: Had nerve block...

Post  Paula on Fri Mar 11, 2011 11:11 pm

Thanks for all your replies, this is just the worse thing to have, as nothing seems to make it go away, my mum is on so many drugs now and still no reprieve, 5 days down the line the block has not made any difference, she couldnt go through the pain to try it again she still has to stand to eat her tea and still in just as much pain, when i get back from hols next week, i am going to ask to have her oestrogen levels checked, an internal transvaginal scan, which amazes me has never been offered to make sure nothing else is going on down there, i find it so hard to believe that nothing helps?

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Re: Had nerve block...

Post  noni on Sat Mar 12, 2011 1:02 am

Paula i`m so sorry to hear about what your mother has been going through.

Have you had her hormone levels checked? I would look into that, especially if shes older.

Good luck, I hope you find answers soon.

Noni
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Re: Had nerve block...

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