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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Had nerve block...

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Had nerve block...

Post  Sebby (Admin) on Tue Dec 28, 2010 11:46 pm


Hi guys I had my nerve block on 23rd December.

I was so scared but it was ok cos they sedated me!! Smile I didnt feel the needle go in and only felt sum sore pressure when they hit the nerves inside so only said 'shit' 3 times and then carried on giggling! so I would say to anyone dont worry its so not as painful as you would imagine, I would rather get that done than a smear test any day!!

I was on my period at the time and hence got a really bad Vulvodynia flare up. Ugh! so was in such pain anyway. I read that it can make the symptoms temporarily worse which I believe it did but it could have just been cos I was on my period..

Anyway the pain is less at the mo but I still dont know if its the block getting to work or cos Im not on my period now and could take those damn sanitary towels out!

I am still gonna get referred for physical therapy and also order a home biofeedback kit oh and strangely enough have found some relief from using nappy cream!!

I will see how I am next week if the block dont work i'll try the pudendal nerve block and carry on with the physio stuff and so on and so on...

Am not too impressed at the moment but I will keep you guys updated..

Godbless and hope you all had a good xmas

Sebby
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Re: Had nerve block...

Post  Paula on Tue Mar 08, 2011 7:41 pm

Hi

My 70 year old mum went in for a nerve block yesterday, no sedation , no nothing, she screamed and cried in pain, 24 hours on she is in immense pain, we had all our hopes pinned on this, i am starting to wander if there is something else wrong down below and i am tempted to ask for a transvaginal scan, glad to hear yours did not hurt that much, dont understand why hers did??, Are they supposed to work straight away and first time, I am so sad for her

Forever hopeful

Paula

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Re: Had nerve block...

Post  Sebby (Admin) on Tue Mar 08, 2011 9:41 pm


Hi Paula and welcome to the forum

Did they give the nerve block in the back? I can't believe that they gave no sedation! You need to make a complaint! My aunty also had a nerve block in the back for back pain and she said it was fine. What happened to your mum does not sound right and the hospital need to investigate as they cant expect patients to go through that!

The block didnt work for me but it did not cause any more pain. They said it could take a couple of days to notice an effect but I didnt feel any better

Do complain though and wishing your mum feels better soon






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Re: Had nerve block...

Post  Paula on Wed Mar 09, 2011 9:16 am

Hi Sebby

Thanks for your reply

She had the nerve block done vaginally, We were so sure that it would work, feel completely deflated that there does not seem to be much difference!

She says she cant live like this anymore?

Paula

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Re: Had nerve block...

Post  Sarah001 on Wed Mar 09, 2011 1:47 pm

Hi Paula, I'm guessing it was a pudendal nerve block then if it was done vaginally? Have they tested your Mum's hormones? At 70 she's bound to be low in oestrogen which can cause vulvar pain. Also have they made sure she doesn't have a prolapse? That can also cause vulvodynia and might explain why the nerve block was so painful. I really think they should at least rule those 2 things out and if there's visible skin problems a referral to a dermatologist who specialises in vulvar skin conditions would be a good idea as older ladies are more prone to skin conditions.
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Re: Had nerve block...

Post  Paula on Wed Mar 09, 2011 4:53 pm

Thanks for your reply

Will speak to the gp about Low oestrogen, she was checked 2 years ago for prolapse, because that is what we first thought this was, but thanks for info any advice is greatley appreciated

Thanks Paula

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Re: Had nerve block...

Post  Mouse on Wed Mar 09, 2011 8:19 pm

Hey Paula,

I'm so sorry your Mum is in such pain. What a horrible treatment. Do you think they knew what they were bloody doing?

I hope she is feeling better now. She's lucky to have you taking care of her.

Take care
Vicki

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Re: Had nerve block...

Post  Sebby (Admin) on Wed Mar 09, 2011 9:34 pm


Take a look at this site if the doctors are thinking it has something to do with the Pudendal nerve

http://www.pudendal.info/node/7

It also talks about Physical Therapy...has your mum had any PT?

Im doing biofeedback home training using Dr Glazer's protocol

http://www.vulvodynia.com/ - take a look at Dr Glazer's site and also at my link to do with the video consultation I had with him

http://vulvodyniasupport.forumotion.net/t276-dr-glazer-video-consultation-review

This could be something your mum could look into..I will have to wait a few months to know if anything is helping and the protocol does involve two 20 minute sessions per day of pelvic floor exercises and inserting a vaginal sensor..I have found it was not as bad as I first thought it would be. It does not cause me to have more pain.

The advice he did give me was everytime I urinate I have to spray the vulval area with water, pat dry and apply vaseline. I have only been doing this for a week and a half but it has helped

Also when she is indoors, wear no knickers and just a skirt/dress! This is fantastic for me

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Re: Had nerve block...

Post  Paula on Fri Mar 11, 2011 11:11 pm

Thanks for all your replies, this is just the worse thing to have, as nothing seems to make it go away, my mum is on so many drugs now and still no reprieve, 5 days down the line the block has not made any difference, she couldnt go through the pain to try it again she still has to stand to eat her tea and still in just as much pain, when i get back from hols next week, i am going to ask to have her oestrogen levels checked, an internal transvaginal scan, which amazes me has never been offered to make sure nothing else is going on down there, i find it so hard to believe that nothing helps?

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Re: Had nerve block...

Post  noni on Sat Mar 12, 2011 1:02 am

Paula i`m so sorry to hear about what your mother has been going through.

Have you had her hormone levels checked? I would look into that, especially if shes older.

Good luck, I hope you find answers soon.

Noni
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Re: Had nerve block...

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