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» Please tell me this can get better
Today at 2:10 am by anon99

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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Had nerve block...

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Had nerve block...

Post  Sebby (Admin) on Tue Dec 28, 2010 11:46 pm


Hi guys I had my nerve block on 23rd December.

I was so scared but it was ok cos they sedated me!! Smile I didnt feel the needle go in and only felt sum sore pressure when they hit the nerves inside so only said 'shit' 3 times and then carried on giggling! so I would say to anyone dont worry its so not as painful as you would imagine, I would rather get that done than a smear test any day!!

I was on my period at the time and hence got a really bad Vulvodynia flare up. Ugh! so was in such pain anyway. I read that it can make the symptoms temporarily worse which I believe it did but it could have just been cos I was on my period..

Anyway the pain is less at the mo but I still dont know if its the block getting to work or cos Im not on my period now and could take those damn sanitary towels out!

I am still gonna get referred for physical therapy and also order a home biofeedback kit oh and strangely enough have found some relief from using nappy cream!!

I will see how I am next week if the block dont work i'll try the pudendal nerve block and carry on with the physio stuff and so on and so on...

Am not too impressed at the moment but I will keep you guys updated..

Godbless and hope you all had a good xmas

Sebby
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Re: Had nerve block...

Post  Paula on Tue Mar 08, 2011 7:41 pm

Hi

My 70 year old mum went in for a nerve block yesterday, no sedation , no nothing, she screamed and cried in pain, 24 hours on she is in immense pain, we had all our hopes pinned on this, i am starting to wander if there is something else wrong down below and i am tempted to ask for a transvaginal scan, glad to hear yours did not hurt that much, dont understand why hers did??, Are they supposed to work straight away and first time, I am so sad for her

Forever hopeful

Paula

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Re: Had nerve block...

Post  Sebby (Admin) on Tue Mar 08, 2011 9:41 pm


Hi Paula and welcome to the forum

Did they give the nerve block in the back? I can't believe that they gave no sedation! You need to make a complaint! My aunty also had a nerve block in the back for back pain and she said it was fine. What happened to your mum does not sound right and the hospital need to investigate as they cant expect patients to go through that!

The block didnt work for me but it did not cause any more pain. They said it could take a couple of days to notice an effect but I didnt feel any better

Do complain though and wishing your mum feels better soon






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Re: Had nerve block...

Post  Paula on Wed Mar 09, 2011 9:16 am

Hi Sebby

Thanks for your reply

She had the nerve block done vaginally, We were so sure that it would work, feel completely deflated that there does not seem to be much difference!

She says she cant live like this anymore?

Paula

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Re: Had nerve block...

Post  Sarah001 on Wed Mar 09, 2011 1:47 pm

Hi Paula, I'm guessing it was a pudendal nerve block then if it was done vaginally? Have they tested your Mum's hormones? At 70 she's bound to be low in oestrogen which can cause vulvar pain. Also have they made sure she doesn't have a prolapse? That can also cause vulvodynia and might explain why the nerve block was so painful. I really think they should at least rule those 2 things out and if there's visible skin problems a referral to a dermatologist who specialises in vulvar skin conditions would be a good idea as older ladies are more prone to skin conditions.
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Re: Had nerve block...

Post  Paula on Wed Mar 09, 2011 4:53 pm

Thanks for your reply

Will speak to the gp about Low oestrogen, she was checked 2 years ago for prolapse, because that is what we first thought this was, but thanks for info any advice is greatley appreciated

Thanks Paula

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Re: Had nerve block...

Post  Mouse on Wed Mar 09, 2011 8:19 pm

Hey Paula,

I'm so sorry your Mum is in such pain. What a horrible treatment. Do you think they knew what they were bloody doing?

I hope she is feeling better now. She's lucky to have you taking care of her.

Take care
Vicki

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Re: Had nerve block...

Post  Sebby (Admin) on Wed Mar 09, 2011 9:34 pm


Take a look at this site if the doctors are thinking it has something to do with the Pudendal nerve

http://www.pudendal.info/node/7

It also talks about Physical Therapy...has your mum had any PT?

Im doing biofeedback home training using Dr Glazer's protocol

http://www.vulvodynia.com/ - take a look at Dr Glazer's site and also at my link to do with the video consultation I had with him

http://vulvodyniasupport.forumotion.net/t276-dr-glazer-video-consultation-review

This could be something your mum could look into..I will have to wait a few months to know if anything is helping and the protocol does involve two 20 minute sessions per day of pelvic floor exercises and inserting a vaginal sensor..I have found it was not as bad as I first thought it would be. It does not cause me to have more pain.

The advice he did give me was everytime I urinate I have to spray the vulval area with water, pat dry and apply vaseline. I have only been doing this for a week and a half but it has helped

Also when she is indoors, wear no knickers and just a skirt/dress! This is fantastic for me

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Re: Had nerve block...

Post  Paula on Fri Mar 11, 2011 11:11 pm

Thanks for all your replies, this is just the worse thing to have, as nothing seems to make it go away, my mum is on so many drugs now and still no reprieve, 5 days down the line the block has not made any difference, she couldnt go through the pain to try it again she still has to stand to eat her tea and still in just as much pain, when i get back from hols next week, i am going to ask to have her oestrogen levels checked, an internal transvaginal scan, which amazes me has never been offered to make sure nothing else is going on down there, i find it so hard to believe that nothing helps?

Paula

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Re: Had nerve block...

Post  noni on Sat Mar 12, 2011 1:02 am

Paula i`m so sorry to hear about what your mother has been going through.

Have you had her hormone levels checked? I would look into that, especially if shes older.

Good luck, I hope you find answers soon.

Noni
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Re: Had nerve block...

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