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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Considering surgery
2 posters
Page 1 of 1
Considering surgery
Hi. So glad to have found this group. I was diagnosed 4 years ago and was given lidocaine to help. Problem is with lidocaine that it kind of ruins the mood and only lasts a short time and I'm still. Left in a lot of pain once it wears off.
I've found myself single again and was considering the surgery now as I'm finally in stable job where I can get sick leave and being single no pressure to have sex afterwards as quickly as possible.
Have a few questions though. How much time would I need off work for a partial surgery? Would i be able to work from home after a few days?
Is it OK to not have sex for a long time after? Or do they suggest doing it to stretch the skin etc??
Any other help and advice would be much appreciated.
Thanks
I've found myself single again and was considering the surgery now as I'm finally in stable job where I can get sick leave and being single no pressure to have sex afterwards as quickly as possible.
Have a few questions though. How much time would I need off work for a partial surgery? Would i be able to work from home after a few days?
Is it OK to not have sex for a long time after? Or do they suggest doing it to stretch the skin etc??
Any other help and advice would be much appreciated.
Thanks
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
Hi. I had a partial vestibulectomy in January 2015 and for me it was by far the easiest recovery ever! For the first couple of days you will be very sore and you probably won't be able to sit straight upwards, so I'd avoid working for the first 3 days. Although I was really sore I never had to touch the prescribed painkillers they gave me, and I'm the kind of person who feels suicidal over period pains!
After 5 days I attended a wedding, sitting down was still very uncomfortable for me due to the stitches poking me in every possible place but pain wise I was fine.
I went back to work after 2 weeks, my job is very active and busy so I was worried but it was so easy I never had a problem with working with stitches at all. Although they do recommended that you have 3-4 weeks off work, I don't think you will need it. Feeling fine and being off work will drive you insane.
Not having a boyfriend and having the surgery will probably work out best for you, you won't feel pressured into have sex before your body or yourself feels ready.
Not having sex for a while after surgery is okay too- a lady I know had the surgery and didn't have sex for 8 months after, if you wanted to stretch the surgical scar tissue you could invest in a dildo, or some dialators which have about 5 different sizes so you can get used to inserting things into your vagina without any pain again.
The first time you have sex after surgery will be painful, it was for me. I analysed everything from skin stretching to little twinges off pain, but after a month I learnt to relax and I was perfectly fine.
Surgery was the best descision I made personally- so if you feel like surgery is your only option left you may as well take the plunge and see a doctor who would be willing to operate on you. If your the right candidate of course- but if you respond to the gel (which I did too) the surgery should be a success for you ☺️
Good luck x
After 5 days I attended a wedding, sitting down was still very uncomfortable for me due to the stitches poking me in every possible place but pain wise I was fine.
I went back to work after 2 weeks, my job is very active and busy so I was worried but it was so easy I never had a problem with working with stitches at all. Although they do recommended that you have 3-4 weeks off work, I don't think you will need it. Feeling fine and being off work will drive you insane.
Not having a boyfriend and having the surgery will probably work out best for you, you won't feel pressured into have sex before your body or yourself feels ready.
Not having sex for a while after surgery is okay too- a lady I know had the surgery and didn't have sex for 8 months after, if you wanted to stretch the surgical scar tissue you could invest in a dildo, or some dialators which have about 5 different sizes so you can get used to inserting things into your vagina without any pain again.
The first time you have sex after surgery will be painful, it was for me. I analysed everything from skin stretching to little twinges off pain, but after a month I learnt to relax and I was perfectly fine.
Surgery was the best descision I made personally- so if you feel like surgery is your only option left you may as well take the plunge and see a doctor who would be willing to operate on you. If your the right candidate of course- but if you respond to the gel (which I did too) the surgery should be a success for you ☺️
Good luck x
x_chelss@live.com- Posts : 50
Join date : 2014-02-12
Re: Considering surgery
Thank you. Have an appointment with my gyno on the 21st so may discuss it then. I have always healed well after surgeries so hopefully if I do go for it it won't be so bad
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
As long as you have lots and lots of ice you will be just fine.
x_chelss@live.com- Posts : 50
Join date : 2014-02-12
Re: Considering surgery
Thanks. I've moved my appointment up a week. I've also spoken to my dad as I still live at home and would need someone to look after me. He said he'll support me and look after me if it's what I want and the gyno thinks it's a good idea. Good think I have a good relationship with my father I can talk about this with haha
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
I still live with my parents too, my mom took 3 days off from work to make sure I had everything I needed and was comfortable so I think you having your dads support is amazing. -I'm glad you have someone who will help the recovery easier for you. :-)
Let me know if your gyno agrees to the operation. Make sure she/he has done this type of surgery before, it's better to know they've done this surgery before.
Let me know if your gyno agrees to the operation. Make sure she/he has done this type of surgery before, it's better to know they've done this surgery before.
x_chelss@live.com- Posts : 50
Join date : 2014-02-12
Re: Considering surgery
I don't know what the gyno will say. He may say to try other things. I just don't want to get back into a relationship and then put it off resulting in psychology issues. It's not going away, it hasn't been triggered by anything and it is one particular spot causing the pain. My mum took. Me to the doctors the first time but she passed away six months ago so unfortunately for my dad it's now his job to deal with my lady parts.
Id only have my gyno do it. He's very experienced and I trust him. Completely.
Id only have my gyno do it. He's very experienced and I trust him. Completely.
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
I'm so sorry to hear about your mom, it must be awful having to deal with the loss off a parent and have all this pain on top as well. You must be a very strong person.
I'm glad you have a gyno which you trust although your probably right he might want you to try alternative treatments before having the surgery done.
I'm glad you have a gyno which you trust although your probably right he might want you to try alternative treatments before having the surgery done.
x_chelss@live.com- Posts : 50
Join date : 2014-02-12
Re: Considering surgery
Honestly looking at other options none of them are really viable. I've used lidocaine for four years but it still leaves me in agony and only lasts about ten minutes after burning when putting it on not very conducive to me.
The problem is one tiny 5p size spot, have no issues with tightness or pelvic floor or anything else and other options seem better for generalised pain. I'm now getting very anxious that he'll say I can't have the surgery and even more anxious he will.
I'm terrified of getting into another relationship and dealing with it again esp since I was still left in a lot of pain by my ex who tbh was not very well endowed :-p I just want a normal sex life and don't want to start something and then find I start having psychological responses too and then just go through with th the op and have to abstain for any number of months.
The problem is one tiny 5p size spot, have no issues with tightness or pelvic floor or anything else and other options seem better for generalised pain. I'm now getting very anxious that he'll say I can't have the surgery and even more anxious he will.
I'm terrified of getting into another relationship and dealing with it again esp since I was still left in a lot of pain by my ex who tbh was not very well endowed :-p I just want a normal sex life and don't want to start something and then find I start having psychological responses too and then just go through with th the op and have to abstain for any number of months.
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
If you respond to the gel your a candidate for surgery. You wouldn't need a full vestibulectomy neither you'd only need a partial so you recovery would be even quicker.
I hope he does say you can have the surgery, as for getting into a relationship I wouldn't worry about it to much. If your with the person who's right for you they won't mind waiting until you have surgery, or even doing alternative things until then. My boyfriend has been with me through it all and is so understanding. He's a night mare but not many lads who are my age(20) will stick to one girl. Especially one girl who had painful sex for 2 years and then couldn't have sex for 6 weeks.
If your having the surgery you can't think off future boyfriends or even relationships- you need to have it done for you, and you only.
I hope he does say you can have the surgery, as for getting into a relationship I wouldn't worry about it to much. If your with the person who's right for you they won't mind waiting until you have surgery, or even doing alternative things until then. My boyfriend has been with me through it all and is so understanding. He's a night mare but not many lads who are my age(20) will stick to one girl. Especially one girl who had painful sex for 2 years and then couldn't have sex for 6 weeks.
If your having the surgery you can't think off future boyfriends or even relationships- you need to have it done for you, and you only.
x_chelss@live.com- Posts : 50
Join date : 2014-02-12
Re: Considering surgery
it would be for me, don't worry. i want to enjoy myself. I'd just rather the surgery when i was single cos when I'm in a relationship my sex drive goes through the roof and i'd find it hard to abstain for that long and especially if I was in the early stages i wouldn't like to make the guy do it either.
I found some really good facebook support groups too now. Just 13 days til my doctors appointment and I think I'm gonna ask him if I can have it done.I think its the best move for me. Not just for sex but generally - would like to use tampons occasionally - even sanitary towels cause mild discomfort.
I just hope i do eventually find a guy and i will be able to have the awesome sex life I've always dreamt of
I found some really good facebook support groups too now. Just 13 days til my doctors appointment and I think I'm gonna ask him if I can have it done.I think its the best move for me. Not just for sex but generally - would like to use tampons occasionally - even sanitary towels cause mild discomfort.
I just hope i do eventually find a guy and i will be able to have the awesome sex life I've always dreamt of
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
PS thanks for all the support and advice. You are awesome
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
Let me know how you get on- good luck!
No problem, I'm happy I could help you x
No problem, I'm happy I could help you x
x_chelss@live.com- Posts : 50
Join date : 2014-02-12
Re: Considering surgery
Appointment tomorrow. Reckon if he agrees I may have to go to a specialist clinic rather than have it under him but I'm on my way!!!
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
So the saga continues...will have to go see a specialist. my gyno has suggested one that he knows and trusts though.
Ellsbells- Posts : 11
Join date : 2015-06-29
Re: Considering surgery
I'm glad you are on your way. At least he has referred you to someone he trusts and not just performing it himself
x_chelss@live.com- Posts : 50
Join date : 2014-02-12
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer