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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 9

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

china pain sucks

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china pain sucks

Post  coloradolady on Tue May 05, 2015 12:32 am

I have always done things differently. I had breast when all the other little girls didn’t, that was middle school for you. When all my friends where becoming women I wanted to have my period, I already had breast. Yes, went to doctor and I was told that being mother would be hard without a doctors help. That there was a larger chance that I would hit earlier onset menopause, and that I would mostly have very painful periods. I start my period when I was 18 years old, it was the night of my senior prom. By the way THAT FUCKING SUCKED! The doctor didn’t lie, my periods where not normal and lasted for ever and painful or so I thought. I was cocky and had unprotected sex and didn’t get pregnant. I was kind of a wild child around the age of 18 to 21. I had gotten myself on probation.
Towards the end of 2005 I found out that I was pregnant and no help from any doctors. Short after I started have a consent pain. A PAIN IN MY CHINA. I went to clinic that Medicaid was paid for. They were not helpful, things that I was told were that I have a UTI, and put me on some meds to help with the infection. No change, still the pain was there. I was just after my first trimester when my mother took me to the ER. I was taken directly to the birth center, I was put on a morphine drip and a catheter (I hate catheters!!! I wish that they were never thought up) I was in the hospital for a week. I went through procedure after procedure. One of them dilated my urethra and burn pulps off my Blatter. I can tell you that I know where my Blatter sit inside of my body and I can feel all the way down to opening of my urethra.  I went through doctor after doctor looking at my china, poking, biopsies, and different creams and meds. I tried crystal therapy, and herbal treatment that my parents started paying out of pocket. Nothing was working. I was seeing no improvement.  I even had one doctor say that I was a junkie trying to get pill and I was slow killing my baby.
I received a call from one of the many doctors that I had seen and he referred me to a doctor. Okay is all that I could comment. I show up ready for me to be asked can I take a look. He came in and said “Vulvodynia”. Okay, it’s a nerve issues. There was something that we can try. There was hope, at least a little hope. I was put on a low dose of an antidepressants, there was a bit of relief. After the birth of my son the pain just disappeared like nothing ever happened. I would have a flare up here and there but I was able to get through
I moved on with my life. I was a single mother of a baby, three years after my son was born I had everything, even a man that wanted to marry me. I thought maybe it was just a phase. I married him. He is a wonderful man, he has two daughters of his own. I found my little fairy tale.
I have been married for four years and yes it is a great marriage. A health one, he is wonderful. At the beginning of March 2015 I started having flares of pain. I have tried to make it through the  pain, it just started to get worst. It is impacting my life in so many ways. And in the lives of my family.
I am wondering if anyone else have had a break from pain and it came back?


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