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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

china pain sucks

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china pain sucks

Post  coloradolady on Tue May 05, 2015 12:32 am

I have always done things differently. I had breast when all the other little girls didn’t, that was middle school for you. When all my friends where becoming women I wanted to have my period, I already had breast. Yes, went to doctor and I was told that being mother would be hard without a doctors help. That there was a larger chance that I would hit earlier onset menopause, and that I would mostly have very painful periods. I start my period when I was 18 years old, it was the night of my senior prom. By the way THAT FUCKING SUCKED! The doctor didn’t lie, my periods where not normal and lasted for ever and painful or so I thought. I was cocky and had unprotected sex and didn’t get pregnant. I was kind of a wild child around the age of 18 to 21. I had gotten myself on probation.
Towards the end of 2005 I found out that I was pregnant and no help from any doctors. Short after I started have a consent pain. A PAIN IN MY CHINA. I went to clinic that Medicaid was paid for. They were not helpful, things that I was told were that I have a UTI, and put me on some meds to help with the infection. No change, still the pain was there. I was just after my first trimester when my mother took me to the ER. I was taken directly to the birth center, I was put on a morphine drip and a catheter (I hate catheters!!! I wish that they were never thought up) I was in the hospital for a week. I went through procedure after procedure. One of them dilated my urethra and burn pulps off my Blatter. I can tell you that I know where my Blatter sit inside of my body and I can feel all the way down to opening of my urethra.  I went through doctor after doctor looking at my china, poking, biopsies, and different creams and meds. I tried crystal therapy, and herbal treatment that my parents started paying out of pocket. Nothing was working. I was seeing no improvement.  I even had one doctor say that I was a junkie trying to get pill and I was slow killing my baby.
I received a call from one of the many doctors that I had seen and he referred me to a doctor. Okay is all that I could comment. I show up ready for me to be asked can I take a look. He came in and said “Vulvodynia”. Okay, it’s a nerve issues. There was something that we can try. There was hope, at least a little hope. I was put on a low dose of an antidepressants, there was a bit of relief. After the birth of my son the pain just disappeared like nothing ever happened. I would have a flare up here and there but I was able to get through
I moved on with my life. I was a single mother of a baby, three years after my son was born I had everything, even a man that wanted to marry me. I thought maybe it was just a phase. I married him. He is a wonderful man, he has two daughters of his own. I found my little fairy tale.
I have been married for four years and yes it is a great marriage. A health one, he is wonderful. At the beginning of March 2015 I started having flares of pain. I have tried to make it through the  pain, it just started to get worst. It is impacting my life in so many ways. And in the lives of my family.
I am wondering if anyone else have had a break from pain and it came back?


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