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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

china pain sucks

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china pain sucks

Post  coloradolady on Tue May 05, 2015 12:32 am

I have always done things differently. I had breast when all the other little girls didn’t, that was middle school for you. When all my friends where becoming women I wanted to have my period, I already had breast. Yes, went to doctor and I was told that being mother would be hard without a doctors help. That there was a larger chance that I would hit earlier onset menopause, and that I would mostly have very painful periods. I start my period when I was 18 years old, it was the night of my senior prom. By the way THAT FUCKING SUCKED! The doctor didn’t lie, my periods where not normal and lasted for ever and painful or so I thought. I was cocky and had unprotected sex and didn’t get pregnant. I was kind of a wild child around the age of 18 to 21. I had gotten myself on probation.
Towards the end of 2005 I found out that I was pregnant and no help from any doctors. Short after I started have a consent pain. A PAIN IN MY CHINA. I went to clinic that Medicaid was paid for. They were not helpful, things that I was told were that I have a UTI, and put me on some meds to help with the infection. No change, still the pain was there. I was just after my first trimester when my mother took me to the ER. I was taken directly to the birth center, I was put on a morphine drip and a catheter (I hate catheters!!! I wish that they were never thought up) I was in the hospital for a week. I went through procedure after procedure. One of them dilated my urethra and burn pulps off my Blatter. I can tell you that I know where my Blatter sit inside of my body and I can feel all the way down to opening of my urethra.  I went through doctor after doctor looking at my china, poking, biopsies, and different creams and meds. I tried crystal therapy, and herbal treatment that my parents started paying out of pocket. Nothing was working. I was seeing no improvement.  I even had one doctor say that I was a junkie trying to get pill and I was slow killing my baby.
I received a call from one of the many doctors that I had seen and he referred me to a doctor. Okay is all that I could comment. I show up ready for me to be asked can I take a look. He came in and said “Vulvodynia”. Okay, it’s a nerve issues. There was something that we can try. There was hope, at least a little hope. I was put on a low dose of an antidepressants, there was a bit of relief. After the birth of my son the pain just disappeared like nothing ever happened. I would have a flare up here and there but I was able to get through
I moved on with my life. I was a single mother of a baby, three years after my son was born I had everything, even a man that wanted to marry me. I thought maybe it was just a phase. I married him. He is a wonderful man, he has two daughters of his own. I found my little fairy tale.
I have been married for four years and yes it is a great marriage. A health one, he is wonderful. At the beginning of March 2015 I started having flares of pain. I have tried to make it through the  pain, it just started to get worst. It is impacting my life in so many ways. And in the lives of my family.
I am wondering if anyone else have had a break from pain and it came back?


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