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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

china pain sucks

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china pain sucks

Post  coloradolady on Tue May 05, 2015 12:32 am

I have always done things differently. I had breast when all the other little girls didn’t, that was middle school for you. When all my friends where becoming women I wanted to have my period, I already had breast. Yes, went to doctor and I was told that being mother would be hard without a doctors help. That there was a larger chance that I would hit earlier onset menopause, and that I would mostly have very painful periods. I start my period when I was 18 years old, it was the night of my senior prom. By the way THAT FUCKING SUCKED! The doctor didn’t lie, my periods where not normal and lasted for ever and painful or so I thought. I was cocky and had unprotected sex and didn’t get pregnant. I was kind of a wild child around the age of 18 to 21. I had gotten myself on probation.
Towards the end of 2005 I found out that I was pregnant and no help from any doctors. Short after I started have a consent pain. A PAIN IN MY CHINA. I went to clinic that Medicaid was paid for. They were not helpful, things that I was told were that I have a UTI, and put me on some meds to help with the infection. No change, still the pain was there. I was just after my first trimester when my mother took me to the ER. I was taken directly to the birth center, I was put on a morphine drip and a catheter (I hate catheters!!! I wish that they were never thought up) I was in the hospital for a week. I went through procedure after procedure. One of them dilated my urethra and burn pulps off my Blatter. I can tell you that I know where my Blatter sit inside of my body and I can feel all the way down to opening of my urethra.  I went through doctor after doctor looking at my china, poking, biopsies, and different creams and meds. I tried crystal therapy, and herbal treatment that my parents started paying out of pocket. Nothing was working. I was seeing no improvement.  I even had one doctor say that I was a junkie trying to get pill and I was slow killing my baby.
I received a call from one of the many doctors that I had seen and he referred me to a doctor. Okay is all that I could comment. I show up ready for me to be asked can I take a look. He came in and said “Vulvodynia”. Okay, it’s a nerve issues. There was something that we can try. There was hope, at least a little hope. I was put on a low dose of an antidepressants, there was a bit of relief. After the birth of my son the pain just disappeared like nothing ever happened. I would have a flare up here and there but I was able to get through
I moved on with my life. I was a single mother of a baby, three years after my son was born I had everything, even a man that wanted to marry me. I thought maybe it was just a phase. I married him. He is a wonderful man, he has two daughters of his own. I found my little fairy tale.
I have been married for four years and yes it is a great marriage. A health one, he is wonderful. At the beginning of March 2015 I started having flares of pain. I have tried to make it through the  pain, it just started to get worst. It is impacting my life in so many ways. And in the lives of my family.
I am wondering if anyone else have had a break from pain and it came back?


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