Log in

I forgot my password

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 12

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Just diagnosed today: A bit about my case. Information about diagnosis appreciated.

Go down

Just diagnosed today: A bit about my case. Information about diagnosis appreciated.

Post  sweetstarfire on Fri Jul 03, 2015 4:01 pm

So 15 months ago I went to my gynocologist at the onset of my symptoms.  After a few tests she ended up telling me that I had a bacterial infection and gave me some antibiotics.  Now I have Cystic Fibrosis which is a genetic disease that is treated often with antibiotics so I have resistances to many of them.  She put me on one that whether a placebo effect happened or what I don't know but I felt like I started to get a little better.  

A week later my symptoms started to come back and I went back into my gyno again.  She tried me on several different antibiotics, topical and oral.  None of which seemed to work.  Finally after months of trying different treatments with no success, she sent me to an infectious disease specialist to see if he could help.  The infectious disease specialist tried a couple medications.  None of course worked.  He suggested I get a second opinion.  This was 3-4 months ago.  I started seeing a new gyno about 3 months ago and he had me try several topical steroids.  Again none of them worked.  He ended up sending me to a dermatologist.  

The dermatologist did a few tests, ended up taking a biopsy of the skin.  He said he thought it was vulvoddynia but he wanted to make sure. My iron level was low but not low enough for him to want to treat.  The nerves were inlarged so he told me that it was vulvodynia. He gave me two topical treatments one was lidocain and another I haven't received in the mail yet so I am not sure what it is.  I looked up on a few medical websites what it was but there was limited information out there.  Can anyone tell me a bit more about it?  I'll peruse some of the topics here but it is overwhelming and I don't even know where to start.  I am glad that I finally got a diagnosis for this pain I have been having but I don't know much about this other than what my symptoms are.  

Thanks for the support and any information you can give. <3

Posts : 4
Join date : 2015-07-02
Age : 29

View user profile

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum