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    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 1

    New member desperate need of other vulvadynia sufferers

    Fri Feb 08, 2019 6:55 pm by Tfc13

    Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

    Comments: 5

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 7

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 13

    Hello. Happy to have found this group.

    Fri Dec 07, 2018 9:01 pm by foxysugarpants

    I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

    Comments: 0


    VESTIBULE TEARING/ABRASIONS

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    VESTIBULE TEARING/ABRASIONS

    Post  A2015 on Sat Aug 01, 2015 5:38 pm

    Hello,

    I am suffering with VVS for a second time. I have provoked VVS, my skin is red & subtly inflammed in the whole area that is sore.

    I had VVS from 2012-13 when I was on the Pill. When I eventually came off it, I was 100% cured back to normal within a month.
    After 18 perfect months, this February I developed infections & now have had VVS again since.

    When I first had VVS for 1.5 years, I was in a relationship. For about a year, whenever we had sex it would get more inflammed & often triggered a yeast/bacterial infection.
    After a while, I started to get a recurring tear at the 6 o'clock point & just inside the opening on either side (where the Bartholin glands are). This would happen even if I used lots of lubricant.

    Once I was cured, I never had any tearing during sex at all. My vestibule tissue looked & felt normal with no redness.

    Since my VVS has come back, I have had sex once. I got the same tears/abrasions. They heal very quickly, but I know would just happen again if I attempted sex again.

    I guess I am writing this just to see if anyone else experiences this, as I expect I'm not alone.

    My Vulval Dermatologist says she wants to try me on an antidepressant. I am concerned about the red/inflammed skin and wonder how the antidepressant could help this, surely I would still be prone to tearing if the skin itself is still in a fragile condition?

    A2015

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    Re: VESTIBULE TEARING/ABRASIONS

    Post  sailor_moon on Sun Aug 02, 2015 6:29 am

    I too suffer from inflammation and redness, sometimes I get a tear in the skin when it is fragile Sad the tear does heal up but the redness and inflammation stays.

    I am wondering the same question, how on earth does an antidepressant fix redness? I asked my current specialist and he said if it is nerves causing the vulvodynia the nerve endings to the vulva can become inflammed and continuously firing off, which causes the redness.

    He put me on a trial for Lyrica, been on it since the start of April and all it does it get rid of the extremity of the real bad burn, the burn is still there, not as extreme. however, my biggest symptom is extreme itching and it does nothing to help with that. I see him tomorrow as a follow up to an investigative Laproscopy and see where to go from here, as I have low estrogen and progesterone but he needed to fix many endometriosis I may have had [which I did!] via the laproscopy before he could treat my hormones as Endo flares up with excess estrogen.

    Funny enough my issue started when I came OFF the pill!!!

    I've tried every cream in the book and the only thing I can use down there that does not irritate is bursting open an Evening Primrose Oil capsule and applying the oil.

    Can I ask what your main symptoms are?

    I suffer intense itching almost 24/7, burning, and "nerve pain" that is only in my left vestibule area and it runs up my pelvis and down my bum cheek...when I had surgery 4 weeks ago they must have put my back out or something moving me coz now it is SO much worse!

    sailor_moon
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    Re: VESTIBULE TEARING/ABRASIONS

    Post  Toobusy9561 on Sat Oct 03, 2015 12:28 am

    Itching with burning and tearing, redness and inflammation could be Lichen Sclerosus (this also includes the anal area where you will get fissures). Not everyone gets the "white" that you see on search images for LS. The gyno can do a biopsy to be sure or just a trial of high potency steroid ointment (avoid creams, they have added ingredients than can irritate) such as Clobetasol.

    Have you looked at your vulva/anal area to see if everything looks ok? Some women don't realize they have LS (I am one of them) until they see white areas. Anyway..its just something to look into.

    Pain on one side could be pelvic floor. Whenever you have pelvic pain, you tend to "brace" or "clench" that area and if it goes on for a while, the muscles get out of balance or become hard and knotted causes more pains.

    Toobusy9561
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    Re: VESTIBULE TEARING/ABRASIONS

    Post  sailor_moon on Sat Oct 03, 2015 12:35 am

    I have had 2 biopsies done, and both only showed chronic inflammation. I tried that steroid ointment along with many others and all they do is make me even worse. Thanks for your suggestion though!

    I recently tested positive for yeast after 2 and a half years of all tests being negative, but any treatment that has been given to me makes do differ to my symptoms. Got given fluconazole to take for 6 weeks and it made no difference at all. And the test showed it was just normal yeast candida albicans and not a weird funny type.

    Running short on ideas. I always thought that you had to have the horrible white patches to have LS? Surely after 2 biopsies it would have showed?

    sailor_moon
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    Re: VESTIBULE TEARING/ABRASIONS

    Post  Guest on Sat Oct 03, 2015 9:00 pm

    Hi, A2015 how did you get better the first time? Maybe it can help you this time as well?

    Guest
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    Re: VESTIBULE TEARING/ABRASIONS

    Post  A2015 on Sun Oct 04, 2015 4:30 pm

    Hi all,

    I got better (cured entirely) the first time because I stopped taking the pill (Microgynon). My body returned entirely to normal within a month. I haven't taken anything hormonal since, but my VV symptoms have started up since a yeast & bacterial infection back in February.

    I've seen multiple vulval dermatologists who have confirmed the diagnosis of Vestibulodynia, and as my symptoms are exactly the same as they were the first time (which went away completely off the pill), I have ruled out any possibility of having LS.

    A2015

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    Re: VESTIBULE TEARING/ABRASIONS

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