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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


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Post  A2015 on Sat Aug 01, 2015 5:38 pm


I am suffering with VVS for a second time. I have provoked VVS, my skin is red & subtly inflammed in the whole area that is sore.

I had VVS from 2012-13 when I was on the Pill. When I eventually came off it, I was 100% cured back to normal within a month.
After 18 perfect months, this February I developed infections & now have had VVS again since.

When I first had VVS for 1.5 years, I was in a relationship. For about a year, whenever we had sex it would get more inflammed & often triggered a yeast/bacterial infection.
After a while, I started to get a recurring tear at the 6 o'clock point & just inside the opening on either side (where the Bartholin glands are). This would happen even if I used lots of lubricant.

Once I was cured, I never had any tearing during sex at all. My vestibule tissue looked & felt normal with no redness.

Since my VVS has come back, I have had sex once. I got the same tears/abrasions. They heal very quickly, but I know would just happen again if I attempted sex again.

I guess I am writing this just to see if anyone else experiences this, as I expect I'm not alone.

My Vulval Dermatologist says she wants to try me on an antidepressant. I am concerned about the red/inflammed skin and wonder how the antidepressant could help this, surely I would still be prone to tearing if the skin itself is still in a fragile condition?


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Post  sailor_moon on Sun Aug 02, 2015 6:29 am

I too suffer from inflammation and redness, sometimes I get a tear in the skin when it is fragile Sad the tear does heal up but the redness and inflammation stays.

I am wondering the same question, how on earth does an antidepressant fix redness? I asked my current specialist and he said if it is nerves causing the vulvodynia the nerve endings to the vulva can become inflammed and continuously firing off, which causes the redness.

He put me on a trial for Lyrica, been on it since the start of April and all it does it get rid of the extremity of the real bad burn, the burn is still there, not as extreme. however, my biggest symptom is extreme itching and it does nothing to help with that. I see him tomorrow as a follow up to an investigative Laproscopy and see where to go from here, as I have low estrogen and progesterone but he needed to fix many endometriosis I may have had [which I did!] via the laproscopy before he could treat my hormones as Endo flares up with excess estrogen.

Funny enough my issue started when I came OFF the pill!!!

I've tried every cream in the book and the only thing I can use down there that does not irritate is bursting open an Evening Primrose Oil capsule and applying the oil.

Can I ask what your main symptoms are?

I suffer intense itching almost 24/7, burning, and "nerve pain" that is only in my left vestibule area and it runs up my pelvis and down my bum cheek...when I had surgery 4 weeks ago they must have put my back out or something moving me coz now it is SO much worse!


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Post  Toobusy9561 on Sat Oct 03, 2015 12:28 am

Itching with burning and tearing, redness and inflammation could be Lichen Sclerosus (this also includes the anal area where you will get fissures). Not everyone gets the "white" that you see on search images for LS. The gyno can do a biopsy to be sure or just a trial of high potency steroid ointment (avoid creams, they have added ingredients than can irritate) such as Clobetasol.

Have you looked at your vulva/anal area to see if everything looks ok? Some women don't realize they have LS (I am one of them) until they see white areas. Anyway..its just something to look into.

Pain on one side could be pelvic floor. Whenever you have pelvic pain, you tend to "brace" or "clench" that area and if it goes on for a while, the muscles get out of balance or become hard and knotted causes more pains.


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Post  sailor_moon on Sat Oct 03, 2015 12:35 am

I have had 2 biopsies done, and both only showed chronic inflammation. I tried that steroid ointment along with many others and all they do is make me even worse. Thanks for your suggestion though!

I recently tested positive for yeast after 2 and a half years of all tests being negative, but any treatment that has been given to me makes do differ to my symptoms. Got given fluconazole to take for 6 weeks and it made no difference at all. And the test showed it was just normal yeast candida albicans and not a weird funny type.

Running short on ideas. I always thought that you had to have the horrible white patches to have LS? Surely after 2 biopsies it would have showed?


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Post  A2015 on Sun Oct 04, 2015 4:30 pm

Hi all,

I got better (cured entirely) the first time because I stopped taking the pill (Microgynon). My body returned entirely to normal within a month. I haven't taken anything hormonal since, but my VV symptoms have started up since a yeast & bacterial infection back in February.

I've seen multiple vulval dermatologists who have confirmed the diagnosis of Vestibulodynia, and as my symptoms are exactly the same as they were the first time (which went away completely off the pill), I have ruled out any possibility of having LS.



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