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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


VESTIBULE TEARING/ABRASIONS

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VESTIBULE TEARING/ABRASIONS

Post  A2015 on Sat Aug 01, 2015 5:38 pm

Hello,

I am suffering with VVS for a second time. I have provoked VVS, my skin is red & subtly inflammed in the whole area that is sore.

I had VVS from 2012-13 when I was on the Pill. When I eventually came off it, I was 100% cured back to normal within a month.
After 18 perfect months, this February I developed infections & now have had VVS again since.

When I first had VVS for 1.5 years, I was in a relationship. For about a year, whenever we had sex it would get more inflammed & often triggered a yeast/bacterial infection.
After a while, I started to get a recurring tear at the 6 o'clock point & just inside the opening on either side (where the Bartholin glands are). This would happen even if I used lots of lubricant.

Once I was cured, I never had any tearing during sex at all. My vestibule tissue looked & felt normal with no redness.

Since my VVS has come back, I have had sex once. I got the same tears/abrasions. They heal very quickly, but I know would just happen again if I attempted sex again.

I guess I am writing this just to see if anyone else experiences this, as I expect I'm not alone.

My Vulval Dermatologist says she wants to try me on an antidepressant. I am concerned about the red/inflammed skin and wonder how the antidepressant could help this, surely I would still be prone to tearing if the skin itself is still in a fragile condition?

A2015

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Re: VESTIBULE TEARING/ABRASIONS

Post  sailor_moon on Sun Aug 02, 2015 6:29 am

I too suffer from inflammation and redness, sometimes I get a tear in the skin when it is fragile Sad the tear does heal up but the redness and inflammation stays.

I am wondering the same question, how on earth does an antidepressant fix redness? I asked my current specialist and he said if it is nerves causing the vulvodynia the nerve endings to the vulva can become inflammed and continuously firing off, which causes the redness.

He put me on a trial for Lyrica, been on it since the start of April and all it does it get rid of the extremity of the real bad burn, the burn is still there, not as extreme. however, my biggest symptom is extreme itching and it does nothing to help with that. I see him tomorrow as a follow up to an investigative Laproscopy and see where to go from here, as I have low estrogen and progesterone but he needed to fix many endometriosis I may have had [which I did!] via the laproscopy before he could treat my hormones as Endo flares up with excess estrogen.

Funny enough my issue started when I came OFF the pill!!!

I've tried every cream in the book and the only thing I can use down there that does not irritate is bursting open an Evening Primrose Oil capsule and applying the oil.

Can I ask what your main symptoms are?

I suffer intense itching almost 24/7, burning, and "nerve pain" that is only in my left vestibule area and it runs up my pelvis and down my bum cheek...when I had surgery 4 weeks ago they must have put my back out or something moving me coz now it is SO much worse!

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Re: VESTIBULE TEARING/ABRASIONS

Post  Toobusy9561 on Sat Oct 03, 2015 12:28 am

Itching with burning and tearing, redness and inflammation could be Lichen Sclerosus (this also includes the anal area where you will get fissures). Not everyone gets the "white" that you see on search images for LS. The gyno can do a biopsy to be sure or just a trial of high potency steroid ointment (avoid creams, they have added ingredients than can irritate) such as Clobetasol.

Have you looked at your vulva/anal area to see if everything looks ok? Some women don't realize they have LS (I am one of them) until they see white areas. Anyway..its just something to look into.

Pain on one side could be pelvic floor. Whenever you have pelvic pain, you tend to "brace" or "clench" that area and if it goes on for a while, the muscles get out of balance or become hard and knotted causes more pains.

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Re: VESTIBULE TEARING/ABRASIONS

Post  sailor_moon on Sat Oct 03, 2015 12:35 am

I have had 2 biopsies done, and both only showed chronic inflammation. I tried that steroid ointment along with many others and all they do is make me even worse. Thanks for your suggestion though!

I recently tested positive for yeast after 2 and a half years of all tests being negative, but any treatment that has been given to me makes do differ to my symptoms. Got given fluconazole to take for 6 weeks and it made no difference at all. And the test showed it was just normal yeast candida albicans and not a weird funny type.

Running short on ideas. I always thought that you had to have the horrible white patches to have LS? Surely after 2 biopsies it would have showed?

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Re: VESTIBULE TEARING/ABRASIONS

Post  Guest on Sat Oct 03, 2015 9:00 pm

Hi, A2015 how did you get better the first time? Maybe it can help you this time as well?

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Re: VESTIBULE TEARING/ABRASIONS

Post  A2015 on Sun Oct 04, 2015 4:30 pm

Hi all,

I got better (cured entirely) the first time because I stopped taking the pill (Microgynon). My body returned entirely to normal within a month. I haven't taken anything hormonal since, but my VV symptoms have started up since a yeast & bacterial infection back in February.

I've seen multiple vulval dermatologists who have confirmed the diagnosis of Vestibulodynia, and as my symptoms are exactly the same as they were the first time (which went away completely off the pill), I have ruled out any possibility of having LS.

A2015

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