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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


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Post  A2015 on Sat Aug 01, 2015 5:38 pm


I am suffering with VVS for a second time. I have provoked VVS, my skin is red & subtly inflammed in the whole area that is sore.

I had VVS from 2012-13 when I was on the Pill. When I eventually came off it, I was 100% cured back to normal within a month.
After 18 perfect months, this February I developed infections & now have had VVS again since.

When I first had VVS for 1.5 years, I was in a relationship. For about a year, whenever we had sex it would get more inflammed & often triggered a yeast/bacterial infection.
After a while, I started to get a recurring tear at the 6 o'clock point & just inside the opening on either side (where the Bartholin glands are). This would happen even if I used lots of lubricant.

Once I was cured, I never had any tearing during sex at all. My vestibule tissue looked & felt normal with no redness.

Since my VVS has come back, I have had sex once. I got the same tears/abrasions. They heal very quickly, but I know would just happen again if I attempted sex again.

I guess I am writing this just to see if anyone else experiences this, as I expect I'm not alone.

My Vulval Dermatologist says she wants to try me on an antidepressant. I am concerned about the red/inflammed skin and wonder how the antidepressant could help this, surely I would still be prone to tearing if the skin itself is still in a fragile condition?


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Post  sailor_moon on Sun Aug 02, 2015 6:29 am

I too suffer from inflammation and redness, sometimes I get a tear in the skin when it is fragile Sad the tear does heal up but the redness and inflammation stays.

I am wondering the same question, how on earth does an antidepressant fix redness? I asked my current specialist and he said if it is nerves causing the vulvodynia the nerve endings to the vulva can become inflammed and continuously firing off, which causes the redness.

He put me on a trial for Lyrica, been on it since the start of April and all it does it get rid of the extremity of the real bad burn, the burn is still there, not as extreme. however, my biggest symptom is extreme itching and it does nothing to help with that. I see him tomorrow as a follow up to an investigative Laproscopy and see where to go from here, as I have low estrogen and progesterone but he needed to fix many endometriosis I may have had [which I did!] via the laproscopy before he could treat my hormones as Endo flares up with excess estrogen.

Funny enough my issue started when I came OFF the pill!!!

I've tried every cream in the book and the only thing I can use down there that does not irritate is bursting open an Evening Primrose Oil capsule and applying the oil.

Can I ask what your main symptoms are?

I suffer intense itching almost 24/7, burning, and "nerve pain" that is only in my left vestibule area and it runs up my pelvis and down my bum cheek...when I had surgery 4 weeks ago they must have put my back out or something moving me coz now it is SO much worse!


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Post  Toobusy9561 on Sat Oct 03, 2015 12:28 am

Itching with burning and tearing, redness and inflammation could be Lichen Sclerosus (this also includes the anal area where you will get fissures). Not everyone gets the "white" that you see on search images for LS. The gyno can do a biopsy to be sure or just a trial of high potency steroid ointment (avoid creams, they have added ingredients than can irritate) such as Clobetasol.

Have you looked at your vulva/anal area to see if everything looks ok? Some women don't realize they have LS (I am one of them) until they see white areas. Anyway..its just something to look into.

Pain on one side could be pelvic floor. Whenever you have pelvic pain, you tend to "brace" or "clench" that area and if it goes on for a while, the muscles get out of balance or become hard and knotted causes more pains.


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Post  sailor_moon on Sat Oct 03, 2015 12:35 am

I have had 2 biopsies done, and both only showed chronic inflammation. I tried that steroid ointment along with many others and all they do is make me even worse. Thanks for your suggestion though!

I recently tested positive for yeast after 2 and a half years of all tests being negative, but any treatment that has been given to me makes do differ to my symptoms. Got given fluconazole to take for 6 weeks and it made no difference at all. And the test showed it was just normal yeast candida albicans and not a weird funny type.

Running short on ideas. I always thought that you had to have the horrible white patches to have LS? Surely after 2 biopsies it would have showed?


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Post  Guest on Sat Oct 03, 2015 9:00 pm

Hi, A2015 how did you get better the first time? Maybe it can help you this time as well?


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Post  A2015 on Sun Oct 04, 2015 4:30 pm

Hi all,

I got better (cured entirely) the first time because I stopped taking the pill (Microgynon). My body returned entirely to normal within a month. I haven't taken anything hormonal since, but my VV symptoms have started up since a yeast & bacterial infection back in February.

I've seen multiple vulval dermatologists who have confirmed the diagnosis of Vestibulodynia, and as my symptoms are exactly the same as they were the first time (which went away completely off the pill), I have ruled out any possibility of having LS.



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