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    » Dating with Vulvodynia and Vaginismus advice
    Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

    » Lyrica has been classed as a Class C drug in UK
    Mon Mar 11, 2019 9:20 pm by mary jane

    » Long Time No Talk... What's been going on with my V pain the past few years...
    Mon Mar 11, 2019 9:15 pm by mary jane

    » An absolute success story- please read!
    Fri Mar 08, 2019 10:57 pm by Persevere1990

    » I'm sorry im rambling
    Fri Mar 08, 2019 7:34 pm by scrumptuous

    » New member need advice please
    Fri Mar 08, 2019 7:11 pm by scrumptuous

    » MonaLisa Touch
    Fri Mar 08, 2019 4:46 pm by rl2091

    » Diagnosed Recently
    Thu Feb 14, 2019 6:35 pm by davesjen

    » New and need advice and help
    Wed Feb 13, 2019 12:42 pm by feeling desperate

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    New member desperate need of other vulvadynia sufferers

    Fri Feb 08, 2019 6:55 pm by Tfc13

    Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

    Comments: 5

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 7


    Letting off some of that steam...

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    Letting off some of that steam...

    Post  WaahwaahUK on Wed Aug 26, 2015 5:11 pm

    I've had two reasonable days this week for the first time in ages with pain at about 3 or 4 out of 10. Today I'm at a 6 and feeling low... Only been on nortriptyline for about 3 weeks and its a low dose so not expecting a miracle yet. Having osteopathy treatment seems to be causing flares for days after treatment but ultimately I feel like its on the right track... I just feel so tearful today as it's one of those days where I can't see the light at the end of the tunnel. I seem to flare when I'm hormonal (around ovulation and several days before my period) and am thinking maybe that's because my body is more susceptible to pain then I don't know. I've tried so many things this last year. It's been a year now. Feel like my sense of womanhood has been stripped from me. I've heard nortriptyline can take a few months to show effect so I'm holding on desperately to that notion. Just feeling so incredibly flat today. I thought I may be able to attempt sex yesterday if it continued improving but today I'm not so sure.... This is such a cruel and twisted thing. This chronic pain with no solid guaranteed way forward. I keep reading over some of the success stories and trying to hold out some hope. Today I just feel like utter shit. Excuse my french. That tell tale burn is firing on my left side and the deep ache I get is saying hello too. Hate it. Steam over.

    WaahwaahUK

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    Re: Letting off some of that steam...

    Post  PainBlogger on Wed Aug 26, 2015 7:25 pm

    Sad I know how you feel. I've had a rough few days with my pain flaring up with no obvious trigger. Today has been a bit better though, thankfully, maybe as I had acupuncture yesterday. I'm also hoping the nortriptyline will show more effect in time. I've noticed my heartbeat is quick (it's always been a bit quick, but more now than usual > 100bpm) so I think I'd better speak to the GP before increasing to 40mg/day. I'm on several other meds which means I'm more prone to side effects. I think you really need to give the nortriptyline a bit longer but I understand your frustration totally. I feel so angry some days, especially when I've had a few better days and then it's got worse again and I analyse everything I've done/eaten and can't find any trigger factor.
    It's good to read the success stories and also to have a rant and, as you say, let off some steam.

    PainBlogger

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    Re: Letting off some of that steam...

    Post  WaahwaahUK on Wed Aug 26, 2015 7:44 pm

    It's so frustrating when there's no obvious trigger. I feel like what the hell am I doing wrong? Analysing everything like you say. I'm definitely going to persevere with the nortriptyline as side effects for me have been tolerable. It's such a waiting game.... I've never had accupuncture. Does the therapist treat you specifically for the vulvodynia pain? I'm so sorry to hear you've had a rough few days too, but today hopefully is a sign some relief is coming. I'll keep my fingers crossed for you. Sometimes I just want to scream out all my hurt and anger I just don't know what to do with it all. Are you on other meds for this, or is it other things? I feel like I should be trying to do things like have sex but its been so long and although my vagina doesn't actually hurt, pretty much everywhere else does! Sorry probably TMI there! Just so sad today. Thanks for replying. It does actually help knowing other people can relate to this hideous pain.

    WaahwaahUK

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    Re: Letting off some of that steam...

    Post  PainBlogger on Wed Aug 26, 2015 9:22 pm

    Yes, there are acupuncture points specific for genital and bladder pain. But also points for general pain, I think. I have needles in my feet and lower legs, hands, abdomen and upper chest and one in the top of my head. The effectiveness of the acupuncture seems to vary from treatment to treatment but I'm sure it has some effect. My other meds I was on before this pelvic pain started (I have fibromyalgia so pain in my neck, back, hips and knees though generally not everywhere at once).

    I think trying to keep doing things is admirable as long as one is sensible - there are certain things I just can't contemplate right now and in fact have been advised to avoid as if I do them and my pain flares then it will increase muscle tension and feed in to the vicious cycle of pain.

    I hope you have a better day tomorrow Smile

    PainBlogger

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    Re: Letting off some of that steam...

    Post  WaahwaahUK on Wed Aug 26, 2015 9:36 pm

    I may look into accupuncture as well. Thank you. I think I have a stupid sense of must try or else I'm a bad person... I don't know. Thank you for the encouragement today. Wishing you some good days too.

    WaahwaahUK

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    Re: Letting off some of that steam...

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