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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Letting off some of that steam...

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Letting off some of that steam...

Post  WaahwaahUK on Wed Aug 26, 2015 5:11 pm

I've had two reasonable days this week for the first time in ages with pain at about 3 or 4 out of 10. Today I'm at a 6 and feeling low... Only been on nortriptyline for about 3 weeks and its a low dose so not expecting a miracle yet. Having osteopathy treatment seems to be causing flares for days after treatment but ultimately I feel like its on the right track... I just feel so tearful today as it's one of those days where I can't see the light at the end of the tunnel. I seem to flare when I'm hormonal (around ovulation and several days before my period) and am thinking maybe that's because my body is more susceptible to pain then I don't know. I've tried so many things this last year. It's been a year now. Feel like my sense of womanhood has been stripped from me. I've heard nortriptyline can take a few months to show effect so I'm holding on desperately to that notion. Just feeling so incredibly flat today. I thought I may be able to attempt sex yesterday if it continued improving but today I'm not so sure.... This is such a cruel and twisted thing. This chronic pain with no solid guaranteed way forward. I keep reading over some of the success stories and trying to hold out some hope. Today I just feel like utter shit. Excuse my french. That tell tale burn is firing on my left side and the deep ache I get is saying hello too. Hate it. Steam over.

WaahwaahUK

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Re: Letting off some of that steam...

Post  PainBlogger on Wed Aug 26, 2015 7:25 pm

Sad I know how you feel. I've had a rough few days with my pain flaring up with no obvious trigger. Today has been a bit better though, thankfully, maybe as I had acupuncture yesterday. I'm also hoping the nortriptyline will show more effect in time. I've noticed my heartbeat is quick (it's always been a bit quick, but more now than usual > 100bpm) so I think I'd better speak to the GP before increasing to 40mg/day. I'm on several other meds which means I'm more prone to side effects. I think you really need to give the nortriptyline a bit longer but I understand your frustration totally. I feel so angry some days, especially when I've had a few better days and then it's got worse again and I analyse everything I've done/eaten and can't find any trigger factor.
It's good to read the success stories and also to have a rant and, as you say, let off some steam.

PainBlogger

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Re: Letting off some of that steam...

Post  WaahwaahUK on Wed Aug 26, 2015 7:44 pm

It's so frustrating when there's no obvious trigger. I feel like what the hell am I doing wrong? Analysing everything like you say. I'm definitely going to persevere with the nortriptyline as side effects for me have been tolerable. It's such a waiting game.... I've never had accupuncture. Does the therapist treat you specifically for the vulvodynia pain? I'm so sorry to hear you've had a rough few days too, but today hopefully is a sign some relief is coming. I'll keep my fingers crossed for you. Sometimes I just want to scream out all my hurt and anger I just don't know what to do with it all. Are you on other meds for this, or is it other things? I feel like I should be trying to do things like have sex but its been so long and although my vagina doesn't actually hurt, pretty much everywhere else does! Sorry probably TMI there! Just so sad today. Thanks for replying. It does actually help knowing other people can relate to this hideous pain.

WaahwaahUK

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Re: Letting off some of that steam...

Post  PainBlogger on Wed Aug 26, 2015 9:22 pm

Yes, there are acupuncture points specific for genital and bladder pain. But also points for general pain, I think. I have needles in my feet and lower legs, hands, abdomen and upper chest and one in the top of my head. The effectiveness of the acupuncture seems to vary from treatment to treatment but I'm sure it has some effect. My other meds I was on before this pelvic pain started (I have fibromyalgia so pain in my neck, back, hips and knees though generally not everywhere at once).

I think trying to keep doing things is admirable as long as one is sensible - there are certain things I just can't contemplate right now and in fact have been advised to avoid as if I do them and my pain flares then it will increase muscle tension and feed in to the vicious cycle of pain.

I hope you have a better day tomorrow Smile

PainBlogger

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Re: Letting off some of that steam...

Post  WaahwaahUK on Wed Aug 26, 2015 9:36 pm

I may look into accupuncture as well. Thank you. I think I have a stupid sense of must try or else I'm a bad person... I don't know. Thank you for the encouragement today. Wishing you some good days too.

WaahwaahUK

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Re: Letting off some of that steam...

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