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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Desperate for help - Need some support with this condition - driving myself mad!

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Desperate for help - Need some support with this condition - driving myself mad!

Post  JS007 on Tue Dec 15, 2015 1:53 pm

Hi, I am really keen to see if anyone can help me or give me some comfort!! I have finally been diagnosed with Vulvodynia after 5 months and have been put on Amitriptyline by the gyneo - at least she new about the condition when all the swabs came back negative!!! My trigger appears to be when I go to the toilet, after I have been for a wee or a BM the whole area starts kicking off!!! I feel like I have nappy rash and issues near the opening to urethra? Has anyone else experienced this??? I don't know what to do, such a normal function is becoming a nightmare for me...I just want to feel normal again?! I am on 40mg of A and have been told to increase gradually - does anyone know what the right dosage should be??
I am very anxious and have sadly been depressed over worrying what all of this is about - I just want it to stop and not be in discomfort everyday either waiting or going to the toilet! thanks Smile


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Re: Desperate for help - Need some support with this condition - driving myself mad!

Post  PainBlogger on Tue Dec 15, 2015 3:45 pm

My main trigger is emptying my bladder (and sometimes emptying my bowels triggers the urethral irritation also). Not only do I often get pain, my bladder doesn't empty very well and it takes ages. I always try to make sure I drink loads of water and/or herbal (non-fruit) tea so that when I do go, there is always plenty to flush through and it's more dilute. Have you tried rinsing with cool water after emptying? Have you cut out all possible triggers for bladder and urethral irritation (such as caffeine, fizzy drinks, citrus fruit juices, acid foods like vinegar, artificial sweeteners, alcohol, and even decaf tea and coffee)? Some people find a low oxalate diet helps. Also sitting in a bath (or portable bidet - you can get these on Amazon and they sit on the toilet so you don't have to fill a bath) with sodium bicarb/baking soda or Epsom salts can help. My doctor told me to use Oilatum bath emollient in the bathwater - I get the kids one as it is fragrance free - again, 600ml bottle from Amazon works out cheapest.

As far as the right dosage of amitriptyline - it depends on the doctor and on how you get on with it. Anything from 10mg/day to 75mg/day is quite common for pain. My doctor wanted me to go up to 50mg but I had to stop it at 30mg/day as I got palpitations (but I'm on various other drugs that make side effects more likely). Ideally, you want to be on the highest reasonable dose that you can tolerate but the lowest dose that helps - if that makes sense.


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Re: Desperate for help - Need some support with this condition - driving myself mad!

Post  sarisbaris on Thu Dec 31, 2015 6:18 am

Please read my post in the 'vulvodynia info' forum titled 'cured from vulvodynia...' My trigger was different and when it flared last I was pregnant so the docs couldn't give me much because it would harm the baby. This forced me to keep looking for an alternative doc who finally fixed it. I've been pain free ever since and was able to give birth to my son without complications. I'm so sorry you're going through this. Please read my post.


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Re: Desperate for help - Need some support with this condition - driving myself mad!

Post  sarisbaris on Thu Dec 31, 2015 6:19 am

Although I did have constant urinary tract infections along with the vulvodynia that she fixed as well. FML. I've been pain free since then. Let me know if you have any questions.


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Re: Desperate for help - Need some support with this condition - driving myself mad!

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