Vulvodynia Support
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» Hope to all my suffering ladies
Flare up from hell! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Flare up from hell! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Flare up from hell! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Flare up from hell! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Flare up from hell! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Flare up from hell! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Flare up from hell! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Flare up from hell! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Flare up from hell! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Flare up from hell!

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Post  ringostarr26 Wed Jan 20, 2016 6:35 pm

Hi Ladies,

Well just as I wrote my post about being virtually pain free for about a year I have been battling a flare up from hell. It started about a month ago where I would have constant burning pain for a few days and then it would disappear. Basically a cycle of pain, then no pain. I have recently started my Physio therapy up again so I hope I can get my muscles under control. After my second treatment I have been in excruciating pain, but my Physio told me it is probably my tissues getting used to the manipulation. For anyone out there going through this or something similar, just know that there are good days ahead. I am hopeful I will get all of this under control again. Take each day as it comes, and don't be afraid to ask lots of questions at your appointments. I have had pain free months/ years before so I know I will eventually be ok, but it just may take some time. Set backs happen ladies, so staying positive is the only way to concur these conditions. I hope all of you are having a good day, and just know there are great days ahead. I am sending you all well wishes and lots of love. We can beat this thing! <3

ringostarr26

Posts : 59
Join date : 2012-07-31

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Post  WaahwaahUK Thu Jan 21, 2016 7:28 pm

Thank you for your post. So sorry to hear you have a flare up, but it sounds like you know your causes and how to get back on track. I'm currently having physio and finding it hard, but also gradually it's helping. I do find sometimes the physio really flares me. It's so encouraging to hear success stories. Really hope things settle for you soon! Thanks again for the positivity.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

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Post  ringostarr26 Fri Jan 22, 2016 1:00 am

Oh Physio is definitely adding to my flare BUT i know eventually once my tissues get used to it, it will calm down. I think the best thing to do is stay positive. I know its hard especially when you are in pain. I, like many women on this forum suffer from anxiety but i find that I have a better time coping during my flares when I am treating my anxiety as well. I am no where near cured BUT i have lived a life with pain free periods for years at a time after suffering since i was 18 ( I am now 26). It is possible. We just need to support each other and find doctors that are willing to look beyond the typical causes and unfortunately the standard diagnosis of "vulvodynia" which really is such a broad diagnosis with little hope for improvement. When i was told that when I was 18 I was absolutely mortified because there are literally no proven successful treatment options. My one saving grace was a doctor who actually looked further and found that a tailbone injury lead to the hypertonicity of my pelvic floor muscles. I had got to a point where I went to see a specialist and asked to have surgery because I figured it was my last hope before he said nerve damage was not my issue. My Pysio is amazing though and she treats men and women with pelvic floor issues so I know she is passionate about helping her patients. Even after slacking on my treatment for a year she welcomed me back within a week of calling her office. I hope all women find health practitioners that really want to help like i did.

ringostarr26

Posts : 59
Join date : 2012-07-31

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Post  WaahwaahUK Tue Feb 09, 2016 6:23 pm

I really hope your flare has settled for you!

I'm currently experiencing a flare following some physio. I over stretched and it's really hurt my back and set my down below off worse again! My osteopath is being great though so hoping it will pass. I find each time I try a new stretch my body goes a bit berserk and doesn't like it to start with.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

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Post  ringostarr26 Thu Feb 18, 2016 1:43 am

My flare has settled dramatically. I have been persistent with my physio for the past 20 months and have had success in reducing and almost eliminating my pain. I found that the first few weeks I would have severe flare ups right after a physio session because my muscles were not used to being manipulated that way. Since then I have reduced the amount of physio sessions and continued doing the at home exercises. I hope you are well today!

ringostarr26

Posts : 59
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