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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Flare up from hell!

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Flare up from hell!

Post  ringostarr26 on Wed Jan 20, 2016 6:35 pm

Hi Ladies,

Well just as I wrote my post about being virtually pain free for about a year I have been battling a flare up from hell. It started about a month ago where I would have constant burning pain for a few days and then it would disappear. Basically a cycle of pain, then no pain. I have recently started my Physio therapy up again so I hope I can get my muscles under control. After my second treatment I have been in excruciating pain, but my Physio told me it is probably my tissues getting used to the manipulation. For anyone out there going through this or something similar, just know that there are good days ahead. I am hopeful I will get all of this under control again. Take each day as it comes, and don't be afraid to ask lots of questions at your appointments. I have had pain free months/ years before so I know I will eventually be ok, but it just may take some time. Set backs happen ladies, so staying positive is the only way to concur these conditions. I hope all of you are having a good day, and just know there are great days ahead. I am sending you all well wishes and lots of love. We can beat this thing! <3

ringostarr26

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Re: Flare up from hell!

Post  WaahwaahUK on Thu Jan 21, 2016 7:28 pm

Thank you for your post. So sorry to hear you have a flare up, but it sounds like you know your causes and how to get back on track. I'm currently having physio and finding it hard, but also gradually it's helping. I do find sometimes the physio really flares me. It's so encouraging to hear success stories. Really hope things settle for you soon! Thanks again for the positivity.

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Re: Flare up from hell!

Post  ringostarr26 on Fri Jan 22, 2016 1:00 am

Oh Physio is definitely adding to my flare BUT i know eventually once my tissues get used to it, it will calm down. I think the best thing to do is stay positive. I know its hard especially when you are in pain. I, like many women on this forum suffer from anxiety but i find that I have a better time coping during my flares when I am treating my anxiety as well. I am no where near cured BUT i have lived a life with pain free periods for years at a time after suffering since i was 18 ( I am now 26). It is possible. We just need to support each other and find doctors that are willing to look beyond the typical causes and unfortunately the standard diagnosis of "vulvodynia" which really is such a broad diagnosis with little hope for improvement. When i was told that when I was 18 I was absolutely mortified because there are literally no proven successful treatment options. My one saving grace was a doctor who actually looked further and found that a tailbone injury lead to the hypertonicity of my pelvic floor muscles. I had got to a point where I went to see a specialist and asked to have surgery because I figured it was my last hope before he said nerve damage was not my issue. My Pysio is amazing though and she treats men and women with pelvic floor issues so I know she is passionate about helping her patients. Even after slacking on my treatment for a year she welcomed me back within a week of calling her office. I hope all women find health practitioners that really want to help like i did.

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Re: Flare up from hell!

Post  WaahwaahUK on Tue Feb 09, 2016 6:23 pm

I really hope your flare has settled for you!

I'm currently experiencing a flare following some physio. I over stretched and it's really hurt my back and set my down below off worse again! My osteopath is being great though so hoping it will pass. I find each time I try a new stretch my body goes a bit berserk and doesn't like it to start with.

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Re: Flare up from hell!

Post  ringostarr26 on Thu Feb 18, 2016 1:43 am

My flare has settled dramatically. I have been persistent with my physio for the past 20 months and have had success in reducing and almost eliminating my pain. I found that the first few weeks I would have severe flare ups right after a physio session because my muscles were not used to being manipulated that way. Since then I have reduced the amount of physio sessions and continued doing the at home exercises. I hope you are well today!

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Re: Flare up from hell!

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