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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Flare up from hell!

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Flare up from hell!

Post  ringostarr26 on Wed Jan 20, 2016 6:35 pm

Hi Ladies,

Well just as I wrote my post about being virtually pain free for about a year I have been battling a flare up from hell. It started about a month ago where I would have constant burning pain for a few days and then it would disappear. Basically a cycle of pain, then no pain. I have recently started my Physio therapy up again so I hope I can get my muscles under control. After my second treatment I have been in excruciating pain, but my Physio told me it is probably my tissues getting used to the manipulation. For anyone out there going through this or something similar, just know that there are good days ahead. I am hopeful I will get all of this under control again. Take each day as it comes, and don't be afraid to ask lots of questions at your appointments. I have had pain free months/ years before so I know I will eventually be ok, but it just may take some time. Set backs happen ladies, so staying positive is the only way to concur these conditions. I hope all of you are having a good day, and just know there are great days ahead. I am sending you all well wishes and lots of love. We can beat this thing! <3

ringostarr26

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Re: Flare up from hell!

Post  WaahwaahUK on Thu Jan 21, 2016 7:28 pm

Thank you for your post. So sorry to hear you have a flare up, but it sounds like you know your causes and how to get back on track. I'm currently having physio and finding it hard, but also gradually it's helping. I do find sometimes the physio really flares me. It's so encouraging to hear success stories. Really hope things settle for you soon! Thanks again for the positivity.

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Re: Flare up from hell!

Post  ringostarr26 on Fri Jan 22, 2016 1:00 am

Oh Physio is definitely adding to my flare BUT i know eventually once my tissues get used to it, it will calm down. I think the best thing to do is stay positive. I know its hard especially when you are in pain. I, like many women on this forum suffer from anxiety but i find that I have a better time coping during my flares when I am treating my anxiety as well. I am no where near cured BUT i have lived a life with pain free periods for years at a time after suffering since i was 18 ( I am now 26). It is possible. We just need to support each other and find doctors that are willing to look beyond the typical causes and unfortunately the standard diagnosis of "vulvodynia" which really is such a broad diagnosis with little hope for improvement. When i was told that when I was 18 I was absolutely mortified because there are literally no proven successful treatment options. My one saving grace was a doctor who actually looked further and found that a tailbone injury lead to the hypertonicity of my pelvic floor muscles. I had got to a point where I went to see a specialist and asked to have surgery because I figured it was my last hope before he said nerve damage was not my issue. My Pysio is amazing though and she treats men and women with pelvic floor issues so I know she is passionate about helping her patients. Even after slacking on my treatment for a year she welcomed me back within a week of calling her office. I hope all women find health practitioners that really want to help like i did.

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Re: Flare up from hell!

Post  WaahwaahUK on Tue Feb 09, 2016 6:23 pm

I really hope your flare has settled for you!

I'm currently experiencing a flare following some physio. I over stretched and it's really hurt my back and set my down below off worse again! My osteopath is being great though so hoping it will pass. I find each time I try a new stretch my body goes a bit berserk and doesn't like it to start with.

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Re: Flare up from hell!

Post  ringostarr26 on Thu Feb 18, 2016 1:43 am

My flare has settled dramatically. I have been persistent with my physio for the past 20 months and have had success in reducing and almost eliminating my pain. I found that the first few weeks I would have severe flare ups right after a physio session because my muscles were not used to being manipulated that way. Since then I have reduced the amount of physio sessions and continued doing the at home exercises. I hope you are well today!

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Re: Flare up from hell!

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