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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Flare up from hell!

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Flare up from hell!

Post  ringostarr26 on Wed Jan 20, 2016 6:35 pm

Hi Ladies,

Well just as I wrote my post about being virtually pain free for about a year I have been battling a flare up from hell. It started about a month ago where I would have constant burning pain for a few days and then it would disappear. Basically a cycle of pain, then no pain. I have recently started my Physio therapy up again so I hope I can get my muscles under control. After my second treatment I have been in excruciating pain, but my Physio told me it is probably my tissues getting used to the manipulation. For anyone out there going through this or something similar, just know that there are good days ahead. I am hopeful I will get all of this under control again. Take each day as it comes, and don't be afraid to ask lots of questions at your appointments. I have had pain free months/ years before so I know I will eventually be ok, but it just may take some time. Set backs happen ladies, so staying positive is the only way to concur these conditions. I hope all of you are having a good day, and just know there are great days ahead. I am sending you all well wishes and lots of love. We can beat this thing! <3

ringostarr26

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Re: Flare up from hell!

Post  WaahwaahUK on Thu Jan 21, 2016 7:28 pm

Thank you for your post. So sorry to hear you have a flare up, but it sounds like you know your causes and how to get back on track. I'm currently having physio and finding it hard, but also gradually it's helping. I do find sometimes the physio really flares me. It's so encouraging to hear success stories. Really hope things settle for you soon! Thanks again for the positivity.

WaahwaahUK

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Re: Flare up from hell!

Post  ringostarr26 on Fri Jan 22, 2016 1:00 am

Oh Physio is definitely adding to my flare BUT i know eventually once my tissues get used to it, it will calm down. I think the best thing to do is stay positive. I know its hard especially when you are in pain. I, like many women on this forum suffer from anxiety but i find that I have a better time coping during my flares when I am treating my anxiety as well. I am no where near cured BUT i have lived a life with pain free periods for years at a time after suffering since i was 18 ( I am now 26). It is possible. We just need to support each other and find doctors that are willing to look beyond the typical causes and unfortunately the standard diagnosis of "vulvodynia" which really is such a broad diagnosis with little hope for improvement. When i was told that when I was 18 I was absolutely mortified because there are literally no proven successful treatment options. My one saving grace was a doctor who actually looked further and found that a tailbone injury lead to the hypertonicity of my pelvic floor muscles. I had got to a point where I went to see a specialist and asked to have surgery because I figured it was my last hope before he said nerve damage was not my issue. My Pysio is amazing though and she treats men and women with pelvic floor issues so I know she is passionate about helping her patients. Even after slacking on my treatment for a year she welcomed me back within a week of calling her office. I hope all women find health practitioners that really want to help like i did.

ringostarr26

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Re: Flare up from hell!

Post  WaahwaahUK on Tue Feb 09, 2016 6:23 pm

I really hope your flare has settled for you!

I'm currently experiencing a flare following some physio. I over stretched and it's really hurt my back and set my down below off worse again! My osteopath is being great though so hoping it will pass. I find each time I try a new stretch my body goes a bit berserk and doesn't like it to start with.

WaahwaahUK

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Re: Flare up from hell!

Post  ringostarr26 on Thu Feb 18, 2016 1:43 am

My flare has settled dramatically. I have been persistent with my physio for the past 20 months and have had success in reducing and almost eliminating my pain. I found that the first few weeks I would have severe flare ups right after a physio session because my muscles were not used to being manipulated that way. Since then I have reduced the amount of physio sessions and continued doing the at home exercises. I hope you are well today!

ringostarr26

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Re: Flare up from hell!

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