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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Flare up from hell!

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Flare up from hell!

Post  ringostarr26 on Wed Jan 20, 2016 6:35 pm

Hi Ladies,

Well just as I wrote my post about being virtually pain free for about a year I have been battling a flare up from hell. It started about a month ago where I would have constant burning pain for a few days and then it would disappear. Basically a cycle of pain, then no pain. I have recently started my Physio therapy up again so I hope I can get my muscles under control. After my second treatment I have been in excruciating pain, but my Physio told me it is probably my tissues getting used to the manipulation. For anyone out there going through this or something similar, just know that there are good days ahead. I am hopeful I will get all of this under control again. Take each day as it comes, and don't be afraid to ask lots of questions at your appointments. I have had pain free months/ years before so I know I will eventually be ok, but it just may take some time. Set backs happen ladies, so staying positive is the only way to concur these conditions. I hope all of you are having a good day, and just know there are great days ahead. I am sending you all well wishes and lots of love. We can beat this thing! <3

ringostarr26

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Re: Flare up from hell!

Post  WaahwaahUK on Thu Jan 21, 2016 7:28 pm

Thank you for your post. So sorry to hear you have a flare up, but it sounds like you know your causes and how to get back on track. I'm currently having physio and finding it hard, but also gradually it's helping. I do find sometimes the physio really flares me. It's so encouraging to hear success stories. Really hope things settle for you soon! Thanks again for the positivity.

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Re: Flare up from hell!

Post  ringostarr26 on Fri Jan 22, 2016 1:00 am

Oh Physio is definitely adding to my flare BUT i know eventually once my tissues get used to it, it will calm down. I think the best thing to do is stay positive. I know its hard especially when you are in pain. I, like many women on this forum suffer from anxiety but i find that I have a better time coping during my flares when I am treating my anxiety as well. I am no where near cured BUT i have lived a life with pain free periods for years at a time after suffering since i was 18 ( I am now 26). It is possible. We just need to support each other and find doctors that are willing to look beyond the typical causes and unfortunately the standard diagnosis of "vulvodynia" which really is such a broad diagnosis with little hope for improvement. When i was told that when I was 18 I was absolutely mortified because there are literally no proven successful treatment options. My one saving grace was a doctor who actually looked further and found that a tailbone injury lead to the hypertonicity of my pelvic floor muscles. I had got to a point where I went to see a specialist and asked to have surgery because I figured it was my last hope before he said nerve damage was not my issue. My Pysio is amazing though and she treats men and women with pelvic floor issues so I know she is passionate about helping her patients. Even after slacking on my treatment for a year she welcomed me back within a week of calling her office. I hope all women find health practitioners that really want to help like i did.

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Re: Flare up from hell!

Post  WaahwaahUK on Tue Feb 09, 2016 6:23 pm

I really hope your flare has settled for you!

I'm currently experiencing a flare following some physio. I over stretched and it's really hurt my back and set my down below off worse again! My osteopath is being great though so hoping it will pass. I find each time I try a new stretch my body goes a bit berserk and doesn't like it to start with.

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Re: Flare up from hell!

Post  ringostarr26 on Thu Feb 18, 2016 1:43 am

My flare has settled dramatically. I have been persistent with my physio for the past 20 months and have had success in reducing and almost eliminating my pain. I found that the first few weeks I would have severe flare ups right after a physio session because my muscles were not used to being manipulated that way. Since then I have reduced the amount of physio sessions and continued doing the at home exercises. I hope you are well today!

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Re: Flare up from hell!

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