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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


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Post  sadone on Thu Jan 21, 2016 10:45 pm

PLEASE PLEASE WATCH THIS AND FLOOD the video producers with comments. I have already reported this video to the NVA. We need to stand up for ourselves.

I don't know where else to post this.

But please please watch and write back to them.



Media and Press Contact for TYT network.

Peter Axtman / Danielle Fuerth

Contact the press coordinators, snail mail, and comment on the website.

If we don't stand up for ourselves, who will? We have power in our numbers.

I already have written to them and contacted the NVA.

Talking points: vulvodynia is not a rare condition. it affects 18 percent of women. the male anchor on the program's comments are despicable and cruel. Where he gets the percentage 99 percent of men will not date a woman with V? We all know that is false.

PLEASE TAKE ACTION. I will continue to post and update.


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Post  sadone on Wed Jan 27, 2016 10:18 pm

I am very upset that no one is replying to this message. When I searched for dating if you can't have sex, the above video was the only thing that came up.

This video would throw any girl into a deep depression. We must work to get it removed.

We must do something. Write to the NVA. www.NVA.org

Write to to The Young Turks network.

Technical and Member Support

TYTNetwork Support Desk

Legal Inquiries


Media and Press Contact:

Peter Axtman / Danielle Fuerth

Regular Mail and Packages

The Young Turks
6230 Wilshire Blvd, Box #140
Los Angeles, CA 90048


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Post  emalita on Sun Apr 10, 2016 11:34 pm

I'm a little confused by why you are so upset with this video. I watched it and felt that it was an open, honest, and sympathetic discussion.

The male anchor openly said that he was using made up numbers when he was referring to the percentage of men who HE believed would be turned off by the idea of never having penetrative sex again. Although it is horrible to think that this is reality, I do agree that the majority of men wouldn't choose to be in that situation. HOWEVER, there are great men out there that would find other forms of intimacy fulfilling. For women in our situation, we will have to work harder to find these men and to be creative intimately.

I found nothing offensive about the video. I feel the female anchor did the best job she could pointing out that the person they were discussing COULD be intimate in other ways and that she did find a caring man in the end.

Personally, I'm thrilled it was talked about at all. If we want this condition to get more recognition, we have to be open to all forms of discussions on the topic, and I felt this was very appropriate for the first video I've seen where it isn't being discussed by medical professionals.


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Post  Qu_789 on Sun May 01, 2016 11:54 am

As a long-term sufferer of vulvodynia and vaginismus, having been in a relationship as well as now being a single person living with this, I had mixed feelings about this show.

I feel it's important that growth in awareness is happening. I really felt alone and unable to cope with my diagnosis so if more light can be put onto vulvodynia then hoorah! New sufferers will have more understanding and as a publicly recognised condition hopefully it will gain more attention and research.

I felt the presenters discussed their initial reactions with limited information in an honest way.
But it really was a very narrow view and there are much better and more informative and well balanced ways to enlighten society of this condition.

This was not so helpful to instill hope in current sufferers... But at least when you visit the doctor, they might actually have heard of vulvodynia now!!


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