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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


WATCH THIS

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WATCH THIS

Post  sadone on Thu Jan 21, 2016 10:45 pm

PLEASE PLEASE WATCH THIS AND FLOOD the video producers with comments. I have already reported this video to the NVA. We need to stand up for ourselves.

I don't know where else to post this.

But please please watch and write back to them.

https://www.youtube.com/watch?v=e9EL0G58OP8

http://www.tytnetwork.com/contact/

Media and Press Contact for TYT network.

Peter Axtman / Danielle Fuerth
press@tytnetwork.com

Contact the press coordinators, snail mail, and comment on the website.

If we don't stand up for ourselves, who will? We have power in our numbers.

I already have written to them and contacted the NVA.

Talking points: vulvodynia is not a rare condition. it affects 18 percent of women. the male anchor on the program's comments are despicable and cruel. Where he gets the percentage 99 percent of men will not date a woman with V? We all know that is false.

PLEASE TAKE ACTION. I will continue to post and update.

sadone

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upset

Post  sadone on Wed Jan 27, 2016 10:18 pm

I am very upset that no one is replying to this message. When I searched for dating if you can't have sex, the above video was the only thing that came up.

This video would throw any girl into a deep depression. We must work to get it removed.

We must do something. Write to the NVA. www.NVA.org

Write to to The Young Turks network.

Contact
Technical and Member Support

TYTNetwork Support Desk
support@tytnetwork.com



Legal Inquiries

legal@tytnetwork.com





Media and Press Contact:

Peter Axtman / Danielle Fuerth
press@tytnetwork.com



Regular Mail and Packages

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sadone

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Re: WATCH THIS

Post  emalita on Sun Apr 10, 2016 11:34 pm

I'm a little confused by why you are so upset with this video. I watched it and felt that it was an open, honest, and sympathetic discussion.

The male anchor openly said that he was using made up numbers when he was referring to the percentage of men who HE believed would be turned off by the idea of never having penetrative sex again. Although it is horrible to think that this is reality, I do agree that the majority of men wouldn't choose to be in that situation. HOWEVER, there are great men out there that would find other forms of intimacy fulfilling. For women in our situation, we will have to work harder to find these men and to be creative intimately.

I found nothing offensive about the video. I feel the female anchor did the best job she could pointing out that the person they were discussing COULD be intimate in other ways and that she did find a caring man in the end.

Personally, I'm thrilled it was talked about at all. If we want this condition to get more recognition, we have to be open to all forms of discussions on the topic, and I felt this was very appropriate for the first video I've seen where it isn't being discussed by medical professionals.

emalita

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Re: WATCH THIS

Post  Qu_789 on Sun May 01, 2016 11:54 am

As a long-term sufferer of vulvodynia and vaginismus, having been in a relationship as well as now being a single person living with this, I had mixed feelings about this show.

I feel it's important that growth in awareness is happening. I really felt alone and unable to cope with my diagnosis so if more light can be put onto vulvodynia then hoorah! New sufferers will have more understanding and as a publicly recognised condition hopefully it will gain more attention and research.

I felt the presenters discussed their initial reactions with limited information in an honest way.
But it really was a very narrow view and there are much better and more informative and well balanced ways to enlighten society of this condition.

This was not so helpful to instill hope in current sufferers... But at least when you visit the doctor, they might actually have heard of vulvodynia now!!


Qu_789

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Re: WATCH THIS

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