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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


This is fucked up.

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This is fucked up.

Post  noni on Thu Jan 20, 2011 2:26 am

Was told today by a very matter of fact receptionist that I will most likely see the vulvar specialist in about 6 mos. Great. When I asked her for any other resources, she replied with an abrupt and very firm NO.

I think I am living a real life nightmare. This cant be real.

Maybe if she felt my pain for like 30 seconds she would have more compassion. Today was especially bad.

Im barely hanging on by a thread at the moment. Not good.

Please help me sweet jesus.

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Re: This is fucked up.

Post  Mouse on Thu Jan 20, 2011 9:52 am

The receptionist at my gynys office had a face like a bag of spiders and a personality to match. They employ these dragons as gate keepers so they can provide service in their own sweet time.

Six months is bullshit. Is there somewhere else? Could your GP or specialist have any influence? Throw the ball back into their lap.

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Re: This is fucked up.

Post  Sebby (Admin) on Thu Jan 20, 2011 8:47 pm


I would bloody complain to the PCT, you may as well. 6 months is not acceptable for someone suffering a chronic pain condition. I also recommend contacting your local MP as I know others who have done this and have got results

Oh and Mouse this line made me laugh out loud!

"The receptionist at my gynys office had a face like a bag of spiders" Laughing
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Re: This is fucked up.

Post  Mouse on Thu Jan 20, 2011 9:58 pm

I know I love that saying!

I used to say a face like a dropped pie... or the old slapped ass but there's something about a bag of spiders! Actually I wish I had slapped her... and then dropped a hot pie.... and then released a bag of spiders. Yeah that little fantasy gives me a lot of pleasure!

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Re: This is fucked up.

Post  noni on Fri Jan 21, 2011 12:01 am

i am from canada and here this kind of shit is pretty standard i have been told, at any rate i think i need to take this into my own hands....im looking into homeopthic treatments please give me advice on this route


much love
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Re: This is fucked up.

Post  Mouse on Fri Jan 21, 2011 4:49 am

Hi Noni, are you able to find a womens health specialist? I'm seeing one in a few months. They take a more holistic approach so working on the mind/body connection, diet, exercise and all that shitzer. It's worth a shot. I'm going to look at my hormone levels as well.

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Re: This is fucked up.

Post  noni on Fri Jan 21, 2011 4:50 pm

Thanks mouse,

Yeah at the moment I am seriously considering the holistic approach, as I was never really healthy before all this started. I think my whole system is out of whack and thus I am more susceptible to theese sorts of problems.

Its so important to really consider what we put on and into our bodies. I am just realizing that.

Thanks again and be well.
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Re: This is fucked up.

Post  naomi on Sun Jan 23, 2011 9:08 pm

argghhhhhhhh they make me so effing mad!!! I always take my mum along if i can...she used to be a doctors receptionist (a nice one mind Smile and she puts them in their place.

youve really got to stand ur ground havent u....its like you are gracing them with ur presence because u are bored with nothing better to do other than waste their time.

bunch of penis faces x
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Re: This is fucked up.

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