Log in

I forgot my password

Latest topics
New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


This is fucked up.

View previous topic View next topic Go down

This is fucked up.

Post  noni on Thu Jan 20, 2011 2:26 am

Was told today by a very matter of fact receptionist that I will most likely see the vulvar specialist in about 6 mos. Great. When I asked her for any other resources, she replied with an abrupt and very firm NO.

I think I am living a real life nightmare. This cant be real.

Maybe if she felt my pain for like 30 seconds she would have more compassion. Today was especially bad.

Im barely hanging on by a thread at the moment. Not good.

Please help me sweet jesus.

avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: This is fucked up.

Post  Mouse on Thu Jan 20, 2011 9:52 am

The receptionist at my gynys office had a face like a bag of spiders and a personality to match. They employ these dragons as gate keepers so they can provide service in their own sweet time.

Six months is bullshit. Is there somewhere else? Could your GP or specialist have any influence? Throw the ball back into their lap.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: This is fucked up.

Post  Sebby (Admin) on Thu Jan 20, 2011 8:47 pm


I would bloody complain to the PCT, you may as well. 6 months is not acceptable for someone suffering a chronic pain condition. I also recommend contacting your local MP as I know others who have done this and have got results

Oh and Mouse this line made me laugh out loud!

"The receptionist at my gynys office had a face like a bag of spiders" Laughing
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: This is fucked up.

Post  Mouse on Thu Jan 20, 2011 9:58 pm

I know I love that saying!

I used to say a face like a dropped pie... or the old slapped ass but there's something about a bag of spiders! Actually I wish I had slapped her... and then dropped a hot pie.... and then released a bag of spiders. Yeah that little fantasy gives me a lot of pleasure!

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: This is fucked up.

Post  noni on Fri Jan 21, 2011 12:01 am

i am from canada and here this kind of shit is pretty standard i have been told, at any rate i think i need to take this into my own hands....im looking into homeopthic treatments please give me advice on this route


much love
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: This is fucked up.

Post  Mouse on Fri Jan 21, 2011 4:49 am

Hi Noni, are you able to find a womens health specialist? I'm seeing one in a few months. They take a more holistic approach so working on the mind/body connection, diet, exercise and all that shitzer. It's worth a shot. I'm going to look at my hormone levels as well.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: This is fucked up.

Post  noni on Fri Jan 21, 2011 4:50 pm

Thanks mouse,

Yeah at the moment I am seriously considering the holistic approach, as I was never really healthy before all this started. I think my whole system is out of whack and thus I am more susceptible to theese sorts of problems.

Its so important to really consider what we put on and into our bodies. I am just realizing that.

Thanks again and be well.
avatar
noni

Posts : 242
Join date : 2011-01-10
Age : 30
Location : Ontario

View user profile

Back to top Go down

Re: This is fucked up.

Post  naomi on Sun Jan 23, 2011 9:08 pm

argghhhhhhhh they make me so effing mad!!! I always take my mum along if i can...she used to be a doctors receptionist (a nice one mind Smile and she puts them in their place.

youve really got to stand ur ground havent u....its like you are gracing them with ur presence because u are bored with nothing better to do other than waste their time.

bunch of penis faces x
avatar
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

View user profile

Back to top Go down

Re: This is fucked up.

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum