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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


This is fucked up.

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This is fucked up.

Post  noni on Thu Jan 20, 2011 2:26 am

Was told today by a very matter of fact receptionist that I will most likely see the vulvar specialist in about 6 mos. Great. When I asked her for any other resources, she replied with an abrupt and very firm NO.

I think I am living a real life nightmare. This cant be real.

Maybe if she felt my pain for like 30 seconds she would have more compassion. Today was especially bad.

Im barely hanging on by a thread at the moment. Not good.

Please help me sweet jesus.

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Re: This is fucked up.

Post  Mouse on Thu Jan 20, 2011 9:52 am

The receptionist at my gynys office had a face like a bag of spiders and a personality to match. They employ these dragons as gate keepers so they can provide service in their own sweet time.

Six months is bullshit. Is there somewhere else? Could your GP or specialist have any influence? Throw the ball back into their lap.

Mouse

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Re: This is fucked up.

Post  Sebby (Admin) on Thu Jan 20, 2011 8:47 pm


I would bloody complain to the PCT, you may as well. 6 months is not acceptable for someone suffering a chronic pain condition. I also recommend contacting your local MP as I know others who have done this and have got results

Oh and Mouse this line made me laugh out loud!

"The receptionist at my gynys office had a face like a bag of spiders" Laughing
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Re: This is fucked up.

Post  Mouse on Thu Jan 20, 2011 9:58 pm

I know I love that saying!

I used to say a face like a dropped pie... or the old slapped ass but there's something about a bag of spiders! Actually I wish I had slapped her... and then dropped a hot pie.... and then released a bag of spiders. Yeah that little fantasy gives me a lot of pleasure!

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Re: This is fucked up.

Post  noni on Fri Jan 21, 2011 12:01 am

i am from canada and here this kind of shit is pretty standard i have been told, at any rate i think i need to take this into my own hands....im looking into homeopthic treatments please give me advice on this route


much love
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Re: This is fucked up.

Post  Mouse on Fri Jan 21, 2011 4:49 am

Hi Noni, are you able to find a womens health specialist? I'm seeing one in a few months. They take a more holistic approach so working on the mind/body connection, diet, exercise and all that shitzer. It's worth a shot. I'm going to look at my hormone levels as well.

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Re: This is fucked up.

Post  noni on Fri Jan 21, 2011 4:50 pm

Thanks mouse,

Yeah at the moment I am seriously considering the holistic approach, as I was never really healthy before all this started. I think my whole system is out of whack and thus I am more susceptible to theese sorts of problems.

Its so important to really consider what we put on and into our bodies. I am just realizing that.

Thanks again and be well.
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Re: This is fucked up.

Post  naomi on Sun Jan 23, 2011 9:08 pm

argghhhhhhhh they make me so effing mad!!! I always take my mum along if i can...she used to be a doctors receptionist (a nice one mind Smile and she puts them in their place.

youve really got to stand ur ground havent u....its like you are gracing them with ur presence because u are bored with nothing better to do other than waste their time.

bunch of penis faces x
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Re: This is fucked up.

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