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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Sex in Society
+2
noni
[Sara]
6 posters
Page 1 of 1
Sex in Society
How does it make you ladies feel when the media is so focused on sex? Seems you can't watch a movie anymore without nudity and sex and it makes me really uncomfortable. I don't really find it offensive, it just makes me feel weird if my husband sees it because I wonder where his mind goes. It also just makes me downright depressed about my condition and the fact that my chances of ever having a normal sex life is very slim. I have society telling me that men want sex and think about it all the time, and penetrative sex for that matter. It's thrown around so casually...and makes me feel more "broken" than I already am. I know my hubby is by my side and supportive 100%, but I feel crazy sometimes because my mind wanders where it shouldn't and worries about things that probably don't matter.
Sigh. Stupid vaginas not working properly.
Sigh. Stupid vaginas not working properly.
[Sara]- Posts : 26
Join date : 2011-01-01
Re: Sex in Society
The world is fucked up.
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: Sex in Society
lol noni..I like that, straight to the point!
I to find it hard when people talk about sex and I dont buy womens magazines anymore as all they bloody talk about is sex and shoes! the shoes I can handle lol
It does make me feel depressed and the thought that I haven't much chance of a regular sex life at the moment really worries me. I do try to stay positive and say that at some point some treatment is gonna work.
Its hard though as often the thought that im 30 and single and want a boyfriend and a baby one day scares and upsets me so much.
Those who do not know about my condition have started to ask about baby's etc since i turned 30...only a few days ago! and I dont know what to say! I dont want everyone knowing about the vulvodynia so I just keep up this pretence that im not maternal I can see myself at some point exploding with "well maybe I can't have a baby!' I do think people should think before opening their mouth as many women have various gyne conditions and fertility issues so why dont they think of that!
I am just praying some treatment works well enough for me to be able to have intercourse regularly enough..dont have to be everyday, dont have to be several times a week, even just once a week or a few times a month would do me!
Re: Sex in Society
Hey Sarah,
You made me smile. People are just interested in your life - fuck them the nosey bastards! My mother-in-law told me on the phone last night that she can't wait to hear how I get on at my physio today ....ARE YOU SHITTING ME??? I hate to think what my husband has told her but I do know it gets me out of visiting her and that has to be a bonus
I think the answer to the baby question is a clear and to the point "I have a chronic pain condition in my pelvis ... (and if you are brave enough) that prevents me from having sex" if they come back for more after that - then a punch in the face should cover it.
I'm picking that when your hoo-ha is fixed it will be sex every day for a while.
V.
You made me smile. People are just interested in your life - fuck them the nosey bastards! My mother-in-law told me on the phone last night that she can't wait to hear how I get on at my physio today ....ARE YOU SHITTING ME??? I hate to think what my husband has told her but I do know it gets me out of visiting her and that has to be a bonus
I think the answer to the baby question is a clear and to the point "I have a chronic pain condition in my pelvis ... (and if you are brave enough) that prevents me from having sex" if they come back for more after that - then a punch in the face should cover it.
I'm picking that when your hoo-ha is fixed it will be sex every day for a while.
V.
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Sex in Society
LOL a punch in the face..good option! Yeah I often just call what I have chronic pelvic pain..I think I will say it if I do get any stupid comments..
I think the whole fear is I don't want people to pity me I guess..everytime they look at me thinking.. 'oh im glad im not her' and it seems to admit finding sex difficult is like (in this society) admitting im an alien lol. Makes me feel defective and not only not a proper women but not a proper human being.. I know many girls with this feel the same way its just a shame we have to beat ourselves up on top of having a chronic pain condition.
If my hoo-ha does get fixed I will feel sorry for any cute men I come across, they will get harrassed good and proper! lol
Re: Sex in Society
Hahahaaa a plural even!!! And a punch in the face fixes most things even if it is imaginery.
People are too busy/lazy to be thinking "poor you". A little gem I came across years ago is what other people think of you is none of your business - hmmm I think that was a self awareness class. Be kind to yourself love and don't be thinking about what other people are thinking about - it's exhausting!
People are too busy/lazy to be thinking "poor you". A little gem I came across years ago is what other people think of you is none of your business - hmmm I think that was a self awareness class. Be kind to yourself love and don't be thinking about what other people are thinking about - it's exhausting!
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Sex in Society
yeh I hate the pity thing....unforch I have myself to blame for that as most friends and my family know exactly what is wrong with me...otherwise I get paranoid they think im just a mardy, moody cow!
I only buy the cheapy magazines that have all the weird and wonderful stories... i.e. 'I married my brother without realising'...'the weeklies' they call them in the uk. I cant buy the other mags as they are all sex sex sex.
I love reading and nearly always miss out chunks in books as they get their jiggy on....damn it do pep think about anything else?!!
It does really get me down and I honestly dont know how I keep my head above water. Apart from keeping up with you guys on facebook most days...that seems to perk me up if im feeling real low.
As with the babies thing.... I am so effing scared as to how my life ids going the pan out that the last thing im thinking about is bringing another poor sod into the world!!....scares the life out of me. What Ive been thinking about a lot recently is the idea of adoption. There are so many poor little souls out there who have it so bad, id love to care for a child (ren) as much as i could. I know folk say "ohhh but it wouldnt be ur own flesh and blood" but that really doesnt bother me. It sounds silly to say but if I can look a little fluffy bunny rabbit as much as i do...im pretty sure I could love a child as much
I just want to feel happy again. Truely happy, even if i know i will have to put up with this condition (which the specialists tell me I most probably will). Now thats gona be the hard bit. I cant remember the last time I felt happy/contentment.
I only buy the cheapy magazines that have all the weird and wonderful stories... i.e. 'I married my brother without realising'...'the weeklies' they call them in the uk. I cant buy the other mags as they are all sex sex sex.
I love reading and nearly always miss out chunks in books as they get their jiggy on....damn it do pep think about anything else?!!
It does really get me down and I honestly dont know how I keep my head above water. Apart from keeping up with you guys on facebook most days...that seems to perk me up if im feeling real low.
As with the babies thing.... I am so effing scared as to how my life ids going the pan out that the last thing im thinking about is bringing another poor sod into the world!!....scares the life out of me. What Ive been thinking about a lot recently is the idea of adoption. There are so many poor little souls out there who have it so bad, id love to care for a child (ren) as much as i could. I know folk say "ohhh but it wouldnt be ur own flesh and blood" but that really doesnt bother me. It sounds silly to say but if I can look a little fluffy bunny rabbit as much as i do...im pretty sure I could love a child as much
I just want to feel happy again. Truely happy, even if i know i will have to put up with this condition (which the specialists tell me I most probably will). Now thats gona be the hard bit. I cant remember the last time I felt happy/contentment.
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Sex in Society
Naomi im sorry that you cant remember the last time you were happy or content. I guess that would apply to many of us, i dunno.
All I can say is... lifes a bitch, indeed.
All I can say is... lifes a bitch, indeed.
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: Sex in Society
I can so relate to that Naomi..I really can't remember a day over the last couple of years that I have felt content in life.
As for adoption..I dont think anyone would legally sign a child over to me! Maybe they would loan me one for the weekend? lol Think my mental health background would go way against me. I mean I know it was a good few years ago now but in my youth I was self harming and was admitted to hospital :/ Depression was out of control at the time.
Im quite glad at least that time is behind me but it never stops me thiking about possible relapse..that has to be my greatest fear
In the meantime, I learn to manage it and live with it. No its not fair we are suffering and cant find our happiness when all we long for is a button to restore mental and physical health.
I will continue to pray for this for all of us..in the meantime we have each other
Re: Sex in Society
def! Its having faith as well...im not religious so am going to a buddist/spirtual churchy place in cheltenham on saturday...its an open day so thought id check it out. Need to calm this difficult and unruly mind of mine!!
we could share a baby between us Sebby! pass the buck when we are feeling rubbish
got that book 'Vulvodynia Heros' in the post today, dont know if its any good but its a bit of bed time ready for me....instead of mills and boon stupid sex stuff.....urghhhhh who'd have sex....dirty filthy stuff! so last year (well 2 years in my case) If u want to read the book after me i'll post it to you...it could do the rounds xx
we could share a baby between us Sebby! pass the buck when we are feeling rubbish
got that book 'Vulvodynia Heros' in the post today, dont know if its any good but its a bit of bed time ready for me....instead of mills and boon stupid sex stuff.....urghhhhh who'd have sex....dirty filthy stuff! so last year (well 2 years in my case) If u want to read the book after me i'll post it to you...it could do the rounds xx
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Sex in Society
Def let me know what the book is like! Oh and that sharing a baby thing sounds like a great idea! lol
Sometimes my faith (christian) is the only thing that keeps me going. I can be a rock bottom but I hang on, sometimes so barely that I think I may die from how im feeling! but I pray and pray and Im lifted out...so I continue to pray...
xx
Re: Sex in Society
Dont worry, we all have angels looking out for us. In my early years I had a spiritual encounter with an other wordly being...really. And in my hard times I reflect on that day, and I think the spirit revealed itself to me for a reason.
We are suffering for a reason....to learn and grow from this. To help eachother. To become stronger and to become closer to the source (god, the creator, whatever u wanna call it).
I`m not trying to be hokey or a bible thumper...but I really believe we are meant to learn from our hardships, and ultimately help eachother out.
Peace out.
We are suffering for a reason....to learn and grow from this. To help eachother. To become stronger and to become closer to the source (god, the creator, whatever u wanna call it).
I`m not trying to be hokey or a bible thumper...but I really believe we are meant to learn from our hardships, and ultimately help eachother out.
Peace out.
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: Sex in Society
Ohhhh Wow Noni tell me more about you're encounter with a spirit? I am REALLY into all of that and have been even before I got this....
I also believe that a positive has to come out of this... I had some sharman work done on me again yesterday as I was really bad and it's all to do with moving the energy and dealing with my demon (which everyone has) and I really need to change my job I am not happy with it - I feel so bored and fed up.
My Mum has been reading 2012 book and it mentions in there about assemblage points:-
http://www.assemblagepointassociation.com/register.html
I have booked myself in with Tom the guy that does it in Devon it costs 110 pounds but will give it a try
I also believe that a positive has to come out of this... I had some sharman work done on me again yesterday as I was really bad and it's all to do with moving the energy and dealing with my demon (which everyone has) and I really need to change my job I am not happy with it - I feel so bored and fed up.
My Mum has been reading 2012 book and it mentions in there about assemblage points:-
http://www.assemblagepointassociation.com/register.html
I have booked myself in with Tom the guy that does it in Devon it costs 110 pounds but will give it a try
nadja- Posts : 12
Join date : 2011-01-11
Location : Banbury, Oxfordshire
Re: Sex in Society
I do feel that noni that essentially the hardships get us closer to God and ultimatly closer to the plan he or she! has for us.
I have deff become closer over the last year. I pray more and read my bible more even if its just to dip into it to read a few uplifting verses.
Hmmm I do happen to be woundering what my plan is though!
Lets hope ours is to ultimatly find the cure for this conditon!!
Lets keep researching, bugging drs and sharing information. Together we are stronger xx
Re: Sex in Society
Hey Nadja just be weary of psychics and all those other guys, I have been suckered a couple of times....geeeez all that money I could have spent on hamburgers..mmmmm.
They all told me I have a lot of neg energy around me and that I need to be cleansed for an additional five hundred bucks...hahahaha....im not super bright, but not that stupid either.
Sebby, you`re right on track girl, look at this website, you are saving us from going INSANE you are an angel in human form
Take care.
They all told me I have a lot of neg energy around me and that I need to be cleansed for an additional five hundred bucks...hahahaha....im not super bright, but not that stupid either.
Sebby, you`re right on track girl, look at this website, you are saving us from going INSANE you are an angel in human form
Take care.
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: Sex in Society
Thank you noni..im so touched
I couldnt do it without all the wonderful input from you guys.
That you have chosen to trust and share on this forum is so special to me
Godbless you all xx
Re: Sex in Society
Noni did none of it work for you then?
You didn't mention about you're spiritual experience please do tell?
Also question do any ladies experience pains around the groin area front and back that in turn effects the legs as I have pain all around there too currently its not good
You didn't mention about you're spiritual experience please do tell?
Also question do any ladies experience pains around the groin area front and back that in turn effects the legs as I have pain all around there too currently its not good
nadja- Posts : 12
Join date : 2011-01-11
Location : Banbury, Oxfordshire
Re: Sex in Society
I got terrible muscle pain in my right leg a week ago and was even limping..I still dont know how this happened!
Then after that goes I now have terrible muscle pain all over my back..but funny enough mainly on my right side!
I think its the way I sit as having a painful vulva makes you sit funny :/
I also think as well as my pelvic floor my whole back and pelvis area is tight and goes into spasm, I really do need the physiotherapist!
Re: Sex in Society
Yeah, in terms of the spiritual thing:
I saw an appirition when I was 13, right around my most rebelious time... drugs, skipping school...I was not high at the time though rest assured. But it had a profound impact on me, I turned my life around after that, as I recall. It was kinda a while ago but, yeah, gives me strength.
As for the psychics, they just prey on people. Really fucked up, but that has been my experience. I need to manage my money better, really, haha.
Nadja, I also get strange rectal sensations...embarassing....yeah stinging and burning...I dunno, it sucks.
I just need to mellow out, I have been researching homeopathic methods for this monster of a condition or whatever you wanna call it...I will be trying sea buckthorn oil...for my inflamed bits, shall I say.
But shit I cant stay away from junk food. I need to taper off with binging (is taht how you spell it?) at midnight to deal with stress.
I saw an appirition when I was 13, right around my most rebelious time... drugs, skipping school...I was not high at the time though rest assured. But it had a profound impact on me, I turned my life around after that, as I recall. It was kinda a while ago but, yeah, gives me strength.
As for the psychics, they just prey on people. Really fucked up, but that has been my experience. I need to manage my money better, really, haha.
Nadja, I also get strange rectal sensations...embarassing....yeah stinging and burning...I dunno, it sucks.
I just need to mellow out, I have been researching homeopathic methods for this monster of a condition or whatever you wanna call it...I will be trying sea buckthorn oil...for my inflamed bits, shall I say.
But shit I cant stay away from junk food. I need to taper off with binging (is taht how you spell it?) at midnight to deal with stress.
noni- Posts : 242
Join date : 2011-01-10
Age : 36
Location : Ontario
Re: Sex in Society
I totally binge on milk, chocolate and bread...all the bad 'yeast' things!!
Im gonna try to change that asap..dunno what Im gonna eat tho!!
Re: Sex in Society
Well ladies I went and had my assemblage point recentred on Saturday in Devon and it was good I feel a lot better from it and not sooooo down it was out of place so they used the coloured lights and gemstones on me which was good. You should try it google Tom Blaen
nadja- Posts : 12
Join date : 2011-01-11
Location : Banbury, Oxfordshire
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer