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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Did your doctor tell you that the birth control pill caused it?

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Did your doctor tell you that the birth control pill caused it?

Post  orangelight on Sat Apr 23, 2016 12:29 am

Hey Everyone,

I started having pain after taking yaz birth control pill for 5 months, that was 6 years ago. My doctor said Yaz was one of the worst offenders, and that the 'low estrogen' pills like it cause the most vestibulodynia. Apparently the estrogen in bcp is from horse urine and highly potent, and it shuts down your body's production of testosterone (by increasing sex hormone binding globulin which traps all your testosterone).

Has anyone's doctor mentioned testosterone? So far I have seen three doctors that say the burning pain on the outside of the hymen and behind the inner labia (vestibule) is caused by low testosterone. Why? Because this area is made of the same tissue in fetuses that becomes the penile urethra in men and is testosterone dependent tissue. I definitely have low testosterone when tested. Shocked

The other three doctors say that this is not the case, and that the entire vagina including the vestibule is estrogen dependent tissue, and I should use estrogen suppositories so support this. I definitely don't have low estrogen, if anything, I have too much showing up in my blood, urine, saliva. Exclamation

I am wondering if anyone else has met this contradiction before? Anyone tie your vestibulodynia or overall vulvodynia to hormones or birth control pills? Can anyone point me to resources that talk about the effect of estrogen or testosterone on the vaginal tissues? confused


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Re: Did your doctor tell you that the birth control pill caused it?

Post  emalita on Sat Apr 23, 2016 3:11 pm

Here's a good article I had read in the past about the pill and its hormone destroying connection (don't worry, it's not written by Dr. Oz).

http://blog.doctoroz.com/oz-experts/when-taking-the-pill-takes-away-your-sex-life

Most articles say that testosterone is important for sexual desire...not much about its impact on vulvar tissue. However, the above article does reference hormonally mediated vestibulodynia due to low estrogen and testosterone. The below article states the following:

"Replacing testosterone to within the normal female levels (2.0 to 4.0 nmol/L) compared to normal male levels (10.0-50.0 nmol/L) can result in vastly improved levels of energy and sex drive. Testosterone replacement on its own does not always work if there is inadequate blood supply to the pelvic organs and this is mostly oestrogen related. Therefore, it is as important that the vulva and vagina are “well oestrogenised” before starting testosterone replacement therapy."

http://www.thesurreyparkclinic.co.uk/sexual-problems.php

So, unfortunately I guess you have to pick what you believe to be true and go with what works for you Smile However, I do agree with going with a bioidentical estrogen medication versus the horse urine ones!

Also, I wanted to mention that my current specialist who specialized in bioidentical hormone replacement therapy at the Mayo Clinic says that it doesn't matter what your estrogen levels are (mine were normal too). He said there is such a wide range of what is "normal", and women with vulvodynia have high estrogen demanding vaginas Shocked And he says that our vaginas are not properly using the nutrients (estrogen) it is getting, or it isn't getting an adequate amount.

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Re: Did your doctor tell you that the birth control pill caused it?

Post  natasha06 on Sat May 21, 2016 1:16 pm

Yes - after years of vulvar burning/pain and reoccurring yeast infections, I finally found a good gyno who believed that it was my Lo Estrin24 birth control that started this all for me. She said that the low estrogen in the brith control can cause your tissue to thin, exposing your nerves (which leads to the intense hypersensitive and pain). The reoccurring yeast infections could have been from this tissue problem as well (if the tissue isn't strong it can't support the good bacteria and right pH to avoid yeast infections) AND could have also lead to my overactive nerves because reoccurring yeast will obviously aggravate your skin. This was all really sad for me because I was super hesitant about going on the pill in the first place and wish I had known this was a potential side effect and could have stopped it early once I started having problems (was on the pill for about 6 months before this all started).

Your vaginal tissue needs estrogen to proliferate and therefore these low estrogen bc pills, while great for reducing cramps, really are dangerous!

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Re: Did your doctor tell you that the birth control pill caused it?

Post  A2015 on Mon Aug 29, 2016 6:44 pm

Hi orangelight,

Thanks for your post. It is very encouraging to read that several doctors you have seen have stated that the tissue of the vestibule is affected by hormonal birth control.

I've battled with so many specialists about the role hormonal birth control can have in causing vestibulodynia in some women. I'm now cured of my localised provoked vestibulodynia, but feel very strongly about what I went through not being heard. Have a read of my previous posts if you like, as they outline my experience with Microgynon causing Vestibulodynia for the 1.5 years I was on it. I believe this is also a relatively 'low dose' pill as you mention your doctor commented, and his view is that of some research from the US I've read up on online. Let me see if I can find some links for you, as I remember trying to understand the links between testosterone/estrogen levels and the vestibule myself!

Every specialist I saw over a period of 2-3 years denied any connection whatsoever between hormonal birth control and vulvodynia. However, several posts on his forum, as well as my own experience, suggest quite the opposite!

Only in my most recent check-up did my specialist tell me some very initial new research in the UK has confirmed there is a link. Let's hope more research is done, it is so very much needed.

For now, I would very much recommend coming off Yaz if you are still on it. I've had vestibulodynia twice now, and the first time I had it was cured by coming off the pill.

A2015

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Re: Did your doctor tell you that the birth control pill caused it?

Post  A2015 on Mon Aug 29, 2016 6:53 pm

Natasha06,

I'm so pleased that you finally found a gyno who has this knowledge.

I, too, suffered for a long time when I was on birth control with symptoms exactly as you describe, reoccuring infections too. All that your gyno says about low estrogen pills causing thinning tissues, exposing nerves, vulnerability to new infections, overactive nerves from those infections, makes complete sense to me, and is exactly as I suspected at the time (against all my doctor's opinions!). I finally took myself off the pill because I believed this was the case, and the nerves calmed completely down to normal, I couldn't believe how the tissues no longer felt so sore & fragile anymore. It is encouraging to see how the body can rebuild itself back to normal.

Like you say, I wish I had known this was a real potential side effect of the contraceptive pill. I discuss this with other women now and really feel we need to spread this to the medical profession as much as possible.

Anyone on this forum on the pill who is suffering with these symptoms, really try coming off it as your first treatment!

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Re: Did your doctor tell you that the birth control pill caused it?

Post  lindsey_taylor on Mon Aug 29, 2016 11:36 pm

I have been on birth control for years prior to developing this issue in 2014. Sad All of the doctors I have been to have been adamant that the issue isn't birth control. But these posts are making me feel otherwise. I have been taking Sprintec. Before that I was on Ortho Tri Cyclen Lo, and only switched to Sprintec because it is the cheaper Wal Mart brand. When I lived in England, I was put back on Ortho Tri Cyclen Lo because there was no Sprintec there. And then I was swapped to Microgestin FE because the doctor thought maybe my discharge and pain was caused by the triphasic birth control (Ortho Tri Cyclen Lo). Microgestin only made me irritable and break out, so once I got back here to the US (Georgia), I was placed back on Sprintec. I keep wondering if I should come off it altogether.

I will say I developed this issue at the same time I had a kidney stone and a UTI from the kidney stone, and then I got what I thought was a yeast infection, but the smear I had done that day did not show yeast at all, just white blood cells. I have been treated for infections, both bacterial and yeast, and have tried so many other things and remedies, etc., but have not come off of my birth control. I was recently diagnosed with provoked vulvodynia. I'm supposed to see a neurologist on October 6th to see if this is due to a trapped nerve.

All of this started 6 months after being placed back on Ortho Tri Cyclen Lo.

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Re: Did your doctor tell you that the birth control pill caused it?

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