Log in

I forgot my password

Latest topics
» Had this for 5 years, looking for people who understand
Sun Nov 18, 2018 11:22 pm by srbry

» IMPORTANT FOR UK SUFFERERS
Sun Nov 18, 2018 8:42 pm by srbry

» Found relief after more than 15 years of pain!
Thu Oct 25, 2018 4:29 pm by AlwaysInPain

» Back pain, burning feet and vulvodynia....all related?
Sat Oct 20, 2018 3:50 am by lindsey_taylor

» Anyone have pain with urination?
Thu Oct 18, 2018 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Did your doctor tell you that the birth control pill caused it?

Go down

Did your doctor tell you that the birth control pill caused it?

Post  orangelight on Sat Apr 23, 2016 12:29 am

Hey Everyone,

I started having pain after taking yaz birth control pill for 5 months, that was 6 years ago. My doctor said Yaz was one of the worst offenders, and that the 'low estrogen' pills like it cause the most vestibulodynia. Apparently the estrogen in bcp is from horse urine and highly potent, and it shuts down your body's production of testosterone (by increasing sex hormone binding globulin which traps all your testosterone).

Has anyone's doctor mentioned testosterone? So far I have seen three doctors that say the burning pain on the outside of the hymen and behind the inner labia (vestibule) is caused by low testosterone. Why? Because this area is made of the same tissue in fetuses that becomes the penile urethra in men and is testosterone dependent tissue. I definitely have low testosterone when tested. Shocked

The other three doctors say that this is not the case, and that the entire vagina including the vestibule is estrogen dependent tissue, and I should use estrogen suppositories so support this. I definitely don't have low estrogen, if anything, I have too much showing up in my blood, urine, saliva. Exclamation

I am wondering if anyone else has met this contradiction before? Anyone tie your vestibulodynia or overall vulvodynia to hormones or birth control pills? Can anyone point me to resources that talk about the effect of estrogen or testosterone on the vaginal tissues? confused


orangelight

Posts : 3
Join date : 2016-04-14

View user profile

Back to top Go down

Re: Did your doctor tell you that the birth control pill caused it?

Post  emalita on Sat Apr 23, 2016 3:11 pm

Here's a good article I had read in the past about the pill and its hormone destroying connection (don't worry, it's not written by Dr. Oz).

http://blog.doctoroz.com/oz-experts/when-taking-the-pill-takes-away-your-sex-life

Most articles say that testosterone is important for sexual desire...not much about its impact on vulvar tissue. However, the above article does reference hormonally mediated vestibulodynia due to low estrogen and testosterone. The below article states the following:

"Replacing testosterone to within the normal female levels (2.0 to 4.0 nmol/L) compared to normal male levels (10.0-50.0 nmol/L) can result in vastly improved levels of energy and sex drive. Testosterone replacement on its own does not always work if there is inadequate blood supply to the pelvic organs and this is mostly oestrogen related. Therefore, it is as important that the vulva and vagina are “well oestrogenised” before starting testosterone replacement therapy."

http://www.thesurreyparkclinic.co.uk/sexual-problems.php

So, unfortunately I guess you have to pick what you believe to be true and go with what works for you Smile However, I do agree with going with a bioidentical estrogen medication versus the horse urine ones!

Also, I wanted to mention that my current specialist who specialized in bioidentical hormone replacement therapy at the Mayo Clinic says that it doesn't matter what your estrogen levels are (mine were normal too). He said there is such a wide range of what is "normal", and women with vulvodynia have high estrogen demanding vaginas Shocked And he says that our vaginas are not properly using the nutrients (estrogen) it is getting, or it isn't getting an adequate amount.

emalita

Posts : 245
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: Did your doctor tell you that the birth control pill caused it?

Post  natasha06 on Sat May 21, 2016 1:16 pm

Yes - after years of vulvar burning/pain and reoccurring yeast infections, I finally found a good gyno who believed that it was my Lo Estrin24 birth control that started this all for me. She said that the low estrogen in the brith control can cause your tissue to thin, exposing your nerves (which leads to the intense hypersensitive and pain). The reoccurring yeast infections could have been from this tissue problem as well (if the tissue isn't strong it can't support the good bacteria and right pH to avoid yeast infections) AND could have also lead to my overactive nerves because reoccurring yeast will obviously aggravate your skin. This was all really sad for me because I was super hesitant about going on the pill in the first place and wish I had known this was a potential side effect and could have stopped it early once I started having problems (was on the pill for about 6 months before this all started).

Your vaginal tissue needs estrogen to proliferate and therefore these low estrogen bc pills, while great for reducing cramps, really are dangerous!

natasha06

Posts : 1
Join date : 2016-05-21

View user profile

Back to top Go down

Re: Did your doctor tell you that the birth control pill caused it?

Post  A2015 on Mon Aug 29, 2016 6:44 pm

Hi orangelight,

Thanks for your post. It is very encouraging to read that several doctors you have seen have stated that the tissue of the vestibule is affected by hormonal birth control.

I've battled with so many specialists about the role hormonal birth control can have in causing vestibulodynia in some women. I'm now cured of my localised provoked vestibulodynia, but feel very strongly about what I went through not being heard. Have a read of my previous posts if you like, as they outline my experience with Microgynon causing Vestibulodynia for the 1.5 years I was on it. I believe this is also a relatively 'low dose' pill as you mention your doctor commented, and his view is that of some research from the US I've read up on online. Let me see if I can find some links for you, as I remember trying to understand the links between testosterone/estrogen levels and the vestibule myself!

Every specialist I saw over a period of 2-3 years denied any connection whatsoever between hormonal birth control and vulvodynia. However, several posts on his forum, as well as my own experience, suggest quite the opposite!

Only in my most recent check-up did my specialist tell me some very initial new research in the UK has confirmed there is a link. Let's hope more research is done, it is so very much needed.

For now, I would very much recommend coming off Yaz if you are still on it. I've had vestibulodynia twice now, and the first time I had it was cured by coming off the pill.

A2015

A2015

Posts : 53
Join date : 2015-05-21

View user profile

Back to top Go down

Re: Did your doctor tell you that the birth control pill caused it?

Post  A2015 on Mon Aug 29, 2016 6:53 pm

Natasha06,

I'm so pleased that you finally found a gyno who has this knowledge.

I, too, suffered for a long time when I was on birth control with symptoms exactly as you describe, reoccuring infections too. All that your gyno says about low estrogen pills causing thinning tissues, exposing nerves, vulnerability to new infections, overactive nerves from those infections, makes complete sense to me, and is exactly as I suspected at the time (against all my doctor's opinions!). I finally took myself off the pill because I believed this was the case, and the nerves calmed completely down to normal, I couldn't believe how the tissues no longer felt so sore & fragile anymore. It is encouraging to see how the body can rebuild itself back to normal.

Like you say, I wish I had known this was a real potential side effect of the contraceptive pill. I discuss this with other women now and really feel we need to spread this to the medical profession as much as possible.

Anyone on this forum on the pill who is suffering with these symptoms, really try coming off it as your first treatment!

A2015

Posts : 53
Join date : 2015-05-21

View user profile

Back to top Go down

Re: Did your doctor tell you that the birth control pill caused it?

Post  lindsey_taylor on Mon Aug 29, 2016 11:36 pm

I have been on birth control for years prior to developing this issue in 2014. Sad All of the doctors I have been to have been adamant that the issue isn't birth control. But these posts are making me feel otherwise. I have been taking Sprintec. Before that I was on Ortho Tri Cyclen Lo, and only switched to Sprintec because it is the cheaper Wal Mart brand. When I lived in England, I was put back on Ortho Tri Cyclen Lo because there was no Sprintec there. And then I was swapped to Microgestin FE because the doctor thought maybe my discharge and pain was caused by the triphasic birth control (Ortho Tri Cyclen Lo). Microgestin only made me irritable and break out, so once I got back here to the US (Georgia), I was placed back on Sprintec. I keep wondering if I should come off it altogether.

I will say I developed this issue at the same time I had a kidney stone and a UTI from the kidney stone, and then I got what I thought was a yeast infection, but the smear I had done that day did not show yeast at all, just white blood cells. I have been treated for infections, both bacterial and yeast, and have tried so many other things and remedies, etc., but have not come off of my birth control. I was recently diagnosed with provoked vulvodynia. I'm supposed to see a neurologist on October 6th to see if this is due to a trapped nerve.

All of this started 6 months after being placed back on Ortho Tri Cyclen Lo.

lindsey_taylor

Posts : 58
Join date : 2016-06-06
Age : 33
Location : Georgia, United States

View user profile

Back to top Go down

Re: Did your doctor tell you that the birth control pill caused it?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum