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    » What's next?
    Today at 10:07 am by amyhp

    » HELP!! Topical cream?
    Mon Apr 16, 2018 5:49 pm by Sad

    » Please tell me this can get better
    Sun Apr 15, 2018 11:31 am by amf329

    » Pressure to have sex.
    Sun Apr 15, 2018 2:00 am by Sad

    » Vulvodynia and other neurological diseases?
    Sat Apr 14, 2018 8:00 pm by wuhujen

    » I'M NEW - Do I listen to my gyno who I feel has it wrong?
    Sat Apr 14, 2018 7:57 pm by wuhujen

    » I wanted to share a resource that has made a huge difference for me
    Wed Apr 11, 2018 9:28 pm by amf329

    » Loneliness
    Wed Apr 11, 2018 11:36 am by sophiarp

    » I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
    Fri Apr 06, 2018 4:06 am by Warrior2010

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25


    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 4

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured


    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 3

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 14

    Lidocaine with condoms?

    Wed Mar 21, 2018 10:44 pm by AEM1

    Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
    Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

    Comments: 1

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 23

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0


    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3

    Lexapro 5 mg--

    Go down

    Lexapro 5 mg--

    Post  jackie333 on Sun May 01, 2016 5:44 pm

    My journey has been a long and sometimes frustrating road--
    Over the past 12 years I've seen at least 8 different doctors to try to get to the bottom of the vulvodynia problem which has disrupted my life.
    Everything from Lidocaine to a very costly compounded cream have been tried with only minimally positive results.
    I've spent a lot of money on over the counter products as well-- Neogyn-- a soothing organic cream---baking soda douches--none really gave me permanent relief.
    I know everyone is different and not all tactics will help different people, but what I have found to be useful is
    1. Coconut oil used topically and
    2.sometimes the application of a cold wet tissue.
    I've done a fair amount of reading--and luckily I do have a GYN who is all for my exploration--
    I recently read about low dose anti depressants being of some use, and I asked to be put on one.
    The doctor recommended Lexapro 5 mg.
    It is a medication that helps with depression,. anxiety and even OCD.
    I am taking a very low dose and I have to say that within about 3-4 weeks I did see a lessening of my Vulvodynia symptoms.
    The flares were less frequent and the intensity was not as severe.

    I am hopeful and at this point--where there is hope there is joy!

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