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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


Just a little self-pity...

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Just a little self-pity...

Post  emalita on Mon May 02, 2016 11:35 pm

I feel almost ridiculous writing this since I've felt the best I have in probably 7 or 8 months. My LS pain is barely registrable, and my vestibule pain is far better than expected during this time of the month. And yet I am so frozen with fear and anxiety, my vulva is all I can think about. Constantly worrying about when the next flare up is going to come. Worrying that the diet changes that I think have made a huge difference are nothing more than a coincidence. Is my relief all just a pleasant side effect of the steroid cream? One would think that I would just be happy to have the relief, and although I'm grateful, I'm terrified that these conditions are out of my control. They are going to be the one thing I haven't been able to "cure" with food or lifestyle changes. They will truly be lifelong and only manageable.

I have found relief from mental health struggles by indulging in as many whole foods as I care to eat. I've healed the chronic inflammation that plagued my sinuses for almost a decade by eliminating processed candy. I've given my skin peace from inflamed painful body rashes and hand blisters by avoiding chemical-laden new clothing. But this...this is escaping my grasp of understanding. "Give it more time" I hear you saying. It is true that it took me many years to find the solutions to my other sensitivities, but I just don't know that I have it in me to fight for another decade to figure this one out.

I often wonder what I must have done in a past life to deserve all of the suffering throughout this life. Many people suffer far worse than I do, and I rarely would say they had done anything to deserve it. However, when the constant struggles are in our court, it's hard to not contemplate the spiritual implications.

Who on earth did I wrong, and how the heck do I make amends?

emalita

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Re: Just a little self-pity...

Post  WaahwaahUK on Tue May 03, 2016 5:43 pm

Of course you're anxious, you've been through something physical that will have affected you psychologically. Don't be hard on yourself just because the physical pain is feeling better. Your mind will still be in pain for the months of what it has endured. I know it must be incredibly difficult to focus on the positives, but there are positives. At the moment, your pain is low. None of us deserve this, you don't deserve this. There is no point looking to punish yourself with those thoughts. On good days pain wise, I tortuee myself mentally with anxiety over another potential flare. It will take time to mend the psychological damage. Be kind to yourself x

WaahwaahUK

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Re: Just a little self-pity...

Post  emalita on Tue May 03, 2016 6:46 pm

Thank you so much for your kind words. I have managed to hold back tears for quite a few days, but for some reason your message brought me to tears (a sigh of relief kind of tears). Sometimes all we need to hear is that this isn't our fault, and it is okay to feel these feelings. Just knowing I'm not the only one with these emotions on low pain days makes me feel a little less ungrateful.

Thank you again!

emalita

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Re: Just a little self-pity...

Post  WaahwaahUK on Tue May 03, 2016 7:05 pm

You're very welcome. Wishing you many more good days to come. Sometimes we need a bit of a cry to pick ourselves back up again.

WaahwaahUK

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Re: Just a little self-pity...

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