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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Possible Recurring Tear??

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Possible Recurring Tear??

Post  emalita on Thu Jun 02, 2016 1:44 pm

So far this month my right inner labia/vestibule pain feels like a cut or tear. A few nights ago I think I actually felt the tear occur. It is deep in the fold of my inner labia, possibly my vestibule, and I can't actually see a tear. However, I used to get tears often back when I was still using those darn flushable wipes, and they were hard to see when they weren't buried deep in a fold; so just because I can't see it, I'm not ruling out that it may be there (plus I don't want to go digging so much that I hurt myself further).

Every month, a few days to a week before my period, this tear/pain happens in the same exact spot, and it won't go away until about a week and a half AFTER my period is over.

Has anyone ever had anything like this? Any advice would be great!

emalita

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RE: Possible recurring tear?

Post  Antaea on Fri Jun 03, 2016 11:49 am

Could there be a connection between this tear and your hormones? It appears at the same time in your cycle.... I had tears like paper cuts last autumn, and they healed and did not return after i used local hormone-cream.
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Re: Possible Recurring Tear??

Post  emalita on Fri Jun 03, 2016 3:09 pm

The pain does only seem to flare the week before, during, and after my period. I've been on a bioidentical estrogen suppository for about 2.5 months now (Estradiol 100mcg and Estrone 60mcg), but the only thing I've noticed is that my cycle has changed from averaging 30 days to now being closer to 34-35 (I still haven't gotten my period this month yet, but it's on its way). I'm not sure if the estrogen suppository is causing this, but I am completely fine with having a longer cycle Wink

Prior to feeling like this was a tear, I had mentioned to my doctor that the pain seemed to go away for maybe 2 weeks out of a month, and he said the pain was due to the drop in estrogen before my period. I just find that so hard to wrap my head around because this tear/pain is so deep in my vestibule (deep in the space between my urethra and inner labia). I used to get tears all the time, and they would heal within about 3 days.

*sigh* I just wish I knew what was causing it... Crying or Very sad

emalita

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Re: Possible Recurring Tear??

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