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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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New YES VM

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New YES VM

Post  emalita on Tue Jun 14, 2016 1:41 am

Has anyone tried the new YES VM vaginal moisturizer?

I've tried the YES water based lubricant in the past, but with my skin issues now, it seems to sting/burn too much. Plus, it sounds like they reformulated the water based lubricant, and women are seeming to report more irritation with it, which is sad.

The new YES VM ingredients (see below) don't sound too great, but as long as it doesn't produce that creepy white discharge like RepHresh, I would be willing to give it a go.

Ingredients: Water, flax gum*, aloe vera*, locust bean gum*, guar gum*, sodium chloride, xanthan gum, potassium sorbate, citric acid, phenoxyethanol
*certified organic ingredients

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Re: New YES VM

Post  PainBlogger on Tue Jun 14, 2016 8:01 am

I haven't tried the VM, but I might be able to shed some light on possible reformulation of the lubricant. They changed the packaging a few months ago to a much more sensible tube shape. I haven't noticed any difference in the ingredients or the product itself though.

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Re: New YES VM

Post  emalita on Tue Jun 14, 2016 2:25 pm

Do you find that the water based lubricant actually makes a difference with dryness on the vulva, or do you only use it for sex or internally?

I really need to put something on my skin to help it heal, and all my doctor wants to throw at me are steroid creams, which I'm not interested in.

emalita

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Re: New YES VM

Post  PainBlogger on Tue Jun 14, 2016 3:06 pm

I only really use it for physio exercises with dilators and recently for sex. That means I'm using it virtually every day internally (for the dilator exercises that is!). Some of it obviously ends up on the outside and acts as a moisturising layer but I don't apply it externally. I don't know if I'd have any dryness without it. I suspect probably not as I don't think the root of my problems was ever dermatological. It's difficult to say though.

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Re: New YES VM

Post  lindsey_taylor on Sun Jul 03, 2016 8:14 pm

Oh my. I just ordered this water based lubricant YES, myself. I guess we shall see how it does for me when I get it. I read there is an oil-based one too.

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Re: New YES VM

Post  emalita on Tue Jul 26, 2016 2:04 pm

A few weeks ago I ordered a small tube of the vaginal moisturizer, and I just tried it last night for the first time. Thought I would post my initial thoughts on it  Smile

I didn't notice any crazy irritation from it, but my skin is overly sensitive right now, so the mild burning it caused for maybe a minute after application didn't worry me much (YES WB can do that to me too).

YES VM is thicker and less runny than the water based lubricant, which can be either good or bad. I apply it to almost my entire vulva, and it was nice that I didn't have to worry about it running down my bum when in bed. However, I have been applying YES WB to the top part of my vulva and letting it run down the rest of my skin so I didn't have to do a lot of rubbing or anything else irritating (doesn't take much YES WB to use it this way). You can't do this with YES VM. It just sits there in a gel glob unless you rub it in. If touching my skin didn't set off a flare up for me, I would probably say that I would appreciate the thicker formula, but for what I need right now, it requires too much fiddling to make it go where I need it.

Also, I was hoping that YES VM wouldn't cause dried "flakes" in my hairline like the YES WB, but unfortunately it does. It seems to be less, but I'm sure that's because it is too thick to move everywhere the YES WB can.

Since it hasn't caused any extreme reactions so far, I'd say I'm willing to keep using it Very Happy

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Re: New YES VM

Post  emalita on Mon Aug 01, 2016 5:06 pm

Just an update on the YES VM...

I can't speak to how well it moisturizes compared to YES WB, but I do have a complaint for those who may be wanting to use it on vulvar skin. After having it on for a while, it turns white and almost sticky. I thought I was having horrible discharge, but I've now realized it happens every time I use YES VM.

It makes such a mess that I'm probably not going to keep using it for now. Not sure how it behaves if used vaginally, but I sure hope it doesn't create a white fallout like RepHresh (thought the website said it didn't do that but who knows).

emalita

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Re: New YES VM

Post  meelie on Mon Aug 01, 2016 8:58 pm

sorry, you had such a problem. I have never had that problem. No whiteness. It just dries up and never had a problem with stickyness. I am referred to Yes, water based. I wouldn't use anything else, at least I haven't found anything else that works so well and feels so natural.

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Re: New YES VM

Post  emalita on Mon Aug 01, 2016 10:51 pm

It's the YES VM that's causing the issue, not the YES WB. The only real negative about YES WB is that it can dry in flakes in the hairline.

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Re: New YES VM

Post  meelie on Mon Aug 01, 2016 11:05 pm

Haven't heard of Yes VM, what is that. I haven't had any problems with flaking with the WB.

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Re: New YES VM

Post  emalita on Tue Aug 02, 2016 12:12 am

YES VM is their new vaginal moisturizer.

emalita

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Re: New YES VM

Post  meelie on Tue Aug 02, 2016 2:22 pm

Will have to check it out.

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Re: New YES VM

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