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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


New YES VM

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New YES VM

Post  emalita on Tue Jun 14, 2016 1:41 am

Has anyone tried the new YES VM vaginal moisturizer?

I've tried the YES water based lubricant in the past, but with my skin issues now, it seems to sting/burn too much. Plus, it sounds like they reformulated the water based lubricant, and women are seeming to report more irritation with it, which is sad.

The new YES VM ingredients (see below) don't sound too great, but as long as it doesn't produce that creepy white discharge like RepHresh, I would be willing to give it a go.

Ingredients: Water, flax gum*, aloe vera*, locust bean gum*, guar gum*, sodium chloride, xanthan gum, potassium sorbate, citric acid, phenoxyethanol
*certified organic ingredients

emalita

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Re: New YES VM

Post  PainBlogger on Tue Jun 14, 2016 8:01 am

I haven't tried the VM, but I might be able to shed some light on possible reformulation of the lubricant. They changed the packaging a few months ago to a much more sensible tube shape. I haven't noticed any difference in the ingredients or the product itself though.

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Re: New YES VM

Post  emalita on Tue Jun 14, 2016 2:25 pm

Do you find that the water based lubricant actually makes a difference with dryness on the vulva, or do you only use it for sex or internally?

I really need to put something on my skin to help it heal, and all my doctor wants to throw at me are steroid creams, which I'm not interested in.

emalita

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Re: New YES VM

Post  PainBlogger on Tue Jun 14, 2016 3:06 pm

I only really use it for physio exercises with dilators and recently for sex. That means I'm using it virtually every day internally (for the dilator exercises that is!). Some of it obviously ends up on the outside and acts as a moisturising layer but I don't apply it externally. I don't know if I'd have any dryness without it. I suspect probably not as I don't think the root of my problems was ever dermatological. It's difficult to say though.

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Re: New YES VM

Post  lindsey_taylor on Sun Jul 03, 2016 8:14 pm

Oh my. I just ordered this water based lubricant YES, myself. I guess we shall see how it does for me when I get it. I read there is an oil-based one too.

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Re: New YES VM

Post  emalita on Tue Jul 26, 2016 2:04 pm

A few weeks ago I ordered a small tube of the vaginal moisturizer, and I just tried it last night for the first time. Thought I would post my initial thoughts on it  Smile

I didn't notice any crazy irritation from it, but my skin is overly sensitive right now, so the mild burning it caused for maybe a minute after application didn't worry me much (YES WB can do that to me too).

YES VM is thicker and less runny than the water based lubricant, which can be either good or bad. I apply it to almost my entire vulva, and it was nice that I didn't have to worry about it running down my bum when in bed. However, I have been applying YES WB to the top part of my vulva and letting it run down the rest of my skin so I didn't have to do a lot of rubbing or anything else irritating (doesn't take much YES WB to use it this way). You can't do this with YES VM. It just sits there in a gel glob unless you rub it in. If touching my skin didn't set off a flare up for me, I would probably say that I would appreciate the thicker formula, but for what I need right now, it requires too much fiddling to make it go where I need it.

Also, I was hoping that YES VM wouldn't cause dried "flakes" in my hairline like the YES WB, but unfortunately it does. It seems to be less, but I'm sure that's because it is too thick to move everywhere the YES WB can.

Since it hasn't caused any extreme reactions so far, I'd say I'm willing to keep using it Very Happy

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Re: New YES VM

Post  emalita on Mon Aug 01, 2016 5:06 pm

Just an update on the YES VM...

I can't speak to how well it moisturizes compared to YES WB, but I do have a complaint for those who may be wanting to use it on vulvar skin. After having it on for a while, it turns white and almost sticky. I thought I was having horrible discharge, but I've now realized it happens every time I use YES VM.

It makes such a mess that I'm probably not going to keep using it for now. Not sure how it behaves if used vaginally, but I sure hope it doesn't create a white fallout like RepHresh (thought the website said it didn't do that but who knows).

emalita

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Re: New YES VM

Post  meelie on Mon Aug 01, 2016 8:58 pm

sorry, you had such a problem. I have never had that problem. No whiteness. It just dries up and never had a problem with stickyness. I am referred to Yes, water based. I wouldn't use anything else, at least I haven't found anything else that works so well and feels so natural.

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Re: New YES VM

Post  emalita on Mon Aug 01, 2016 10:51 pm

It's the YES VM that's causing the issue, not the YES WB. The only real negative about YES WB is that it can dry in flakes in the hairline.

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Re: New YES VM

Post  meelie on Mon Aug 01, 2016 11:05 pm

Haven't heard of Yes VM, what is that. I haven't had any problems with flaking with the WB.

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Re: New YES VM

Post  emalita on Tue Aug 02, 2016 12:12 am

YES VM is their new vaginal moisturizer.

emalita

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Re: New YES VM

Post  meelie on Tue Aug 02, 2016 2:22 pm

Will have to check it out.

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Re: New YES VM

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