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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


New YES VM

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New YES VM

Post  emalita on Tue Jun 14, 2016 1:41 am

Has anyone tried the new YES VM vaginal moisturizer?

I've tried the YES water based lubricant in the past, but with my skin issues now, it seems to sting/burn too much. Plus, it sounds like they reformulated the water based lubricant, and women are seeming to report more irritation with it, which is sad.

The new YES VM ingredients (see below) don't sound too great, but as long as it doesn't produce that creepy white discharge like RepHresh, I would be willing to give it a go.

Ingredients: Water, flax gum*, aloe vera*, locust bean gum*, guar gum*, sodium chloride, xanthan gum, potassium sorbate, citric acid, phenoxyethanol
*certified organic ingredients

emalita

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Re: New YES VM

Post  PainBlogger on Tue Jun 14, 2016 8:01 am

I haven't tried the VM, but I might be able to shed some light on possible reformulation of the lubricant. They changed the packaging a few months ago to a much more sensible tube shape. I haven't noticed any difference in the ingredients or the product itself though.

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Re: New YES VM

Post  emalita on Tue Jun 14, 2016 2:25 pm

Do you find that the water based lubricant actually makes a difference with dryness on the vulva, or do you only use it for sex or internally?

I really need to put something on my skin to help it heal, and all my doctor wants to throw at me are steroid creams, which I'm not interested in.

emalita

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Re: New YES VM

Post  PainBlogger on Tue Jun 14, 2016 3:06 pm

I only really use it for physio exercises with dilators and recently for sex. That means I'm using it virtually every day internally (for the dilator exercises that is!). Some of it obviously ends up on the outside and acts as a moisturising layer but I don't apply it externally. I don't know if I'd have any dryness without it. I suspect probably not as I don't think the root of my problems was ever dermatological. It's difficult to say though.

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Re: New YES VM

Post  lindsey_taylor on Sun Jul 03, 2016 8:14 pm

Oh my. I just ordered this water based lubricant YES, myself. I guess we shall see how it does for me when I get it. I read there is an oil-based one too.

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Re: New YES VM

Post  emalita on Tue Jul 26, 2016 2:04 pm

A few weeks ago I ordered a small tube of the vaginal moisturizer, and I just tried it last night for the first time. Thought I would post my initial thoughts on it  Smile

I didn't notice any crazy irritation from it, but my skin is overly sensitive right now, so the mild burning it caused for maybe a minute after application didn't worry me much (YES WB can do that to me too).

YES VM is thicker and less runny than the water based lubricant, which can be either good or bad. I apply it to almost my entire vulva, and it was nice that I didn't have to worry about it running down my bum when in bed. However, I have been applying YES WB to the top part of my vulva and letting it run down the rest of my skin so I didn't have to do a lot of rubbing or anything else irritating (doesn't take much YES WB to use it this way). You can't do this with YES VM. It just sits there in a gel glob unless you rub it in. If touching my skin didn't set off a flare up for me, I would probably say that I would appreciate the thicker formula, but for what I need right now, it requires too much fiddling to make it go where I need it.

Also, I was hoping that YES VM wouldn't cause dried "flakes" in my hairline like the YES WB, but unfortunately it does. It seems to be less, but I'm sure that's because it is too thick to move everywhere the YES WB can.

Since it hasn't caused any extreme reactions so far, I'd say I'm willing to keep using it Very Happy

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Re: New YES VM

Post  emalita on Mon Aug 01, 2016 5:06 pm

Just an update on the YES VM...

I can't speak to how well it moisturizes compared to YES WB, but I do have a complaint for those who may be wanting to use it on vulvar skin. After having it on for a while, it turns white and almost sticky. I thought I was having horrible discharge, but I've now realized it happens every time I use YES VM.

It makes such a mess that I'm probably not going to keep using it for now. Not sure how it behaves if used vaginally, but I sure hope it doesn't create a white fallout like RepHresh (thought the website said it didn't do that but who knows).

emalita

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Re: New YES VM

Post  meelie on Mon Aug 01, 2016 8:58 pm

sorry, you had such a problem. I have never had that problem. No whiteness. It just dries up and never had a problem with stickyness. I am referred to Yes, water based. I wouldn't use anything else, at least I haven't found anything else that works so well and feels so natural.

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Re: New YES VM

Post  emalita on Mon Aug 01, 2016 10:51 pm

It's the YES VM that's causing the issue, not the YES WB. The only real negative about YES WB is that it can dry in flakes in the hairline.

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Re: New YES VM

Post  meelie on Mon Aug 01, 2016 11:05 pm

Haven't heard of Yes VM, what is that. I haven't had any problems with flaking with the WB.

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Re: New YES VM

Post  emalita on Tue Aug 02, 2016 12:12 am

YES VM is their new vaginal moisturizer.

emalita

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Re: New YES VM

Post  meelie on Tue Aug 02, 2016 2:22 pm

Will have to check it out.

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Re: New YES VM

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