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» 7 months since the diagnosis
Cured of Vulvodynia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Cured of Vulvodynia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Cured of Vulvodynia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Cured of Vulvodynia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Cured of Vulvodynia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Cured of Vulvodynia EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Cured of Vulvodynia EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Cured of Vulvodynia EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Cured of Vulvodynia EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Cured of Vulvodynia

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Cured of Vulvodynia Empty Cured of Vulvodynia

Post  angelique2016 on Wed Aug 17, 2016 1:39 am

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as it has the same ingredients, but the ointment protects the skin more when you wee, rather the cream wont stay on as long, but if used just before bed it will mean you will sleep and not have to pee) used sparingly every night only before going to bed, and not to wash to much off in the shower in the morning. (Must not use ointment in the morning, as it will cause more pain due to friction) I did this for about 3 months, took the Nortriptyline at night before bed and used the ointment at night before bed. This worked, why, because the Nortriptyline, is for pain if taken in low level doses (highly levels are for depression), and makes the brain stop thinking about the pain, as it has now become persistent pain, and the ointment, soothes the skin and it has properties in it to help heal the skin. I have been cured for many years now. Anyway I stopped posting on here as I was getting abused by people that were not able to get a hold of the medications in other parts of the world. So if anyone is interested in this information, and if you can get these medications, then it will cure you, you will need to do your pelvic floor exercises after you are cured to help strengthen the muscles again, but I hope that this information can help some people out there, as I know how extremely excruciating this problem is, it bought me to tears, and no sleep and could hardly sit, wanted to go to the hospital so many times, I nearly went crazy with the pain, and of course no intercourse what so ever, could barely even wee without pain, had to wear loose clothes, not tight jeans what so ever. I tired everything, so many creams, ointments, lotions, you name it, nothing worked. It was originally caused by a harsh medicated body wash. Just use sorbolene or something like that on your body, and dont wash with harsh soaps or body washes. Just mostly water is fine, and dont sit in hot baths. Tried to have intercourse, which made it worse as the skin was so delicate now, it just made the skin split with masses of microscopic splits, which was diagnosed by the oncologist/gyno who examined me with a high tech microscope thingy! LOL So it took longer to heal. The skin doesn't heal down there because it is moist all the time and because of the urine and the friction of movement and rubbing from clothing, this is why the ointment works, and only used at night when you are resting, not moving around. This is why vulvodynia just keeps going on and on and on forever with no relief.

So I wish everyone all the best, please dont write back nasty things to me, simply because the medication might not be available in your country, perhaps look for medication that are of a similar nature that will help you, or go onto ebay and buy the cream. It takes time to heal, 3-6 months but you will get there, just be patient. I feel for everyone that posts on here as I know how painful this problem is, and I know how desperate the situation gets, and how it affects every aspect of your life, This worked well for me, and it might not work for everyone, but at least give it a go!

angelique2016

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Cured of Vulvodynia Empty Re: Cured of Vulvodynia

Post  lindsey_taylor on Sun Aug 21, 2016 8:02 pm

It is so awful that people were writing nasty things to you! I, for one, am thankful to know that someone has been rid of this awful problem and I am very grateful to have read your story. Thank you for sharing with us! Smile It helps us with ideas of treatment options.

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Cured of Vulvodynia Empty Re: Cured of Vulvodynia

Post  Sarah001 on Sun Aug 21, 2016 8:24 pm

I recall way back when you used to post and mentioned Advantan Fatty Ointment, it was purely the name of the ointment that reminded me!! I don't remember anyone being nasty about it but I do remember looking for it myself in the UK and not being able to buy it here, I've just had another look and still can't find any here, however... it seems to really just be a hydrocortisone ointment as opposed to a cream and if anyone in the UK is interested in trying an ointment version Boots do one called Derma Care and it's only about £3.60 a tube, I use it if I'm using steroid ointments for anything and it's good. I can't comment on V being cured by it because it depends on the cause of the problem but if anyone in the UK fancies ointment as opposed to cream pop to Boots.

Angelique2016 very pleased to hear you're still doing well. Very Happy
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Cured of Vulvodynia Empty Re: Cured of Vulvodynia

Post  Ldc on Mon Aug 22, 2016 4:15 pm

Angelique2016, I would like to ask you what were your simptoms like. It makes me feel hopeful and happy reading this kind of successful stories, but before giving if a try I would like to be sure if your Problem was similar to mine. Anyway, glad to hear you are still doing great. I would consider this treatments in a while if mine doesn't work (my doctor is trying other approaches right now).

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Post  sgw11 on Tue Aug 23, 2016 10:36 am

Hey,

I'm just curious, I'm from Melbourne too and also see a female dermatologist. I'm about 95% cured too after having botox injections and peudendal nerve blocks. I'm currently on amitriptyline orally and in cream form too, but I'm decreasing the meds. What was her name? I see Dr Tanja Bohl. Would highly recommend her Smile

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Cured of Vulvodynia Empty 95% cured

Post  CarolRD on Thu Sep 08, 2016 10:41 pm

Did u have vulva pain, did you have a biopsy? Did the cream help?

CarolRD

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Post  Suzie on Wed Sep 21, 2016 3:33 am

Hi does anyone experience yeast infection symptoms with Vulvonydia, mainly a week or so after your cycle?? Please share any remedies, supplements or products that you use..
Thank you

Suzie

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Post  tinkerbelle2 on Fri Dec 09, 2016 3:09 pm

Sarah001 wrote:I recall way back when you used to post and mentioned Advantan Fatty Ointment, it was purely the name of the ointment that reminded me!!  I don't remember anyone being nasty about it but I do remember looking for it myself in the UK and not being able to buy it here, I've just had another look and still can't find any here, however... it seems to really just be a hydrocortisone ointment as opposed to a cream and if anyone in the UK is interested in trying an ointment version Boots do one called Derma Care and it's only about £3.60 a tube, I use it if I'm using steroid ointments for anything and it's good.   I can't comment on V being cured by it because it depends on the cause of the problem but if anyone in the UK fancies ointment as opposed to cream pop to Boots.

Angelique2016 very pleased to hear you're still doing well. Very Happy


Sarah, you're back! You were gone for so long. I hope you are doing OK! X
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Post  Sarah001 on Fri Dec 09, 2016 9:58 pm

Hey Tinkerbelle Very Happy nice to see some familiar faces here even if it's not for the best of reasons.
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Cured of Vulvodynia Empty Cured 90% with Eumuaide first aide ointment

Post  Silvergirl on Sat Mar 18, 2017 4:15 am

Ladies. I'm going on my 10th using this ointment 3x a day. It's so nice not to continuously think about the pain. It's still there but better every day. Well worth the $48. First few days I did get relief but it's better each stay. Stick with it.

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Cured of Vulvodynia Empty Re: Cured of Vulvodynia

Post  tinkerbelle2 on Thu Sep 14, 2017 6:09 pm

Sarah001 wrote:Hey Tinkerbelle Very Happy  nice to see some familiar faces here even if it's not for the best of reasons.

Yes, I agree! Very Happy
Anyway sorry OP, so glad you found a cure and are so much better! Always inspiring to read. I love you
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