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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Cured of Vulvodynia

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Cured of Vulvodynia

Post  angelique2016 on Wed Aug 17, 2016 1:39 am

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as it has the same ingredients, but the ointment protects the skin more when you wee, rather the cream wont stay on as long, but if used just before bed it will mean you will sleep and not have to pee) used sparingly every night only before going to bed, and not to wash to much off in the shower in the morning. (Must not use ointment in the morning, as it will cause more pain due to friction) I did this for about 3 months, took the Nortriptyline at night before bed and used the ointment at night before bed. This worked, why, because the Nortriptyline, is for pain if taken in low level doses (highly levels are for depression), and makes the brain stop thinking about the pain, as it has now become persistent pain, and the ointment, soothes the skin and it has properties in it to help heal the skin. I have been cured for many years now. Anyway I stopped posting on here as I was getting abused by people that were not able to get a hold of the medications in other parts of the world. So if anyone is interested in this information, and if you can get these medications, then it will cure you, you will need to do your pelvic floor exercises after you are cured to help strengthen the muscles again, but I hope that this information can help some people out there, as I know how extremely excruciating this problem is, it bought me to tears, and no sleep and could hardly sit, wanted to go to the hospital so many times, I nearly went crazy with the pain, and of course no intercourse what so ever, could barely even wee without pain, had to wear loose clothes, not tight jeans what so ever. I tired everything, so many creams, ointments, lotions, you name it, nothing worked. It was originally caused by a harsh medicated body wash. Just use sorbolene or something like that on your body, and dont wash with harsh soaps or body washes. Just mostly water is fine, and dont sit in hot baths. Tried to have intercourse, which made it worse as the skin was so delicate now, it just made the skin split with masses of microscopic splits, which was diagnosed by the oncologist/gyno who examined me with a high tech microscope thingy! LOL So it took longer to heal. The skin doesn't heal down there because it is moist all the time and because of the urine and the friction of movement and rubbing from clothing, this is why the ointment works, and only used at night when you are resting, not moving around. This is why vulvodynia just keeps going on and on and on forever with no relief.

So I wish everyone all the best, please dont write back nasty things to me, simply because the medication might not be available in your country, perhaps look for medication that are of a similar nature that will help you, or go onto ebay and buy the cream. It takes time to heal, 3-6 months but you will get there, just be patient. I feel for everyone that posts on here as I know how painful this problem is, and I know how desperate the situation gets, and how it affects every aspect of your life, This worked well for me, and it might not work for everyone, but at least give it a go!

angelique2016

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Re: Cured of Vulvodynia

Post  lindsey_taylor on Sun Aug 21, 2016 8:02 pm

It is so awful that people were writing nasty things to you! I, for one, am thankful to know that someone has been rid of this awful problem and I am very grateful to have read your story. Thank you for sharing with us! Smile It helps us with ideas of treatment options.

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Re: Cured of Vulvodynia

Post  Sarah001 on Sun Aug 21, 2016 8:24 pm

I recall way back when you used to post and mentioned Advantan Fatty Ointment, it was purely the name of the ointment that reminded me!! I don't remember anyone being nasty about it but I do remember looking for it myself in the UK and not being able to buy it here, I've just had another look and still can't find any here, however... it seems to really just be a hydrocortisone ointment as opposed to a cream and if anyone in the UK is interested in trying an ointment version Boots do one called Derma Care and it's only about £3.60 a tube, I use it if I'm using steroid ointments for anything and it's good. I can't comment on V being cured by it because it depends on the cause of the problem but if anyone in the UK fancies ointment as opposed to cream pop to Boots.

Angelique2016 very pleased to hear you're still doing well. Very Happy
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Re: Cured of Vulvodynia

Post  Ldc on Mon Aug 22, 2016 4:15 pm

Angelique2016, I would like to ask you what were your simptoms like. It makes me feel hopeful and happy reading this kind of successful stories, but before giving if a try I would like to be sure if your Problem was similar to mine. Anyway, glad to hear you are still doing great. I would consider this treatments in a while if mine doesn't work (my doctor is trying other approaches right now).

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Re: Cured of Vulvodynia

Post  sgw11 on Tue Aug 23, 2016 10:36 am

Hey,

I'm just curious, I'm from Melbourne too and also see a female dermatologist. I'm about 95% cured too after having botox injections and peudendal nerve blocks. I'm currently on amitriptyline orally and in cream form too, but I'm decreasing the meds. What was her name? I see Dr Tanja Bohl. Would highly recommend her Smile

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95% cured

Post  CarolRD on Thu Sep 08, 2016 10:41 pm

Did u have vulva pain, did you have a biopsy? Did the cream help?

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Re: Cured of Vulvodynia

Post  Suzie on Wed Sep 21, 2016 3:33 am

Hi does anyone experience yeast infection symptoms with Vulvonydia, mainly a week or so after your cycle?? Please share any remedies, supplements or products that you use..
Thank you

Suzie

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Re: Cured of Vulvodynia

Post  tinkerbelle2 on Fri Dec 09, 2016 3:09 pm

Sarah001 wrote:I recall way back when you used to post and mentioned Advantan Fatty Ointment, it was purely the name of the ointment that reminded me!!  I don't remember anyone being nasty about it but I do remember looking for it myself in the UK and not being able to buy it here, I've just had another look and still can't find any here, however... it seems to really just be a hydrocortisone ointment as opposed to a cream and if anyone in the UK is interested in trying an ointment version Boots do one called Derma Care and it's only about £3.60 a tube, I use it if I'm using steroid ointments for anything and it's good.   I can't comment on V being cured by it because it depends on the cause of the problem but if anyone in the UK fancies ointment as opposed to cream pop to Boots.

Angelique2016 very pleased to hear you're still doing well. Very Happy


Sarah, you're back! You were gone for so long. I hope you are doing OK! X
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Re: Cured of Vulvodynia

Post  Sarah001 on Fri Dec 09, 2016 9:58 pm

Hey Tinkerbelle Very Happy nice to see some familiar faces here even if it's not for the best of reasons.
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Cured 90% with Eumuaide first aide ointment

Post  Silvergirl on Sat Mar 18, 2017 4:15 am

Ladies. I'm going on my 10th using this ointment 3x a day. It's so nice not to continuously think about the pain. It's still there but better every day. Well worth the $48. First few days I did get relief but it's better each stay. Stick with it.

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Re: Cured of Vulvodynia

Post  tinkerbelle2 on Thu Sep 14, 2017 6:09 pm

Sarah001 wrote:Hey Tinkerbelle Very Happy  nice to see some familiar faces here even if it's not for the best of reasons.

Yes, I agree! Very Happy
Anyway sorry OP, so glad you found a cure and are so much better! Always inspiring to read. I love you
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Re: Cured of Vulvodynia

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