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Has anyone tried Reflexology as a treatment

Wed Nov 30, 2016 8:54 pm by Roselilyflower

Hi there everyone, I was diagnosed with vulvodynia about 5 months ago. It all started as an allergic reaction to some thrush cream I used to treat a yeast infection which I got agter a heafty load of antibiotics. I have been tested umteen times for herpes etc and I am all clear which is reassuring but still depressing as Inwas not sure what the hell was going on, then finally I was given an …

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How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

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I just found this site tonight

Mon Feb 20, 2017 8:35 am by surprisemom44

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had …

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Pain following a vaginal cyst procedure a year ago.

Sat Feb 11, 2017 11:22 pm by crackleberry

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it …

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New here- please help

Mon Dec 12, 2016 1:49 am by 1989SBSC

I've been reading these forums for the past year or more and have never posted anything online like this before. I'm overwhelmed and don't even know where to start. Up until a couple years ago, I never had any urinary tract/vaginal problems. Sex (intercourse) always felt good, and I didn't notice any burning feelings in my vagina or urethra. Then, I lived abroad for a year in a hot, tropical …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 0

vulvodynia

Tue Aug 05, 2014 8:44 am by owlcity

I've bee recently diagnosted with vulvodynia. I had my first UTI and that was probably the trigger for me. I started using estrace topical cream and at first it didn't help at all. After few weeks i actually had one month with no pain or burning. I almost forgot that i have a "problem". The lastfew days the burning is back on and off, maybe not as bad as before. I don't know if i should …

Comments: 8

Provoked Vs. Unprovoked Vulvodynia?

Mon Dec 19, 2016 12:03 pm by Sarah08

Hello,

I am just wondering what the difference is between provoked and unprovoked vulvodynia?

I had sex with someone a few months ago and the pain/stinging has been constant ever since. Multiple visits to the GP ruled out any infections and a specialist has since suggested vulvodynia. I'm wondering whether, since it was the sex that brought it on, it would be considered provoked, or since it …

Comments: 2

Newlywed and newlydiagnosed- help!

Sun Dec 18, 2016 9:06 am by hollync

Hello, I am 24 and had pain-free sex with my new husband for 3 years before starting to have this pain about 2 years ago. It started after a course of antibiotics, and although I have been on hormonal birth control for over 10 years, I changed to a similar, but different birth control around that time as well. It generally stings and burns, mostly after intercourse.

I finally saw someone about …

Comments: 1


Cured of Vulvodynia

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Cured of Vulvodynia

Post  angelique2016 on Wed Aug 17, 2016 1:39 am

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as it has the same ingredients, but the ointment protects the skin more when you wee, rather the cream wont stay on as long, but if used just before bed it will mean you will sleep and not have to pee) used sparingly every night only before going to bed, and not to wash to much off in the shower in the morning. (Must not use ointment in the morning, as it will cause more pain due to friction) I did this for about 3 months, took the Nortriptyline at night before bed and used the ointment at night before bed. This worked, why, because the Nortriptyline, is for pain if taken in low level doses (highly levels are for depression), and makes the brain stop thinking about the pain, as it has now become persistent pain, and the ointment, soothes the skin and it has properties in it to help heal the skin. I have been cured for many years now. Anyway I stopped posting on here as I was getting abused by people that were not able to get a hold of the medications in other parts of the world. So if anyone is interested in this information, and if you can get these medications, then it will cure you, you will need to do your pelvic floor exercises after you are cured to help strengthen the muscles again, but I hope that this information can help some people out there, as I know how extremely excruciating this problem is, it bought me to tears, and no sleep and could hardly sit, wanted to go to the hospital so many times, I nearly went crazy with the pain, and of course no intercourse what so ever, could barely even wee without pain, had to wear loose clothes, not tight jeans what so ever. I tired everything, so many creams, ointments, lotions, you name it, nothing worked. It was originally caused by a harsh medicated body wash. Just use sorbolene or something like that on your body, and dont wash with harsh soaps or body washes. Just mostly water is fine, and dont sit in hot baths. Tried to have intercourse, which made it worse as the skin was so delicate now, it just made the skin split with masses of microscopic splits, which was diagnosed by the oncologist/gyno who examined me with a high tech microscope thingy! LOL So it took longer to heal. The skin doesn't heal down there because it is moist all the time and because of the urine and the friction of movement and rubbing from clothing, this is why the ointment works, and only used at night when you are resting, not moving around. This is why vulvodynia just keeps going on and on and on forever with no relief.

So I wish everyone all the best, please dont write back nasty things to me, simply because the medication might not be available in your country, perhaps look for medication that are of a similar nature that will help you, or go onto ebay and buy the cream. It takes time to heal, 3-6 months but you will get there, just be patient. I feel for everyone that posts on here as I know how painful this problem is, and I know how desperate the situation gets, and how it affects every aspect of your life, This worked well for me, and it might not work for everyone, but at least give it a go!

angelique2016

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Re: Cured of Vulvodynia

Post  lindsey_taylor on Sun Aug 21, 2016 8:02 pm

It is so awful that people were writing nasty things to you! I, for one, am thankful to know that someone has been rid of this awful problem and I am very grateful to have read your story. Thank you for sharing with us! Smile It helps us with ideas of treatment options.

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Re: Cured of Vulvodynia

Post  Sarah001 on Sun Aug 21, 2016 8:24 pm

I recall way back when you used to post and mentioned Advantan Fatty Ointment, it was purely the name of the ointment that reminded me!! I don't remember anyone being nasty about it but I do remember looking for it myself in the UK and not being able to buy it here, I've just had another look and still can't find any here, however... it seems to really just be a hydrocortisone ointment as opposed to a cream and if anyone in the UK is interested in trying an ointment version Boots do one called Derma Care and it's only about £3.60 a tube, I use it if I'm using steroid ointments for anything and it's good. I can't comment on V being cured by it because it depends on the cause of the problem but if anyone in the UK fancies ointment as opposed to cream pop to Boots.

Angelique2016 very pleased to hear you're still doing well. Very Happy

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Re: Cured of Vulvodynia

Post  Ldc on Mon Aug 22, 2016 4:15 pm

Angelique2016, I would like to ask you what were your simptoms like. It makes me feel hopeful and happy reading this kind of successful stories, but before giving if a try I would like to be sure if your Problem was similar to mine. Anyway, glad to hear you are still doing great. I would consider this treatments in a while if mine doesn't work (my doctor is trying other approaches right now).

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Re: Cured of Vulvodynia

Post  sgw11 on Tue Aug 23, 2016 10:36 am

Hey,

I'm just curious, I'm from Melbourne too and also see a female dermatologist. I'm about 95% cured too after having botox injections and peudendal nerve blocks. I'm currently on amitriptyline orally and in cream form too, but I'm decreasing the meds. What was her name? I see Dr Tanja Bohl. Would highly recommend her Smile

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95% cured

Post  CarolRD on Thu Sep 08, 2016 10:41 pm

Did u have vulva pain, did you have a biopsy? Did the cream help?

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Re: Cured of Vulvodynia

Post  Suzie on Wed Sep 21, 2016 3:33 am

Hi does anyone experience yeast infection symptoms with Vulvonydia, mainly a week or so after your cycle?? Please share any remedies, supplements or products that you use..
Thank you

Suzie

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Re: Cured of Vulvodynia

Post  tinkerbelle2 on Fri Dec 09, 2016 3:09 pm

Sarah001 wrote:I recall way back when you used to post and mentioned Advantan Fatty Ointment, it was purely the name of the ointment that reminded me!!  I don't remember anyone being nasty about it but I do remember looking for it myself in the UK and not being able to buy it here, I've just had another look and still can't find any here, however... it seems to really just be a hydrocortisone ointment as opposed to a cream and if anyone in the UK is interested in trying an ointment version Boots do one called Derma Care and it's only about £3.60 a tube, I use it if I'm using steroid ointments for anything and it's good.   I can't comment on V being cured by it because it depends on the cause of the problem but if anyone in the UK fancies ointment as opposed to cream pop to Boots.

Angelique2016 very pleased to hear you're still doing well. Very Happy


Sarah, you're back! You were gone for so long. I hope you are doing OK! X

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Re: Cured of Vulvodynia

Post  Sarah001 on Fri Dec 09, 2016 9:58 pm

Hey Tinkerbelle Very Happy nice to see some familiar faces here even if it's not for the best of reasons.

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Re: Cured of Vulvodynia

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