Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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Latest topics
» Hope to all my suffering ladies
What is Physiotherapy supposed to be like? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
What is Physiotherapy supposed to be like? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
What is Physiotherapy supposed to be like? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
What is Physiotherapy supposed to be like? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
What is Physiotherapy supposed to be like? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
What is Physiotherapy supposed to be like? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
What is Physiotherapy supposed to be like? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
What is Physiotherapy supposed to be like? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
What is Physiotherapy supposed to be like? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


What is Physiotherapy supposed to be like?

2 posters

Vulvodynia Support :: Physiotherapy and Biofeedback

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What is Physiotherapy supposed to be like? Empty What is Physiotherapy supposed to be like?

Post  Ellie_01 Tue Jan 24, 2017 6:30 am

Hi,
I'm new to this forum and new to being diagnosed as well. After months of running to the doctor I finally got diagnosed about two weeks ago by a specialist who said I have Vestibulitis and muscle spasms. She put me on amitriptyline (currently on 20mg, not really noticing anything yet) and told me to go to Physiotherapy. I just had my very first appointment with a Women's Health/Pelvic Floor Therapist yesterday and was quite disappointment after it. I have never needed any kind of physiotherapy before, but thought they would show you exercises, massage your sore spots or something like that. She pretty much just gave me a set of dilators (instruction: use it for 10 minutes each day), without explaining much about them and a leaflet with two or three exercises to relax my leg to back muscles. Then the appointment was over and she told me to come back in 3 or 4 weeks to see how I'm doing. Crying or Very sad I just felt so down, because all that she told me I already had read online and wouldn't have needed to see a physiotherapist for.

What was your first appointment with a pelvic floor therapist like? Is this the norm and was I just expecting too much? I am considering trying to find a new physiotherapist, since I can't believe that this is all they are doing? Please give me your opinion.

Ellie_01

Posts : 2
Join date : 2017-01-24

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What is Physiotherapy supposed to be like? Empty Re: What is Physiotherapy supposed to be like?

Post  PainBlogger Tue Jan 24, 2017 8:52 am

Mine did an assessment of my pelvic floor muscles - like an internal exam but not with a speculum or anything like that. She just felt for how tight the muscles were and asked me to say which areas were most painful. She then explained how to use he smallest dilator (to start) to stretch 'around the clock' from 3 to 9 - stretch and hold for 30 seconds on each clock point.

At some further appointments she reassessed. Also did some manual stretch and holding on trigger points. At most appointments she was working externally to try to rebalance my pelvis and get rid of trigger points around my thighs and buttocks.

The physio I saw wasn't NHS. I paid privately rather than wait to see one on the NHS. Not cheap but worth it as the appointments didn't feel rushed.

PainBlogger

Posts : 219
Join date : 2015-07-27

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Vulvodynia Support :: Physiotherapy and Biofeedback

 
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