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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


What is Physiotherapy supposed to be like?

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What is Physiotherapy supposed to be like?

Post  Ellie_01 on Tue Jan 24, 2017 6:30 am

Hi,
I'm new to this forum and new to being diagnosed as well. After months of running to the doctor I finally got diagnosed about two weeks ago by a specialist who said I have Vestibulitis and muscle spasms. She put me on amitriptyline (currently on 20mg, not really noticing anything yet) and told me to go to Physiotherapy. I just had my very first appointment with a Women's Health/Pelvic Floor Therapist yesterday and was quite disappointment after it. I have never needed any kind of physiotherapy before, but thought they would show you exercises, massage your sore spots or something like that. She pretty much just gave me a set of dilators (instruction: use it for 10 minutes each day), without explaining much about them and a leaflet with two or three exercises to relax my leg to back muscles. Then the appointment was over and she told me to come back in 3 or 4 weeks to see how I'm doing. Crying or Very sad I just felt so down, because all that she told me I already had read online and wouldn't have needed to see a physiotherapist for.

What was your first appointment with a pelvic floor therapist like? Is this the norm and was I just expecting too much? I am considering trying to find a new physiotherapist, since I can't believe that this is all they are doing? Please give me your opinion.

Ellie_01

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Re: What is Physiotherapy supposed to be like?

Post  PainBlogger on Tue Jan 24, 2017 8:52 am

Mine did an assessment of my pelvic floor muscles - like an internal exam but not with a speculum or anything like that. She just felt for how tight the muscles were and asked me to say which areas were most painful. She then explained how to use he smallest dilator (to start) to stretch 'around the clock' from 3 to 9 - stretch and hold for 30 seconds on each clock point.

At some further appointments she reassessed. Also did some manual stretch and holding on trigger points. At most appointments she was working externally to try to rebalance my pelvis and get rid of trigger points around my thighs and buttocks.

The physio I saw wasn't NHS. I paid privately rather than wait to see one on the NHS. Not cheap but worth it as the appointments didn't feel rushed.

PainBlogger

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Join date : 2015-07-27

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