Log in

I forgot my password

Latest topics
New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


What is Physiotherapy supposed to be like?

View previous topic View next topic Go down

What is Physiotherapy supposed to be like?

Post  Ellie_01 on Tue Jan 24, 2017 6:30 am

Hi,
I'm new to this forum and new to being diagnosed as well. After months of running to the doctor I finally got diagnosed about two weeks ago by a specialist who said I have Vestibulitis and muscle spasms. She put me on amitriptyline (currently on 20mg, not really noticing anything yet) and told me to go to Physiotherapy. I just had my very first appointment with a Women's Health/Pelvic Floor Therapist yesterday and was quite disappointment after it. I have never needed any kind of physiotherapy before, but thought they would show you exercises, massage your sore spots or something like that. She pretty much just gave me a set of dilators (instruction: use it for 10 minutes each day), without explaining much about them and a leaflet with two or three exercises to relax my leg to back muscles. Then the appointment was over and she told me to come back in 3 or 4 weeks to see how I'm doing. Crying or Very sad I just felt so down, because all that she told me I already had read online and wouldn't have needed to see a physiotherapist for.

What was your first appointment with a pelvic floor therapist like? Is this the norm and was I just expecting too much? I am considering trying to find a new physiotherapist, since I can't believe that this is all they are doing? Please give me your opinion.

Ellie_01

Posts : 2
Join date : 2017-01-24

View user profile

Back to top Go down

Re: What is Physiotherapy supposed to be like?

Post  PainBlogger on Tue Jan 24, 2017 8:52 am

Mine did an assessment of my pelvic floor muscles - like an internal exam but not with a speculum or anything like that. She just felt for how tight the muscles were and asked me to say which areas were most painful. She then explained how to use he smallest dilator (to start) to stretch 'around the clock' from 3 to 9 - stretch and hold for 30 seconds on each clock point.

At some further appointments she reassessed. Also did some manual stretch and holding on trigger points. At most appointments she was working externally to try to rebalance my pelvis and get rid of trigger points around my thighs and buttocks.

The physio I saw wasn't NHS. I paid privately rather than wait to see one on the NHS. Not cheap but worth it as the appointments didn't feel rushed.

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum