Log in

I forgot my password

Latest topics
Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


What is Physiotherapy supposed to be like?

View previous topic View next topic Go down

What is Physiotherapy supposed to be like?

Post  Ellie_01 on Tue Jan 24, 2017 6:30 am

Hi,
I'm new to this forum and new to being diagnosed as well. After months of running to the doctor I finally got diagnosed about two weeks ago by a specialist who said I have Vestibulitis and muscle spasms. She put me on amitriptyline (currently on 20mg, not really noticing anything yet) and told me to go to Physiotherapy. I just had my very first appointment with a Women's Health/Pelvic Floor Therapist yesterday and was quite disappointment after it. I have never needed any kind of physiotherapy before, but thought they would show you exercises, massage your sore spots or something like that. She pretty much just gave me a set of dilators (instruction: use it for 10 minutes each day), without explaining much about them and a leaflet with two or three exercises to relax my leg to back muscles. Then the appointment was over and she told me to come back in 3 or 4 weeks to see how I'm doing. Crying or Very sad I just felt so down, because all that she told me I already had read online and wouldn't have needed to see a physiotherapist for.

What was your first appointment with a pelvic floor therapist like? Is this the norm and was I just expecting too much? I am considering trying to find a new physiotherapist, since I can't believe that this is all they are doing? Please give me your opinion.

Ellie_01

Posts : 2
Join date : 2017-01-24

View user profile

Back to top Go down

Re: What is Physiotherapy supposed to be like?

Post  PainBlogger on Tue Jan 24, 2017 8:52 am

Mine did an assessment of my pelvic floor muscles - like an internal exam but not with a speculum or anything like that. She just felt for how tight the muscles were and asked me to say which areas were most painful. She then explained how to use he smallest dilator (to start) to stretch 'around the clock' from 3 to 9 - stretch and hold for 30 seconds on each clock point.

At some further appointments she reassessed. Also did some manual stretch and holding on trigger points. At most appointments she was working externally to try to rebalance my pelvis and get rid of trigger points around my thighs and buttocks.

The physio I saw wasn't NHS. I paid privately rather than wait to see one on the NHS. Not cheap but worth it as the appointments didn't feel rushed.

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum