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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


What is Physiotherapy supposed to be like?

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What is Physiotherapy supposed to be like?

Post  Ellie_01 on Tue Jan 24, 2017 6:30 am

Hi,
I'm new to this forum and new to being diagnosed as well. After months of running to the doctor I finally got diagnosed about two weeks ago by a specialist who said I have Vestibulitis and muscle spasms. She put me on amitriptyline (currently on 20mg, not really noticing anything yet) and told me to go to Physiotherapy. I just had my very first appointment with a Women's Health/Pelvic Floor Therapist yesterday and was quite disappointment after it. I have never needed any kind of physiotherapy before, but thought they would show you exercises, massage your sore spots or something like that. She pretty much just gave me a set of dilators (instruction: use it for 10 minutes each day), without explaining much about them and a leaflet with two or three exercises to relax my leg to back muscles. Then the appointment was over and she told me to come back in 3 or 4 weeks to see how I'm doing. Crying or Very sad I just felt so down, because all that she told me I already had read online and wouldn't have needed to see a physiotherapist for.

What was your first appointment with a pelvic floor therapist like? Is this the norm and was I just expecting too much? I am considering trying to find a new physiotherapist, since I can't believe that this is all they are doing? Please give me your opinion.

Ellie_01

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Re: What is Physiotherapy supposed to be like?

Post  PainBlogger on Tue Jan 24, 2017 8:52 am

Mine did an assessment of my pelvic floor muscles - like an internal exam but not with a speculum or anything like that. She just felt for how tight the muscles were and asked me to say which areas were most painful. She then explained how to use he smallest dilator (to start) to stretch 'around the clock' from 3 to 9 - stretch and hold for 30 seconds on each clock point.

At some further appointments she reassessed. Also did some manual stretch and holding on trigger points. At most appointments she was working externally to try to rebalance my pelvis and get rid of trigger points around my thighs and buttocks.

The physio I saw wasn't NHS. I paid privately rather than wait to see one on the NHS. Not cheap but worth it as the appointments didn't feel rushed.

PainBlogger

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