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Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

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An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5


New w/ Secondary Provoked Vestibuldynia

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Post  Birdy on Wed Apr 26, 2017 11:46 pm

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast infection, which was treated with Diflucan, I haven't been normal.

The skin around my vaginal opening (the vestibule) and an additional thin strip going up to my clitoris have been red ever since.  I don't have constant pain, only when provoked and usually only during intercourse.  I can insert small things like tampons just fine because they don't really come in contact with the vestibule skin in question.  Any prolonged contact, however, sets it on fire.  The harder and longer the contact the worst the burn and the longer it takes to go away.

My gyno had me start using lidocaine, which I had mixed results with.  Sometimes it just made the burning worse.  I'm thinking about trying nightly treatments instead of the only with sex method.  She also put me on an estrogen cream.  I don't feel like it has done anything.  I started doing acupuncture, but I can't tell if it has helped.  There were maybe four times in the last two months where I had pain free sex (for reference I usually have sex 3-4 times a week, even with this issue), so I figured maybe things were on the upswing.

However, I recently had a huge setback. I got another yeast infection last week thanks to having to be on prednisone for nine days after having a severe allergic reaction to an unknown cause (possibly a glass of sparkling red wine I'd never had before).  The yeast infection was worse than last time and I'm scared it has damaged the already messed up skin further.  If I press down on the previously red skin right now I can provoke pretty significant pain that I was not able to before unless I had sex recently (which I haven't because my boyfriend has been traveling for several weeks).  I am praying it will lessen as I get further away from the yeast infection.

So essentially I have red vestibule skin on either side of the vaginal opening extending to the clitoral area accompanied by moderate to severe burning pain (particularly in the vaginal entrance, aka the area which gets the most contact) after sex.   I only wear cotton underwear, have switched laundry soaps to Nellie's All Natural, and am in the process of switching to all natural hand and body soaps.  I take a Femdopholis probiotic daily.

I had a wonderful life before this happened.  Literally no vaginal/vulval problems to speak of.  My sex life was amazing.  Now, I feel like I am cursed.  I feel like I have read so few stories of cures or people becoming permanently pain free.  I am in disbelief that I could go my whole life and have nothing wrong with me... only to have repeated infections and now this in only six months.  I want to be normal again so badly.  I have no idea what this was caused by.  Pelvic floor muscles?  Dermatitis?  Nerves firing for no reason?  Should I be doing physical therapy even though it doesn't seem to be related to my muscles?  Is it possibly nerves even though it's only provoked pain?  Any advice or words of support would be much appreciated.

Birdy

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Post  Hatty on Fri Apr 28, 2017 2:25 pm

Have u tried Gabapentine?

Hatty

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Post  StellaLuna on Sat Apr 29, 2017 1:37 pm

Your story reminds me a lot mine. My problems started because of a yeast infection. From my experience try not to apply anything to the area because it will make it worst. Also try not to take any antibiotics exept it is really necessery. Doctors seems to give antibiotics for no reason. I think that the only thing that really helped me is amitriplyline which is an antidepressant.

StellaLuna
StellaLuna

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New w/ Secondary Provoked Vestibuldynia Empty Don't worry :)

Post  Ilya on Wed Aug 09, 2017 11:52 pm

I suggest you read this book "When sex hurts:A Woman's Guide to Banishing Sexual Pain" by Andrew Goldstein. It has all the information you need to know about your condition. It is very well written and easy to understand. I myself am reading it right now and am in the middle of the book. I found it very helpful to have more information. Before I read this book I was so confused and scared. Now that I know all about the causes, types and treatments of PVD I feel I can manage to treat mine.

I hope it helps you the same way as it helped me.

About the lidocaine I guess it's fine that it stings a little bit at the beginning. I think I read in this book (or somewhere online) that it stings a little bit at the beginning before the area is fully numb. Also my gynecologist asked me to apply it twice a day (one in the morning one at night) no matter if I am having sex or not. And of course 10 minutes before sex as well. It was also mentioned in the book that there are some studies shown that frequently applying lidocaine shows improve in the sensitivity of the area.

If you read the book you yourself will know what specific type of vulvodynia you have and you will see the treatment for it right there in the same chapter.

Hope you will feel better soon and be pain free. <3

Ilya

Ilya

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New w/ Secondary Provoked Vestibuldynia Empty I think I'm cured!

Post  Birdy on Sun Oct 22, 2017 3:47 am

Hi everyone,

I swore if I was ever cured I'd come back and update, since so few people remember to.

Since April (when I first posted) a whole lot has changed.  I started doing pelvic floor therapy, got off synthetic estrogen, and discovered I have a new sensitivity to my partner's pubic hair.  I have no idea if one of those things alone would have changed things for me, but I've been pain free since July.  As long as I maintain good pelvic floor strength and my partner stays trimmed, I don't have any problems.

While I'm dealing with new problems now (extensive hair loss from going off combination birth control/using the Mirena), at least I no long have vulvar pain! I was so hopeless for so long that I never imagined I'd be where I am now.

I hope my story gives someone hope Smile.

Birdy

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