Log in

I forgot my password

Latest topics
» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New w/ Secondary Provoked Vestibuldynia

Go down

New w/ Secondary Provoked Vestibuldynia

Post  Birdy on Wed Apr 26, 2017 11:46 pm

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast infection, which was treated with Diflucan, I haven't been normal.

The skin around my vaginal opening (the vestibule) and an additional thin strip going up to my clitoris have been red ever since.  I don't have constant pain, only when provoked and usually only during intercourse.  I can insert small things like tampons just fine because they don't really come in contact with the vestibule skin in question.  Any prolonged contact, however, sets it on fire.  The harder and longer the contact the worst the burn and the longer it takes to go away.

My gyno had me start using lidocaine, which I had mixed results with.  Sometimes it just made the burning worse.  I'm thinking about trying nightly treatments instead of the only with sex method.  She also put me on an estrogen cream.  I don't feel like it has done anything.  I started doing acupuncture, but I can't tell if it has helped.  There were maybe four times in the last two months where I had pain free sex (for reference I usually have sex 3-4 times a week, even with this issue), so I figured maybe things were on the upswing.

However, I recently had a huge setback. I got another yeast infection last week thanks to having to be on prednisone for nine days after having a severe allergic reaction to an unknown cause (possibly a glass of sparkling red wine I'd never had before).  The yeast infection was worse than last time and I'm scared it has damaged the already messed up skin further.  If I press down on the previously red skin right now I can provoke pretty significant pain that I was not able to before unless I had sex recently (which I haven't because my boyfriend has been traveling for several weeks).  I am praying it will lessen as I get further away from the yeast infection.

So essentially I have red vestibule skin on either side of the vaginal opening extending to the clitoral area accompanied by moderate to severe burning pain (particularly in the vaginal entrance, aka the area which gets the most contact) after sex.   I only wear cotton underwear, have switched laundry soaps to Nellie's All Natural, and am in the process of switching to all natural hand and body soaps.  I take a Femdopholis probiotic daily.

I had a wonderful life before this happened.  Literally no vaginal/vulval problems to speak of.  My sex life was amazing.  Now, I feel like I am cursed.  I feel like I have read so few stories of cures or people becoming permanently pain free.  I am in disbelief that I could go my whole life and have nothing wrong with me... only to have repeated infections and now this in only six months.  I want to be normal again so badly.  I have no idea what this was caused by.  Pelvic floor muscles?  Dermatitis?  Nerves firing for no reason?  Should I be doing physical therapy even though it doesn't seem to be related to my muscles?  Is it possibly nerves even though it's only provoked pain?  Any advice or words of support would be much appreciated.

Birdy

Posts : 2
Join date : 2017-04-26

View user profile

Back to top Go down

Re: New w/ Secondary Provoked Vestibuldynia

Post  Hatty on Fri Apr 28, 2017 2:25 pm

Have u tried Gabapentine?

Hatty

Posts : 2
Join date : 2017-04-28

View user profile

Back to top Go down

Re: New w/ Secondary Provoked Vestibuldynia

Post  StellaLuna on Sat Apr 29, 2017 1:37 pm

Your story reminds me a lot mine. My problems started because of a yeast infection. From my experience try not to apply anything to the area because it will make it worst. Also try not to take any antibiotics exept it is really necessery. Doctors seems to give antibiotics for no reason. I think that the only thing that really helped me is amitriplyline which is an antidepressant.

avatar
StellaLuna

Posts : 4
Join date : 2016-04-11

View user profile

Back to top Go down

Don't worry :)

Post  Ilya on Wed Aug 09, 2017 11:52 pm

I suggest you read this book "When sex hurts:A Woman's Guide to Banishing Sexual Pain" by Andrew Goldstein. It has all the information you need to know about your condition. It is very well written and easy to understand. I myself am reading it right now and am in the middle of the book. I found it very helpful to have more information. Before I read this book I was so confused and scared. Now that I know all about the causes, types and treatments of PVD I feel I can manage to treat mine.

I hope it helps you the same way as it helped me.

About the lidocaine I guess it's fine that it stings a little bit at the beginning. I think I read in this book (or somewhere online) that it stings a little bit at the beginning before the area is fully numb. Also my gynecologist asked me to apply it twice a day (one in the morning one at night) no matter if I am having sex or not. And of course 10 minutes before sex as well. It was also mentioned in the book that there are some studies shown that frequently applying lidocaine shows improve in the sensitivity of the area.

If you read the book you yourself will know what specific type of vulvodynia you have and you will see the treatment for it right there in the same chapter.

Hope you will feel better soon and be pain free. <3

Ilya

Ilya

Posts : 4
Join date : 2017-08-09

View user profile

Back to top Go down

I think I'm cured!

Post  Birdy on Sun Oct 22, 2017 3:47 am

Hi everyone,

I swore if I was ever cured I'd come back and update, since so few people remember to.

Since April (when I first posted) a whole lot has changed.  I started doing pelvic floor therapy, got off synthetic estrogen, and discovered I have a new sensitivity to my partner's pubic hair.  I have no idea if one of those things alone would have changed things for me, but I've been pain free since July.  As long as I maintain good pelvic floor strength and my partner stays trimmed, I don't have any problems.

While I'm dealing with new problems now (extensive hair loss from going off combination birth control/using the Mirena), at least I no long have vulvar pain! I was so hopeless for so long that I never imagined I'd be where I am now.

I hope my story gives someone hope Smile.

Birdy

Posts : 2
Join date : 2017-04-26

View user profile

Back to top Go down

Re: New w/ Secondary Provoked Vestibuldynia

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum