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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


New w/ Secondary Provoked Vestibuldynia

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New w/ Secondary Provoked Vestibuldynia

Post  Birdy on Wed Apr 26, 2017 11:46 pm

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast infection, which was treated with Diflucan, I haven't been normal.

The skin around my vaginal opening (the vestibule) and an additional thin strip going up to my clitoris have been red ever since.  I don't have constant pain, only when provoked and usually only during intercourse.  I can insert small things like tampons just fine because they don't really come in contact with the vestibule skin in question.  Any prolonged contact, however, sets it on fire.  The harder and longer the contact the worst the burn and the longer it takes to go away.

My gyno had me start using lidocaine, which I had mixed results with.  Sometimes it just made the burning worse.  I'm thinking about trying nightly treatments instead of the only with sex method.  She also put me on an estrogen cream.  I don't feel like it has done anything.  I started doing acupuncture, but I can't tell if it has helped.  There were maybe four times in the last two months where I had pain free sex (for reference I usually have sex 3-4 times a week, even with this issue), so I figured maybe things were on the upswing.

However, I recently had a huge setback. I got another yeast infection last week thanks to having to be on prednisone for nine days after having a severe allergic reaction to an unknown cause (possibly a glass of sparkling red wine I'd never had before).  The yeast infection was worse than last time and I'm scared it has damaged the already messed up skin further.  If I press down on the previously red skin right now I can provoke pretty significant pain that I was not able to before unless I had sex recently (which I haven't because my boyfriend has been traveling for several weeks).  I am praying it will lessen as I get further away from the yeast infection.

So essentially I have red vestibule skin on either side of the vaginal opening extending to the clitoral area accompanied by moderate to severe burning pain (particularly in the vaginal entrance, aka the area which gets the most contact) after sex.   I only wear cotton underwear, have switched laundry soaps to Nellie's All Natural, and am in the process of switching to all natural hand and body soaps.  I take a Femdopholis probiotic daily.

I had a wonderful life before this happened.  Literally no vaginal/vulval problems to speak of.  My sex life was amazing.  Now, I feel like I am cursed.  I feel like I have read so few stories of cures or people becoming permanently pain free.  I am in disbelief that I could go my whole life and have nothing wrong with me... only to have repeated infections and now this in only six months.  I want to be normal again so badly.  I have no idea what this was caused by.  Pelvic floor muscles?  Dermatitis?  Nerves firing for no reason?  Should I be doing physical therapy even though it doesn't seem to be related to my muscles?  Is it possibly nerves even though it's only provoked pain?  Any advice or words of support would be much appreciated.

Birdy

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Re: New w/ Secondary Provoked Vestibuldynia

Post  Hatty on Fri Apr 28, 2017 2:25 pm

Have u tried Gabapentine?

Hatty

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Re: New w/ Secondary Provoked Vestibuldynia

Post  StellaLuna on Sat Apr 29, 2017 1:37 pm

Your story reminds me a lot mine. My problems started because of a yeast infection. From my experience try not to apply anything to the area because it will make it worst. Also try not to take any antibiotics exept it is really necessery. Doctors seems to give antibiotics for no reason. I think that the only thing that really helped me is amitriplyline which is an antidepressant.

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Re: New w/ Secondary Provoked Vestibuldynia

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