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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


The possibility that for SOME women vulvodynia is a Mindbody syndrome

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The possibility that for SOME women vulvodynia is a Mindbody syndrome

Post  mary jane on Tue Jun 20, 2017 9:22 pm

I am posting this here from another forum, it;s a true story of a user called "ozagnes".
I think that it's possible to have severe stress and anxiety and long term repressed emotions turn into psychosomatic illnesses or central sensitization even.
My pain had no apparent reason apart from a cyst which shouldn't have caused such pain. I also discovered recently that if I am really angry or stressed I get breakthrough nerve pain. I control this using mindfulness. I got the idea from another user called Mouse on this forum.

so here goes:

"Hi all,

I have just been reading all the posts about pelvic pain, and although there are a few women that had (and hopefuly treated?) vulvodynia, I could not find much in 2011.

I am new on this forum, I have been suffering from undiagnosed mild vestibulitis since I had my first intercourse, and 3 years ago it got far worse after a yeast infection (and a lot of stress with my phd, let's face it...). Then it's been 3 years of medical nightmare, I have been on 3 continents, seen the best gynesurgeons and pain specialists, was told I had vestibulitis, vulvodynia, pudendal neuralgia, even IC (which wasn't true since I don't have frequency, but surely the hydro-distention done under general anesthetic said yes). I have tried all the treatments including botox injections (the most painful thing I've had done in my life!), countless needles, and even 2 surgeries.
I've also had back pain as a kid (they said it was my scoliosis...yeah right), anorexia, neck pain, psoriasis, leg itching and my body is full of trigger points, particularly in the shoulders, back, gluts and you guessed it, in the pelvis!

I finally found out about TMS about 2 months ago, have read schubiner and Sarno, and I know now that my "infection pain" was in fact stress, and all the rest that followed was pure nocebo. Incredible when I think about it, as soon as I was told I had vulvodynia, I thought "Oh my god, some women can't even sit because of shooting pain! at least I am not that bad!!!" and bingo, 2 weeks later I was that bad...

I am having progress and regress...some days when I "feel" that I am not sick, it is like enlightment, and of course my pain is much lower, and it feels so light on my shoulders...and then a few days later my old mood is back, the pain increases, and my worries come back. Arrrgggg!
I AM GETTING SO ANGRY AT MYSELF! I know my mind is doing that to me. Until now I think I was scared of "upsetting" my unconscious. I am such a nice goodist person I could not even "hurt" my mind! And today I finally bursted and shouted at myself.
But it is hard to know what to do and what to think, I think I have to reassure the child and shout at the parent.

Anyhow, it would be great to hear from other women, or men that have suffered from pelvic pain (because I am sure that prostatitis, IC, pudendal neuralgia, vulvodynia, piriformis syndrome, pelvic floor disfunction is just the same thing).

Thanks
Smile

agnes"


and


"Hi all,

It has been a while since i have been on this forum because i gave birth!!! A beautiful and healthy baby boy Smile
I had a c-section because i did not want to add the stress and fear of a natural birth since i have pudendal neuralgia/VVS, although i know that natural birth really should not improve or worsen my condition even if that is exactly what ob/gyn are saying...

Now, for those suffering fron chronic pelvic pain, here are some interesting facts about my pregnancy that really make no sense if one was to beleive the medical theories of nerve entrapment/inflammation:
- while putting on 13kgs and therefore clearly adding pressure on my pelvis, particularly sitting, the pain did not get worse! If my nerve was entrapped, how could it not be worse?
- my hormone levels clearly have been up and down, but not my pain, so again, it is not a problem of oestrogen (an ob/gyn had told me that pregnancy often improved the pain momentarily because oestrogen levels rise)
- pregnancy hormones help losen ligaments and muscles, but my pain did not improve during pregnancy, so if my pelvic muscles are tight and sore, it is not just physiological.
My take on this: my pain is caused by tight muscles and blood restriction due to psychological tension that even the most drastic physical changes will not affect.

Oh, and surprise surprise, the pain is barely noticeable since i gave birth, which i think is due to my mind being busy with my new bub rather than focussing on my own emotional pain...although i still have big issues with my mother!
And just the fact of saying "i have improved" brings on the fear that it will all get bad again...damn conditioning and fear!!!

So i hope this will give some reassurance to others on this forum that have been "diagnosed" with pudendal neuralgia or other forms of chronic pelvic pain.

Cheers! "


Please take the time to read what she said here. in her last post ever she said she still has some pain but overall she also had long periods of remission and that things were under control for her.

Source: http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=7017
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mary jane

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