Log in

I forgot my password

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


TREAT THE UNDERLYING PROBLEM (still cured btw)

View previous topic View next topic Go down

TREAT THE UNDERLYING PROBLEM (still cured btw)

Post  EverythingIsDifferentNow on Sun Jun 25, 2017 10:11 pm

This mostly revolves around unprovoked vulvodynia (since I had it and I'm talking from experience), but it might work for provoked. Not everyone with unprovoked vulvodynia may feel this applies to them.
Hi guys, I've been cured for more than a year now. I've done everything holistically and through months of research. I am confident the majority (if not all) cases of vulvodynia victims have kidney issues/sensitivities and may have an underlying chronic disease they don't know about. Chronic illnesses include diverticulitis, celiac, ezcema, any autoimmune condition, and so much more. If you don't know, look at the simple things. Do you get dandruff a lot, do you have bad body odor, do you have a lot of gas, are you lactose intolerant?  Why do I say this? Everything is connected. If there's even one organ of your body that contains high levels of toxicity, chances are 3 other organs and probably your whole body is affected. This sets off imbalance, and imbalance is everything vulvodynia stands for.  If you have chronic illness, that means your body is in a state of toxicity/acidity, and is more unable to get rid of the toxins that have accumulated in your body since you were born/started to develop the illness. Since curing vulvodynia, I learned I had MANY different diseases going on in my body (almost all chronic illnesses). Don't worry, this is probably not the case for you. What I have is rare, but I just wanted to give you some background info. on me.


When the body is unable to get rid of the toxins that accumulate in your body (in this case, the toxins found in western diet food - processed, GMO, not organic, etc.), then the kidneys aren't fully able to break down the oxalates found even in simple foods like spinach or other high level oxalate foods. Not just that, but acidic foods definitely don't help either (coffee is a biggie). Combine acidic foods in your already acidic body, and high level oxalate foods (or even medium oxalate foods that build up oxalate crystals over time in your body- then BOOM, suddenly you wake up and get a horrible acidic feeling down there -happened to me) and you get the worst disease I myself have ever experienced. The other 7 diseases I have are absolutely fine compared to this nightmare and that says a lot, and that's the only reason why I STILL go on here once in a blue moon to give insight to women/girls out there who were in my terrible shoes long ago.


Solutions? First and foremost, get rid of those oxalate crystals (which are basically acidic crystals) through calcium citrate or calcium/magnesium supplement. Take it EVERYDAY. You will not feel cured immediately, especially if you have a bad case of vulvodynia. For me it took maybe 2 weeks to see improvement, then a month in I felt a lot better. However, take it continually at least for 3 months. In conjunction with this, stop taking acidic foods/beverages like coffee, try to cut out high caffeine drinks like black tea, eat organic as much as possible (with all the research and books I've read, I'm convinced the food in western society is poison and responsible for most diseases today), eat a mainly alkaline diet (this diet greatly soothes the body) and DESTRESS. I didn't think stress was a big deal and dismissed it first coming here, but lemme tell you, it's a pillar of health. It can literally save you from death. Yoga helped me a lot, especially ab workouts.


Recommendations include enemas, liver tonics, prebiotics/probiotics, yoga/saunas, and removal of gut irritating foods. This changed my world around. My mind feels more at peace than ever.


Most western doctors aren't trained in vulvodynia. They are trained in giving patients pharmaceutical drugs to treat the symptom of the problem, which literally makes no sense, since the symptom is the body's natural way of healing itself. This absurd thinking usually ends up making the problem worse/causes confusion and stress in patients. Been there, done that. Been called "crazy...it's just a yeast infection. Here's a $500 cream that doesn't even work. affraid "...ya right. Don't worry, nature is here to help (and cheaper  Razz ).


If you are not your own doctor, you're a fool. -Hippocrates


While you're at it, you might want to address if you have any other health problems. Anything is impossible. The word impossible has "I'm possible". Hope this helps. sunny sunny sunny


Last edited by EverythingIsDifferentNow on Sun Jul 09, 2017 3:54 pm; edited 1 time in total

EverythingIsDifferentNow

Posts : 30
Join date : 2014-09-13

View user profile

Back to top Go down

almost

Post  mary jane on Fri Jun 30, 2017 7:55 pm

I really like your approach to this, I do think STRESS can cause inflammation and a million other diseases. ALso doing Yoga is very clever to add to this. I've read that if you have central sensitization (meaning nerve pain, IBS, TMJ and other pain) then doing sports is considered one of the treatments.

I have read a lot of books on this topic, I do agree that a low oxalate diet and supplements can help or cure vulvodynia.

However western medicine CAN help and without it we would be dead. For me, medication works, and it works very well. I do add mindfulness, magnesium supplements and probiotics to the mix and they do help, however for NEUROPATHY  it's unlikely that one can be cured through detoxes and supplements. Pain occurs in the brain, that is why we need to take these medications. If you search for some users here, they have had remission from vulvodynia using Lyrica or others. Myself included. They don't mask the symptoms, their point is to interrupt pain signals so they don't become permanent.  you can research this theory. It's about nerve memory. Medications do work for some, as vulvodynia can have very different symptoms from one person to another. I don't know how much GMO is present in UK foods, I've never heard of GMOs cause burning pain or nerve symptoms, maybe it can happen, but to say that your solution works for everyone is sending the wrong message.
avatar
mary jane

Posts : 321
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum