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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Finally found a place for me...

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Finally found a place for me...

Post  mtsp on Mon Jul 10, 2017 11:47 am

Hi,

I am so glad I found this support group. I come from Vietnam, and in my country, vulvodynia is not something very commonly understood. I've always felt so left out before I decided to join this forum.

I had a resistant yeast infection 6 months ago, which did not go away with any drugs or anti-fungals I was prescribed. The symptoms would be alleviated for a week top and then came back with the discharge and everything. Two months ago I decided to try boric acid, and after 2 weeks, all my discharge and symptoms were gone! I was so happy. The soreness on my labia minora (only on my left side, no swelling, looks totally normal) was gone too. I thought my vulvodynia was due to the stubborn yeast infection and I was so happy, I thought boric acid got rid of the yeastie beastie and my tender labia minora too. Until 2 weeks ago, I had a pretty bad case of allergic reaction (I don't know what the cause was), I got rashes on my face and my whole vulva itched for several days. After using antihistamines, my whole face went back to normal and my vulva was no longer itchy, but the vulvodynia came back... I have pain on the left side of my labia minora, all of it, and it hurts when touched. The skin there looks totally normal, no swelling, no redness at all. My vagina walls are normal, no pain.

Right now I'm on boric acid again (desperately try to stop the pain), but I don't know what else to do. Which creams should I use? Anyone who has similar problems can give me advice? Sad I have been to several gynos, and they all brushed it off and said the pain was all in my head because they didnt see anything abnormal. Like I said, in Vietnam this problem is not as well understood. I am thinking of going to maybe Singapore or China to meet a specialist.

I have been in a depressed state for 6 months. Any help would be much appreciated.

mtsp

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Re: Finally found a place for me...

Post  PainBlogger on Fri Jul 14, 2017 7:51 am

Have you ensured that you are not using any fragranced washing products (soaps, bath foam), detergents (including fabric softener), and sanitary towels? Also be careful with diet. Make sure your urine is not too acidic by avoiding citrus fruit juice, carbonated drinks, etc. Wear loose cotton underwear and avoid wearing underwear when sleeping. Those things can all help if you are not doing them already.

I'd be cautious about trying creams. Sometimes the preservatives/added ingredients can cause irritation. I hope you can find a specialist and get some relief soon.

PainBlogger

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Join date : 2015-07-27

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