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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Finally found a place for me...

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Finally found a place for me...

Post  mtsp on Mon Jul 10, 2017 11:47 am

Hi,

I am so glad I found this support group. I come from Vietnam, and in my country, vulvodynia is not something very commonly understood. I've always felt so left out before I decided to join this forum.

I had a resistant yeast infection 6 months ago, which did not go away with any drugs or anti-fungals I was prescribed. The symptoms would be alleviated for a week top and then came back with the discharge and everything. Two months ago I decided to try boric acid, and after 2 weeks, all my discharge and symptoms were gone! I was so happy. The soreness on my labia minora (only on my left side, no swelling, looks totally normal) was gone too. I thought my vulvodynia was due to the stubborn yeast infection and I was so happy, I thought boric acid got rid of the yeastie beastie and my tender labia minora too. Until 2 weeks ago, I had a pretty bad case of allergic reaction (I don't know what the cause was), I got rashes on my face and my whole vulva itched for several days. After using antihistamines, my whole face went back to normal and my vulva was no longer itchy, but the vulvodynia came back... I have pain on the left side of my labia minora, all of it, and it hurts when touched. The skin there looks totally normal, no swelling, no redness at all. My vagina walls are normal, no pain.

Right now I'm on boric acid again (desperately try to stop the pain), but I don't know what else to do. Which creams should I use? Anyone who has similar problems can give me advice? Sad I have been to several gynos, and they all brushed it off and said the pain was all in my head because they didnt see anything abnormal. Like I said, in Vietnam this problem is not as well understood. I am thinking of going to maybe Singapore or China to meet a specialist.

I have been in a depressed state for 6 months. Any help would be much appreciated.

mtsp

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Re: Finally found a place for me...

Post  PainBlogger on Fri Jul 14, 2017 7:51 am

Have you ensured that you are not using any fragranced washing products (soaps, bath foam), detergents (including fabric softener), and sanitary towels? Also be careful with diet. Make sure your urine is not too acidic by avoiding citrus fruit juice, carbonated drinks, etc. Wear loose cotton underwear and avoid wearing underwear when sleeping. Those things can all help if you are not doing them already.

I'd be cautious about trying creams. Sometimes the preservatives/added ingredients can cause irritation. I hope you can find a specialist and get some relief soon.

PainBlogger

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Re: Finally found a place for me...

Post  mtsp on Mon May 21, 2018 4:08 am

hi PainBlogger!

thank you so much for your advice. I never use anything scented down there, and I always wash my hair bending down so the shampoo doesn't touch my vulva. my labia problem actually just disappeared one day, but then my perineum hurt. Sad it's provoked pain, and it's on the left perineal area. it feels a lot more sensitive than the right side. after year of using boric acid, my vagina has become very dry too, but primrose evening oil seems to help.
i'm going to see an acupuncturist to see whether they can help.

thank you so much. i hope you found relief too!

mtsp

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Re: Finally found a place for me...

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