Vulvodynia Support
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» Hope to all my suffering ladies
Finally found a place for me... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Finally found a place for me... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Finally found a place for me... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Finally found a place for me... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Finally found a place for me... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Finally found a place for me... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Finally found a place for me... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Finally found a place for me... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Finally found a place for me... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Finally found a place for me...

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Post  mtsp Mon Jul 10, 2017 11:47 am

Hi,

I am so glad I found this support group. I come from Vietnam, and in my country, vulvodynia is not something very commonly understood. I've always felt so left out before I decided to join this forum.

I had a resistant yeast infection 6 months ago, which did not go away with any drugs or anti-fungals I was prescribed. The symptoms would be alleviated for a week top and then came back with the discharge and everything. Two months ago I decided to try boric acid, and after 2 weeks, all my discharge and symptoms were gone! I was so happy. The soreness on my labia minora (only on my left side, no swelling, looks totally normal) was gone too. I thought my vulvodynia was due to the stubborn yeast infection and I was so happy, I thought boric acid got rid of the yeastie beastie and my tender labia minora too. Until 2 weeks ago, I had a pretty bad case of allergic reaction (I don't know what the cause was), I got rashes on my face and my whole vulva itched for several days. After using antihistamines, my whole face went back to normal and my vulva was no longer itchy, but the vulvodynia came back... I have pain on the left side of my labia minora, all of it, and it hurts when touched. The skin there looks totally normal, no swelling, no redness at all. My vagina walls are normal, no pain.

Right now I'm on boric acid again (desperately try to stop the pain), but I don't know what else to do. Which creams should I use? Anyone who has similar problems can give me advice? Sad I have been to several gynos, and they all brushed it off and said the pain was all in my head because they didnt see anything abnormal. Like I said, in Vietnam this problem is not as well understood. I am thinking of going to maybe Singapore or China to meet a specialist.

I have been in a depressed state for 6 months. Any help would be much appreciated.

mtsp

Posts : 2
Join date : 2017-07-10

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Post  PainBlogger Fri Jul 14, 2017 7:51 am

Have you ensured that you are not using any fragranced washing products (soaps, bath foam), detergents (including fabric softener), and sanitary towels? Also be careful with diet. Make sure your urine is not too acidic by avoiding citrus fruit juice, carbonated drinks, etc. Wear loose cotton underwear and avoid wearing underwear when sleeping. Those things can all help if you are not doing them already.

I'd be cautious about trying creams. Sometimes the preservatives/added ingredients can cause irritation. I hope you can find a specialist and get some relief soon.

PainBlogger

Posts : 219
Join date : 2015-07-27

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Post  mtsp Mon May 21, 2018 4:08 am

hi PainBlogger!

thank you so much for your advice. I never use anything scented down there, and I always wash my hair bending down so the shampoo doesn't touch my vulva. my labia problem actually just disappeared one day, but then my perineum hurt. Sad it's provoked pain, and it's on the left perineal area. it feels a lot more sensitive than the right side. after year of using boric acid, my vagina has become very dry too, but primrose evening oil seems to help.
i'm going to see an acupuncturist to see whether they can help.

thank you so much. i hope you found relief too!

mtsp

Posts : 2
Join date : 2017-07-10

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