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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Finally found a place for me...

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Finally found a place for me...

Post  mtsp on Mon Jul 10, 2017 11:47 am

Hi,

I am so glad I found this support group. I come from Vietnam, and in my country, vulvodynia is not something very commonly understood. I've always felt so left out before I decided to join this forum.

I had a resistant yeast infection 6 months ago, which did not go away with any drugs or anti-fungals I was prescribed. The symptoms would be alleviated for a week top and then came back with the discharge and everything. Two months ago I decided to try boric acid, and after 2 weeks, all my discharge and symptoms were gone! I was so happy. The soreness on my labia minora (only on my left side, no swelling, looks totally normal) was gone too. I thought my vulvodynia was due to the stubborn yeast infection and I was so happy, I thought boric acid got rid of the yeastie beastie and my tender labia minora too. Until 2 weeks ago, I had a pretty bad case of allergic reaction (I don't know what the cause was), I got rashes on my face and my whole vulva itched for several days. After using antihistamines, my whole face went back to normal and my vulva was no longer itchy, but the vulvodynia came back... I have pain on the left side of my labia minora, all of it, and it hurts when touched. The skin there looks totally normal, no swelling, no redness at all. My vagina walls are normal, no pain.

Right now I'm on boric acid again (desperately try to stop the pain), but I don't know what else to do. Which creams should I use? Anyone who has similar problems can give me advice? Sad I have been to several gynos, and they all brushed it off and said the pain was all in my head because they didnt see anything abnormal. Like I said, in Vietnam this problem is not as well understood. I am thinking of going to maybe Singapore or China to meet a specialist.

I have been in a depressed state for 6 months. Any help would be much appreciated.

mtsp

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Re: Finally found a place for me...

Post  PainBlogger on Fri Jul 14, 2017 7:51 am

Have you ensured that you are not using any fragranced washing products (soaps, bath foam), detergents (including fabric softener), and sanitary towels? Also be careful with diet. Make sure your urine is not too acidic by avoiding citrus fruit juice, carbonated drinks, etc. Wear loose cotton underwear and avoid wearing underwear when sleeping. Those things can all help if you are not doing them already.

I'd be cautious about trying creams. Sometimes the preservatives/added ingredients can cause irritation. I hope you can find a specialist and get some relief soon.

PainBlogger

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Join date : 2015-07-27

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