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» Finally found a place for me...
Yesterday at 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Vestibulectomy recovery question!

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Vestibulectomy recovery question!

Post  Kezz on Sun Jan 14, 2018 11:37 pm

Hi there,

I had a vestibulectomy done recently, end of October and got my stitches out after 8 weeks rather than 6. Anyway a couple of the stitches were done over my right labia, which as a result is now indented so it looks like there's been a couple of nips taken out of it! It's also still swollen looking, definitely bigger than it was before and not thin like my other labia. Has anyone experienced this? I just hope it goes down and back to normal size although it's been just under 5 weeks since I had the stitches out now. Any input would be appreciated. Thank you all xxx

Kezz

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Response

Post  stillinpain on Wed May 16, 2018 1:13 am

Hi there, it's been a few months and I'm wondering if you are still having this issue. I got the surgery myself in Nov and it took 9 weeks for the stitches to dissolve. I still have bumps from where they were and trying to get used to my new shape. Did the surgery work for you? I still can't tell yet if it did for me. It's taking so long to get me stretched back out again.

stillinpain

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Re: Vestibulectomy recovery question!

Post  Kezz on Thu May 17, 2018 11:11 pm

Hey hun, glad to hear you had the surgery Smile I bet it's worked for you. Where did you have it done? I've not been able to put mine to the test properly yet either but I did once when I was drunk lol. Seemed okay but the real test will be sober!! Ha. The labia never went back down to the normal size, it's still alot bigger than it was but I've actually gotten used to it now and it doesn't really bother much anymore. I'll take that any day over the hell I had for 10 years. I also think we're just so used to looking at our vagina's compared to most women that any change in appearance seems drastic and prob not even noticeable to someone else. I have some indents on the same labia too from the stitches and it can slightly sore to the touch but no biggy. The stitches are actually what made it swell up because they were so tight. Dr. Downey said it's a simple op to get that piece of labia removed if the indents are still sore in the future. She said it takes at least 6 months for things to settle down overall, but I feel like it'll be a bit more for me. I have pretty sensitive skin. Are your indents painful and are they on the labia too?

Xxx

Kezz

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Re: Vestibulectomy recovery question!

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