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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Vestibulectomy recovery question!

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Vestibulectomy recovery question!

Post  Kezz on Sun Jan 14, 2018 11:37 pm

Hi there,

I had a vestibulectomy done recently, end of October and got my stitches out after 8 weeks rather than 6. Anyway a couple of the stitches were done over my right labia, which as a result is now indented so it looks like there's been a couple of nips taken out of it! It's also still swollen looking, definitely bigger than it was before and not thin like my other labia. Has anyone experienced this? I just hope it goes down and back to normal size although it's been just under 5 weeks since I had the stitches out now. Any input would be appreciated. Thank you all xxx

Kezz

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Location : London, England

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Post  stillinpain on Wed May 16, 2018 1:13 am

Hi there, it's been a few months and I'm wondering if you are still having this issue. I got the surgery myself in Nov and it took 9 weeks for the stitches to dissolve. I still have bumps from where they were and trying to get used to my new shape. Did the surgery work for you? I still can't tell yet if it did for me. It's taking so long to get me stretched back out again.

stillinpain

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Re: Vestibulectomy recovery question!

Post  Kezz on Thu May 17, 2018 11:11 pm

Hey hun, glad to hear you had the surgery Smile I bet it's worked for you. Where did you have it done? I've not been able to put mine to the test properly yet either but I did once when I was drunk lol. Seemed okay but the real test will be sober!! Ha. The labia never went back down to the normal size, it's still alot bigger than it was but I've actually gotten used to it now and it doesn't really bother much anymore. I'll take that any day over the hell I had for 10 years. I also think we're just so used to looking at our vagina's compared to most women that any change in appearance seems drastic and prob not even noticeable to someone else. I have some indents on the same labia too from the stitches and it can slightly sore to the touch but no biggy. The stitches are actually what made it swell up because they were so tight. Dr. Downey said it's a simple op to get that piece of labia removed if the indents are still sore in the future. She said it takes at least 6 months for things to settle down overall, but I feel like it'll be a bit more for me. I have pretty sensitive skin. Are your indents painful and are they on the labia too?

Xxx

Kezz

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Re: Vestibulectomy recovery question!

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