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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hi from Scotland

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Hi from Scotland

Post  alanasomething on Thu Feb 17, 2011 5:09 am

Hello, I am new to this forum obviously, I was always too scared to join one. But now after nearly 4 years I feel completely alone and have ran out of ideas.

I've asked on so many websites that now I don't know what to post!

I'm 19, I've been in agony with what has been recently diagnosed as vulvodynia (went from IC, to over active bladder, to endometriosis, now to vulvodynia)

I feel like I have no one to talk to, ecpecially when my pain gets worse, all my family and boyfriend can say is "aw" and they don't and can't understand the pain.

I don't really know what I'm aiming for here! But hopefully I find some people to talk to!

Feel free to ask any questions etc, I know this is a bit vague! It's 5am and I'm in agony. Not a good sleep for me tonight I think cat
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Re: Hi from Scotland

Post  saskatownv on Thu Feb 17, 2011 6:03 am

Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

Smile - must be the pain medication talking..........lol

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Re: Hi from Scotland

Post  alanasomething on Thu Feb 17, 2011 6:11 am

saskatownv wrote:Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

Smile - must be the pain medication talking..........lol

Hello Smile
My name is Alana, hehe, although it wouldn't surprise me if I wrote Sam and didn't notice.

6 years? The thought of any more time like this depresses me. I don't want to live anymore. What do you do at this stage, when I'm tired of life like this?

I don't think I will make it to six years.

Sad
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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 1:21 pm

we are here for you
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Re: Hi from Scotland

Post  Sarah001 on Thu Feb 17, 2011 3:47 pm

Hi Alana, have you looked at the IC network forum? Alot of women with IC get vulvodynia and they both have a tight pelvic floor element so I'd guess physio for your pelvic floor is probably the way forward. I often find myself reading posts on there because alot of them mention vulvodynia and biofeedback. I can't remember the exact address, just google IC network and it should come up. There seems to be alot of women with other pelvic issues that get vulvodynia, far too many for it to be just coincidence.

Anyway, welcome to the forum!
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Re: Hi from Scotland

Post  naomi on Thu Feb 17, 2011 4:35 pm

here for you chick! we are going to get through this xxxxx
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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 7:42 pm


Hey Alana and welcome to the forum and our facebook group!

I can relate to not wanting to live with this anymore..some days I just feel I dont want to go on anymore

Its been over 2years for me with full blown constant pain, but have had VVS and Vaginismus since a teenager which has always made sex painful and tampons a no no

We are all here to help each other search for answers and treatments..If I had not started this forum I really dont know what my mental health would be like now! The girls are amazing I love you

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Re: Hi from Scotland

Post  Mouse on Thu Feb 17, 2011 10:22 pm

Right back at you Sebby flower And now for one of Naomi's group hugs!

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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 10:29 pm

sunny You know we'll get famous and they'll make a film about us one day!

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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 10:33 pm

Whos gonna play you Sebby?

..hmmm...Angelina Jolie? or ....?
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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 10:36 pm


Ummm well I bagsy Natalie Portman (wish I looked like her lol) She was great in V is for Vendetta...great film Smile oh V I just realised the link! Laughing

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Re: Hi from Scotland

Post  Mouse on Thu Feb 17, 2011 10:37 pm

Owww this might be a stretch but can Nicole Kidman play me... I've always wanted to be tall.

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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 10:44 pm

I want Thora Birch to play me...she was great in Ghost World Smile

Plus I really liked her wardrobe in that film ! Smile Smile
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Re: Hi from Scotland

Post  naomi on Mon Feb 21, 2011 10:07 pm

catherine zeta jones for me....just cuz we look so alike.

fnar fnarrrrr! *snorts*
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Re: Hi from Scotland

Post  Sebby (Admin) on Mon Feb 21, 2011 10:12 pm


bet you wouldnt sleep with Michael Douglas for all the chocolate in china (doesnt everything come from china?) he scares the hell outta me and I dunno why! Shocked

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Re: Hi from Scotland

Post  naomi on Mon Feb 21, 2011 10:31 pm

if i could have sex HELLLLLL YEHHHHHHHH!!!!! hahahaaaa Smile

actually, second thoughts, i dont think i could!

If michael said "naomi if you have sex with me i will cure your Lady la-la, no joke" YES YES YES!!! (put a bag over his head and think of england)
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Re: Hi from Scotland

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