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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

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Hi from Scotland

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Hi from Scotland

Post  alanasomething on Thu Feb 17, 2011 5:09 am

Hello, I am new to this forum obviously, I was always too scared to join one. But now after nearly 4 years I feel completely alone and have ran out of ideas.

I've asked on so many websites that now I don't know what to post!

I'm 19, I've been in agony with what has been recently diagnosed as vulvodynia (went from IC, to over active bladder, to endometriosis, now to vulvodynia)

I feel like I have no one to talk to, ecpecially when my pain gets worse, all my family and boyfriend can say is "aw" and they don't and can't understand the pain.

I don't really know what I'm aiming for here! But hopefully I find some people to talk to!

Feel free to ask any questions etc, I know this is a bit vague! It's 5am and I'm in agony. Not a good sleep for me tonight I think cat
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Re: Hi from Scotland

Post  saskatownv on Thu Feb 17, 2011 6:03 am

Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

Smile - must be the pain medication talking..........lol

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Re: Hi from Scotland

Post  alanasomething on Thu Feb 17, 2011 6:11 am

saskatownv wrote:Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

Smile - must be the pain medication talking..........lol

Hello Smile
My name is Alana, hehe, although it wouldn't surprise me if I wrote Sam and didn't notice.

6 years? The thought of any more time like this depresses me. I don't want to live anymore. What do you do at this stage, when I'm tired of life like this?

I don't think I will make it to six years.

Sad
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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 1:21 pm

we are here for you
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Re: Hi from Scotland

Post  Sarah001 on Thu Feb 17, 2011 3:47 pm

Hi Alana, have you looked at the IC network forum? Alot of women with IC get vulvodynia and they both have a tight pelvic floor element so I'd guess physio for your pelvic floor is probably the way forward. I often find myself reading posts on there because alot of them mention vulvodynia and biofeedback. I can't remember the exact address, just google IC network and it should come up. There seems to be alot of women with other pelvic issues that get vulvodynia, far too many for it to be just coincidence.

Anyway, welcome to the forum!
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Re: Hi from Scotland

Post  naomi on Thu Feb 17, 2011 4:35 pm

here for you chick! we are going to get through this xxxxx
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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 7:42 pm


Hey Alana and welcome to the forum and our facebook group!

I can relate to not wanting to live with this anymore..some days I just feel I dont want to go on anymore

Its been over 2years for me with full blown constant pain, but have had VVS and Vaginismus since a teenager which has always made sex painful and tampons a no no

We are all here to help each other search for answers and treatments..If I had not started this forum I really dont know what my mental health would be like now! The girls are amazing I love you

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Re: Hi from Scotland

Post  Mouse on Thu Feb 17, 2011 10:22 pm

Right back at you Sebby flower And now for one of Naomi's group hugs!

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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 10:29 pm

sunny You know we'll get famous and they'll make a film about us one day!

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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 10:33 pm

Whos gonna play you Sebby?

..hmmm...Angelina Jolie? or ....?
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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 10:36 pm


Ummm well I bagsy Natalie Portman (wish I looked like her lol) She was great in V is for Vendetta...great film Smile oh V I just realised the link! Laughing

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Re: Hi from Scotland

Post  Mouse on Thu Feb 17, 2011 10:37 pm

Owww this might be a stretch but can Nicole Kidman play me... I've always wanted to be tall.

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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 10:44 pm

I want Thora Birch to play me...she was great in Ghost World Smile

Plus I really liked her wardrobe in that film ! Smile Smile
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Re: Hi from Scotland

Post  naomi on Mon Feb 21, 2011 10:07 pm

catherine zeta jones for me....just cuz we look so alike.

fnar fnarrrrr! *snorts*
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Re: Hi from Scotland

Post  Sebby (Admin) on Mon Feb 21, 2011 10:12 pm


bet you wouldnt sleep with Michael Douglas for all the chocolate in china (doesnt everything come from china?) he scares the hell outta me and I dunno why! Shocked

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Re: Hi from Scotland

Post  naomi on Mon Feb 21, 2011 10:31 pm

if i could have sex HELLLLLL YEHHHHHHHH!!!!! hahahaaaa Smile

actually, second thoughts, i dont think i could!

If michael said "naomi if you have sex with me i will cure your Lady la-la, no joke" YES YES YES!!! (put a bag over his head and think of england)
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Re: Hi from Scotland

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