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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Hi from Scotland

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Hi from Scotland

Post  alanasomething on Thu Feb 17, 2011 5:09 am

Hello, I am new to this forum obviously, I was always too scared to join one. But now after nearly 4 years I feel completely alone and have ran out of ideas.

I've asked on so many websites that now I don't know what to post!

I'm 19, I've been in agony with what has been recently diagnosed as vulvodynia (went from IC, to over active bladder, to endometriosis, now to vulvodynia)

I feel like I have no one to talk to, ecpecially when my pain gets worse, all my family and boyfriend can say is "aw" and they don't and can't understand the pain.

I don't really know what I'm aiming for here! But hopefully I find some people to talk to!

Feel free to ask any questions etc, I know this is a bit vague! It's 5am and I'm in agony. Not a good sleep for me tonight I think cat
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Re: Hi from Scotland

Post  saskatownv on Thu Feb 17, 2011 6:03 am

Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

Smile - must be the pain medication talking..........lol

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Re: Hi from Scotland

Post  alanasomething on Thu Feb 17, 2011 6:11 am

saskatownv wrote:Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

Smile - must be the pain medication talking..........lol

Hello Smile
My name is Alana, hehe, although it wouldn't surprise me if I wrote Sam and didn't notice.

6 years? The thought of any more time like this depresses me. I don't want to live anymore. What do you do at this stage, when I'm tired of life like this?

I don't think I will make it to six years.

Sad
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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 1:21 pm

we are here for you
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Re: Hi from Scotland

Post  Sarah001 on Thu Feb 17, 2011 3:47 pm

Hi Alana, have you looked at the IC network forum? Alot of women with IC get vulvodynia and they both have a tight pelvic floor element so I'd guess physio for your pelvic floor is probably the way forward. I often find myself reading posts on there because alot of them mention vulvodynia and biofeedback. I can't remember the exact address, just google IC network and it should come up. There seems to be alot of women with other pelvic issues that get vulvodynia, far too many for it to be just coincidence.

Anyway, welcome to the forum!
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Re: Hi from Scotland

Post  naomi on Thu Feb 17, 2011 4:35 pm

here for you chick! we are going to get through this xxxxx
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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 7:42 pm


Hey Alana and welcome to the forum and our facebook group!

I can relate to not wanting to live with this anymore..some days I just feel I dont want to go on anymore

Its been over 2years for me with full blown constant pain, but have had VVS and Vaginismus since a teenager which has always made sex painful and tampons a no no

We are all here to help each other search for answers and treatments..If I had not started this forum I really dont know what my mental health would be like now! The girls are amazing I love you

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Re: Hi from Scotland

Post  Mouse on Thu Feb 17, 2011 10:22 pm

Right back at you Sebby flower And now for one of Naomi's group hugs!

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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 10:29 pm

sunny You know we'll get famous and they'll make a film about us one day!

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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 10:33 pm

Whos gonna play you Sebby?

..hmmm...Angelina Jolie? or ....?
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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 10:36 pm


Ummm well I bagsy Natalie Portman (wish I looked like her lol) She was great in V is for Vendetta...great film Smile oh V I just realised the link! Laughing

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Re: Hi from Scotland

Post  Mouse on Thu Feb 17, 2011 10:37 pm

Owww this might be a stretch but can Nicole Kidman play me... I've always wanted to be tall.

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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 10:44 pm

I want Thora Birch to play me...she was great in Ghost World Smile

Plus I really liked her wardrobe in that film ! Smile Smile
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Re: Hi from Scotland

Post  naomi on Mon Feb 21, 2011 10:07 pm

catherine zeta jones for me....just cuz we look so alike.

fnar fnarrrrr! *snorts*
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Re: Hi from Scotland

Post  Sebby (Admin) on Mon Feb 21, 2011 10:12 pm


bet you wouldnt sleep with Michael Douglas for all the chocolate in china (doesnt everything come from china?) he scares the hell outta me and I dunno why! Shocked

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Re: Hi from Scotland

Post  naomi on Mon Feb 21, 2011 10:31 pm

if i could have sex HELLLLLL YEHHHHHHHH!!!!! hahahaaaa Smile

actually, second thoughts, i dont think i could!

If michael said "naomi if you have sex with me i will cure your Lady la-la, no joke" YES YES YES!!! (put a bag over his head and think of england)
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Re: Hi from Scotland

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