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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Hi from Scotland

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Hi from Scotland

Post  alanasomething on Thu Feb 17, 2011 5:09 am

Hello, I am new to this forum obviously, I was always too scared to join one. But now after nearly 4 years I feel completely alone and have ran out of ideas.

I've asked on so many websites that now I don't know what to post!

I'm 19, I've been in agony with what has been recently diagnosed as vulvodynia (went from IC, to over active bladder, to endometriosis, now to vulvodynia)

I feel like I have no one to talk to, ecpecially when my pain gets worse, all my family and boyfriend can say is "aw" and they don't and can't understand the pain.

I don't really know what I'm aiming for here! But hopefully I find some people to talk to!

Feel free to ask any questions etc, I know this is a bit vague! It's 5am and I'm in agony. Not a good sleep for me tonight I think cat
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Re: Hi from Scotland

Post  saskatownv on Thu Feb 17, 2011 6:03 am

Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

Smile - must be the pain medication talking..........lol

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Re: Hi from Scotland

Post  alanasomething on Thu Feb 17, 2011 6:11 am

saskatownv wrote:Hi Sam. Im Sally. I had to leave a hockey game early tonight and took some back pain medication to relieve the pain. I hear ya sister. Its been maybe 6 years for me. Hang in there and keep looking for answers. Thats what Ive got from this forum.

Smile - must be the pain medication talking..........lol

Hello Smile
My name is Alana, hehe, although it wouldn't surprise me if I wrote Sam and didn't notice.

6 years? The thought of any more time like this depresses me. I don't want to live anymore. What do you do at this stage, when I'm tired of life like this?

I don't think I will make it to six years.

Sad
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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 1:21 pm

we are here for you
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Re: Hi from Scotland

Post  Sarah001 on Thu Feb 17, 2011 3:47 pm

Hi Alana, have you looked at the IC network forum? Alot of women with IC get vulvodynia and they both have a tight pelvic floor element so I'd guess physio for your pelvic floor is probably the way forward. I often find myself reading posts on there because alot of them mention vulvodynia and biofeedback. I can't remember the exact address, just google IC network and it should come up. There seems to be alot of women with other pelvic issues that get vulvodynia, far too many for it to be just coincidence.

Anyway, welcome to the forum!
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Re: Hi from Scotland

Post  naomi on Thu Feb 17, 2011 4:35 pm

here for you chick! we are going to get through this xxxxx
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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 7:42 pm


Hey Alana and welcome to the forum and our facebook group!

I can relate to not wanting to live with this anymore..some days I just feel I dont want to go on anymore

Its been over 2years for me with full blown constant pain, but have had VVS and Vaginismus since a teenager which has always made sex painful and tampons a no no

We are all here to help each other search for answers and treatments..If I had not started this forum I really dont know what my mental health would be like now! The girls are amazing I love you

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Re: Hi from Scotland

Post  Mouse on Thu Feb 17, 2011 10:22 pm

Right back at you Sebby flower And now for one of Naomi's group hugs!

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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 10:29 pm

sunny You know we'll get famous and they'll make a film about us one day!

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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 10:33 pm

Whos gonna play you Sebby?

..hmmm...Angelina Jolie? or ....?
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Re: Hi from Scotland

Post  Sebby (Admin) on Thu Feb 17, 2011 10:36 pm


Ummm well I bagsy Natalie Portman (wish I looked like her lol) She was great in V is for Vendetta...great film Smile oh V I just realised the link! Laughing

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Re: Hi from Scotland

Post  Mouse on Thu Feb 17, 2011 10:37 pm

Owww this might be a stretch but can Nicole Kidman play me... I've always wanted to be tall.

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Re: Hi from Scotland

Post  noni on Thu Feb 17, 2011 10:44 pm

I want Thora Birch to play me...she was great in Ghost World Smile

Plus I really liked her wardrobe in that film ! Smile Smile
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Re: Hi from Scotland

Post  naomi on Mon Feb 21, 2011 10:07 pm

catherine zeta jones for me....just cuz we look so alike.

fnar fnarrrrr! *snorts*
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Re: Hi from Scotland

Post  Sebby (Admin) on Mon Feb 21, 2011 10:12 pm


bet you wouldnt sleep with Michael Douglas for all the chocolate in china (doesnt everything come from china?) he scares the hell outta me and I dunno why! Shocked

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Re: Hi from Scotland

Post  naomi on Mon Feb 21, 2011 10:31 pm

if i could have sex HELLLLLL YEHHHHHHHH!!!!! hahahaaaa Smile

actually, second thoughts, i dont think i could!

If michael said "naomi if you have sex with me i will cure your Lady la-la, no joke" YES YES YES!!! (put a bag over his head and think of england)
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Re: Hi from Scotland

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