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» 7 months since the diagnosis
Will there be an end? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Will there be an end? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Will there be an end? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Will there be an end? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Will there be an end? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Will there be an end? EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Will there be an end? EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Will there be an end? EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Will there be an end? EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Will there be an end?

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Will there be an end? Empty Will there be an end?

Post  Krista2828 on Fri Apr 27, 2018 12:06 am

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious if pregnancy has eradicated the condition all together. My gyno said once that he had a patient whose went away completley and that she was pregnant.

Krista

Krista2828

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Post  sarisbaris on Fri Apr 27, 2018 12:43 pm

Yes, there is an end. I had V for 15 years (3-4 years of flares, 8 years my vagina was too hot, 3 years of flares) All were unprovoked. I'm cured now. I know my healing is rare especially on this forum but it doesn't have to be. The viruses we have aren't fully understand by conventional docs and most alternative ones. They are not super strong. Once you understand them and know how to kill them you'll start making progress. Please check out my blog. I explain everything. I've been helping women for some time now because it's the right thing to do.

http://myvulvodyniacure.blogspot.com/

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Post  lightmonte on Sat Apr 28, 2018 11:38 am

Yes, you can make it! I was there, and it was defeating, and horrible, and hopeless - but I was determined to try everything possible, and just keep at it for a while! little by little, with Lidocain, dialators, healthier eating, massage, osteopathic treatment, gabapentin and just working on it consistently for a longer time (took me in total ~1y - 1.5y from when I decided I can and will do it, in total I had it for ~5-6y. I had tried "everything" at some point and was defeated, but then went more steadily and stuck with each thing longer and it started getting better). It can be done, it's frustrating and there might be different things working for you, but it can be done. I almost can't believe it myself to be honest, but I went from not being able to use tampons because of the pain to having pain-free sex. Stick with it, be stubborn! You're the only one who can solve this, and you can do it. Might take a long while, but don't give up!

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Post  Krista2828 on Sun Apr 29, 2018 5:36 am

Lightmonte,

Do you sill take the gabapentin or are you cured? I worry a lot about the combo of my ambien and gabapentin and what its doing to me. I have never had a great memory to start, and have always been a little clumsy but over the recent years I have been more clumsy and more forgetful.

Frankly though, the gabapentin has given me for the most part my life back. Couldn't have survived this far without it.

Thanks for the inspiration that it can and WILL get better. I am 2 years in with Vestibulitus.


Krista2828

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Post  pussycat on Sun Apr 29, 2018 6:57 pm

I do not know about pregnancy, whether it will help or not with V. Sounds like your doctor tried to push/lure you into bringing more children into this world. What if your doctor is wrong? You will have a child and you will still be in agonizing pain from V. Not a very nice idea and on top of it, then, you will have to take care of the child.

But i know that trying eating foods, that do not contain high and medium amount of oxalate can totally heal you. I have been there myself with V, i was even bedridden. But i made myself free from all symptoms within about a month! No tablets, no NAET, no acupuncture, no strange or fancy treatments were needed, just a strict low oxalate diet, that's all! I am glad to say now i eat whatever i want and no V.

Just wanted to help, cos it can be done.

Have a nice day.

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Post  Krista2828 on Tue May 01, 2018 12:03 am

Pussycat,

I don't think my doc was necessarily pushing me that way. I asked him if anyone had ever been cured and he said yes and started talking about a woman who was cured and now pregnant. I think it was my little desperate mind thinking maybe something about a fetus and stem cells could fix me.

I need a ring from the boyfriend before we do all that!

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Post  pussycat on Tue May 01, 2018 12:59 pm

Krista2828, i would not "jump" so fast on a pregnancy wagon. You are still very young. Wait until you and your boyfriend get married first. At lest then, if you and him get divorced, he will support your child. Also i myself would not make a child out of marriage as it is considered fornication.

Best regards.

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