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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Will there be an end?

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Will there be an end?

Post  Krista2828 on Fri Apr 27, 2018 12:06 am

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious if pregnancy has eradicated the condition all together. My gyno said once that he had a patient whose went away completley and that she was pregnant.

Krista

Krista2828

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Re: Will there be an end?

Post  sarisbaris on Fri Apr 27, 2018 12:43 pm

Yes, there is an end. I had V for 15 years (3-4 years of flares, 8 years my vagina was too hot, 3 years of flares) All were unprovoked. I'm cured now. I know my healing is rare especially on this forum but it doesn't have to be. The viruses we have aren't fully understand by conventional docs and most alternative ones. They are not super strong. Once you understand them and know how to kill them you'll start making progress. Please check out my blog. I explain everything. I've been helping women for some time now because it's the right thing to do.

http://myvulvodyniacure.blogspot.com/

sarisbaris

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Re: Will there be an end?

Post  lightmonte on Sat Apr 28, 2018 11:38 am

Yes, you can make it! I was there, and it was defeating, and horrible, and hopeless - but I was determined to try everything possible, and just keep at it for a while! little by little, with Lidocain, dialators, healthier eating, massage, osteopathic treatment, gabapentin and just working on it consistently for a longer time (took me in total ~1y - 1.5y from when I decided I can and will do it, in total I had it for ~5-6y. I had tried "everything" at some point and was defeated, but then went more steadily and stuck with each thing longer and it started getting better). It can be done, it's frustrating and there might be different things working for you, but it can be done. I almost can't believe it myself to be honest, but I went from not being able to use tampons because of the pain to having pain-free sex. Stick with it, be stubborn! You're the only one who can solve this, and you can do it. Might take a long while, but don't give up!

lightmonte

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Re: Will there be an end?

Post  Krista2828 on Sun Apr 29, 2018 5:36 am

Lightmonte,

Do you sill take the gabapentin or are you cured? I worry a lot about the combo of my ambien and gabapentin and what its doing to me. I have never had a great memory to start, and have always been a little clumsy but over the recent years I have been more clumsy and more forgetful.

Frankly though, the gabapentin has given me for the most part my life back. Couldn't have survived this far without it.

Thanks for the inspiration that it can and WILL get better. I am 2 years in with Vestibulitus.


Krista2828

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Re: Will there be an end?

Post  pussycat on Sun Apr 29, 2018 6:57 pm

I do not know about pregnancy, whether it will help or not with V. Sounds like your doctor tried to push/lure you into bringing more children into this world. What if your doctor is wrong? You will have a child and you will still be in agonizing pain from V. Not a very nice idea and on top of it, then, you will have to take care of the child.

But i know that trying eating foods, that do not contain high and medium amount of oxalate can totally heal you. I have been there myself with V, i was even bedridden. But i made myself free from all symptoms within about a month! No tablets, no NAET, no acupuncture, no strange or fancy treatments were needed, just a strict low oxalate diet, that's all! I am glad to say now i eat whatever i want and no V.

Just wanted to help, cos it can be done.

Have a nice day.

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Re: Will there be an end?

Post  Krista2828 on Tue May 01, 2018 12:03 am

Pussycat,

I don't think my doc was necessarily pushing me that way. I asked him if anyone had ever been cured and he said yes and started talking about a woman who was cured and now pregnant. I think it was my little desperate mind thinking maybe something about a fetus and stem cells could fix me.

I need a ring from the boyfriend before we do all that!

Krista2828

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Re: Will there be an end?

Post  pussycat on Tue May 01, 2018 12:59 pm

Krista2828, i would not "jump" so fast on a pregnancy wagon. You are still very young. Wait until you and your boyfriend get married first. At lest then, if you and him get divorced, he will support your child. Also i myself would not make a child out of marriage as it is considered fornication.

Best regards.

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Re: Will there be an end?

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