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» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Will there be an end?

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Will there be an end?

Post  Krista2828 on Fri Apr 27, 2018 12:06 am

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious if pregnancy has eradicated the condition all together. My gyno said once that he had a patient whose went away completley and that she was pregnant.

Krista

Krista2828

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Re: Will there be an end?

Post  sarisbaris on Fri Apr 27, 2018 12:43 pm

Yes, there is an end. I had V for 15 years (3-4 years of flares, 8 years my vagina was too hot, 3 years of flares) All were unprovoked. I'm cured now. I know my healing is rare especially on this forum but it doesn't have to be. The viruses we have aren't fully understand by conventional docs and most alternative ones. They are not super strong. Once you understand them and know how to kill them you'll start making progress. Please check out my blog. I explain everything. I've been helping women for some time now because it's the right thing to do.

http://myvulvodyniacure.blogspot.com/

sarisbaris

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Re: Will there be an end?

Post  lightmonte on Sat Apr 28, 2018 11:38 am

Yes, you can make it! I was there, and it was defeating, and horrible, and hopeless - but I was determined to try everything possible, and just keep at it for a while! little by little, with Lidocain, dialators, healthier eating, massage, osteopathic treatment, gabapentin and just working on it consistently for a longer time (took me in total ~1y - 1.5y from when I decided I can and will do it, in total I had it for ~5-6y. I had tried "everything" at some point and was defeated, but then went more steadily and stuck with each thing longer and it started getting better). It can be done, it's frustrating and there might be different things working for you, but it can be done. I almost can't believe it myself to be honest, but I went from not being able to use tampons because of the pain to having pain-free sex. Stick with it, be stubborn! You're the only one who can solve this, and you can do it. Might take a long while, but don't give up!

lightmonte

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Re: Will there be an end?

Post  Krista2828 on Sun Apr 29, 2018 5:36 am

Lightmonte,

Do you sill take the gabapentin or are you cured? I worry a lot about the combo of my ambien and gabapentin and what its doing to me. I have never had a great memory to start, and have always been a little clumsy but over the recent years I have been more clumsy and more forgetful.

Frankly though, the gabapentin has given me for the most part my life back. Couldn't have survived this far without it.

Thanks for the inspiration that it can and WILL get better. I am 2 years in with Vestibulitus.


Krista2828

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Re: Will there be an end?

Post  pussycat on Sun Apr 29, 2018 6:57 pm

I do not know about pregnancy, whether it will help or not with V. Sounds like your doctor tried to push/lure you into bringing more children into this world. What if your doctor is wrong? You will have a child and you will still be in agonizing pain from V. Not a very nice idea and on top of it, then, you will have to take care of the child.

But i know that trying eating foods, that do not contain high and medium amount of oxalate can totally heal you. I have been there myself with V, i was even bedridden. But i made myself free from all symptoms within about a month! No tablets, no NAET, no acupuncture, no strange or fancy treatments were needed, just a strict low oxalate diet, that's all! I am glad to say now i eat whatever i want and no V.

Just wanted to help, cos it can be done.

Have a nice day.

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Re: Will there be an end?

Post  Krista2828 on Tue May 01, 2018 12:03 am

Pussycat,

I don't think my doc was necessarily pushing me that way. I asked him if anyone had ever been cured and he said yes and started talking about a woman who was cured and now pregnant. I think it was my little desperate mind thinking maybe something about a fetus and stem cells could fix me.

I need a ring from the boyfriend before we do all that!

Krista2828

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Re: Will there be an end?

Post  pussycat on Tue May 01, 2018 12:59 pm

Krista2828, i would not "jump" so fast on a pregnancy wagon. You are still very young. Wait until you and your boyfriend get married first. At lest then, if you and him get divorced, he will support your child. Also i myself would not make a child out of marriage as it is considered fornication.

Best regards.

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Re: Will there be an end?

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