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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Will there be an end?

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Will there be an end?

Post  Krista2828 on Fri Apr 27, 2018 12:06 am

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious if pregnancy has eradicated the condition all together. My gyno said once that he had a patient whose went away completley and that she was pregnant.

Krista

Krista2828

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Re: Will there be an end?

Post  sarisbaris on Fri Apr 27, 2018 12:43 pm

Yes, there is an end. I had V for 15 years (3-4 years of flares, 8 years my vagina was too hot, 3 years of flares) All were unprovoked. I'm cured now. I know my healing is rare especially on this forum but it doesn't have to be. The viruses we have aren't fully understand by conventional docs and most alternative ones. They are not super strong. Once you understand them and know how to kill them you'll start making progress. Please check out my blog. I explain everything. I've been helping women for some time now because it's the right thing to do.

http://myvulvodyniacure.blogspot.com/

sarisbaris

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Re: Will there be an end?

Post  lightmonte on Sat Apr 28, 2018 11:38 am

Yes, you can make it! I was there, and it was defeating, and horrible, and hopeless - but I was determined to try everything possible, and just keep at it for a while! little by little, with Lidocain, dialators, healthier eating, massage, osteopathic treatment, gabapentin and just working on it consistently for a longer time (took me in total ~1y - 1.5y from when I decided I can and will do it, in total I had it for ~5-6y. I had tried "everything" at some point and was defeated, but then went more steadily and stuck with each thing longer and it started getting better). It can be done, it's frustrating and there might be different things working for you, but it can be done. I almost can't believe it myself to be honest, but I went from not being able to use tampons because of the pain to having pain-free sex. Stick with it, be stubborn! You're the only one who can solve this, and you can do it. Might take a long while, but don't give up!

lightmonte

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Re: Will there be an end?

Post  Krista2828 on Sun Apr 29, 2018 5:36 am

Lightmonte,

Do you sill take the gabapentin or are you cured? I worry a lot about the combo of my ambien and gabapentin and what its doing to me. I have never had a great memory to start, and have always been a little clumsy but over the recent years I have been more clumsy and more forgetful.

Frankly though, the gabapentin has given me for the most part my life back. Couldn't have survived this far without it.

Thanks for the inspiration that it can and WILL get better. I am 2 years in with Vestibulitus.


Krista2828

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Re: Will there be an end?

Post  pussycat on Sun Apr 29, 2018 6:57 pm

I do not know about pregnancy, whether it will help or not with V. Sounds like your doctor tried to push/lure you into bringing more children into this world. What if your doctor is wrong? You will have a child and you will still be in agonizing pain from V. Not a very nice idea and on top of it, then, you will have to take care of the child.

But i know that trying eating foods, that do not contain high and medium amount of oxalate can totally heal you. I have been there myself with V, i was even bedridden. But i made myself free from all symptoms within about a month! No tablets, no NAET, no acupuncture, no strange or fancy treatments were needed, just a strict low oxalate diet, that's all! I am glad to say now i eat whatever i want and no V.

Just wanted to help, cos it can be done.

Have a nice day.

pussycat

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Re: Will there be an end?

Post  Krista2828 on Tue May 01, 2018 12:03 am

Pussycat,

I don't think my doc was necessarily pushing me that way. I asked him if anyone had ever been cured and he said yes and started talking about a woman who was cured and now pregnant. I think it was my little desperate mind thinking maybe something about a fetus and stem cells could fix me.

I need a ring from the boyfriend before we do all that!

Krista2828

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Re: Will there be an end?

Post  pussycat on Tue May 01, 2018 12:59 pm

Krista2828, i would not "jump" so fast on a pregnancy wagon. You are still very young. Wait until you and your boyfriend get married first. At lest then, if you and him get divorced, he will support your child. Also i myself would not make a child out of marriage as it is considered fornication.

Best regards.

pussycat

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Re: Will there be an end?

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