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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Which birth control should I choose to be on that won't make my Vulvodynia worse?

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Which birth control should I choose to be on that won't make my Vulvodynia worse?

Post  Olivia D on Tue Jun 12, 2018 1:31 pm

Hello all! I am new here. I would like some advice. I was diagnosed with Vulvodynia when I was 17. After a year of mental anguish, doctors telling my mother I am mentally ill and what not, needing a therapist, looking for attention, etc. I was finally heard and directed to a vulvar clinic. I was diagnosed with Vulvodynia and Vulvar Vestibulitis. I was put on Gabapentin 3x a day 900mgs. It actually worked and I had no problems, went off of it for like two years and it came back with a vengeance. I lost my virginity when I was 21. It actually didn't hurt, and I was fine, up until I started the Depo shot. Sex became very PAINFUL!!!! I wanted to cry, I felt intense burning and pain, the whole nine. I noticed it was when I went on Depo that sex became painful and it came back and has stayed with me. i can't take gabapentin anymore because for some reason my body doesn't do well with it. I get so nauseous and I eat with it. I puked so much from it. I use to take that on an empty stomach and have just drowsiness, but obviously my body doesn't like it now Sad No matter what I do! Sad

So, this may seem crazy, but I felt I had more flare ups and more pain being on Depo. It's also weird because I feel like I need a period. When I got my period I actually felt "relieved" with my vulvodynia. For some odd reason my pain would come about like a week before my period, but when I got it, everything was fine and normal again. I asked my doctor what other BC methods would work, but they keep saying just because I was on Depo doesn't mean the Nexplanon will have the same side effects. I feel it would because it's progestrone, and Depo is the same thing. I don't know if Nexplanon will be better? Or if I need a BC that will produce a period? Like the pill or the patch? I tried the copper IUD the one with no hormones in it, my body rejected the IUD and it was extreme cramping that I couldn't deal with. Unfortunately that didn't work out to my favor because that would be the best option.

What do you suggest? And do you think my theory is crazy that maybe birth control makes your condition worse? I don't know what to do, and the doctors who specialize in this don't seem to answer my questions, so I will go to my fellow sufferers of this condition and see what you all think. Thank you so much for reading, and you have my deepest sympathy and love for dealing with this horrid condition. Xoxo.

Olivia D

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Re: Which birth control should I choose to be on that won't make my Vulvodynia worse?

Post  emalita on Tue Jun 12, 2018 4:08 pm

Here's a good article I had read in the past about the pill and its hormone destroying connection (don't worry, it's not written by Dr. Oz).


Many women find a link between hormonal birth control and vulvodynia. So honestly, I wouldn't recommend any of them if you've had issues in the past.

You mentioned you can't take Gabapentin anymore, but have you tried it as a compounded cream (non-alcohol base) that gets applied directly to your vulva? That's how my gynecologist wrote my Rx for it (I never used it though for other reasons I won't go into here).


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