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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Sex toys etc ;)

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Sex toys etc ;)

Post  Sebby (Admin) on Sat Feb 26, 2011 10:53 pm


Ok here are the links to the stuff Dr Glazer recommended

http://www.vulvodynia.com/Store/Store%20Main.htm - scroll down to the bottom to see the scorpio rising dildo, it comes in different sizes - to use instead of hard plastic dilators, silicone is recommded material for all dildos

http://evesgarden.com/adult_sex_toys/Dildos/ - again scroll down the scorpio rising is cheaper on this site


http://evesgarden.com/Magic-Wand.html - this is the Magic Wand yes expensive but is recommended as the frequencies do not irritate the clitoras

http://www.amazon.com/Let-Count-Ways-Discovering-Intercourse/dp/0874779561 - the book recommeded for great sex without intercourse

Right Im blowing this months wages on sex toys... hehe



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Re: Sex toys etc ;)

Post  Sebby (Admin) on Sat Feb 26, 2011 11:36 pm


Note: for girls in the uk you can get the Magic Wand on Amazom.co.uk as Eves garden only ships to us or canada

It is advertised as a massager and I think originally was made for this but its become quite famous for its use as a sex toy that is comfortable and not so intense as the average vibrators

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Re: Sex toys etc ;)

Post  Mouse on Sat Feb 26, 2011 11:48 pm

I'm loving your new hobby!!!

Can I also add that once you get comfortable with yourself SEX will change forever! WHY sex is still a male dominated pass time I don't know, they could have sex with a hole in the ground. Learning to love yourself is the greatest gift of all! Hahhaaa I wonder if that was the true intention of that song???


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Re: Sex toys etc ;)

Post  Sebby (Admin) on Sat Feb 26, 2011 11:56 pm


Laughing Im looking forward to receiving my ordered Magic Wand! oh and I have orderd the book 'Let me Count the Ways' (typed count at first missing out the o!!) Cor dear lol

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Re: Sex toys etc ;)

Post  Mouse on Sun Feb 27, 2011 12:16 am

Hahhahaaaa I don't usually use LOL but I actually did laugh out loud! Your morning tea breaks at work are going to interesting love!

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Re: Sex toys etc ;)

Post  naomi on Sun Feb 27, 2011 11:07 am

'they could have sex with a hole in the ground'

hahaaaaaaaaaa! my housemates asked me why i was giggling to myself in my room!!! hilarious!!

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Prefer hard plastic

Post  toosore on Mon Jul 23, 2012 8:06 pm

No silicone for me! It's way too much friction against tissues that are already sore. My toys are hard plastic, as smooth as possible, and lots of lubrication, as little rubbing and pulling on the skin as possible. I can't imagine how anyone with vulvar pain would want to use silicone products. I wanted to buy a glass vibrator, but alas, the only one in the shop was way too big for sore me! I use one called "my first anal toy" - it's very thin (about 1/2 inch diameter) and hard plastic, so not too much painful stretching or pulling on the skin with penetration. This is for pleasure, not pain, and not physio! A woman without pain would probably find such a small toy to be quite inadequate, but it works for me....

Thanks for the book title - my local public library actually has a copy! I can't wait to read it!


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Re: Sex toys etc ;)

Post  Qu_789 on Sat Apr 30, 2016 11:04 pm

Hi,

Just wondered whether people found the book- lets count the ways- useful as a guide for sexual intimacy without penetration?

Thanks

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Re: Sex toys etc ;)

Post  Sebby (Admin) on Sat Jun 04, 2016 8:02 pm

Hey,

I am about to delve into 'Lets Count the Ways' with my hubby. I have read the first part which is about how sex is not just about penetration. It's aiming to reframe the way people think about sex which I think is a really positive.

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Re: Sex toys etc ;)

Post  Suzie on Wed Jul 27, 2016 12:30 am

@toosore, where did u purchase your toy? I'm sure l need the smallest toy possible!

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Re: Sex toys etc ;)

Post  emtx on Thu Jul 28, 2016 11:03 pm

Thanks for posting! Will have to look at these and get some. Smile

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Re: Sex toys etc ;)

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