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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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Sex toys etc ;)

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Sex toys etc ;)

Post  Sebby (Admin) on Sat Feb 26, 2011 10:53 pm


Ok here are the links to the stuff Dr Glazer recommended

http://www.vulvodynia.com/Store/Store%20Main.htm - scroll down to the bottom to see the scorpio rising dildo, it comes in different sizes - to use instead of hard plastic dilators, silicone is recommded material for all dildos

http://evesgarden.com/adult_sex_toys/Dildos/ - again scroll down the scorpio rising is cheaper on this site


http://evesgarden.com/Magic-Wand.html - this is the Magic Wand yes expensive but is recommended as the frequencies do not irritate the clitoras

http://www.amazon.com/Let-Count-Ways-Discovering-Intercourse/dp/0874779561 - the book recommeded for great sex without intercourse

Right Im blowing this months wages on sex toys... hehe



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Re: Sex toys etc ;)

Post  Sebby (Admin) on Sat Feb 26, 2011 11:36 pm


Note: for girls in the uk you can get the Magic Wand on Amazom.co.uk as Eves garden only ships to us or canada

It is advertised as a massager and I think originally was made for this but its become quite famous for its use as a sex toy that is comfortable and not so intense as the average vibrators

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Re: Sex toys etc ;)

Post  Mouse on Sat Feb 26, 2011 11:48 pm

I'm loving your new hobby!!!

Can I also add that once you get comfortable with yourself SEX will change forever! WHY sex is still a male dominated pass time I don't know, they could have sex with a hole in the ground. Learning to love yourself is the greatest gift of all! Hahhaaa I wonder if that was the true intention of that song???


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Re: Sex toys etc ;)

Post  Sebby (Admin) on Sat Feb 26, 2011 11:56 pm


Laughing Im looking forward to receiving my ordered Magic Wand! oh and I have orderd the book 'Let me Count the Ways' (typed count at first missing out the o!!) Cor dear lol

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Re: Sex toys etc ;)

Post  Mouse on Sun Feb 27, 2011 12:16 am

Hahhahaaaa I don't usually use LOL but I actually did laugh out loud! Your morning tea breaks at work are going to interesting love!

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Re: Sex toys etc ;)

Post  naomi on Sun Feb 27, 2011 11:07 am

'they could have sex with a hole in the ground'

hahaaaaaaaaaa! my housemates asked me why i was giggling to myself in my room!!! hilarious!!

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Prefer hard plastic

Post  toosore on Mon Jul 23, 2012 8:06 pm

No silicone for me! It's way too much friction against tissues that are already sore. My toys are hard plastic, as smooth as possible, and lots of lubrication, as little rubbing and pulling on the skin as possible. I can't imagine how anyone with vulvar pain would want to use silicone products. I wanted to buy a glass vibrator, but alas, the only one in the shop was way too big for sore me! I use one called "my first anal toy" - it's very thin (about 1/2 inch diameter) and hard plastic, so not too much painful stretching or pulling on the skin with penetration. This is for pleasure, not pain, and not physio! A woman without pain would probably find such a small toy to be quite inadequate, but it works for me....

Thanks for the book title - my local public library actually has a copy! I can't wait to read it!


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Re: Sex toys etc ;)

Post  Qu_789 on Sat Apr 30, 2016 11:04 pm

Hi,

Just wondered whether people found the book- lets count the ways- useful as a guide for sexual intimacy without penetration?

Thanks

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Re: Sex toys etc ;)

Post  Sebby (Admin) on Sat Jun 04, 2016 8:02 pm

Hey,

I am about to delve into 'Lets Count the Ways' with my hubby. I have read the first part which is about how sex is not just about penetration. It's aiming to reframe the way people think about sex which I think is a really positive.

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Re: Sex toys etc ;)

Post  Suzie on Wed Jul 27, 2016 12:30 am

@toosore, where did u purchase your toy? I'm sure l need the smallest toy possible!

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Re: Sex toys etc ;)

Post  emtx on Thu Jul 28, 2016 11:03 pm

Thanks for posting! Will have to look at these and get some. Smile

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