Vulvodynia Support
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    » Hope to all my suffering ladies
    We have our own domain  name! :) EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    We have our own domain  name! :) EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    We have our own domain  name! :) EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    We have our own domain  name! :) EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    We have our own domain  name! :) EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    We have our own domain  name! :) EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    We have our own domain  name! :) EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    We have our own domain  name! :) EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    We have our own domain  name! :) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    We have our own domain name! :)

    3 posters

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    We have our own domain  name! :) Empty We have our own domain name! :)

    Post  Sebby (Admin) Wed Mar 02, 2011 10:35 pm


    Hi all

    We now have our own domain name

    www.vulvodyniasupportforum.com

    The forum can still be accessed via the old address and is still hosted by forumotion

    A google search still seems to throw up the old address but will have to email forumotion to find out how to sort that????

    Oh and I've applied the same header picture as the one on the facebook group

    I feel more professional already! Laughing
    Sebby (Admin)
    Sebby (Admin)
    Admin

    Posts : 750
    Join date : 2009-12-03
    Age : 43
    Location : London UK

    https://vulvodyniasupport.forumotion.net

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    Post  naomi Thu Mar 03, 2011 1:55 am

    wow Sebby u really are the queen of vulvas!! thats ace!!
    naomi
    naomi
    Moderator

    Posts : 262
    Join date : 2010-04-09
    Location : Cheltenham

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    Post  naomi Thu Mar 03, 2011 1:56 am

    i'll get my mate to have a look for us, hes a web designer. I told him not to read our posts though as he is shy with ladies things Smile
    naomi
    naomi
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    Posts : 262
    Join date : 2010-04-09
    Location : Cheltenham

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    Post  Sarah001 Thu Mar 03, 2011 2:40 pm

    Have you submitted the new domain to google Sebby? If not you need to to get it on as quickly as possible but even then it can take a few weeks for their web crawlers to pick up on it so submit it and be patient! To submit google "free submit to google" to find the link to do this, submitting it in as many places as possible also increases your chances and will get the site noticed more.
    Sarah001
    Sarah001

    Posts : 1164
    Join date : 2010-06-11
    Age : 50
    Location : UK

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    Post  Sebby (Admin) Sun Mar 06, 2011 10:42 am


    Have submitted it to google, bing, yahoo and another directory Smile will have to wait and hope the new address gets added to their listings
    Sebby (Admin)
    Sebby (Admin)
    Admin

    Posts : 750
    Join date : 2009-12-03
    Age : 43
    Location : London UK

    https://vulvodyniasupport.forumotion.net

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