Support Group in Manchester or North West

Hi Ladies

Im new to here but have been suffering from Vulvodynia for a year now with my symptoms being bad since last August.

Ive been looking for support groups in the North West and cant find any active ones.

I for one have never met anyone with this condition and I know it would massively help me to meet other women and see how they deal with it.

Im just really trying to find out if there is anyone in the North West who would be interested me.

There may already be one set up I am unaware of I would love to join.

Thanks

Michele

xx

Hi,
Just seen your post.I kept trying to find out when the group in Manchester/north East was meeting.Can't even remember who or what it was called got fed up seeing 'coming soon' for this group.Found this support group and secret facebook group which have been life savers!! Sebby ( admin on this site can get you on facebook group not sure if i can i am crap on computers etc) I live in Leeds How about you? Take care xxx

Hi Helen

Thanks for your reply.

I live in Manchester but am from Leeds originally. Do you see specialists in Leeds. Im looking to find someone in Leeds?

Ive just joined here and its seems like a life saver, I wish I had found it sooner!

Ive sent a request for the fb site so just waiting to hear back

Michele
xxx

Hi Michelle
Welcome to the forum! I am very new here but I've already discovered lots of tips and advice, wish I had found it sooner, too. Take care x

Hi Michele, A bit complicated re: my gyno moving and the rest.Here is my e mail address so you can get in touch with me for more info helen.mcinnes@googlemail.com
Helen xxx

Hello,

Just to let you know i'm in East Manchester (near Saddleworth) if you're ever interested in having a meet up!

I admittedly feel like a bit of a fraud on this forum as my vulvodynia is nowhere near as bad as some on here, although it still seems bad to me, i do feel like a lucky one, even though this condition just came out of the blue and i was a perfectly normal sexually active 17 - 21/22 year old before it and sometimes i have felt like my life might as well be over because of it, i would give anything for a cure (not my husband or cats but almost anything else!! Definitely all the chocolate and sweets in the world!).

Get in touch if you want, either on here or email me, my address is hannah21n@hotmail.com.

Hannah x

P.S can someone help me get on the secret facebook?? i can pm my name etc.

Thanks x

Now listen very carefully.... you just email sebby who is the admin and in charge of all things secretive. Ask her what her hobby is. If that fails email Naomi.

See you on the other side.

Vicki

heheeee mouse u do crack me up....'see you on the other side' so cryptic put a smile on my otherwise pissy looking face today

haha! Vicki! you cant tell everyone my hobby!

I have sent a friend request to hoping so we will see her soon *opens portal* (cue twilight zone music)

Oh and I wanted to add that no-one is a fraud on this site (well apart from the person trying to sell us handbags!)

This forum is for anyone with 'vulval pain' as this is what Vulvodynia means...from itching, to soreness to burning with or without provocation..mild or severe.. in other words if ya vulvar dont feel right then this is the site for you!